Could we get some clarification here regarding what this forum is for? - Mothering Forums

Forum Jump: 
Reply
 
Thread Tools
#1 of 70 Old 09-25-2006, 06:30 PM - Thread Starter
 
Join Date: Jul 2005
Location: Kingston, NY
Posts: 1,011
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
It would be helpful if there were a sticky and some "rules" to refer to. Thanks!
BetsyNY is offline  
#2 of 70 Old 09-25-2006, 06:51 PM
 
Knittin' in the Shade's Avatar
 
Join Date: Feb 2003
Location: near Philly, PA
Posts: 4,637
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I always thought it was for support and comraderie between mamas (and papas) who are currently or have previously had NICU/preemie parenting experiences. However, in light of some of today's posts, apparently it's for letting those with no control of themselves to come in and post at will, regardless of how insanely insensitive it is to those who actually have real experience as NICU parents and the struggles that we go through every day in trying to care for our babies.
Knittin' in the Shade is offline  
#3 of 70 Old 09-25-2006, 06:52 PM
 
mamadawg's Avatar
 
Join Date: Jun 2004
Posts: 2,823
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I'd like that.

I often lurk on this forum because I had 2 preemies (almost 33 weekers) and they were in the NICU (for exactly 2 weeks). But I'm hesitant to participate much because that was 3 years ago & we don't really have any ongoing preemie issues anymore. I do feel a kinship with parents of preemies, though. But I'm never quite sure if I belong here, yk?
mamadawg is offline  
#4 of 70 Old 09-25-2006, 07:05 PM
 
Knittin' in the Shade's Avatar
 
Join Date: Feb 2003
Location: near Philly, PA
Posts: 4,637
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
mamadawg, I think you defintiely belong here! My preemie is almot 3 now (although I'm probably just about to have another preemie, as I'm 34 weeks and feel like my water is going to break any second)

Anyway, I think that the whole preemie/NICU experience forever chances you as a parent, and I love getting input and advice from friends who have older kids who went through what Greg did. It makes me less apprehensive about the future, yk? So, I say you are defintiely welcomed!!!
Knittin' in the Shade is offline  
#5 of 70 Old 09-25-2006, 07:08 PM
 
nathansmom's Avatar
 
Join Date: Nov 2003
Location: Northern Utah
Posts: 612
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Mamadawg-
I think anyone who has spent time in the nicu is welcome here. I sure hope I'm welcomed here. I spent time there with my full term first born and some major time with one of the twins.
nathansmom is offline  
#6 of 70 Old 09-25-2006, 07:14 PM
 
kkiolbassa's Avatar
 
Join Date: Oct 2003
Location: Chicago. IL
Posts: 156
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by Knittin' in the Shade View Post
mamadawg, I think you defintiely belong here!
Anyway, I think that the whole preemie/NICU experience forever chances you as a parent, and I love getting input and advice from friends who have older kids who went through what Greg did. It makes me less apprehensive about the future, yk? So, I say you are defintiely welcomed!!!
I totally agree. One of these days I have to find the time to post some questions that I have and i'd love the input of moms whose preemies are now older. My DD is almost 10 months and doing very well, but is still tiny for her age
kkiolbassa is offline  
#7 of 70 Old 09-25-2006, 07:15 PM
 
mamadawg's Avatar
 
Join Date: Jun 2004
Posts: 2,823
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks, everyone.
mamadawg is offline  
#8 of 70 Old 09-25-2006, 07:34 PM - Thread Starter
 
Join Date: Jul 2005
Location: Kingston, NY
Posts: 1,011
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by Knittin' in the Shade View Post
I always thought it was for support and comraderie between mamas (and papas) who are currently or have previously had NICU/preemie parenting experiences. However, in light of some of today's posts, apparently it's for letting those with no control of themselves to come in and post at will, regardless of how insanely insensitive it is to those who actually have real experience as NICU parents and the struggles that we go through every day in trying to care for our babies.


What she said.

I think having some rules to point to when someone like this comes along would serve us all well.


MamaDawg, of course you are welcome.
BetsyNY is offline  
#9 of 70 Old 09-25-2006, 08:13 PM
 
sehbub's Avatar
 
Join Date: Mar 2006
Location: Back in the bush...
Posts: 10,497
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks for this, Betsy!

