My son is dying. - Mothering Forums

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Old 12-22-2006, 08:05 PM - Thread Starter
 
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He was just diagnosed with Hypoplastic Left Heart Syndrome. He is one week old today and was born at twenty seven weeks. The left ventricle is completely missing, but he isn't a good candidate for a transplant (which would be the best option) because of his other health problems. Since his heart keeps stopping, they want to keep him on life support (so his heart is forced to beat) until he's either well enough to undergo the surgery or until his brain ceases to function. Please keep Simon in your thoughts and really push for his surgery to be performed!

Noel, to his credit, is doing wonderfully. He's gained to two pounds and is 14 inches and a little bit. He's opened his eyes once, and he's on 55% oxygen usually. It went up to 70 yesterday when he was in distress, but he's down to 60 again today. They predict that he will be out of the hospital by his due date (March 16) if not sooner.
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Old 12-22-2006, 08:07 PM
 
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I am so, so, sorry! May you find all the strength you need.

Be strong Simon and Noel. Miracles really do happen.

Proud mom to superhero.gifds2 (7/05), angel2.gif ds 1 (born into heaven at 38 weeks 11/03), and 5 more angels angel.gif (4/02) angel.gif (7/10) angel.gifangel.gif (11/10) angel.gif (11/12)

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Old 12-22-2006, 08:18 PM
 
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I am so sorry for what you're going through.

Our firstborn, Austin, was born at 29wks and w/a heart defect. He lived 5 days. I know how difficult this time is. Feel free to pm me if you'd like to talk. Again I am so sorry.

momma to my girls (9) (7) (4) (3) (7m) &
my little ones held only in my heart 4/12-17/00~8/01-twins~11/04~3/05~11/08
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Old 12-22-2006, 08:18 PM
 
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I am keeping you and your little guy in my thoughts!
Take care of yourself, too.

:Mama to 2 :
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Old 12-22-2006, 08:22 PM
 
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I'll be keeping your boys in my thoughts.

Mama of three.
 
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Old 12-22-2006, 08:22 PM
 
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I am so sorry.
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Old 12-22-2006, 08:23 PM
 
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Keeping him in our thoughts and prayers. Hang in there, Simon.

-sarah-
mom to three, 4 and under.
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Old 12-22-2006, 08:24 PM
 
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and a prayer for Simon
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Old 12-22-2006, 08:28 PM
 
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Oh, momma... won't cut it...but I offer them anyway along with all the prayers I can give.

Angela - wife to my gamer hubby and SAHM to Handsome autismribbon.gif 3/6/03 (~35wks), Princess 8/9/06: (33wks) - we are HELLP survivors, Bubbalicious 9/15/09 (FULL TERM!), and pos.gif oops...here we go AGAIN! (June/July 2012?)

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Old 12-22-2006, 08:32 PM
 
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I'm so sorry. I'm praying for your family. Be strong baby.
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Old 12-22-2006, 08:33 PM
 
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Hang in there mama! Try to stay positive and take good care of yourself during this hard, hard time. You will be in my prayers!
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Old 12-22-2006, 09:58 PM
 
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Wishing you strength and peace during this difficult time...

Jen, former attorney and now SAHM to 11 yo ds and 8 yo ds

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Old 12-22-2006, 10:00 PM
 
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I'm so sorry. That is a really tough diagnosis, even in a FT baby. I wish I could take some of your pain for you, mama. I will pray extra hard for baby Simon.
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Old 12-22-2006, 10:02 PM
 
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You are all in my thoughts.

Kate, mom to 7 year old Djuna and 4 yr old Alden. Missing our good friend Hal the cat who died June 2, 2010

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Old 12-22-2006, 10:07 PM
 
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I am so, so very sorry.
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Old 12-22-2006, 10:12 PM
 
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I am so sorry. Sending vibes your/his way for a miraculous recovery.

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Old 12-22-2006, 10:14 PM
 
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You are all in my prayers!

-Shannon, momma to H reading.gif 8/03, N heartbeat.gif 9/06, & P homebirth.jpg 8/11, missing S brokenheart.gif born at 11 wks 1/09 

 


 
   

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Old 12-22-2006, 10:15 PM
 
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Thinking of you and sending your family peaceful wishes.

Homeschooling mom to four kids, ages 18, 18, 10, and 6. 

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Old 12-22-2006, 10:39 PM
 
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I am so sorry that your son is so sick. I pray for wisdom for both you and your partner and his doctors and that he remains to be stable.

Kim
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Old 12-22-2006, 10:46 PM
 
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I'm thinking of you, mama.
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Old 12-22-2006, 10:49 PM
 
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Holding dear, sweet Simon and everyone who loves him in love and light.

Namaste,

Michelle

M : proud mama to B (16) : and G (8) and : x 2 :
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Old 12-22-2006, 10:49 PM
 
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I'm so sorry. HLHS is a rough diagnosis! And he's a preemie. Where are you? We have a cardiac surgeon at our hospital that operates on preemies. He's fearless and tireless. He's been featured on CNN. PM me if you want about it.
My heart goes out to you. Take care of yourself.
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Old 12-22-2006, 11:17 PM
 
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I'm so sorry. You guys will stay in my thoughts.

Cami, wife to a guy and mom to some kids. Expecting someone new in Februrary!â¢â¢â¢â¢5â¢â¢â¢â¢10â¢â¢â¢â¢15â¢â¢â¢â¢20â¢â¢â¢25â¢â¢â¢â¢30â¢â¢â¢â¢35â¢â¢â¢â¢40
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Old 12-22-2006, 11:52 PM
 
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My heart aches for you, you and yours will be in my thoughts and prayers.

Granolamom
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Old 12-23-2006, 12:10 AM
 
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Words are so inadequate at a time like this. I pray and hope that Simon makes a complete recovery. Sending you and your family a lot of healing vibes, love, and strength.

Normal is just a setting on your dryer.
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Old 12-23-2006, 12:25 AM
 
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Praying for your sweet boy....hoping a miracle gets sent your way....

Mom to two amazing boys, C (July 2005) and D (May 2010)

Founder/leader of a Babywearing group, and loving it!

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Old 12-23-2006, 12:36 AM
 
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Adding another voice to the chorus of well-wishes and prayers . . .
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Old 12-23-2006, 12:55 AM
 
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Oh mama, I will be thinking of you and your boys. I wish you all strength and good health.

Betsy, mama to beautiful, strong MZ twins Lillian and Kate, born 11 weeks early on January 10, 2006.
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Old 12-23-2006, 01:11 AM
 
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Oh mama I'm so sorry to hear about you son. He will be in my thoughts and prayers. I hope he is able to hold on until his surgery. And I'm very glad to hear that your other little one is doing well. I hope they are both able to come home. Keep us updated.

Kristen treehugger.gif mama to Chris(15)eat.gif, Kaitlyn(10)blahblah.gif, TJ(8)sleepytime.gif and Natalie(5)thumbsuck.gif & Emily(2)diaper.gif
  
 

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Old 12-23-2006, 01:19 AM
 
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I will be thinking of you and yours.
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