Preemie/NICU sub-forum or sticky? - Mothering Forums
Forum Jump: 
Reply
 
Thread Tools
#1 of 111 Old 01-16-2006, 01:14 AM - Thread Starter
 
CarenSwan's Avatar
 
Join Date: Sep 2005
Location: Durham, NC
Posts: 774
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
The preemie/NICU support thread gets lost in B&B, partly because it doesn't get a ton of traffic. I would like to propose, however, that it get some kind of designation to make it easier to find. I think it would get much more use if it were more obvious. I was on MDC for a long time before I knew that it existed, and especially at the beginning when I was still raw from the traumatic birth, I could have used that support.
CarenSwan is offline  
#2 of 111 Old 01-22-2006, 06:16 PM
 
liberal_chick's Avatar
 
Join Date: May 2005
Location: California
Posts: 1,813
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I think this is a great idea. I had no idea the thread existed until many months after my ds was born.

M.

Wife to an amazing man love.gif, mommy to 3 wild dudes: ds1 (5/23/05 @ 30 weeks), ds2 (3/5/09) hbac.gif, and ds3 (9/26/10) hbac.gif. Part time librarianread.gif, full time mommysupermod.gif, occasional chef and maid.

liberal_chick is offline  
#3 of 111 Old 01-22-2006, 06:49 PM
 
crysmomofthree's Avatar
 
Join Date: Mar 2004
Posts: 6,892
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I agree with the pp, I have had two preemie babies since joining this board and I had no clue that it was there, I could have really used some emotional support with my babies
crysmomofthree is offline  
#4 of 111 Old 01-23-2006, 01:19 AM
 
CherryBomb's Avatar
 
Join Date: Feb 2005
Location: Indiana
Posts: 8,153
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Great idea!
CherryBomb is offline  
#5 of 111 Old 01-23-2006, 02:49 AM
 
jo11's Avatar
 
Join Date: Jan 2005
Posts: 25
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
great idea! I also had a premie and the support would have been great during that difficult time. It would also make it easier for those of us with previous premie experience notice the premie threads while "browsing" MDC- because although this is not a topic I might search out anymore (my ex premie is now 3) I could offer up hope and encouragement for those who are going through a premature birth.
jo11 is offline  
#6 of 111 Old 01-24-2006, 03:08 PM
Administrator
 
cynthia mosher's Avatar
 
Join Date: Nov 2001
Location: An Arabian kingdom far far away
Posts: 28,860
Mentioned: 14 Post(s)
Tagged: 0 Thread(s)
Quoted: 83 Post(s)
I think traumatic birth is a separate subject from preemies and probably best in Birth and Beyond.

Preemies, however, might fit nicely in Special Needds Parenting and not get lost in the crowd.

cynthia mosher is online now  
#7 of 111 Old 01-26-2006, 03:29 AM
 
kondonis's Avatar
 
Join Date: Dec 2005
Posts: 87
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I too would love to see a sub forum specifically for preemies. Having a preemie covers a wide wide spectrum of issues that don't necessarily fit in "special needs" parenting (some preemies are just fine) which would also cover birth issues, getting pregnant again, development, vaccinations, circumcison, family issues, insurance issues, etc. If we had this, we could create stickies on common medical issues, such as NEC, RDS/CLD, RSV, IVH, ROP, Early Intevention, etc.

I find that the preemie thread is unbearable to get through- it is extrememly long nad so many people are talking about many different subjects it is extremley difficult to navigate.

many other boards have this as a separate forum and it works out very well for navigation, support, and information. MDC would have the leg up in the stickies and IMHO, make it all the better site for parents of preemies.

thank you for your consideration here -
Stella
kondonis is offline  
#8 of 111 Old 01-26-2006, 04:13 AM
 
jkpmomtoboys's Avatar
 
Join Date: Jun 2004
Location: SF Bay Area
Posts: 1,216
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I would ditto the request for a sub-forum, rather than a very long thread. As the mom of an older (5 1/2 yo) preemie, I would love to be a resource for moms just going through the preemie thing with their babies now, but don't think I have the time or patience to wade through a long thread.

