Mamas who are spending time in the NICU - Page 3 - Mothering Forums

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#61 of 87 Old 05-19-2006, 08:16 PM
 
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Yay Maggie!!!!! Congrats on going home!

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#62 of 87 Old 05-19-2006, 08:42 PM
 
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Sam's home safe and sound!

New pictures at www.flickr.com/photos/samanthab

Sarah - Mama to Vic (1/19/00), Syd (4/06/02) Sam (4/20/06-born at 30wk2d), JackJack (2/14/07) and Charlie (4/30/10)
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#63 of 87 Old 05-20-2006, 09:26 AM
 
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Congrats sehbub! Sam's a cutie!!!

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#64 of 87 Old 05-20-2006, 05:51 PM
 
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Congrats to all you mamas bringing babies home. Giant hugs to those still waiting. I'd like to ask that anyone who has a moment to help out this woman Beth on Birth and Beyond to please visit her thread. She had a c-section after being on mag sulfate for a long time and has a 27 week baby. She is feeling pretty traumatized.
http://www.mothering.com/discussions...d.php?t=455398
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#65 of 87 Old 05-21-2006, 11:58 AM
 
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Hi All! I'm joining in. I'm Cindy from New York City. My son Matthew was born April 26, 2006 at 35 weeks GD. My original dd was May 29, so he's still adjusted to minus 2 weeks old. Baby is home and doing well, but I contracted a C. difficile colon infection that has me having to take antibiotics and pumping away until I'm off them. Matt is unfortunately being formula fed until then. I also now have a hyperactive thyroid which will hopefully go away on its own. I get tested again in 2 1/2 weeks.

The most frustrating thing for me is how long Matt takes to eat. He can take over an hour to finish a bottle, then I have to pump, change him, eat, bathe, etc, not to mention the infection is causing all sorts of secondary infections...

Hoping that the infection goes away with this first dose of antibiotics. If all goes well I can SNS him starting 9am next Sunday.

Cindy + DH Paul = DS1 (4/26/06), DS2 (11/30/07), DD (12/20/10) & surprise 4th edition coming in April 2014.

Bradley Method Natural Childbirth Educator, Doula, and Breastfeeding Counselor

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#66 of 87 Old 05-21-2006, 12:49 PM - Thread Starter
 
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Welcome Cindy and welcome your new baby!

I can relate to it taking a while to get the baby to bottle feed. DH feeds Maggie her bottles of breastmilk/premie formula to "fatten"her up and it can take a good hour to feed 50 ccs sometimes.

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
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#67 of 87 Old 05-21-2006, 02:46 PM
 
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Sam's the same way. Sometimes it takes 15 minutes for a 50cc feed, and other times it's almost an hour, then I pump and get her re-swaddled and back to bed.

Amy, how did you help Maggie latch on? That's the biggest problem for Sam and I. I'm thinking it will work like the lightswitch for bottle feeding, and one day she'll just "get it" but I was wondering if there was anything I could do to make things a little easier for her. As of now, I offer the breast after I've pumped a bit so that she doesn't have to pull for letdown. My nipples are about the size of a quarter, and flat, so maybe that's part of the problem...her mouth just isn't big enough yet. She just started taking the full nipple on the preemie bottles, so do you think we should just wait it out?

And welcome, Cindy! Glad to hear baby is doing well, and keeping fingers crossed that you're healthy again soon!

Sarah - Mama to Vic (1/19/00), Syd (4/06/02) Sam (4/20/06-born at 30wk2d), JackJack (2/14/07) and Charlie (4/30/10)
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#68 of 87 Old 05-21-2006, 10:09 PM - Thread Starter
 
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Originally Posted by sehbub
Amy, how did you help Maggie latch on?
I offered the breast before the bottle and now that we are home and not on that stupid rigid schedule, I offer it more and more since the bottle gives more than the breast, she will get the breast more. My goal is for her to keep gaining and be at 4 bottles daily by next week and bottles once in a while as main goal eventually.

The monitors keep going off and there is nothing wrong. The leads are bad on one so I just unplugged it today and said F**k it. She is at my side 24/7 so I can see her. Also when it goes off, she is fine and I know since I have seen her desat before. Besides the other monitor picks stuff up faster.

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
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#69 of 87 Old 05-22-2006, 01:49 PM
 
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Marlow's not home yet. She keeps having apnea episodes. We were supposed to be getting her tomorrow but she had 2 more episodes this morning.

The NICU is so crowded right now. The doctors are putting her on caffeine and a monitor and then we can finally bring her home. We are now just waiting for that monitor to arrive and then we get her. I wonder if the monitor is going to be really complicated for us to use.

