Previous Herpes Lesion on Nipple - Now pregnant with # 2 - Mothering Forums

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#1 of 13 Old 03-09-2012, 02:27 AM - Thread Starter
 
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Hi everyone,

 

I'm new here but am looking to see if anyone has had a similar experience? I have a daughter who is 2.5years and who contracted oral herpes (cold sore virus) from her babysitter when she 18 mos old. I was still nursing her at the time and before we had her diagnosed, I managed to contract the virus on my right nipple (I think because I had never been exposed to the virus before?). At the time, I was only nursing from my right side (I know that's strange, just happened over time due to co-sleeping position). 

 

I am now 9 weeks pregnant with #2, and although it's still early, I am VERY stressed out about this as herpes infection in a newborn can be devastating and fatal. I nursed my daughter until this past January and wholeheartedly believe in nursing. LLL and BabyCenter say it's ok to nurse if you don't have an active lesion but I have to say that I think it would be hard to tell the difference between a normal milk, friction blister from nursing and a herpes blister. The herpes lesion I had seemed to be like other blisters initially in terms of pain and appearance but took a week to go away instead of a few days and scabbed over. So I know it had to be that.

 

Has anyone had this experience and gone on to nurse a subsequent child? I feel rather helpless as I know breastfeeding is so important for a baby but obviously do not want to do anything to endanger his or her health.

 

I have read some older posts on this subject. Not sure if those moms are still around to comment. I've been talking to all of my doctors here to figure out if my left side is safe.

 

Any thoughts or recommendations? I have contacted LLL about it and they have said I need to talk directly to a specialist. So am trying to find one here in the UK. Am hoping my daughter's pediatrician might refer me to one next week when I see him.

 

 

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#2 of 13 Old 03-12-2012, 02:05 AM - Thread Starter
 
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Anyone?? I am really the only one with this issue?

 

Are there any moms who have breastfed babies or toddlers with a cold sore?

 

Thanks!

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#3 of 13 Old 03-12-2012, 05:16 AM
 
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I have no experience, but I am sure someone does. Keep asking (just bump this thread) and you'll get some answers.

 

hug2.gif

 

(PS. At least you have one breast that you know is herpes free - that will allow you to nurse full time on that breast if you had to. But hopefully you don't!)

 

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#4 of 13 Old 10-04-2013, 02:36 AM
 
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Hi Luvmybeans. I have found myself in exactly the same position as you!! I am extremely anxious and cant find anyone with any answers. I have had conflicting information from GP's and I am now beginning to lack confidence in them since one GP told me that the Coldsore virus is not dangerous to a new baby when clearly it can be.  I feel so lost and sad right now. I was wondering if you have found any specialist information here in the UK?  If so I would be extremely grateful if you could direct me to someone who will be able to help.  My daughter caught the virus from another child  at age 11 months and we did not know what it was until a week later when I presented symptoms on my right nipple (I was still nursing her at the time) and had a swab which confirmed HSV1 virus. It was so painful that I could not even express milk and therefore was forced to wean her completely. I have always wondered if my left side would be safe to feed my next baby as I feel too anxious to take the risk of feeding from my right. I really hope to here back from you regarding this and would love to know what you did? 

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#5 of 13 Old 10-04-2013, 03:46 AM - Thread Starter
 
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I'm so glad I got this email notification. My babyboo I did end up talking to an infectious disease pediatrician here in London and he encouraged me to breastfeed from both sides BUT I was too nervous to do it. It's true that your baby will have your antibodies but these are not 100% protective 100% of the time - and nobody seems to know why. the consensus is that a herpes infection in the first 4 weeks of life can be devestating. All of my GPs and my OB and the lactation consultant said to nurse from both sides -they didn't think it was possible to nurse from one side from birth.

But guess what! It is! I did it and am nursing my almost 12-month old as I type this. I've only nursed her from my left side. It was a little painful the first week as I was really engorged on the right side but did relieve it a bit with pumping. I've never had a recurrence on my right side.

I also inquired about taking acyclovir during the first 4 weeks but the ped didn't think it was a good idea as some does get through to your milk. Though I think I may have pushed it more if I was nursing from my right side.

The docs who pass off the cold sore virus as not being dangerous to newborns need to do their research. Most doctors have never seen a case of neonatal herpes so maybe that's why. I'd look for a pediatician who has experience or a specialty in infectious disease for a consultation.

But it is totally possible to nurse from one side. Hang in there!!
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#6 of 13 Old 10-04-2013, 03:50 AM - Thread Starter
 
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You know what, I'm going to contact my ped and the infectious disease doctor that I spoke with and see if they'd be open to emailing with you. Are you in London? Close to London? I never saw the infectious disease pediatrician but spoke on the phone with him and emailed my list of questions. Maybe you could do the same or even see him in person? If you send me your email (can you do that privately somehow?) I could send you all of their info.

Did you only have an outbreak on one side or on both?
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#7 of 13 Old 10-04-2013, 03:50 AM - Thread Starter
 
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You know what, I'm going to contact my ped and the infectious disease doctor that I spoke with and see if they'd be open to emailing with you. Are you in London? Close to London? I never saw the infectious disease pediatrician but spoke on the phone with him and emailed my list of questions. Maybe you could do the same or even see him in person? If you send me your email (can you do that privately somehow?) I could send you all of their info.

Did you only have an outbreak on one side or on both?
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#8 of 13 Old 10-04-2013, 03:51 AM - Thread Starter
 
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You know what, I'm going to contact my ped and the infectious disease doctor that I spoke with and see if they'd be open to emailing with you. Are you in London? Close to London? I never saw the infectious disease pediatrician but spoke on the phone with him and emailed my list of questions. Maybe you could do the same or even see him in person? If you send me your email (can you do that privately somehow?) I could send you all of their info.

Did you only have an outbreak on one side or on both?
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#9 of 13 Old 10-04-2013, 03:51 AM - Thread Starter
 
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You know what, I'm going to contact my ped and the infectious disease doctor that I spoke with and see if they'd be open to emailing with you. Are you in London? Close to London? I never saw the infectious disease pediatrician but spoke on the phone with him and emailed my list of questions. Maybe you could do the same or even see him in person? If you send me your email (can you do that privately somehow?) I could send you all of their info.

Did you only have an outbreak on one side or on both?
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#10 of 13 Old 10-04-2013, 03:56 AM - Thread Starter
 
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Sorry - didn't mean to post that 3 times!
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#11 of 13 Old 10-04-2013, 07:12 AM
 
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I'm so happy to hear from you! Thank you so much for taking the time to respond.  Its reassuring to know that i'm not the only one finding myself in this position. and wow,  well done with feeding on the one side that's amazing! I would love to pass on my email, I'm not sure how to private message you yet as I am new here? I only presented blisters on my right side and went on taking a course of acyclovir which seemed to bring it to a halt. I have been talking to my sister about the possibility of feeding on my left side but we were both a bit concerned of the possibility that a reoccurrence  might appear there even if I didn't present symptoms there last time. soo many questions going through my head. right now.  I'm in the southwest about 2 hours from London. My GP has written to a viral specialist and a neonatal feeding specialist as I have pushed for more information but I am yet to hear back from them. Thank you again :)

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#12 of 13 Old 10-04-2013, 07:30 AM
 
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Apparently there are restrictions for private messaging and you have to be a member for at least 24hours before you can access this so I will try again tmr eve.

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#13 of 13 Old 10-04-2013, 09:41 AM - Thread Starter
 
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Sounds good! Glad to be of some help and/or reassurance!
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