Anyone have experience with GERD? This is most likely our last hurdle to get out of the NICU and go home! We've been here over 7 weeks, and have yet to successfully feed, even gavage feed, first because of gastroschisis, then she got bilateral chylothorax, then she had issues with bowel adhesions and a kink and had another surgery, and now she's having issues with projectile vomiting and GERD.
She has been on Zantac, and at my insistence (to provide relief for her) she is now on Prevacid as well, and hopefully when they figure out how best to give it to her, she will be on Erythromycin too. She had been on Reglan, and it seemed like it was working, but I REALLY don't like the idea of Reglan's side effects.
They are feeding her through an NG tube, but instead of into her stomach, they are feeding her transpylorically, so past her stomach and into her intestine. The main reason for this is that she needs to gain weight (she's only about 7 lbs, she was born at 6 lb 4 oz). Once she gains some weight, we will start feeding her normally, either with a bottle or at the breast (probably a combo of the two).
Anyway, I'm just wondering if anyone can offer me advice from their own experiences, on how to deal with the GERD and get her eating well so we can go home!
doula, wife to Dave , mom to Noah (5/14/06) and Faith (11/13/08) (Gastroschisis Awareness) 127 days in the NICU, and 6 weeks thousands of miles from home, because of gastroschisis. Expecting #3 July 2011! www.frugallynatural.org