It's great to finally get a real go home date without having to stress out about her having episodes and taking full bottles.

It always scares me to give her the breast and have her not take enough milk and then have to insert another gavage tube. It's so hard to watch. But now I have to make sure I'm getting enough milk for her. She's up to 60cc a feeding and I'm only producing about 70cc a pumping.

Here is last weeks pics...still with tube

http://i11.photobucket.com/albums/a1...y/Swaddled.jpg

http://i11.photobucket.com/albums/a1...owwithMama.jpg
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#70 of 87 Old 05-22-2006, 03:18 PM - Thread Starter
 
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what a cutie she is!!

here is my cutie:

http://img.photobucket.com/albums/v6...t/DSC00092.jpg

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
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#71 of 87 Old 05-22-2006, 04:14 PM
 
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All those babies are so beautiful
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#72 of 87 Old 05-22-2006, 04:44 PM
 
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Thank you, Amy. We'll keep plugging along!

Sarah - Mama to Vic (1/19/00), Syd (4/06/02) Sam (4/20/06-born at 30wk2d), JackJack (2/14/07) and Charlie (4/30/10)
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#73 of 87 Old 05-23-2006, 03:48 PM - Thread Starter
 
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OK-Im a bit mad.:

Maggie came home on monitors oxygen etc. The monitors have driven us crazy since they are dinging non stop about nothing. the spo2 one goes down to like 20 and then immediatly up to 100 again. Its also super loud. Then the leads all suck so we got this wrap around thing. This morning when dh checked it, it made Maggie black and blue. I said enough and we unplugged the monitors after them doing this for 40 hours straight. Guess what? We have a baby now! She is so happy to be off them and actually slept so soundly this morning and nursed very well. Now she is alert and happy so I put her on a blanket for some tummy time and boom- she turned over and had a satified look on her face. So the monitors can stick it and I can have my baby! She sleeps near us or with us, I nurse her all day around the clock or wear her. I think I will know is there is an issue. The nurse agreed

BUT I am still mad she had to go thru this and we had to pull our hair out over such nonsense!

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
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#74 of 87 Old 05-23-2006, 05:16 PM
 
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Quote:
Originally Posted by sehbub
Amy, how did you help Maggie latch on? That's the biggest problem for Sam and I. I'm thinking it will work like the lightswitch for bottle feeding, and one day she'll just "get it" but I was wondering if there was anything I could do to make things a little easier for her.
Are you using a nipple shield? That can *really* help get baby on the breast. It's still an articifical nipple, and you'll have to wean off THAT, but it's easier than pumping and giving bottles!

The LC at my NICU had all preemies use a nipple shield when first breastfeeding - she didn't even have us try without it. And Joshua was able to go home 100% breastfeeding because of that nipple shield. I was SO glad, because he was needing more milk at that point, and my supply was going to dwindle if I kept with just a pump. I needed the more efficient baby to get my supply back up, which he did quite nicely.

For weaning off the shield, I just offered once a day without it, and if it didn't work, I put the shield on. After about 2 weeks, one day he finally latched onto the breast and started sucking like a pro! I think he did it for the next feeding too, then after that he couldn't get it. It took another 2 weeks to completely wean off that shield, but once he had gotten the breast itself, I just offered that first, then put the shield on if I needed it.

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#75 of 87 Old 05-23-2006, 05:21 PM
 
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Maggie came home on monitors oxygen etc. The monitors have driven us crazy since they are dinging non stop about nothing. the spo2 one goes down to like 20 and then immediatly up to 100 again. Its also super loud.
I've heard that about the monitors. Ugh.

So has she had any apnea episodes lately? If not, it sounds like you don't need the monitors anyway! Once DS went 5 days without apnea episodes, he only had ONE more, and it was during a feeding, which really I don't count as "real" apnea... It's more the fact that he's a piggy and forgets to breathe while eating. After that (the first night home, btw), he never stopped breathing again.

When do they think Maggie will be able to come off the O2? I'll bet that's kind of a pain too, so I hope it will be soon.

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#76 of 87 Old 05-24-2006, 09:46 AM - Thread Starter
 
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I've heard that about the monitors. Ugh.

So has she had any apnea episodes lately? If not, it sounds like you don't need the monitors anyway! Once DS went 5 days without apnea episodes, he only had ONE more, and it was during a feeding, which really I don't count as "real" apnea... It's more the fact that he's a piggy and forgets to breathe while eating. After that (the first night home, btw), he never stopped breathing again.

