Feeding issues (NICUs and formula) - Mothering Forums

Forum Jump: 
Reply
 
Thread Tools
#1 of 33 Old 10-06-2008, 08:22 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My son, William, is in the NICU after being born at 33 weeks, 5 days, last week. His weight is good - 5 lbs, 7 oz at birth, down to 5 lbs, 1 oz.

He's off oxygen, the caffeine they are giving him has controlled his As & Bs (he's only had one in three days!), and he's off IV fluids and mostly off the bililights.

I've been pumping, and have a great supply, so no worries there. He's been feeding via gavage the past two days, solely breastmilk.

Well, today, I get to the NICU and lo and behold, he is off breastmilk and on Similac Lactose-Free. He'll be on it for at least 24-48 hours. They said he'd been spitting up/puked, but no blood in stool and has been stooling great. The neo put him on the formula because they are unsure if he is affected by something in my diet. The nurse today, however, thinks it's probably a volume issue. He's getting 38 cc every three hours, and he had been getting that in 30 minutes. Now they are giving him it (well, formula now) over an hour.

Needless to say, I'm pretty sad. Pumping is hard enough, especially with a toddler running around and the stress of the NICu. And I had issues bfing my DD, so I was hell-bent on exclusively bfing this one. I am fine with changing my diet - I told them I could go immediately on a bland diet (I don't even drink milk as it is), and they could start using my next milk. But they want to use the formula until they determine if it's a volume issue. (He did spit up twice today, and on formula..hmmm.)

Has anyone dealt with this and gone on to breastfeed their preemie? I'm sure I can deal with this diet-wise. I just wish they wouldn't rush to formula so quickly.
krabigirl is offline  
#2 of 33 Old 10-06-2008, 08:54 PM
 
sparklett's Avatar
 
Join Date: Nov 2006
Location: Cascadia
Posts: 1,189
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Hugs mama. My DS (33w, 1d) was given formula twice, but it was because the nurses weren't paying attention, not because there was any sort of issue. DS even developed GERD in the NICU, and they never, ever suggested changing to formula.

Were I in your situation, I would really push to change back to BM.

"In the depth of winter, I finally learned that within me there lay an invincible summer"
sparklett is offline  
#3 of 33 Old 10-06-2008, 09:08 PM
 
buckysprplmonkey's Avatar
 
Join Date: May 2006
Location: Pittsburgh, PA
Posts: 604
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I'd demand to see a lactation consultant if I were you. From my understanding, breastmilk generally helps GERD and other digestive problems.

They didn't give my 28 weeker any formula at the NICU, but I did spend 7 weeks pumping every three hours with a 2 year old, an 8 year old and an 18 year old to keep track of too. It's hard, but possible and worth it. Many moms go on to EBF after a NICU stay.

HTH- hugs!
buckysprplmonkey is offline  
#4 of 33 Old 10-06-2008, 09:21 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I was thinking of requesting to see the LC as well - that's a good suggestion. I don't see why they couldn't do the volume test with breast milk. I just don't think the neonatologists will change their minds until the 48-hr period is over. And I agree - I don't see how breastmilk would be WORSE than formula for spitting up or vomiting. I just feel so powerless there. They really won't listen to anyone but the doctors.

And yeah, the pumping is fine. I'm producing quite a bit, and just tried a hands-free pumping bra that I got in the mail, and wow, it's soo much easier on my shoulders. I can even come on here while pumping now.

I just hate to see the milk I work hard to make just sit in the NICU freezer.

DH is going to go there tonight. I am going to see if he can be a bit more forceful about them going back to the breastmilk sooner.
krabigirl is offline  
#5 of 33 Old 10-06-2008, 10:49 PM
 
irangel's Avatar
 
Join Date: Aug 2005
Posts: 2,160
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
That makes me raging mad. He's spitting up. Normal FT babies spit up. There's nothing wrong with that if he's not in pain and he's gaining weight. As his mother you can disagree with their decisions and order them to do things your way. I'd get bossy and tell them to put my kid back on breastmilk immediately.
irangel is offline  
#6 of 33 Old 10-06-2008, 11:29 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks. DH is going there tonight and he said he will tell the nurse that he wants him on the breastmilk as soon as possible. I'm not able to go there until tomorrow night (don't have anyone to come watch my 21-month old), so if he's still on the formula, I'll tell them again.

