We are actually members of our local H&V :-) I have also been on the board of our local AG Bell chapter. This has provided me with lots of information and knowledge but just haven't really found peers whose kiddos are both d/hh and
School districts? We too have considered home schooling and will do so through preschool, at the very least. We intentionally moved into the "correct" school district for a child with hearing loss.
The kicker is we live in the same area as the state deaf school so there is A LOT of debate with regard to mode of communcation in and around our area. It's difficult to find people that are truly without bias. I think my learning ASL has helped to bridge a gap between myself and other deaf adults but that doesn't change every opinioniated mind.
We do have a wonderful AVT who has been most helpful but she isn't what I would consider a peer. I want to talk to other Mama's who are totally frustrated with ear molds and sound booths! LOL While lots of parents could sympathize I don't want to have to explain a sound booth experience. I just want to say something like, "arggghh we had the worst time in the sound booth today and our regular audiologist was out sick" and have the person on the other end completely understand.
Another bit about education, I don't have a whole lot of faith in traditional American public schooling. I think our children are unchallenged and grossly under estimated and that placing children in school based upon age is doing nothing but harm. I think this just results in children being unprepared for life and unprepared for further education. How on earth can we all expect every child to succeed if they aren't prepared to do so?? We all have minds that work and process differently so why shouldn't we expect that our kids minds do the same?
IMHO, those with learning disabilities are simply groups of people whose minds process similarly and that no one person should be diagnosed with a learning disability but rather a learning ability. Those with similar abilities should then be placed together in classrooms. Ex: DS is 12 and diagnosed with dyslexia and "borderline ADD". His IQ has been tested between 150 and 160 on multiple occasions. He didn't read until he was almost 7yo but spoke with a vast vocabularly at a very young age. DS counted change in his head (adding and subtracting) at the age of 5 and has had complex thoughts throughout his life. His handwriting and spelling are AWFUL but if asked to provide responses to homework and test questions orally, he does amazingly well. Coincidence? I think not;-) DS was never allowed to entertain the idea of AP classes or the like because his grades were far from great. Had he been placed with peers of similar ability he may have done better. That's my theory anyway.
After many years of research and reading I believe my son falls into my description of like minded people being grouped together by diagnosis. I believe little is being done about this and thus provides us a vicious circle to travel round and round. I truly believe DS would do so much better if he were placed in a private school or homeschooled. His father and I are no longer married and we tend not to agree on much of this so my hands are often tied.
Stepping off of my soap box now LOL I'm sorry to have gone on and on. I had intended to ask the following questions quite some time ago but I just got off on a public school rant. LOL
What communication methods are you using in your home? DD signs a bit but we aren't teaching her ASL yet. We'd rather focus on talking right now.
Have you been using aids since your son was diagnosed? DD was diagnosed at 1 1/2 mos and aided at 2 mos. After wearing aids for about 3 mos we decided to look into cochlear implants. After another 3 months and no improvement we decided to go ahead with DD's first CI at 12 mos.
Great to have met you. Feel free to chat here or pm.
Cate- Mama to
: 15yo dd hearing
: 13yo dd hearing
12yo ds hearing
: 2yo dd bilateral sensorineural hearing loss at birth, bilateral cochlear implants at 12 mos and 18 mos, hearing age 14 mos