I am writing on behalf of friends whose 4day old baby is in NICU following placenta abruption and serious oxygen loss. The baby is in a fantastic hospital, the family has a great personal support system, and the baby is showing all the best possible signs so far. Still, there is a strong likelihood that their daughter suffered brain damage, possibly severe (although it's too early to tell). She may be hospitalized for a long while. So I am looking for resources for them, on making the best of the hospital experience (they are living at the hospital for now), and on parenting a special needs baby/child. Can anyone recommend books/literature...or offer words of wisdom from personal experience? Anything that helped you, may help them, too. They are eager to learn all they can....to grieve and worry right now, yes---but also to move forward in life in all possible positive ways.
I will search this forum for threads that seem apt, but if you can link me to any good threads that you know of, I'd much appreciate it.