When do they think Maggie will be able to come off the O2? I'll bet that's kind of a pain too, so I hope it will be soon.
She has had no episodes for a long time - about since a week before she came home but that one bout of episodes is why she had the o2 and monitors. She has had none and again all were feeding or pooping related. But since I pulled the plug on the monitors she is this very happy chatty baby who has taken to rolling over already!

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
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#77 of 87 Old 05-24-2006, 10:11 AM
 
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She has had no episodes for a long time - about since a week before she came home but that one bout of episodes is why she had the o2 and monitors. She has had none and again all were feeding or pooping related. But since I pulled the plug on the monitors she is this very happy chatty baby who has taken to rolling over already!
Hooray!!! So is she off the O2 as well? I remember when DS had one day where he had a bunch of apnea episodes just out of the blue (at 2 weeks old), they put him on O2 for the day, but he kept pulling it off his nose, so finally they decided he must not need it! He wasn't having any problems when the O2 was removed. After that weird day, he went back to just very occasional apnea.

But it sounds like Maggie has outgrown her apnea, so yipee!!!! That apnea stuff is so scary.

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#78 of 87 Old 05-24-2006, 12:17 PM - Thread Starter
 
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still on the O2 but its like a puff at 1/32 of a liter. I have been lugging around this little tank in a bag. Nothing compared to the crzy monitors she is supposed to be on.

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
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#79 of 87 Old 06-01-2006, 03:52 PM
 
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Yay! Marlow is home.
But now I have a bunch of questions I was hoping you guys could help me with...please

How long should I wait to announce her being home to the rest of the world? I'm worried that everyone who has been waiting to see her are all going to want to come visit at the same time. (our NICU didn't allow any visitors that weren't the parents or grandparents).

Anyone else have a baby on caffeine notice any side effects? I'm wondering if her being so gassy is related to the cafcit. Or maybe it's normal for a newborn to grunt and cry with every poop?? She only gets breastmilk and her meds but maybe it's something in my diet?

Is it normal for babies to "hum" or snore when they sleep?

She seems to be crying more here than at the hospital. She's consolable but I wonder if maybe she is mourning or missing her hospital environment as it was her little home for a long time.

Her monitor hasn't gone off here yet. I hope it's working correctly and she's just doing really well.

It's great having her home. I love being able to care for her here and not ask permission to hold or calm her.
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#80 of 87 Old 06-01-2006, 05:53 PM - Thread Starter
 
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Great questions btw-


How long should I wait to announce her being home to the rest of the world? I'm worried that everyone who has been waiting to see her are all going to want to come visit at the same time.

We still have not told people Maggie is home yet and its been over two weeks now. Limit visits for a while longer- at least a week. All the visitors will have plenty of time to see here. If you do allow them sooner than later, be strict about wellness and hand washing.


Anyone else have a baby on caffeine notice any side effects? I'm wondering if her being so gassy is related to the cafcit. Or maybe it's normal for a newborn to grunt and cry with every poop?? She only gets breastmilk and her meds but maybe it's something in my diet?
could be something your eating. Maggie also grunts w/ the pooping

Is it normal for babies to "hum" or snore when they sleep?yes to a point

She seems to be crying more here than at the hospital. She's consolable but I wonder if maybe she is mourning or missing her hospital environment as it was her little home for a long time.Again, give her at least a week to get acclimated to your home enivironment. It took Maggie a good week to get used to home. So limit visiting again for this too

Her monitor hasn't gone off here yet. I hope it's working correctly and she's just doing really well. She is!

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
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#81 of 87 Old 06-02-2006, 11:59 AM
 
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Originally Posted by Marlow's mom to be
Yay! Marlow is home.
Hooray!

Quote:
Originally Posted by Marlow's mom to be
How long should I wait to announce her being home to the rest of the world? I'm worried that everyone who has been waiting to see her are all going to want to come visit at the same time. (our NICU didn't allow any visitors that weren't the parents or grandparents).
We announced it right away, BUT... we told people that visitation needed to be limited because he didn't need to be exposed to germs and such due to immature lungs. The hospital said to keep him away from the public (ie, stay home) for 6 weeks (which put us right at his due date), so we told people that. The only people that could come visit were the people bringing us dinner each night (and if they held him, they had to wash their hands first, and some even said they changed clothes before coming over, although I hadn't asked them to do that). Other relatives got to come over once and see the baby, and grandparents got to come a little more often (but they too got to see him in the NICU - my parents did his 9pm feed for a long time).