I know for me personally, I feel plenty guilty enough with having a preemie at all, let alone being preached to about how important it is for me to breastfeed her. She's 5 months old and we *still* haven't learned. Luckily my colostrum just came back (I'm 18 1/2wks pg), so hopefully someone at LLL can help us learn!

And "she" made me want to scream reading through the Synagis thread. How awful can it get? Talk about kicking when down.

Sarah - Mama to Vic (1/19/00), Syd (4/06/02) Sam (4/20/06-born at 30wk2d), JackJack (2/14/07) and Charlie (4/30/10)
sehbub is offline  
#10 of 70 Old 09-25-2006, 08:39 PM
 
Amys1st's Avatar
 
Join Date: Mar 2003
Posts: 8,449
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Ladies, for now on, going forward IGNORE anyone like that who is a drifter. I pmmd her and said move along. If that happens again with any one else, do that... Its the 2nd time I have too.

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
Amys1st is offline  
#11 of 70 Old 09-25-2006, 08:43 PM
 
Nathan1097's Avatar
 
Join Date: Nov 2001
Location: Senior-Title-Less!
Posts: 3,534
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by Knittin' in the Shade View Post
I always thought it was for support and comraderie between mamas (and papas) who are currently or have previously had NICU/preemie parenting experiences. However, in light of some of today's posts, apparently it's for letting those with no control of themselves to come in and post at will, regardless of how insanely insensitive it is to those who actually have real experience as NICU parents and the struggles that we go through every day in trying to care for our babies.
I do not have any preemies, but I post here because a) I was a premie and still have issues from it and b) I had premature labor with two of my pregnancies including hospitalizations, bedrest. I would hope that those experiencing high-risk pregnancies could benefit from my experiences. They might lurk here - sort of one foot in and one foot out. I know I got extremely luck to go to term- but I was told I WOULD deliver my son at 28 weeks per the nurses and doctors. As for being a parent of a premie no I am not and never said I was. I have no problems with anybody's choices here re: formula or synagis or whatever it might be. All parents much make their decisions as they come with the best information and support that they have.
Nathan1097 is offline  
#12 of 70 Old 09-25-2006, 09:08 PM
 
Knittin' in the Shade's Avatar
 
Join Date: Feb 2003
Location: near Philly, PA
Posts: 4,637
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by Nathan1097 View Post
I do not have any preemies, but I post here because a) I was a premie and still have issues from it and b) I had premature labor with two of my pregnancies including hospitalizations, bedrest. I would hope that those experiencing high-risk pregnancies could benefit from my experiences. They might lurk here - sort of one foot in and one foot out. I know I got extremely luck to go to term- but I was told I WOULD deliver my son at 28 weeks per the nurses and doctors. As for being a parent of a premie no I am not and never said I was. I have no problems with anybody's choices here re: formula or synagis or whatever it might be. All parents much make their decisions as they come with the best information and support that they have.
I think those experiences are definitely valuable in this forum, I apologize if my earlier *definition* didn't include them. For sure, I think you have defintiely been an active and respectful participant in this forum and I definitely wouldn't want to see you leave!!
Knittin' in the Shade is offline  
#13 of 70 Old 09-25-2006, 09:12 PM
 
maxmama's Avatar
 
Join Date: May 2006
Location: Ann Arbor/Ypsilanti
Posts: 2,454
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I lurk in this forum more than post. I had 36 weeker (so not very preemie, but immature lungs, hypoglycemia, jaundice, pumping, NICU stay, yada yada yada) and I rotate to the NICU in our hospital pretty frequently (I'm L&D, but we all cross-train). It's very helpful to remind myself of the preemie families' issues and concerns as our NICU stay fades more. Okay if I stay?

mama to Max (2/02) and Sophie (10/06); wife to my fabulous girl
maxmama is offline  
#14 of 70 Old 09-25-2006, 09:14 PM
 
susienjay's Avatar
 
Join Date: Oct 2004
Location: MD
Posts: 590
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I've been mainly lurking recently because the NICU experience I went through with my 32 week twins has really been on my mind lately. I'm 24.5 weeks pregnant and I'm really terrified of having to go through it again. I wanted another baby so badly after the twins so I could have a nice normal pregnancy with a nice big full term baby. I thought it would help me heal from having the twins. I'm finding that it's not really working out like I hoped. I've had numerous pregnancy complications so far and have already been in the hospital twice. Having another preemie is becoming a very real possibility.