As someone said, there are so many issues that go along with having a preemie, that a sub-forum would enable moms to find the help and assurance they need quickly.

Jen, former attorney and now SAHM to 11 yo ds and 8 yo ds

jkpmomtoboys is offline  
#9 of 111 Old 02-02-2006, 05:28 PM
 
kondonis's Avatar
 
Join Date: Dec 2005
Posts: 87
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
cynthia can we have this please?

thank you!

stella
kondonis is offline  
#10 of 111 Old 02-02-2006, 06:25 PM
 
ozzyemm's Avatar
 
Join Date: Apr 2005
Location: CA
Posts: 1,304
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My baby was in NICU for a week. I got support from my DDC, but it would have been helpful to have a forum dedicated to this situation. There was alot of stuff that went on (Michael was given an IV without my permission, the nurse and doctor badgered me to give formula without due cause, he was given antibiotics also without our consent, and he wasn't sick) that we could have avoided if we had known better. I know my experience isn't unique, and I think other mamas could have given us support and information while our son was in NICU.

BTW-- he wasn't premature, just placed in nursery as policy because he was c/s. A routine test found he had elevated white blood cell count, which escalated into him being in NICU for 7 days of antibiotics.
ozzyemm is offline  
#11 of 111 Old 02-02-2006, 10:06 PM
 
mimid's Avatar
 
Join Date: Dec 2004
Location: Los Angeles, CA
Posts: 3,163
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
This would be great for me as I'm expecting preemies and possible NICUers this spring/summer. I would love to be able to get advice from others.

Miriam , mom to jumpers.gif
mimid is offline  
#12 of 111 Old 02-02-2006, 11:08 PM
 
erika h's Avatar
 
Join Date: Dec 2005
Location: Cary, Illinois
Posts: 60
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by kondonis
Having a preemie covers a wide wide spectrum of issues that don't necessarily fit in "special needs" parenting (some preemies are just fine)
I agree - a separate forum for preemies would be wonderful.
erika h is offline  
#13 of 111 Old 02-02-2006, 11:11 PM
 
kkiolbassa's Avatar
 
Join Date: Oct 2003
Location: Chicago. IL
Posts: 156
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My daughter was born at the end of Nov. She was a 35 week preemie and spent 10 days in the nicu/special care nursery. It would have been a great have a support forum here at that time. I hope we can have this.
kkiolbassa is offline  
#14 of 111 Old 02-06-2006, 01:01 AM
 
kondonis's Avatar
 
Join Date: Dec 2005
Posts: 87
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
please please please please please can we have our own sub-thread?
kondonis is offline  
#15 of 111 Old 02-06-2006, 03:50 AM
 
wende's Avatar
 
Join Date: Oct 2003
Location: Portland, OR
Posts: 3,109
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Yes please! It is so hard sometimes. My youngest 2 were preemies and while they were both very healthy (one was a 31weeker, the other a 32 weeker and I'm tandem nursing them both thankyouverymuch despite being told they wouldn't nurse) and wouldn't fit into a "special needs" catagory there are just some things that others don't understand. It's so hard to explain my feelings to those in my ddc who are talking about their full term, 8mo, babies pulling themselves up while my baby, who's going to be a year old next month, just started crawling today. Logically, I know that she is perfectly within a "normal" range for her adjusted age but people are still inclined to think "why is that 10mo not crawling?"

I don't even go to the preemie thread because it's so hard to weed through. My kids are not special needs. They are perfectly normal and healthy. They have no problems other than my constant need to explain "he/she was 2 months early so he/she is really only....whatever age". Having a sub-forum to vent about these things, to brag about the things that some other moms won't understand, to offer encouragement, etc would be wonderful!