So from what I understand, I *can* demand them to put him back on breastmilk if they won't do it after DH asks? I just don't think they will listen to me. Who should I talk to? The nurses or the neonatologists? And what if they refuse? What rights do I have? I just want him to come home. I'm always afraid that the social worker will come by and "talk" to me about postpartum depression or anxiety if I speak up. (She did when I demanded to know why I couldn't hold him a few days ago, then a doctor came by and let me hold him.)
krabigirl is offline  
#7 of 33 Old 10-07-2008, 07:45 AM
 
skylarsmama's Avatar
 
Join Date: Mar 2002
Location: Birdsboro,Pa.
Posts: 543
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
The nurses gave one of my boys formula twice, with asking me first, and i freaked on them. I would talk to the nicu doctor and insist that your baby get nothing but breastmilk and have it written in the chart.

Lindsey- SAHM to Skylar (7-12-01), Leah (10-29-04), id twin boys Addison and Riley (6-17-08, born at 25w4d), and Terran (5-29-11, born at 28 weeks)

skylarsmama is offline  
#8 of 33 Old 10-07-2008, 09:30 AM
 
pibblestiltskin@ma's Avatar
 
Join Date: Jul 2007
Posts: 471
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by krabigirl View Post

Has anyone dealt with this and gone on to breastfeed their preemie? I'm sure I can deal with this diet-wise. I just wish they wouldn't rush to formula so quickly.
Congrats on the little one! This sounds much like my ds and he went on to nurse for more than 2 years, Exclusively bf once he got got home. Our NICU didn't switch to formula but did beef up the calories of my bm by adding some.

Does your NICU have a lactation consultant who is specifically assigned to the NICU? Ours had one who specialized in preemie issues who stopped by to check up on us and give advice. Also, I tried to be there for at least one feeding ( I also had a 2 year old at the time so I know it is not easy) and the nurses encouraged me to nurse while the food was going through the tube so that he could make the association between a full tummy and nursing.
pibblestiltskin@ma is offline  
#9 of 33 Old 10-07-2008, 05:59 PM
 
Amys1st's Avatar
 
Join Date: Mar 2003
Posts: 8,449
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Talk only to the attending. Bypass the nurses and find out who ordered the formula. Sorry you have to go thru this!

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
Amys1st is offline  
#10 of 33 Old 10-07-2008, 06:42 PM
 
irangel's Avatar
 
Join Date: Aug 2005
Posts: 2,160
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by krabigirl View Post
Thanks. DH is going there tonight and he said he will tell the nurse that he wants him on the breastmilk as soon as possible. I'm not able to go there until tomorrow night (don't have anyone to come watch my 21-month old), so if he's still on the formula, I'll tell them again.

So from what I understand, I *can* demand them to put him back on breastmilk if they won't do it after DH asks? I just don't think they will listen to me. Who should I talk to? The nurses or the neonatologists? And what if they refuse? What rights do I have? I just want him to come home. I'm always afraid that the social worker will come by and "talk" to me about postpartum depression or anxiety if I speak up. (She did when I demanded to know why I couldn't hold him a few days ago, then a doctor came by and let me hold him.)
You are his mom. You have every right to demand they put him on breastmilk. You shouldn't have to ask them to do it. You can tell them to. You can talk with the doctor and tell them you will not allow him to be on formula and they have to listen to you. As his mother you have that authority. The doctor can explain his/her reasoning for using the formula but ultimately it's your decision. In my daughter's chart we had written everywhere "no formula allowed under any circumstances". When they wanted to try using some for her osteopenia the doctor called me and asked permission first.
irangel is offline  
#11 of 33 Old 10-07-2008, 07:11 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks. Well, it looks like I am going to have to talk to one of the doctors about this. DH told a doctor last night that we wanted him back on my milk asap, and that I've changed my diet (eliminated all dairy, gas-causing veggies, and chocolate for now.) The doctor said he would do so, but as of today, he is still on the lactose-free formula.

When I called the NICU today (can't go until tonight), his nurse tells me that it's a doctor's decision, and the doctor wants him on the lacto-free for one more day, maybe two, and then will re-introduce my breastmilk. He hasn't been vomiting and is gaining now that they are feeding him over a longer period of time, but I want him on breastmilk!! What's the point of pumping if he's not going to eat it?I was told to bring in my new(er) milk, and to bring the old milk home to freeze for when he comes home.