I feel a little guilty reading here because my twins really didn't have any problems once I brought them home. My son was nursing fine within 3 days. It took me about 2 weeks to get my dd nursing. They both gained weight really well and aside from some feeding issues with my son (gagging related to being gavage fed) I haven't had to deal with many of the things here.

mama to six ('98, '00, '04, '04, '06, '08)
susienjay is offline  
#15 of 70 Old 09-25-2006, 09:29 PM - Thread Starter
 
Join Date: Jul 2005
Location: Kingston, NY
Posts: 1,011
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Susienjay, no guilt. We're all in this together.
BetsyNY is offline  
#16 of 70 Old 09-25-2006, 10:02 PM
 
srmina's Avatar
 
Join Date: Sep 2004
Location: Chicago
Posts: 428
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I post here occasionally because I have a 3yo who had a very rare in utero complication that almost no other children have survived (umbilical cord rupture). She was full term, but extremely critically ill for a very long time. In a lot of people's minds, she did not have a good outcome...she has very severe CP, central line, feeding tube, seizures, etc. But she is doing amazing things despite all of that and I guess I just feel that I can give some people hope, no matter how seriously ill their babies are or how poor their prognosis. I also have a lot of specialized medical knowledge as a result of all of this which may also come in handy for somebody.

And I also have lots of flashbacks unfortunately that i am still dealing with.
srmina is offline  
#17 of 70 Old 09-25-2006, 10:41 PM
 
BundleFishMama's Avatar
 
Join Date: Jun 2005
Location: Philadelphia suburbs
Posts: 1,495
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by nathansmom View Post
Mamadawg-
I think anyone who has spent time in the nicu is welcome here. I sure hope I'm welcomed here. I spent time there with my full term first born and some major time with one of the twins.
I wondered if there were any other moms who had full-term NICU babes around here! I lurk here occasionally - while I didn't have a preemie, my post-dates DS was in the NICU for 10 days with a severe Group B Strep infection this past June/July. I didn't have an ongoing struggle for months like many of you, and his care was pretty straightforward (just monitors and IV meds) but I was told that 5-15% of babies with GBS die from it, so it was still pretty scary

At first he didn't respond to the abx, his infection levels were increasing instead of decreasing and they had an infectious disease specialist from CHOP consult thinking maybe he had a drug-resistant strain. I was terrified. They did repeated spinal taps on him to see if maybe it had developed into meningitis. My husband was overseas, he had missed the birth (which included a couple of periods of major distress that almost led to a c/s but we narrowly escaped that!) and the discovery of the infection so I was all alone there.

I still had it way easier than you all - I was able to stay for the 10 days straight, sleeping and showering in the parents' room, and I could nurse him around the clock, since of course there were no feeding issues. So while there's a lot discussed here that I can't relate to exactly, still, I hope you don't mind that I lurk because the PTSD thread and the like are helpful to me. You are some amazing, courageous mamas with some incredible, beautiful babies!

Kerriintactlact.gif blessed single mama to Teresa 8/2/02blahblah.gif, Madeleine 5/28/04dust.gif, Andrew 6/25/06jammin.gif, and Isabelle ribboncesarean.gif11/27/08energy.gif

BundleFishMama is offline  
#18 of 70 Old 09-25-2006, 10:59 PM
 
sunflowers's Avatar
 
Join Date: Sep 2006
Posts: 2,140
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I'm new to these message boards but I wanted to stop and say I love to talk to other mamas who have BTDT and can understand where I've been.

I noticed a few (close to) Philly girls here Anyone have a stay at CHOP?
sunflowers is offline  
#19 of 70 Old 09-26-2006, 12:18 AM
 
usolyfan's Avatar
 
Join Date: Jul 2006
Location: Salem, OR
Posts: 429
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I post here because my dd was delivered at 36 weeks. Still considered a preemie by medical and developmental standards. She was on a vent. and given serfactant then on oxygen. In the few areas not affected by Spina Bifida she has been delayed almost a month in reaching developmental milestones. Being a NICU parent, either current or past, puts you in a club you didn't ask to join. Only another NICU parent can relate to a NICU experience.
usolyfan is offline  
#20 of 70 Old 09-26-2006, 12:19 AM
 
BundleFishMama's Avatar
 
Join Date: Jun 2005
Location: Philadelphia suburbs
Posts: 1,495
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by sunflowers View Post
I'm new to these message boards but I wanted to stop and say I love to talk to other mamas who have BTDT and can understand where I've been.