/begging
wende is offline  
#16 of 111 Old 02-06-2006, 11:47 AM
 
sweetpeasmom's Avatar
 
Join Date: Nov 2003
Location: state of mass confusion
Posts: 1,531
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
yeah i'd agree with other pp's that my preemie is not special needs. She's fine, she may have some minor issues associated with prematurity but it's not really speical needs, she'll grow out of it in itme. There's so much pertaining to having a baby in the NICU, especially those babies in there for a long term and it's very helpful to have support of moms who have btdt during that time. One long thread does get a bit overwhelming.
sweetpeasmom is offline  
#17 of 111 Old 02-06-2006, 02:30 PM
 
mykdsmomy's Avatar
 
Join Date: Oct 2004
Location: On the way to or from Starbucks
Posts: 3,384
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Kondonis, I have an ex 26 week preemie who's name is William too

I think the preemie subforum is an excellent idea.....it's such a need when you are going through a nicu experience......

Here's me I married then we had dd15 , dd11 , ds10 , and then and now we and I blog!
mykdsmomy is offline  
#18 of 111 Old 02-06-2006, 03:06 PM
 
crysmomofthree's Avatar
 
Join Date: Mar 2004
Posts: 6,892
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
This sub forum would really help promote what mothering stands for. It is really hard when your baby is hospitalized and all the nicu staff and drs don't understand that you want your baby to be healthy but also get all the benefits of natural family living, such as touch (kangarou care) breastmilk etc. It seems that most of the time the only babies who's parents are well informed of the benefits of natural family living get that type of care. In my experience it goes against the grain of a lot of the nurses and drs. There is a lot of push to get baby drinking from a bottle because generally its faster and easier which means baby leaves the nursery sooner. While it might take an extra couple days (which is forever when your baby is in there) the benefits to mom and baby are enormous if they are encouraged to breastfeed from the get go, as soon as baby is able.

Without a sub forum or dedicated area, a lot of parents of preemies don't even know that they can make the decisions for their own baby (re feeding and touch) It would be so helpful to have other parents with the same priorities as you give you hints and suggestions as to how to talk with the drs and nurses and get your families needs across
crysmomofthree is offline  
#19 of 111 Old 02-06-2006, 05:51 PM
 
kkiolbassa's Avatar
 
Join Date: Oct 2003
Location: Chicago. IL
Posts: 156
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by crysmomofthree
This sub forum would really help promote what mothering stands for. It is really hard when your baby is hospitalized and all the nicu staff and drs don't understand that you want your baby to be healthy but also get all the benefits of natural family living, such as touch (kangarou care) breastmilk etc. It seems that most of the time the only babies who's parents are well informed of the benefits of natural family living get that type of care. In my experience it goes against the grain of a lot of the nurses and drs. There is a lot of push to get baby drinking from a bottle because generally its faster and easier which means baby leaves the nursery sooner. While it might take an extra couple days (which is forever when your baby is in there) the benefits to mom and baby are enormous if they are encouraged to breastfeed from the get go, as soon as baby is able.

Without a sub forum or dedicated area, a lot of parents of preemies don't even know that they can make the decisions for their own baby (re feeding and touch) It would be so helpful to have other parents with the same priorities as you give you hints and suggestions as to how to talk with the drs and nurses and get your families needs across
This is very true. Also, I think a subforum (maybe under parenting issues) would be better than a thread because if would make it easier to find what you're looking for. When my daughter was in the nicu, I didn't have a lot of extra time - between caring for my other kids, pumping and running back and forth to the hospital.

editing to add, my daughter is not special needs, but there are still things related to her being a preemie that I worry about.
kkiolbassa is offline  
#20 of 111 Old 02-07-2006, 03:26 PM
 
Treasuremapper's Avatar
 
Join Date: Jul 2004
Posts: 3,715
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 4 Post(s)
My dd was not in the NICU, but she was hospitalized when she was 8 days old and had to have major emergency surgery. They would not let her in the NICU because of the risk of infection to the newborns who had not been released from the hospital. The hospital staff varied -- while some were totally resistant to breastmilk, others went out of their way to help me.

Even though she was full term, information about newborns in the hospital and after discharge would have been incredibly valuable to me. I did not have the support that NICU mothers seem to have with each other, because she was excluded from NICU and had to figure everything out myself with nursing staff that had almost no experience with newborns.

So -- can those of us with my dd's situation somehow be a part of this forum? It sounds like a brilliant idea.