It's still not good enough. I am going to talk to the doctor tonight. I'm so upset about this. You know how it goes in there. They say something will happen for a day or two, and then before I know it, he'll still be on stupid formula next week. And I'm producing a ton..it's so ironic.

The good news is that he's been moved to the feeder/grower room. They tried to nipple him (with a bottle), but he is not interested yet.
krabigirl is offline  
#12 of 33 Old 10-07-2008, 07:33 PM
 
azgirl's Avatar
 
Join Date: Nov 2006
Posts: 386
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
You should definitely talk directly to the Neo. Are you able to be at the hospital for rounds? That is what we did (for 4 months...) that way you are there when the dr. is discussing decisions with the nurse etc. I talked to the Neo everyday. Nurses have to do what they are told...
azgirl is offline  
#13 of 33 Old 10-07-2008, 07:53 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks, AZGirl. Unfortunately, parents can't go into the NICU during rounds (from 7-11 am), but the neos are usually available afterwards. My mom is babysitting my toddler tomorrow, so I'll be able to go in after the rounds. I'll ask to talk to the neo then. I don't think the night-time neo has as much authority.
krabigirl is offline  
#14 of 33 Old 10-08-2008, 01:22 AM
 
sparklett's Avatar
 
Join Date: Nov 2006
Location: Cascadia
Posts: 1,189
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I just noticed you're in So. Cal! Hi neighbor!! My DS was born in a So. Cal hospital, too.

Do you have a Neo. that is assigned to you? If so, talk to that person. If you don't get results, talk to the person in charge.

Have you befriended a nurse yet? Sometimes it helps to have a nurse advocate for you (we befriended the head nurse for the night shift and our stay was MUCH easier after that).

I would suggest you hop on the phone right now and call the NICU and tell them that you want to talk with the neonatologist about the milk issue first thing in the morning after rounds. They'll put it in the notes and the neo. will hopefully be available to talk to you.

I'm so sorry this is happening to you. The last thing you should have to worry about right now is something as basic as this.

"In the depth of winter, I finally learned that within me there lay an invincible summer"
sparklett is offline  
#15 of 33 Old 10-08-2008, 12:09 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I am going to talk to the neo assigned to him today. I will be there a bit after rounds, since my mom will be at my house to watch DD.

Funny that you asked about the nurses. Last night, I met a wonderful nurse. He's been moved to the feeder/grower room, and she immediately showed me how to take his temp, told me I could change diapers and pick him up myself, as long as he isn't feeding (until the vomiting has stopped for a few days.)

She also said he is NOT doing much better on the formula, and that the doc is probably going to put him back on BM. They are going to start investigating reflux issues. (finally...)

Since it takes a few days for the dairy and chocolate to leave my system, I am not sure when exactly they would start him, but since the formula isn't helping, what's the point? The nurse was great. There are two other nurses that I also get on with, but they weren't as proactive as her about helping me.

Wish me luck when I talk to the neo today.

I'll let you know
krabigirl is offline  
#16 of 33 Old 10-08-2008, 03:06 PM
 
Amys1st's Avatar
 
Join Date: Mar 2003
Posts: 8,449
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Glad he moved! I see nursing in your future....


I remember when Maggie went to Feed n Grow. We sang to the tune of London Bridge for days after...

Move her into feed and grow...

feed & grow

feed & grow

Move her into feed and grow My Fair Maggieeeeeee


Sadly this was DH who invented this song! Way too much time listending to the preschool tunes at the time (Liz was 3) Of course now that she blars that Hanna Montana CD, I miss the preschool tunes..

I needed to make you smile there so the reason for the Off Topic!

"The true joy of life is the trip. The station is only a dream. It constantly out distances us."
Amys1st is offline  
#17 of 33 Old 10-08-2008, 03:20 PM
 
sbrinton's Avatar
 
Join Date: Jul 2008
Location: Near Seattle
Posts: 1,168
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Some NICUs, doctors and nurses seem to have a bias against breastmilk. This is just silly, as for the vast majority of babies, especially preemies, breastmilk is the best thing.

Keep pumping! There is a point even if your baby can't have the milk yet! In a few weeks he will be home and it will be up to you what he eats.

If you disagree with the doctors putting him on formula, I would definitely figure out who you can talk about about a second opinion. Be very clear what you want. The La Leche League website has lots of info about why breastmilk is best for preemies.

