Relactating, need advice, plus SNS issues, dom dosing, etc, etc - Mothering Forums
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#1 of 10 Old 01-18-2011, 06:18 PM - Thread Starter
 
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I posted a thread awhile back and am coming back with new questions.  I will spare the long and nasty health history of my DD3, but we quit nursing at 4 months and I quit pumping a month later after a failed breast milk trial. This was after 2 months of failed TEDs which we now are figuring out was probably due to a severe eosinophilic disorder vs allergy.  This has been SUCH a devastating ride for me.  DD1 nursed 4 years, and DD2 for 2.5 yrs until DD3 came.  She became so violently ill while nursing and no change helped at all.  She has thrived on an elemental diet and at 8 months tolerates no food, and eats just Neocate.  The Drs believe we are looking at an eosinophilic disorder. Most the Drs I have taked to that specialize in this tell me that part of the time babies can tolerate breastmilk with no diet change by mom, sometimes with mom eliminating some trigger foods, and sometimes they just don't tolerate it at all.  4 months of screaming placed DD in the just dont tolerate it club.  I have kicked around trying to relactate for last couple months.  Yesterday I spoke with a specialist that had a couple patients that eventually were able to tolerate BM that mom had frozen.  So I have decided to give relactating a shot and see if we can make that work.  I just feel like I need to give it a final go, as the emotional toll that parenting without nursing has taken on me.  This whole process, with a sick all the time baby, no nursing, etc, is really sucking the life out of me.  I feel like I need to focus on something positive even if she can't tolerate it, SOOOO.....here is where I am...

Haven't nursed her exclusively in 4.5 months.  Haven't nursed at all in 3.5 months.  Haven't pumped for 2.5 months. I can express a single tiny drop when I try.  I have a stack of domperidone, fenugreek, blessed thistle, alfalfa, mothers milk tea and oatmeal here.  I own a SNS that irritates the heck out of DD.  BUT...she latches on just fine. Since I started entertaining the idea, I have let her latch on for a short time each night when she is half asleep and looking for a binky.  She will latch on when awake too, until she realized she won't get anything, then she just laughs at me. :) 

 

So my challenges...because of her condition, I can't really use the SNS as my supply builds.  I need to get enough to be able to feed her at one time, the document the reaction.  I DO have a freezer full of milk labeled "milk/soy free:, "big 8 free" and "TED" milk.  So I am contemplating giving her some of that as the trial to see how she does.  Can I relacted taking sups and pumping like crazy, until I can get her back to the breast and know it wont make her sick? (or that is does and be done)/  I do have a hospital grade pump here.

 

Any thoughts, experience, etc, would be great.  If it matters, my DD2 was born in Nov 07, nursed until DD3 came....so my body had been lactating for 3+ years when I quit pumping. I hopeit remembers. :)

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#2 of 10 Old 01-21-2011, 01:39 PM
 
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No personal experience here, but just wanted to give you kudos and support.  Some women do start inducing lactation prior to adoption, attempting to build their milk supply (or at least jump-start) before baby arrives.  So yes, definitely, galactogogues and pumping like crazy until you can get baby to the breast.  And then you'll have some milk there to encourage her to nurse more frequently.

 

Have you talked to an IBCLC with experience relactating?  It might help to form a plan with someone.  There are probably suggestions at lowmilksupply.org and fourfriends.com (adoptive breastfeeding website) that would help. 

 

Have you heard of power pumping?  Keep your pump equipment set up somewhere central and squeeze in short pumping sessions (like 5 minutes) whenever you can throughout the day.  Still include several long pumping sessions, but this more closely mimics how a breastfed baby would really nurse, with some long/some short, irregularly spaced sessions. 

 

Good luck to you!


Cheri
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#3 of 10 Old 01-21-2011, 02:39 PM
 
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hug2.gif Wishing you and your sweet babe success, hon.

