hi this is my first post. my son was born at 35 weeks . . which isn't really that bad but he was also born with Down syndrome. We had many hosbiral stays he stayed in the NICU for 3 months. We came home then he was back in the PICU. He was in thrre for 5 long long months. Where he almost died twice. He went into respiratory failure. He was on the breathing machines for 6 1/2 weeks. Intubated on the ventilator. Now he won't take nothing by mouth!!
nothing he chokes gagss till he throws up. If you put a bottle into his mouth. he cannot swallow anything. before he loved his bottle. he still likes his pacifier. but now he is fed by G tube. its been almost 2 months now. I want him to eat my mouth. he works his speech therapy but they don't really do nothing. and his ENT doctor said that his vocal cords look fine. has any of your preemies been ventilated so long that they cant eat anymor??? Help