There are many ways to treat reflux other than switching to formula or adding rice cereal. Positioning, medications, chiropractic and cranio sacral massage can all make a difference.
sbrinton is offline  
#18 of 33 Old 10-08-2008, 07:21 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Amy - thanks for sharing that story! How cute! It is a very happy time when they are moved

Sara - I think you are right. I do think they are biased, at least in this NICU, against breastmilk, because they don't know exactly what I'm taking in. They do seem to know formula. I will keep pumping, because even if they don't use it in the NICU (which I think they will, I just don't know when), I will have TONS to use when he gets home. :

I was there for about 2 1/2 hours, and was able to hold him during his feeding. I let him use a paci so he could get used to sucking while eating. He did vomit after we put him back, so the nurses do know that the formula isn't helping at all. Today's nurse thinks it's simply a volume issue.

I wasn't able to talk to the attending doctor. I waited and waited, but there were several critical preemies being brought into the main room, and one had to be transported to another hospital. I'm just waiting for a call now.

Good news is that they plan to move him to an open crib by this evening, or tomorrow if it's not possible!
krabigirl is offline  
#19 of 33 Old 10-08-2008, 09:44 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Good news! I just got off the phone with the head nurse, and the attending neo has put in the order to start William back on breastmilk!!! :

They really don't even think he is allergic to anything at this point, or even that he has reflux. They are going to slow down his feeds a bit or lessen the volume. I think he was just getting too much.

I hope this lasts - but at least I feel good to know that he will be getting some antibodies in his next feeding!!
krabigirl is offline  
#20 of 33 Old 10-08-2008, 10:54 PM
 
sbrinton's Avatar
 
Join Date: Jul 2008
Location: Near Seattle
Posts: 1,168
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My little guy fed almost constantly but just a little at a time. Maybe 5-10 minutes out of every hour. That was enough to wear him out and he would just sleep. And then nurse. And the sleep. And then nurse....
sbrinton is offline  
#21 of 33 Old 10-13-2008, 05:04 PM
 
momoftinyhayden's Avatar
 
Join Date: Aug 2008
Location: Western, Kentucky
Posts: 43
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My son was born at 30 week, he was on breast milk for 6 weeks before they switched him to Similac Sensative, which is milk based but lactose free.

It might be something as simple as they need to thicken your breast milk. Which is simple they just put this jel looking stuff called simply thick in your milk before feeding, and simply thick is absolutely harmless.
And you might be right they might be feeding your baby too much at once time, with my son they fed him too fast and he didn't vomit it up but they would put it in his NG tube and it would run out his nose, not like vomiting, but just run out like he was too full and that was how it was coming out.

They eventually put him on the pump too for an hour.. and that helped a great deal but it seemed to be too much, because by the time his feeding was done there were only 2 hours til his next one. I fought and fought with the doctors to lower the volumn. I am also the one whom demanded them change him to lactose free formula. They say lactose intolerance runs in families and both myself and my other child are lactose intolerant, Hayden would drop his heart rate to around 85 each feeding and sometimes they'd have to stimulate him to get his rate back up. he was on the lactose free for the next 3 weeks without dropping his heart rate one time.

It might be something as simple as your baby is a refluxer, like many of ours, I personally would ask the doctors if it's possible the baby is refluxing. They can do a swallow study, or an Upper GI to determine the reflux issue, and there are multiple medications they can use to help with reflux, my son came home on 2 different ones. IF it is reflux they can put your baby back on your BM.
With BM make sure they use Simply Thick, not rice cereal, there is something in the cereal that breaks down the bm, and also with the NG tube it gets clogged.

Good luck mama, i pray it's something as simple as reflux and easily treated
momoftinyhayden is offline  
#22 of 33 Old 10-14-2008, 02:20 AM
 
Khourtniey's Avatar
 
Join Date: May 2007
Location: Arkansas
Posts: 1,770
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I fought hard with my recent NICU about breastmilk.. They kept giving my daughter formula when I straight out told them ONLY BREASTMILK!!! They kept making up stupid excuses why she needed formula.. Finally they got sick of me and did the breastmilk only and lo and behold she did excellent.. I still get angry thinking about it today... It seems that when you sign that general consent for the NICU that you give them a lot of authority over your child.. Just be very demanding with them.. Read the charts and make sure they are doing what you want and tell them to call you and OK it with you BEFORE they make any changes.
Khourtniey is offline  
#23 of 33 Old 10-14-2008, 02:15 PM
 
~bookcase~'s Avatar
 
Join Date: Apr 2007
Location: In the middle of sweet chaos.
Posts: 1,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
It's really sad, and RIDICULOUS, that it's such a struggle to get them fully b'milk fed. I had a nurse come to me in the middle of the night just as my milk was coming in to say she had nothing for the 1am feed and what formula would I give!!!

