How did you get your IGT diagnosis? (x-posted in breastfeeding) - Mothering Forums

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#1 of 13 Old 09-04-2008, 11:41 AM - Thread Starter
 
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If you have been diagnosed with IGT (Insufficient Glandular Tissue) how did you get your diagnosis? Did you have to get a mammogram to confirm?

I suspect that I might have IGT. I have only ever produced a tiny amount of milk (i.e., about 1/4-1/2 ounce), despite adjusting thyroid medication (I have hypothyroidism), pumping, taking herbal supplements, using assistive devices, etc. I'm still nursing my almost 9-month-old, but only for comfort. Still, I am thankful to have that relationship with him. (He is supplemented for obvious reasons.)

Anyway, my breasts do meet most of the superficial criteria for having IGT: small, never changing in size during pregnancy, relatively widely spaced, etc. But I'd like to confirm this officially so that I can be better prepared (emotionally and physically) for my next child.

Thanks!
Karen

K(h)aren. Writing/editing mama to my quixotic Sam (12.07) and my intrepid William (01.11).

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#2 of 13 Old 09-04-2008, 12:37 PM
 
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Two LCs seemed comfortable diagnosing IGT b/c of all the characteristics you mentioned, and the fact that we'd tried everything, and nothing worked. EXCEPT goat's rue, which built breast tissue and increased my supply 50%. Also I have a family history of PCOS, which is related, tho I myself do not have it.

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#3 of 13 Old 09-04-2008, 12:50 PM - Thread Starter
 
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Wow! Thanks. I am so glad the goat's rue worked for you. I did not try that, and I wish I had, as my son is starting to self-wean now--he just doesn't seem as interested in comfort nursing since I started him on solids.

Anyway, I appreciate your response! My best to you!

K(h)aren. Writing/editing mama to my quixotic Sam (12.07) and my intrepid William (01.11).

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#4 of 13 Old 09-04-2008, 04:26 PM
 
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Sorry, I had to cut off short earlier. I can understand your wanting a definitive diagnosis, but my sense has been that it's unusual to do actual "testing" to determine IGT - perhaps b/c it's not something an LC can do?

I do have a recommendation... One of the LCs I talked to is coming out with a new book called Making More Milk. She's an expert on IGT and low supply, and part of the book is about preparing for next time. Here's a link:

http://www.makingmoremilk.com/

Congratulations on making comfort nursing work - I hope things go even better for you next time!

*** DH (wed 5/03), DD (6/07), and DS (8/11)
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#5 of 13 Old 09-04-2008, 04:50 PM - Thread Starter
 
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This is perfect. Thanks so much!

I am actually working on a feature story on this subject (I'm a freelance writer): situations in which mothers desperately want to breastfeed but are not physically able to make enough milk. I realize that many situations and conditions could fall within this realm, but I am specifically interested in
relating my story and similar stories in which medical conditions played a roll.

It would be great to contact the authors to see if they'd be interested in being interviewed. I'm hoping to pitch this story idea to Mothering!

I was so devastated that my breasts weren't "working" that I think it contributed greatly to some PPD issues I had, and my depression made it nearly impossible for me to do this research in the immediate postpartum. I'm doing it now so that I can be better prepared next time--and I think others might benefit from this information.

I also want women to know that a wonderful nursing relationship can still exist even if you have no or little milk to give your child. My greatest teacher in all of this was my son, who despite my feeling like my body had failed me, kept coming back to my breast day after day.

K(h)aren. Writing/editing mama to my quixotic Sam (12.07) and my intrepid William (01.11).

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#6 of 13 Old 09-04-2008, 11:20 PM
 
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Most women with hypoplastic tubular breasts will end up having IGT. There are pictures of this on the internet and it goes along with hormonal issues including PCOS (though other manifestations of PCOS may involve large breasts and oversupply.)

My sister has hypoplastic tubular breasts, didn't have full blown PCOS though many of the symptoms and couldn't nurse. She never could even express more than three drops of milk.
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#7 of 13 Old 09-05-2008, 11:00 AM
 
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I wish that book was coming out sooner! I'm not sure I want to wait till Dec, since baby could come in January.

I just basically dx myself. I've never had breast changes, never gotten engorged at birth, nothing has ever made me increase my supply, but I'm going to try the goat's rue this time. I'm going to make an appt soon w/ the bfing medicine specialist at the bfing clinic here. A friend of mine asked about PCOS as well and I do have some of those symptoms, but not the more prominent ones like irregular af and infertility.