I noticed a few (close to) Philly girls here Anyone have a stay at CHOP?
We were at Pennsylvania Hospital, CHOP's sister hospital in Center City - I guess the Pennsy NICU is for non-surgical and the CHOP NICU is for surgical, at least that's what I was told - is that right?

Kerriintactlact.gif blessed single mama to Teresa 8/2/02blahblah.gif, Madeleine 5/28/04dust.gif, Andrew 6/25/06jammin.gif, and Isabelle ribboncesarean.gif11/27/08energy.gif

BundleFishMama is offline  
#21 of 70 Old 09-26-2006, 01:14 AM
 
girlzmommy00's Avatar
 
Join Date: May 2003
Posts: 694
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Just got reading here, my middle dd was a 33 weeker but wasn't in NICU. Unusually enough she went home with me 2 days later (I know that's very rare & she really was a 33 weeker, no confusion on dates or anything) but we've had on going medical problems. Actually most of her medical stuff was considered rare so I guess the whole situation kind of fits together, one rare occurance after another. Thankfully the worst of them let up around when she hit 3 (things were rough before then) but there's still issues on going. She just turned 7. I'm guessing there aren't that many on the other end of things in our boat, having a preemie but no NICU.

Stephanie, mom to 3 big girls ('94, '99 & '02) and to my little guy (12/30/09) intact & CD'ed!
girlzmommy00 is offline  
#22 of 70 Old 09-26-2006, 05:15 AM
 
boscopup's Avatar
 
Join Date: Jul 2005
Posts: 4,980
Mentioned: 1 Post(s)
Tagged: 0 Thread(s)
Quoted: 5 Post(s)
I think anyone who has any experience with preemie or NICU (be it as a parent or a nurse, friend or relative) should be more than welcome here. The types that wouldn't be welcomed are the types that say "My baby didn't have a problem with xyz so why does yours?" when their baby was full term and healthy. I have no problem with mamas of full term healthy babies posting, as long as it's in a respectful manner and as long as it takes into account that preemies/NICU babies are in a different health situation than their babies were, and thus the decisions we make may be different from the norm. I know when my son came early, I changed some of the decisions I'd previously made about my baby's medical care, based on his birth circumstances. I researched everything heavily before making those decisions.

And mamas who had short NICU stays or no NICU stays with their preemies shouldn't feel bad about posting here. You have experience too! There are some here who have very long, hard roads in the NICU, and they can benefit from anyone's support. And there are some who come here with less "iffy" situations, but still scary nonetheless. It doesn't matter if your baby is 24 weeks or 35 weeks - you're still a scared NICU mom, worried about your baby. And when your own baby is in the NICU, your baby is the sickest baby in the world in your mind. I think that's an appropriate feeling to have as a mother! Never be ashamed of it!

Mama to Tornado Boy (6/04), The Brute (11/06), and Mischief (05/09)... expecting in February '15
boscopup is offline  
#23 of 70 Old 09-26-2006, 10:07 AM
 
Amys1st's Avatar
 
Join Date: Mar 2003
Posts: 8,449
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I agree with all that is said. IMHO if you spent just a few hours in the nicu, you were in a huge nightmare. Even if its less than a lot of people, you still can have huge affects on you.

Bundlefishmama- I remember you from our ddc and I remember during the 10 day duration we were all worried about you and the baby because you didnt post since you couldnt. When I read about the group b strep, my heart started pounding since I saw what could happen with it. I was so relieved when you baby came home. I do know that you would have ptsd from your experience and I was glad to see you here!

I dont have any issues with people lurking or asking questions. My issue is pp coming in who are here just to spit out facts etc. They have no other reason to be here but to say that we cant formula feed, cant leave our babies in the nicu alone, cant give the baby vax, bad girl for the c section, I could go on and on.

I know that the nicu is not a club any parent wanted to be a part of or this is not the birth they planned. Heck, the day Maggie was born "husband coached childbirth" came in the mail . There are some parents here who are living the nightmare as I type and I try to help them anyway possible. I also know we have shared with families who lost the nicu battle and it killed me inside for days.