I told her I'd express every hour to keep off formula but had to play the 'allergy card', that we have dairy intolerance in the family, to be taken seriously. I was a mess the next morning from sleep deprivation and angst. Surprise, surprise, there was plenty to go round anyway - I had bottles in the fridge, so all that stress for nothing basically.

Then we found out around day 7 they'd been supplementing all along with a fortifier. I felt so deceived. That contains milk/ animal ingredients too and I had not given my permission for it AT ALL. We then had that stopped, but really, where is parental choice and consent in all this !?!?!?!

joy.gifspread a lot of love joy.gif

~bookcase~ is offline  
#24 of 33 Old 10-14-2008, 02:48 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Well, just like I thought, he does have reflux. They call him a "happy spitter" since he doesn't get upset at all when puking. They started him on Reglan and have been putting rice cereal in a few of his feeds and he hasn't spit up in three days. I am not keen on the rice cereal, however. I had not heard of Simply Thick. I will ask about it. What does rice cereal do to EBM exactly?

I won't be using rice cereal at home - no way. But in the NICU, I guess I'm not as adamant about it because I just want him to come HOME! (where I can feed him what I want, and no cereal.) I'll ask about the Simply Thick today, though.

He is doing well on the breastmilk. He gained an ounce and a half yesterday! He's up to 5 lbs. He took only 15 cc by bottle (he has to use bottles first), but at least he is making progress. He takes 40 cc for each feed through the tube. He's in an open crib and off the caffeine for As and Bs, and only had one minor episode Sunday, none yesterday.

I just want him home! And I won't be able to nurse until he takes more feeds by bottle, so I hope he will catch on soon.
krabigirl is offline  
#25 of 33 Old 10-14-2008, 04:26 PM
 
skylarsmama's Avatar
 
Join Date: Mar 2002
Location: Birdsboro,Pa.
Posts: 543
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by krabigirl View Post
Well, just like I thought, he does have reflux. They call him a "happy spitter" since he doesn't get upset at all when puking. They started him on Reglan and have been putting rice cereal in a few of his feeds and he hasn't spit up in three days. I am not keen on the rice cereal, however. I had not heard of Simply Thick. I will ask about it. What does rice cereal do to EBM exactly?

I won't be using rice cereal at home - no way. But in the NICU, I guess I'm not as adamant about it because I just want him to come HOME! (where I can feed him what I want, and no cereal.) I'll ask about the Simply Thick today, though.

He is doing well on the breastmilk. He gained an ounce and a half yesterday! He's up to 5 lbs. He took only 15 cc by bottle (he has to use bottles first), but at least he is making progress. He takes 40 cc for each feed through the tube. He's in an open crib and off the caffeine for As and Bs, and only had one minor episode Sunday, none yesterday.

I just want him home! And I won't be able to nurse until he takes more feeds by bottle, so I hope he will catch on soon.

I can't believe they're putting cereal in his bottles!!! Have they tried reglan or zantac for the reflux? I'd also insist that he's at least allowed to suckle at the breast. Actually, I'd demand a lactation counselor and tell them that you will be nursing. I nursed my twins when they had feeding tubes. If they nursed for more than 15 minutes, we didn't give them their tube feeds at all. Sometimes we'd give half, sometimes we'd give it all but they were always allowed to nurse first.
I'm sorry you're having to deal with all of this. I hope he is able to come home soon.

Lindsey- SAHM to Skylar (7-12-01), Leah (10-29-04), id twin boys Addison and Riley (6-17-08, born at 25w4d), and Terran (5-29-11, born at 28 weeks)

skylarsmama is offline  
#26 of 33 Old 10-14-2008, 04:33 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
He is on Reglan for reflux. Honestly, I think that is what is helping him rather than the cereal. But like I said, I really just want him home - I won't be feeding him cereal at home, so I just want to play the game and get him OUT of there asap!

If I can get them to use Simply Thick, that would be nice.

Unfortunately, their policy is that they don't contact the LC or do any nursing until he takes half of his feeds by the bottle. (Their rationale is that nursing at the breast takes a lot of work and they don't want him to lose weight.) I am sure I could fight it, but I just want him home! He is struggling with the bottle as well.