Jennifer, LPN and nursing student, Doula, CPST, and VBAC mama x3 to
AJ (5/03), Evan (12/04), Ilana (11/06), Olivia (2/09), and Unity (8/2012)

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#8 of 13 Old 09-05-2008, 12:07 PM
 
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I was diagnosed by two different LC's (one checking with the other to confirm). I do have the wide spaced breasts that are lacking "fullness" for lack of a better term, they didn't grow during pregnancy.. I was only able to pump about 1/4-1/2 oz total from BOTH breasts even before nursing... I was on reglan, herbal supplements (I did not know about goats rue at the time), pumping, using an sns,etc... It was exhausting physically and emotionally, I did end up on antideppressants for almost a year after her birth.. I'm thankful now that I know ahead of time I will never be able to nurse exclusively, I'm also planning on trying to keep as much of a supply as I can next time without running myself go the ground again..

I'm sorry you're dealing with this as well :

btw, that book is a wonderful idea! I've bookmarked the page I may want to buy a copy before we have another child.

wife of 8 years to DH geek.gif, mama to DD blahblah.gif (2006) & DS jog.gif (2011) angel1.gif (Dec. 2012) rainbow1284.gif due Nov. 2013 

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#9 of 13 Old 09-05-2008, 02:57 PM
 
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[QUOTE=thepeach80;12110553]I wish that book was coming out sooner! I'm not sure I want to wait till Dec, since baby could come in January.

the author/LC I talked with recommended taking alfalfa supplements during pregnancy and starting goat's rue during the last month... just a tidbit that maybe you could use now while you wait

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#10 of 13 Old 09-05-2008, 06:14 PM
 
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Quote:
Originally Posted by justthinkn View Post

the author/LC I talked with recommended taking alfalfa supplements during pregnancy and starting goat's rue during the last month... just a tidbit that maybe you could use now while you wait
Alflfa is so grassy though, lol. I took it at the end of my pgcy w/ Evan? and I just remember how huge they were! I've heard contradicting things about the goat's rue in pgcy so that's why I needed to talk to my bfing DR. Thanks. I'm really hoping I can find something. We weren't planning on another baby and bfing was part of why, it's an awful feeling to not be able to ebf when you want to.

Jennifer, LPN and nursing student, Doula, CPST, and VBAC mama x3 to
AJ (5/03), Evan (12/04), Ilana (11/06), Olivia (2/09), and Unity (8/2012)

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#11 of 13 Old 09-05-2008, 06:31 PM
 
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Uh-oh - if taste is a big deal to you, you'll hate goat's rue - it's AWFUL! Tho I took it so long I got used to it

*** DH (wed 5/03), DD (6/07), and DS (8/11)
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#12 of 13 Old 09-05-2008, 11:12 PM
 
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I diagnosed myself with hypoplastic tubular breasts, IGT, whatever we want to call it, I've got it. My Dr and several LC's I went to knew nothing of tubular breasts and the 3rd LC, I think, confirmed the IGT but had no herbal supplement knowledge:. I think that's how I found my way to the Mothering board was searching online for answers. Well, that's one thing I can thank IGT for. I wish there had been a book out 6 years ago because I went through mental and physical hell and back with the agony of hardly producing any BM for my 1st babe.

Fortunately or unfortunately, you're definitely not alone, check out the "Gosh, this sucks" thread. Anyways I've gone through 3 DS's with IGT and managed to nurse the first for 6mths, 2nd for 1yr, and 3rd am still nursing, and had to supplement all 3. I took Goat's Rue(the pills!!) the last 6 weeks of my 3rd pregnancy and another mom on MDC I think took it her whole last trimester. I spoke with Motherlove about Goat's Rue and they said the only side affect during pregnancy is breakthrough bleeding, and I had none. I also took Domperidone with my last 2 DS's and am now taking shatavari, it's much cheaper. I don't know what did and didn't work but with each babe I doubled my supply and before you go wow, I'm now producing about .5oz per side per pump/feed. This 3rd pregnancy though was the only one where I felt my milk come in, got engorged a little and leaked:.

Yes, please get this story out!!! I wish it could be splashed across every newspaper and sent to every midwife, ob/gyn, LC!! We must stop forcing women to diagnose themselves and risk PPD trying to come to terms with it!

Thanks for letting me vent some more...and I thought I was over it...

Proud mama to three bouncing unschooled boys:, Ian5/02, Connor9/04, and Andrew1/08!:::: Milk Donors!familybed2.gifwaterbirth.jpghomeschool.gifselectivevax.gifdizzy.gif

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#13 of 13 Old 09-05-2008, 11:48 PM
 
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Quote:
Originally Posted by thepeach80 View Post
Alflfa is so grassy though, lol. I took it at the end of my pgcy w/ Evan? and I just remember how huge they were! I've heard contradicting things about the goat's rue in pgcy so that's why I needed to talk to my bfing DR. Thanks. I'm really hoping I can find something. We weren't planning on another baby and bfing was part of why, it's an awful feeling to not be able to ebf when you want to.
You can get alfalfa to make tea out of. I especially like it mixed with nettle. Another thing you might want to consider is getting your placenta encapsulated. There is evidence that it helps increase milk supply, and I swear when I take those pills I get more than when I don't (I still have some saved).
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