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Abi: My DS2's issues were very similar. He had 2 holes in his heart along with his pulmonary veins being completely unattached. He had the heart surgery to patch the holes and to connect the pulmonary veins last year when he was 2 weeks old. They monitor him now for stenosis.
Has the cardiologist had any suggestions for the stenosis? A lot of other children with my son's defect (TAPVR) have had PV stenosis issues and they usually opt for the cardiac catheterization first and try to "blow the veins open" before resorting to surgery. I think they inject the dye first to see just how obstructed they are.
I hope your genetics appt goes well and you have some answers soon. Hugs to you and your little man!
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