First I want to thank all of you for your support. It really means so much for me to know there are other people who understand how difficult this has been.
I went back in yesterday and got the results for my second AFTP. The numbers were higher than the first. Not good news. They did an amnio and I am just waiting on those results, which should come today or tomorrow. The second Level II ultrasound didn't tell us much this time around, only that there was something going on in the brain (fluid and large head) and possibly something going on in the lower back. I will post another update when we get our amnio back. Thanks again, ladies, for everything. It means so much to hear your personal stories and your comforting words in this difficult time.
I don't know if any of you have had experience with this, but I never dreamed this would happen.
I went in last Thursday for my regular Dr. appt. and the nurse asked if I had had a quad done. I asked her what it was, and she just said "it's a blood test that we do between 16 and 18 weeks." I thought it was normal, so I just went with it. Yesterday, my nurse calls me five times telling me I need to call her ASAP because they had gotten the results from the quad and they were high. Unfortunately, I got the message after she had left, so I had to call today. Since I was seeing a specialist today for two ovarian cysts, she explained to me that they were also doing a level II ultrasound to also look at the baby, but not to worry. Right!
Anyway, after seeing the specialist and doing the ultrasound, the Dr. says he sees two of the three of the five factors (including the bloodwork) present for Spina Bifida. Most of the evidence is in the brain (enlarged and abnormally shaped head and fluid around the brain). Then he starts talking about what that could mean for the child: severe physical disabilities or paralysis, difficulty with processing and motor skills, uncontrollable bowls, etc. I'm devastated! They redid the AFP and want to do another Level II next week. He said his very last option would be an amnio and only if I wanted it.
Has anyone ever had any experience with this? I just don't know what to do.