We have found most of the problems with Sierra updated post 57 - Mothering Forums

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Old 03-26-2007, 06:08 PM - Thread Starter
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We did an echo today to check on her heart because that could be what is causing alot of the problems. What we found was shocking news. She blew her PDA open. She had surgery to close it when she was 2 and a half weeks old. With it open she has poor oxygenation and constant desats. We have to wait for her to be stable to go in and fix it.
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Old 03-26-2007, 06:21 PM
 
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oh, wow, so sorry to hear that. I guess it is good that they know it is a problem. when do they expect to be able to fix it?

Happily Married to my : 11 yrs- Mama to wild-eyed monkey boy 7-04, fiery little girl 4-07, and the happy smiley baby that sleeps 11-09!
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Old 03-26-2007, 06:24 PM
 
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Oh My! It's very good that this was found.
Just how stable does she need to be?
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Old 03-26-2007, 06:29 PM - Thread Starter
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oh, wow, so sorry to hear that. I guess it is good that they know it is a problem. when do they expect to be able to fix it?
When she stops being a drama queen and relaxes and quits coding and desatting
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Oh My! It's very good that this was found.
Just how stable does she need to be?
She has to be alot more stable than she is. Right now she desats, gets bagged and within minutes of getting back up she desats again. We need her to be able to hold her saturations up long enough to get in and do the surgery. Right now she will die in surgery
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Old 03-26-2007, 07:58 PM
 
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: I was a baby with heart problems! Hang in there!

Rachael ~ Wife to : DH ~ Son 4-24-07 ~ 6-24-08 ~ Daughter 7-22-09
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Old 03-26-2007, 09:24 PM
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Poor baby girl Praying real hard for your princess
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Old 03-26-2007, 10:32 PM
 
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How will they fix it this time? Poor baby!

Michelle: wife to J, mom to M (2001), E (2003), C (2005), S (2007) and O! (2009) And someone new in 2011!
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Old 03-26-2007, 10:39 PM
 
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I thought I would update you all....this is from her journal


Sierra is going into surgery in a little bit to close her PDA. They had to paralyze her because anytime anyone touched her she would desat. We have spent the majority of the day desatting coming back up desatting again and repeat. She coded once today and that was the scariest thing ever. She is finally stable enough to go in and do the PDA Ligation. I am more terrified for this one because it is really high risk but has to be done to save her life. I will update later tonight





Keep this little one in your prayers!!

Bobbi
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Old 03-26-2007, 10:58 PM
 
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I'm praying for you guys
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Old 03-26-2007, 11:16 PM
 
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Amber thinking of you & Sierra.

Keep fighting Sierra!!!!!!!!!!!! Hold Strong Amber.

Cristina - "If you find it in your heart to care for somebody else, you will have succeeded." Maya Angelou
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Old 03-27-2007, 12:23 AM - Thread Starter
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We made it through surgery and she is doing alot better.
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Old 03-27-2007, 12:25 AM
 
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Praise God!
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Old 03-27-2007, 12:33 AM
 
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That is so good to hear!

Rachael ~ Wife to : DH ~ Son 4-24-07 ~ 6-24-08 ~ Daughter 7-22-09
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Old 03-27-2007, 12:37 AM
 
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We made it through surgery and she is doing alot better.
I am so glad to hear that, thank God!!
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Old 03-27-2007, 12:39 AM
 
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I am so glad she made it through the surgery and is doing better. I was holding my breath. I think about Sierra all the time.
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Old 03-27-2007, 12:45 AM
 
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Old 03-27-2007, 12:46 AM
 
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Old 03-27-2007, 01:29 AM
 
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You have great strength to go through all of this, Sierra must, too. Healthy wishes to your family.
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Old 03-27-2007, 01:40 AM
 
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So glad that she's made it through surgery and doing better.
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Old 03-27-2007, 02:59 AM
 
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oh, so glad to hear they got this problem fixed, what great news!

Happily Married to my : 11 yrs- Mama to wild-eyed monkey boy 7-04, fiery little girl 4-07, and the happy smiley baby that sleeps 11-09!
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Old 03-27-2007, 03:08 AM
 
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My thoughts are with you all!!

Barbara:  an always learning SAHM of Ilana (11) and Aiden (8) living in Belgium with my amazing husband.

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Old 03-27-2007, 06:47 AM
 
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My thoughts are with you! I'm so glad she made it through the surgery!

Me (37) ~ DH (39) ~ DS (3) ~ TTC #2 since 4/10
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Old 03-27-2007, 10:49 AM
 
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oh, i'm so glad that she made it through the surgery!

mama  to 3 farmboys (, & ) and 1 farmgirl ()
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Old 03-27-2007, 11:39 AM
 
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Wow... what a rough journey. I'll keep on praying that you all pull through this shakey time sooner than later.
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Old 03-27-2007, 11:54 AM
 
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Thinking of you- hope that this correction allows for better development. This must be so difficult for you-
A

Amanda; mama to: Axel (Dec/04), Evangeline (Apr/07) and Ramsey, (Feb/09) born unassisted! Jethro Vader (Apr/11) and #5 due April 2014. 
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Old 03-27-2007, 04:31 PM
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I am so glad she made it through surgery! Hoping she recovers and can get better and stronger. You have been through hell
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Old 03-27-2007, 07:48 PM
 
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Good for her.........we are praying!
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Old 03-28-2007, 01:57 PM
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Baby Sierra is going in for a brain ultrasound. Praying for the sweet baby and hoping they dont find anything wrong and that she is just taking an unusually long time to wake up
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Old 03-28-2007, 04:57 PM
 
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Still thinking of Baby Sierra and hoping she stabilizes and thrives.
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Old 03-28-2007, 05:25 PM
 
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i know you all can just click on acamiles' link but here is the latest news:

"Ok i have been battling with my computer to let me on more websites. All morning i could only get on MDC. Imagine that! Well Sierra had a brain scan and she does have brain activity so she isnt brain dead. Nothing seems to be wrong with her brain and we have no brain bleeds. She is just taking a very long time to wake up and is making it harder for any other baby to be as difficult as she is. She is doing alot more twitching so hopefully she will be awake pretty soon. She is peeing alot more. Blood gases are looking better and settings are still very high but improving"

thoughts and prayers, sierra!

mama  to 3 farmboys (, & ) and 1 farmgirl ()
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