If someone calls and asks to see baby in the first week without bringing food or anything, I'd just say "Can you come in a couple weeks? That'd be better for us.", giving you time to settle in with your new bundle of joy. I think lots of people coming over that first few weeks - whether baby is preemie or full term - is a bad idea. Mom and baby need to bond and get settled into a routine, etc. Visits can wait!

But the key with a preemie is to stress to people that your baby has immature lungs and REALLY doesn't need to get sick, so visitation is not desired until baby is a little older. I didn't have any problems with people wanting to come over just to see the baby those early weeks. If they weren't part of the dinner-providing group, they just waited until I brought him out in public for the first time.

Quote:
Originally Posted by Marlow's mom to be
Is it normal for babies to "hum" or snore when they sleep?
Joshua was sometimes pretty loud when sleeping. It did make it easier for me to know he was breathing at least.

Quote:
Originally Posted by Marlow's mom to be
She seems to be crying more here than at the hospital. She's consolable but I wonder if maybe she is mourning or missing her hospital environment as it was her little home for a long time.
One thing to remember - the NICU is LOUD. Your home is probably very quiet. You might turn on the TV or radio for some background noise, and try to keep things not TOO quiet.

It does take some time for baby to get used to the new surroundings, and I think it is normal to fuss more at home than at the hospital. I've even seen full term babies do that - ones that were rooming in and everything. They get home, and the first night is AWFUL. I think it's just part of making a big change.

Quote:
Originally Posted by Marlow's mom to be
Her monitor hasn't gone off here yet. I hope it's working correctly and she's just doing really well.
Sounds like she's doing great!!! Congrats on having her home!!!

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#82 of 87 Old 06-02-2006, 03:29 PM
 
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Limit visits for a while longer- at least a week. All the visitors will have plenty of time to see here. If you do allow them sooner than later, be strict about wellness and hand washing.
We've only told immediate family so far but I'm a bit uncomfortable about them visiting too.

I'm worried that my ILs will not be well and they don't seem to recognize this. My MIL is a school bus driver and always seems to have bugs. My DH's neices and nephews tend to have colds often as well. I'm working on really stressing the importance of washing hands to them. I'm also concerned that my MIL smokes and she may have the smoke in her clothes too. I hoping that because the baby is premature I can hang on how much more sensitive and susceptable she is to catching things.

They are coming to our house this weekend (my MIL and FIL) so I need to practice being very firm about the healthy baby thing. I know they love her and mean well but they are clueless on some things and I need to get a backbone with them (thankfully DH has one and now that he's a papa it has spikes too).

What do you guys tell people who come to visit and once they arrive appear to be unwell? or if you saw a cold sore (or something) on someone that was going to kiss your baby what would your immediate protect-the-baby response be? I feel like I'm going to have to address some issue this weekend and I want to do it correctly and firmly to make sure Marlow is safe.

Thanks for all your help!
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#83 of 87 Old 06-02-2006, 03:38 PM
 
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The only people that could come visit were the people bringing us dinner each night.
That's a great idea...how did you get people into making you food? Does your answering machine explain that requirement? I wonder if people would follow our diet when making our dinner (I'd hate to find bacon hidden in the salad or something )

Quote:
Originally Posted by boscopup
One thing to remember - the NICU is LOUD. Your home is probably very quiet. You might turn on the TV or radio for some background noise, and try to keep things not TOO quiet.
Another great idea! We just took that advice and turned on the radio and she loves it!!! It put her right to sleep after a fussing episode. thank you!!!
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#84 of 87 Old 06-03-2006, 12:22 AM
 
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Sorry I've been out of it ladies...for some reason the thread wasn't showing new activity!

I know you've already gotten answers for Marlow, but we experienced a lot of the same things. We can't sleep with Sam because she can't sleep in the dark and quiet, and I can't sleep in the light with noise. So, she sleeps in her room with the door open and hall light on and a fan in the window for white noise (and ventilation, of course) and we sleep in our room all dark and shut up tight. She's just across the hall, so it works for us. And in the morning, my husband brings her to me on his way to work, and we kangaroo in bed for a few hours before we start our day.

Sam seems to be gassier on the days that she gets her cafcit. Then again, she's incredibly gassy to begin with because I have to give her formula (grrrr) about half the time since I can't pump enough milk to feed her.

The monitor is a tool of the devil!! Sam figured out how to pull her leads off, and was doing it three or four times a day, so I finally used a small piece of medical tape over each lead to hold them in place. She hasn't had a true brady in almost a week, and that was only when she was eating. I'm trying to convince DH that she's fine and really doesn't need to be on the monitor, but he's terrified that something will happen and we won't know about it. So, we'll wait until they tell us she can come off of it. Until then, she's a tad cranky and screams every time we come at her with new leads. And I can commiserate with her..I SO love the feel of a cordless baby!!