I have now said to two different pps to leave unless you have real business to be here. This is not a place to reak havoc and post when you feel like it. Theses parents have true issues just like the surviving abuse, loss etc do. I would hope no one would go over there and harass or start this. IF it happens again, do what I do and then just ignore the person. If need be pm the others to do the same.

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
Amys1st is offline  
#24 of 70 Old 09-26-2006, 12:12 PM
 
sunflowers's Avatar
 
Join Date: Sep 2006
Posts: 2,140
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by BundleFishMama View Post
We were at Pennsylvania Hospital, CHOP's sister hospital in Center City - I guess the Pennsy NICU is for non-surgical and the CHOP NICU is for surgical, at least that's what I was told - is that right?
Sounds right. My little bundle was transferred there for surgery and was transferred back to her "home" hospital when she was stable and growing (about 2 weeks later). We went back to CHOP after just 10 days and I wouldn't let her be transferred anywhere after that. When they suggested another transfer, I said no and they began her discharge checklist. It seemed like not too many babies were discharged to home from CHOP.

I saw quite a few babies there who did not have surgery but they may have had some other "rare" condition.
sunflowers is offline  
#25 of 70 Old 09-26-2006, 01:44 PM
 
BundleFishMama's Avatar
 
Join Date: Jun 2005
Location: Philadelphia suburbs
Posts: 1,495
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by Amys1st View Post
Bundlefishmama- I remember you from our ddc and I remember during the 10 day duration we were all worried about you and the baby because you didnt post since you couldnt. When I read about the group b strep, my heart started pounding since I saw what could happen with it. I was so relieved when you baby came home. I do know that you would have ptsd from your experience and I was glad to see you here!
Thanks Amy! I remember being so touched when we finally got home and I got online to our ddc and saw that so many mamas had posted wondering if we were OK and what had happened. I had asked my dh to try to get on and post a quick update for me, but I think he was barely keeping it together just taking care of our other kids! If anything at all good came out of that whole experience, my dh now appreciates me a lot more - no more "what do you do all day while I'm at the office working hard" arguments!!

I can imagine how offensive and hurtful it would be for a mama of full-term babies to dictate to you how you should care for your preemie, or seem to judge you for the difficult decisions you've had to make. I can relate a little because I have had people tell me, even after hearing what happened to Andrew, that they would refuse the GBS test during pregnancy and/or refuse prophylactic abx during labor if they were + for it. That they see it as just one more "unnecessary intervention"! It's every mama's right to make her own decision for her baby, but I find that a little insensitive - I want to get involved in some GBS awareness campaigns I've heard about, and some of my friends have implied that I'd be supporting "medicalized childbirth" by doing so Another supposed friend said to me, "You realize now that with your future babies they're going to want to induce you early and completely control your labor to make sure they have enough time to give you extra abx, right? Are you going to agree to that?" She said it in this really cynical tone implying that I've gone over to the dark side or something if I even consider doing anything like that to minimize risk to future babies. I mean, I am all for standing up for your beliefs on childbirth and parenting, but when a true medical problem occurs, which is more important, sticking to your doctrines or doing what's necessary for your baby's health or life?

ETA: I also *love* the people who imply that it's my fault that Andrew has severe allergies and digestive issues now (allergies to several foods incluing dairy, soy and nuts, blood in his stools, reflux, eczema, systemic yeast with recurrent thrush in his mouth) because "you gave him all those mega-doses of antibiotics right after birth when your breastmilk should have been colonizing his system properly" - hello, I'm an LLL Leader, I know that is what should have happened, but those antibiotics saved his life!! Sorry, thanks for allowing me to vent!

Kerriintactlact.gif blessed single mama to Teresa 8/2/02blahblah.gif, Madeleine 5/28/04dust.gif, Andrew 6/25/06jammin.gif, and Isabelle ribboncesarean.gif11/27/08energy.gif

BundleFishMama is offline  
#26 of 70 Old 09-26-2006, 01:56 PM
 
BundleFishMama's Avatar
 
Join Date: Jun 2005
Location: Philadelphia suburbs
Posts: 1,495
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by sunflowers View Post
Sounds right. My little bundle was transferred there for surgery and was transferred back to her "home" hospital when she was stable and growing (about 2 weeks later). We went back to CHOP after just 10 days and I wouldn't let her be transferred anywhere after that. When they suggested another transfer, I said no and they began her discharge checklist. It seemed like not too many babies were discharged to home from CHOP.