I do want to nurse him, not just bottle feed EBM, but I just want him out of there!

The hospital in general pretends to be BF-friendly, but I found that even when I had my healthy, full-term DD, that bottles were heavily pushed.
krabigirl is offline  
#27 of 33 Old 10-15-2008, 01:39 AM
 
mrsfru's Avatar
 
Join Date: Jul 2005
Posts: 324
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
you can make it clear that you want nooo formula--it's your right to do so. fwiw--lactose isn't the problem! bm has tons of lactose, so humans wouldn't have survived if this were the case. it probably is a volume issue. it will clear up soon, as his tummy gets used to things. but they are increasing his risk of food allergiies. we dealt w/similar issues w/both our boys and nicu protocol.

mrsfru

congrats!!!
mrsfru is offline  
#28 of 33 Old 10-15-2008, 06:04 AM
 
~bookcase~'s Avatar
 
Join Date: Apr 2007
Location: In the middle of sweet chaos.
Posts: 1,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I would go direct to the lactation consultant if you can ask for her through the main hospital switchboard. I know what you mean about wanting him home, but the fight to get off bottles and back to breast could well be far more difficult.

I'm sure it's proven that b'feeding is less stressful. Maybe someone else here has some references for this that you can take in. I spoke to a nurse who was pro b'feeding to find an up-to-date study stating fortifiers are not necessarily a good idea and she helped me get my case reviewed.

I'm worried if I don't fight whilst they are in there that I'll struggle more once they are home. It's a very tearful time though. Sometimes I feel sick because I don't want to have to query anything else/ have to stand my ground on another point. As if we don't have enough to process already, kwim !!!!!

joy.gifspread a lot of love joy.gif

~bookcase~ is offline  
#29 of 33 Old 10-15-2008, 09:24 AM
 
irangel's Avatar
 
Join Date: Aug 2005
Posts: 2,160
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by krabigirl View Post
Well, just like I thought, he does have reflux. They call him a "happy spitter" since he doesn't get upset at all when puking. They started him on Reglan and have been putting rice cereal in a few of his feeds and he hasn't spit up in three days. I am not keen on the rice cereal, however. I had not heard of Simply Thick. I will ask about it. What does rice cereal do to EBM exactly?

I won't be using rice cereal at home - no way. But in the NICU, I guess I'm not as adamant about it because I just want him to come HOME! (where I can feed him what I want, and no cereal.) I'll ask about the Simply Thick today, though.

He is doing well on the breastmilk. He gained an ounce and a half yesterday! He's up to 5 lbs. He took only 15 cc by bottle (he has to use bottles first), but at least he is making progress. He takes 40 cc for each feed through the tube. He's in an open crib and off the caffeine for As and Bs, and only had one minor episode Sunday, none yesterday.

I just want him home! And I won't be able to nurse until he takes more feeds by bottle, so I hope he will catch on soon.
Technically Rice Cereal in breastmilk does not work because the rice cereal is broken down in breastmilk and turns back to a thin liquid over time instead of thickening the milk like it does with formula. I'm surprised they'd even try rice cereal in breast milk. Most doctors know that you can't do that with breast milk. It sounds like these doctors know next to nothing about breast milk unfortunately. Something like Simply Thick is the only thing that you can do to thicken breast milk. Also, have the doctors not considered putting him on a safer reflux med like Prevacid or Prilosec that doesn't cross the blood brain barrier? Have they talked with you much about the possible neurological side effects of Reglan?
irangel is offline  
#30 of 33 Old 10-15-2008, 02:14 PM - Thread Starter
 
krabigirl's Avatar
 
Join Date: Dec 2006
Location: deleted land!
Posts: 62
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
No, they haven't talked to me about the effects of Reglan. I'll ask today. I have read some bad things about it if it's taken for more than 6 months.

LOL, that's funny that the rice doesn't do anything to thicken the breastmilk. So there's no point? It seems like the reglan is what is helping him, then.

I know that direct bfeeding is easier than pumping/bottle feeding. I went that route with DD, so it's important that I can bfeed from the source this time. I just want him out, though, but I'll discuss an appt with lactation soon so I can start. I plan on working with an LC that I know when he finally gets home. I'd be a bit more relaxed then as well - the NICU is hard to relax in - I can barely let down to pump at bedside, even with a privacy screen.
krabigirl is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off