Even a babies in the hospital forum might be helpful. There really are some unique issues -- whether the mama can sleep in bed with the baby (mine allowed it and even pushed it) how nursing during IV insertions and heel sticks reduces the pain, how to push for breastmilk, machines to use after discharge, how to keep up one's supply with little or no support, how to care for toddlers at the same time, how to weigh diapers when using cloth, and on and on. It would be great if it were easy to find such information, because in our situation it was a horrible unexpected crisis and we didn't have any time to search.
Treasuremapper is offline  
#21 of 111 Old 02-07-2006, 03:35 PM
 
eclipse's Avatar
 
Join Date: Mar 2003
Location: Mexico
Posts: 7,867
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
i think this would be a great forum to have. my guy was early enough to be "preterm" but mature enough to avoid a NICU stay and able to go home after only one night. still, we're dealing with lingering preemie type issues, currently including RSV (which, thank some one, we have been able to handle without a hospital stay) which has me worrying about things like asthma later on. it would be nice to have a place to go to have everything organized and in one place.
eclipse is offline  
#22 of 111 Old 02-12-2006, 04:29 PM
 
5xmom's Avatar
 
Join Date: Jun 2005
Posts: 284
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I'm asking for this too - my preemie just came home from 10 long weeks in the nicu. I would love the support of other preemie Moms and still be able to stay at MDC!
5xmom is offline  
#23 of 111 Old 02-15-2006, 06:31 PM
 
mimid's Avatar
 
Join Date: Dec 2004
Location: Los Angeles, CA
Posts: 3,163
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Miriam , mom to jumpers.gif
mimid is offline  
#24 of 111 Old 02-17-2006, 08:47 PM
 
wende's Avatar
 
Join Date: Oct 2003
Location: Portland, OR
Posts: 3,109
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
More begging and a little
wende is offline  
#25 of 111 Old 02-19-2006, 02:42 AM
 
crissei's Avatar
 
Join Date: Oct 2004
Location: Ferrum, Virginia
Posts: 1,883
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
:


yes,yes please!
crissei is offline  
#26 of 111 Old 02-27-2006, 03:51 PM
 
eclipse's Avatar
 
Join Date: Mar 2003
Location: Mexico
Posts: 7,867
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
just bumping this up, and showing another example of the type of question that would be on this forum. this one from me, re: solids and the former preterm baby
http://mothering.com/discussions/sho...07#post4677707
eclipse is offline  
#27 of 111 Old 02-28-2006, 02:06 PM
 
sweetpeasmom's Avatar
 
Join Date: Nov 2003
Location: state of mass confusion
Posts: 1,531
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
another example and extremely important issue for NICU moms
http://mothering.com/discussions/sho...d.php?t=413204
sweetpeasmom is offline  
#28 of 111 Old 02-28-2006, 06:50 PM
 
Happypants's Avatar
 
Join Date: Oct 2002
Location: the land of milk and honey
Posts: 710
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
i have to say that after my preemie was born 10 days ago, i was really surprised when i realized that mdc doesn't have a forum for support of preemie parents. it's hard to imagine a group that needs the support of others who have btdt more than us, especially if we don't want to go along with everything the hospital does automatically.

the long thread has been helpful to me, but i have a lot of questions for other moms and nowhere specific to ask them.

so, another vote for a sub-forum. thanks!
Happypants is offline  
#29 of 111 Old 02-28-2006, 07:10 PM
 
Danielle283's Avatar
 
Join Date: Jun 2005
Location: NC
Posts: 858
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My dd (Full term but infected with GBS) was in the NICU for 2 weeks, then level 2 for another 2 weeks. I looked everywhere on the internet for some kind of message boards about babies in the NICU and found nothing. I think a forum thats easy to find would be a great idea!

Mama to a 6 year old diva, and new little man July 2011.

Danielle283 is offline  
#30 of 111 Old 03-08-2006, 03:14 PM - Thread Starter
 
CarenSwan's Avatar
 
Join Date: Sep 2005
Location: Durham, NC
Posts: 774
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Just here for a friendly and to anyone in the NICU right now!
CarenSwan is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off