As far as protecting the babe, I'm starting to master the deft hand-over-the-baby's-head move. If someone moves in to kiss/touch/nuzzle her above the waist, as many people try to, I gently sweep my hand in front of her face and push their hands/faces away with a smile and a "please only touch her feet. She's very small and could get sick easily, and many bugs aren't noticed until they're full blown." My other DDs, 6 and 4, tell everyone who comes in to the house that they have to wash their hands if they want to hold the baby. Our 4 year old has followed a few visitors to the bathroom to make sure they used enough soap and got "good and foamy." It's best, IMO to make sure people know, before they get near the baby, that they are not to touch the baby's face, chest, hands, or stomach. I let people touch Sam's feet only because it's doubtful that she'll get her feet in to her mouth, and she gets wiped down after each visit anyway The hospital wouldn't allow someone with a cold to be near the babies, so why should you have to? Grandparents or not, our baby's health comes first!!

Sam rolled over the other day! All the way off the couch! My brother was watching her while I was upstairs pumping, and when he turned away to take a bite of his burger, she rolled off the boppy and to the edge of the couch. Luckily the ottoman was shoved against the couch, so it stopped her from falling off and hitting the floor. Instead, she slowly slid down to the floor as her 5 pound body scooched the ottoman away from the couch. She was totally unfazed by this, and slept through the entire thing, but I am WAY too young for a heart attack! She's also starting to have more awake time. She spends a good hour and a half or two hours awake every day now. She doesn't want to eat or try and nurse or be cuddled, she just wants to lay there and look around. It's fantastic!

Sorry to be so long-winded...I think it's the sleep deprivation!

Sarah - Mama to Vic (1/19/00), Syd (4/06/02) Sam (4/20/06-born at 30wk2d), JackJack (2/14/07) and Charlie (4/30/10)
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#85 of 87 Old 06-03-2006, 11:59 AM
 
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Originally Posted by Marlow's mom to be
That's a great idea...how did you get people into making you food? Does your answering machine explain that requirement? I wonder if people would follow our diet when making our dinner (I'd hate to find bacon hidden in the salad or something )
This is something that the ladies at my church do for every mom after the birth of a child (although they waited until he came home for me, since I was recovering sans baby and had no trouble making dinner right after he was born). One lady volunteers to coordinate, and then she gives any food restriction instructions to the other ladies. For example, one lady at church has a dairy allergy, so when she has her kids, we have to make sure there's no milk or milk products in the food we make.

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Originally Posted by Marlow's mom to be
Another great idea! We just took that advice and turned on the radio and she loves it!!! It put her right to sleep after a fussing episode. thank you!!!
Oh great!!!! I'm so glad it worked well for you.

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#86 of 87 Old 06-03-2006, 12:06 PM
 
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Originally Posted by Marlow's mom to be
I'm worried that my ILs will not be well and they don't seem to recognize this. My MIL is a school bus driver and always seems to have bugs. My DH's neices and nephews tend to have colds often as well. I'm working on really stressing the importance of washing hands to them. I'm also concerned that my MIL smokes and she may have the smoke in her clothes too. I hoping that because the baby is premature I can hang on how much more sensitive and susceptable she is to catching things.
My FIL smokes too, and I told MIL to make sure he changed his clothes before seeing the baby, so the clothes would be smoke-free. I also wouldn't let him hold the baby without a blanket between baby and his clothes (needed that anyway since he had reflux and spit up alot ).

Stress to your inlaws that your baby has very immature lungs and that getting so much as a cold could land her in the hospital again (granted, that is probably exaggerating... DS came home with a stomach bug and didn't have to go back to the hospital, and he did have colds during his early months, but it was at least after his due date and he was ok).

Is school still in session where your MIL drives buses? In my area, school is out already. So maybe your MIL will have less bugs if school is out there too?

Oh, and don't forget the line "The doctor says..." If you tell them the doctor says not to do something, they're more likely to not do it.

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
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#87 of 87 Old 06-03-2006, 12:16 PM
 
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Originally Posted by boscopup
Oh, and don't forget the line "The doctor says..." If you tell them the doctor says not to do something, they're more likely to not do it.
: Works every time!

Sarah - Mama to Vic (1/19/00), Syd (4/06/02) Sam (4/20/06-born at 30wk2d), JackJack (2/14/07) and Charlie (4/30/10)
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