I saw quite a few babies there who did not have surgery but they may have had some other "rare" condition.
Yeah, I had asked the docs if it would be possible to transfer Andrew to Chester County Hospital (5 min. from us) so I could run home if I needed to, so the kids and dh could come visit more frequently (and more cheaply! Gas to Philly and parking at the hospital was outrageous!), etc., but then we decided it was best to stay at Pennsy - I was so, so happy with the care he was receiving and so grateful they were letting me stay there, I figured leave well enough alone.

Actually I found the staff in the regular NICU was fantastic; about halfway through our stay when Andrew was clearly getting better, we were moved to the transitional section of the NICU and I was not as crazy about the staff there. They were still great medically, but personally not as friendly/caring/supportive, etc. Since I was staying there that made a big difference to me - the nights I spent chatting through the wee hours with nice, friendly nurses went SO much faster than the ones I spent just rocking Andrew and staring at the ceiling while the nurses gossiped to each other way too loudly about some random people or whatever!

Kerriintactlact.gif blessed single mama to Teresa 8/2/02blahblah.gif, Madeleine 5/28/04dust.gif, Andrew 6/25/06jammin.gif, and Isabelle ribboncesarean.gif11/27/08energy.gif

BundleFishMama is offline  
#27 of 70 Old 09-26-2006, 04:04 PM
 
Amys1st's Avatar
 
Join Date: Mar 2003
Posts: 8,449
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
off topic

bundlefish- my parents are from philly but moved out to Chicago 35 years ago (while my mom was carrying me) so its neat to hear you speak of the different hospitals. They lived in Upper Darby. They just spent the last month of Aug/Sept at Sea Isle City at the shore while their house is being built here. We would have joined them but Maggie cannot fly for a few more years (nicu related).

on topic

I dont think a lot of nfl families (myself included for a time) understand there is a time and place for many many medical interventions. One of them is the nicu/picu. I dont care what anyone says, I have see how Group B can reak havoc on a little baby;s body and I watched a baby almost die. If he didnt get those antibiotics, he would have died. Heck he had a foot in the grave already.

Some of the things I have heard hear about the nicu is so far from ap its hard but oth, its that or the baby is not saved. I think I know the choice.

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
Amys1st is offline  
#28 of 70 Old 09-26-2006, 05:11 PM
 
sunflowers's Avatar
 
Join Date: Sep 2006
Posts: 2,140
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
:
sunflowers is offline  
#29 of 70 Old 09-26-2006, 05:58 PM
 
sehbub's Avatar
 
Join Date: Mar 2006
Location: Back in the bush...
Posts: 10,497
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
bfm - one of my best friends works at Pennsy as a nuclear medicine tech, and her brother is a neuroscientist, and her SIL is also a doc there. She lives in Center City. I love visiting her! And I'm so sorry so many people gave you a hard time about Andrew. Just listening to you talk in our DDC, it's so obvious how much you love and care about your kids, and how hard you work to make sure you provide the best for them at all times. You're such an awesome mama!

Sarah - Mama to Vic (1/19/00), Syd (4/06/02) Sam (4/20/06-born at 30wk2d), JackJack (2/14/07) and Charlie (4/30/10)
sehbub is offline  
#30 of 70 Old 09-26-2006, 09:14 PM
 
mhenry's Avatar
 
Join Date: Aug 2005
Posts: 977
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I mostly lurk in this forum. I've been thinking about our nicu time a lot lately, probably because ds has a cardiology follow-up in November. My son was full term (9llbs13oz), but he has GBS, PDA, and pulmonary hypotension. His stay in the NICU was also only 17days. I don't comment on the preemie threads, because I realize I don't know anything about that. I do understand having your childs life hang in the balance and the stress of having to go home to sleep, eat, whatever. I think this forum needs to be about support other mamas and helping them deal. Not judgement.

MITB- I do not think the NICU will come to your room in every hospital. I know they wouldn't in mine, especially since my son had to be transferred to another hospital with a higher level nicu. If I had refused medical interventions my son would have died. Please, don't assume whatever happened in your experience is the same for anyone else.
mhenry is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off