At the end of our rope... - Page 4 - Mothering Forums
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#91 of 102 Old 02-09-2007, 06:55 PM - Thread Starter
 
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Just got back from the x-ray...everything checked out okay...

As far as the money...yes, it's better to spend it and find an answer, but what do you do when you DON'T have any to spend? KWIM It just feels like we keep getting shuffled from doctor to doctor and nobody knows anything and then we end up paying for nothing.

i am awaiting my blood test results.

i checked out the yahoo group on EE and have found it quite interesting and scary!! i pray that this is not what we're dealing with...

Mama to DD 06' Partner to Sasa
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#92 of 102 Old 02-09-2007, 07:00 PM
 
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I'm glad the xray was ok. What were they looking for with that? Was it of her whole body?

I don't have time right now, but there are ways to get money for healthcare when you have enough not to qualify for medicaid, but not enough to actually get help.

What industry/kind of work does your husband do? You?
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#93 of 102 Old 02-10-2007, 12:41 AM
 
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that's all.

Doing my best every day with DH , DD (11) , and DS (4)

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#94 of 102 Old 02-10-2007, 09:06 PM - Thread Starter
 
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Quote:
Originally Posted by mamaverdi View Post
I'm glad the xray was ok. What were they looking for with that? Was it of her whole body?

I don't have time right now, but there are ways to get money for healthcare when you have enough not to qualify for medicaid, but not enough to actually get help.

What industry/kind of work does your husband do? You?

x-ray was looking for any type of abnormality in her abdomen (a twist in the intestines or something) that could cause pain.

My husband is a computer programmer. I am a SAHM, former full-time student and private piano instructor.

Mama to DD 06' Partner to Sasa
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#95 of 102 Old 02-10-2007, 11:43 PM
 
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An xray probably won't see that. A CT scan would. Also a swallow study, upper GI, or upper endoscopy.

PM me about what kind of programming your dh does, company he works for, what the software does. I will ask my dh. We know of some foundations that help people with healthcare needs by giving them grants. But it's usually by industry.
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#96 of 102 Old 02-11-2007, 12:03 AM
 
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Just wanted to offer more encouragement and support. I know how it is with doctors and the whole shuffle...

Best of luck on your search for answers.
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#97 of 102 Old 02-13-2007, 04:35 PM
 
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just a little bump to see how things are going........

megin

Mommy to an amazing 8 year old, wife to an inspiring principal, and welcoming Wylie Grace! Our July 4th babe!
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#98 of 102 Old 02-15-2007, 03:52 PM - Thread Starter
 
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Just wanted to update everyone. Dd is not happy today, so I don't have much time to type. Below is what I posted in the Healing the Gut tribe. It will at least give you an idea of what's going on More later...


Quote:
I posted awhile ago about the issues we are having with dd (5 months) and "her" allergies. I haven't been posting in this thread for a bit because I was waiting for my "leaky gut" test to arrive from Genova Diagnostics and was waiting to take it and get the results.

Well, I got the results and my ND was shocked. Apparently the lactulose levels were something like 4.6 (when they should be under 1.2?) but my mannitol levels were just slightly high. The doctor at the labs actually wanted to know if I had been to any foreign countries and could have picked something up in the water to cause such high results

So, apparently it's pretty bad.

Here's my question: (And I know most everyone on this board believes that "breast is best" and so forth...so didn't I, but please put your opinions on that issue aside and tell me what you think we should do from a medical stand point.)

Dd's symptoms are getting worse. Her sleep is getting worse (I get 3-4 hours total per 24 hours). She is miserable, I am miserable.

Would it be beneficial for her to go on an elemental formula (Neocate, etc.) since I am dealing with this? THere's no telling if she has it too, right? Wouldn't the elemental formula allow her gut to heal if she does have leaky gut?

I'm at a loss here. I don't know what to do, but I do know what's happening now isn't working.


Another question:
What should I be doing? I'm working with my ND on this one, but are there "leaky gut" specialists? The lab wants a stool sample too to rule out any bacteria, etc. as a possible source for my high levels on the LG test.

Any help would be GREATLY appreciated!!

I must go now and try to get dd to sleep again!

Mama to DD 06' Partner to Sasa
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#99 of 102 Old 02-16-2007, 04:49 PM
 
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not popular advice on here.. but I personally would try a neocate trial (and pump to keep your supply up). Nothing to lose, IMO. If it doesn't work then you just go back to nursing.

I don't know anything about leaky gut but when I google I see that it's not a diagnosis that everyone puts weight in.

Please keep us posted.

FWIW - I am nursing a dairy and soy allergic baby. I had planned to do an elimination diet and if it didn't work I was going to do a neocate trial.

DS (6.06), DD (10.08), DD (05.11).

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#100 of 102 Old 02-16-2007, 05:03 PM
 
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Does anyone know what is in Neocate, like the actual ingredients? I'm wondering if this is something the OP could even put her daughter on. When my son was reacting to everything and I took 40 foods out of both of our diets (before we healed or leaky guts) it was recommended to me to look at this stuff and it was full of stuff he couldn't have It wasn't an option.

And leaky gut is just starting to get recognized by mainstream doctors. Those of us w/leaky gut, have already recognized it. In fact, the last time I was at the vets he had all this information on his wall on leaky gut and its causes, its symtoms and how to heal the gut--funny how most MDs don't know.
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#101 of 102 Old 02-17-2007, 04:31 AM
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Lots of suggestions!
I was noticing that the baby does sleep when you bounce on a ball in your arms. My DD was the same way. So, for sake of sanity, I bought an Amby bed, which is a bassinet on a spring, and it's like a bouncing hammock bed. We put it next to our bed and we just bounced her to sleep, and it works like if they start moving, they bounce themselves back to sleep. Or, you can just reach over and bounce for a while while laying in bed yourself... It sure worked for us. Our baby has a hard time falling to sleep on still surfaces. This bed worked wonders...But I do try to make her nap on our bed, so it is not foreign to her in the future... good luck!
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#102 of 102 Old 02-17-2007, 02:04 PM
 
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I didn't read that you said the babe would only sleep on the ball. My 5 yr old (w/the aforementioned leaky gut from hell) would only do that. We would bounce him for hours to get him to bed and sometimes in the middle of the night. Well, I totally forgot that we had to do that, so at least in couple of years you will forget this whole thing

I'm so glad you posted on the Healing the Gut thread. I'm so jealous that you have this information now, vs when my son was 4. I could have changed his diet so much and caused him less suffering :
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