Sara 

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#4 of 10 Old 01-21-2011, 03:32 PM - Thread Starter
 
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Thanks for the replies. I was actually on the fence until I left the moron GI Dr's office today.  First, he is admittedly antibreastfeeding because he can't control the variable.  Keeping that in mind....we still don't know what is going on with her.  We can't find out if it is an eosinophilic disorder without feeding her a bunch of stuff that will make her sick, then rescope.  He gave another med for "comfort", told me to move her to another room and let her CIO and that it doesnt matter if every food makes her puke, scream and refuse feedings for 3 days..."it's not like she is 18 months and malnourished".   So...if he cant tell me why she shouldnt, then who is to say that something in her system hasnt changed in the last 4 months?  Dont get me wrong...moving to Neocate 4 months ago was the right move. She was so sick.  3 months of diet mod and 2 months of TED made no difference.  We HAD to do something and that helped. She developmentally caught back up, etc.  i DO, However, regret not continuing to pump longer. 

 

Anyway, honestly, I am aiming to nurse her again if for no other reason than to walk into the Ped Gi and tell him to stick it.  I started the Dom, Fenugreek and Blessed Thistle.  In all likelihood, I will be able to do 4x long pumping sessions and 5-10 sessions for just a few minutes.  She HATES the SNS.  And I tried some "clean" frozen BM in a bottle today, and she wouldn't take it.  Nor half and half.  I did get it down her 1oz BM to 3oz Neocate.  Which is funny since Neocate taste VIAL.  So I plan to keep dropping in a little BM from my last TED. Mainly because if she crashes and burns fast, then I can tap out.  As long as she does well, I will keep upping the BM to Neocate ratio.  I am going to keep trying the SNS, but thus far it just irritated her. 

 

The good news it that she will twilight latch and hand out there.  When she dozes at the bottle I can move her to the breast and she dozes off there.  So I am going to try and do that at night as much as possible.  If she is awake, she latches, sucks a sec, then bites me and smiles. :)

 

I did call the local LLL leader and she is calling me in the morning.  I am so very defeated after today's appt with the GI. I've never felt so compelled to prove someone wrong in my life.

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#5 of 10 Old 01-21-2011, 05:44 PM
 
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Sending you love and support and wishing that you prove that guy wrong!

 

Have you started domperidone yet? I found this by googling and actually like it better than Jack Newman's dom info sheet: http://www.jgh.ca/documents/81/Domperidone_Jan_5_2010.pdf

 

They stay to start low with 1 pill 4 times a day. I like that because dom can give headaches, and this way your body can adapt and then you can increase.

 

Whatever happens, please feel free to stop back here for support. The GI doc is a UA violation, and you are amazing to be coping so well with a sick baby and two other children! I'm so glad to hear your babe is doing better. I remember how frantic you were and how much distress she was in. hug2.gif

 

 

 

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#6 of 10 Old 01-23-2011, 08:54 AM
 
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Iam also trying to relactate.  Hoping you get more tips. You can do this!


Angela married to the love of my life Mommy to Summer Hailey and Evan
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#7 of 10 Old 01-23-2011, 09:13 AM
 
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I'm about to start a relactation journey of my own! Lots of love and support!

Cloth diapering, intactivist, babywearing, SAHM to DS with severe eczema born 10/17/09!!Attempting to relactate!
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#8 of 10 Old 01-23-2011, 12:32 PM - Thread Starter
 
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Thanks for the replies and support!  Is there a "relactating support thread"?  If not, anyone interested in one?

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#9 of 10 Old 01-30-2011, 12:30 PM
 
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I am DEFINITELY interested in a relactating thread. :)


Angela married to the love of my life Mommy to Summer Hailey and Evan
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#10 of 10 Old 02-02-2011, 05:00 AM
 
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Oh it’s great to read about others trying to relactated! My story is long with lots of ups and downs but I’m still working hard for a second chance.

My third child was born 11 weeks ago, and for medical reasons I stopped breastfeeding 4 days after birth and was so unhappy about it. They gave me Dostinex to stop (I don’t know if it’s known in the US, I live in Switzerland) . With the help of a lacation counsler I learned that even while taking the drogs I needed to take for this chronical condition I have, I could still nurse my baby. So I started to nurse again, with no more milk in my breasts and with a baby that had and still has a nipple confusion, that makes nursing so painfull and leaves me with cracked and swollen nipples all the time.

I still don’t have enough milk to nurse exclusively, but I’m still hoping and trying. I take domperidone and fenugreek, and I think they work.

 

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