Bright spot on heart during ultrasound - Mothering Forums

Forum Jump: 
 
Thread Tools
#1 of 20 Old 07-27-2007, 12:37 PM - Thread Starter
 
kerrybennysmama's Avatar
 
Join Date: Jun 2004
Posts: 278
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I spoke with my OB today who got the results back from my ultrasound yesterday. The saw a small white spot on the heart which could be a marker for Downs. They said everything else looked normal but they want me to get a Quad screen to see what that says. Apparently this happens in a lot of normal babies but i am a mess about it. It has taken me 2 years, and two miscarriages to finally get to this point, and now I have to worry that something is wrong. I am tired of worrrying. I am so scared. Has this happened to anyone else?

Kerry, happy wife to hubby Chad, mama to ds 6, Rainbow ds 2, and 4
kerrybennysmama is offline  
#2 of 20 Old 07-27-2007, 12:55 PM
 
DucetteMama21842's Avatar
 
Join Date: May 2006
Location: Vancouver, WA
Posts: 1,970
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
This has not happened to me, but I had a similar situation happen to my best friend.

An ultrasound said that the nuchal fold(?) was too thick and was a marker for downs.. they wanted her to get the quad screen and she did. Her risk was a higher risk, which devastated her and her husband. After much heartache and discussion they decided to not get the amnio because of such a high risk of miscarriage/spontaneous abortion. At her daughter's birth the doctor apologize for everything they'd been through... as, once again, the test had been wrong. Her whole rest of her pregnancy was spent with a shadow over it. She cried about it all the time.

What I suggest to you is that if it matters to you to really HAVE to know- then do the quad screen. Knowing that the quad screen has a HIGH false positive rate. If it doesn't matter to you... just enjoy your pregnancy. Ultrasounds are not perfectly accurate, and neither are the techs who run them.

Either way,

We're here if you need us.
DucetteMama21842 is offline  
#3 of 20 Old 07-27-2007, 01:13 PM
 
sammysmammy's Avatar
 
Join Date: Nov 2002
Location: under the disco ball
Posts: 331
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I know I'm coming at this from a different perspective,but we have two beautiful boys with Down Syndrome(not downs,sorry..just a common pet peeve of parents).We adopted the youngest three of our six children.One was given up at birth simply because of his syndrome,another and all his bio siblings had to be removed from parental custody because of meth use.Our youngest though,does not have any chromosonal anomoly even though birth mom had been told he did have Down syndrome,or at least mosaicism(you can google,just a different way the chromes split).They had done the quad screen,constant ultra sounds(even up til' birth)so when we got to the hospital when he was born I was fully prepared that we were bringing home another baby w/ D. syndrome. The ped. on site came in after birth mom was released from hospital and said I don't believe this baby has Trisomy.....I said I know he doesn't!They asked permission to do cord blood testing,and two weeks later they called to say everything came back normal.
I just want to encourage you either way.Remember NOTHING is an absolute,especially medicine,so try not to get upset just yet.Also,we have two amazing people in our family that I can attest to you are funny,smart,enchanting guys.Down syndrome is not the end of the world.One of our guys did have a heart issue,and had to have heart repair at about a year old,but he is fine now.If there is a heart issue I would just encourage you to wait as long as possible before repair so your babe can grow and get stronger before having invasive surgery,we had to fight the system on this.
Please feel free to pm me if you need to.
Blessings and good vibes to you and your sweet babe........
sammysmammy is offline  
#4 of 20 Old 07-27-2007, 02:46 PM
 
mama-doo's Avatar
 
Join Date: Jan 2007
Posts: 10
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
We had a similar experience. Our first son had 2 bright spots ("echogenic foci"?): one on heart and one on kidneys. We ended up having a fetal echocardiogram which came out normal and paid out of pocket for genetic counseling which was recommended. Decided to forgo any other additional tests. We were also told that the bright spots were a marker for a chromosomal abnormality---we did a lot of research and have since learned how common this is. One bright spot is statistically pretty low for having an abnormality from what I remember. Our son was and is perfectly healthy (2 1/2 years old), there was no reason to worry. It was stressful to hear it initially but thankfully I did not let it ruin my pregnancy and had a sense of peace. I also agree with the mom who has boys diagnosed with Downs Syndrome, based on many wonderful boys and girls I know and love (I work as a pediatric occupational therapist).

This pregnancy we decided on no ultrasounds for many reasons, including the unnessary stress that comes from false positives. Don't let it put a damper on your pregnancy---Enjoy and savor every moment and know your baby is perfect and beautiful no matter what!

Mamadoo from Binghamton, NY
mama-doo is offline  
#5 of 20 Old 07-27-2007, 03:30 PM - Thread Starter
 
kerrybennysmama's Avatar
 
Join Date: Jun 2004
Posts: 278
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks for the replies. I ended up having the Quad screen done today. I should have the results next week. I guess I will have to wait and see what that says. I have been crying all day. I too have read how common this is, but I cant help from worrying. Ever since I have been trying to have a second child I have had so many negative experiences between the ultrasounds that it make me wonder if ignorance is bliss.

Kerry, happy wife to hubby Chad, mama to ds 6, Rainbow ds 2, and 4
kerrybennysmama is offline  
#6 of 20 Old 07-27-2007, 05:51 PM
 
YummyYumYumMama's Avatar
 
Join Date: May 2007
Location: greater bahston
Posts: 2,771
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Ignorance can be bliss for sure. It is SO HARD not to worry about all these things but then these tests can't always reliably say if there is a DEFINITE problem or not. Even if the test comes back positive - your baby may not have Down syndrome at all. And even if s/he DOES - you will still love this baby so much and not be able to imagine your life without him/her. At the end of the day no matter what it's your baby. Your beautiful sweet adorable baby. I have worked in special ed & known many parents of children with Down syndrome and other developmental disabilities - and they feel just as thankful for their children and love them just as much as they would if they were typically-developing. I have also known a couple women who were told during their u/s and AFP screening that they had an extremely high chance of having a baby with Down's and meanwhile both babies didn't. There's no way of knowing anything for sure - you'll just know if your risk is higher or not. And that really isn't a whole lot of info to go on. So try to relax and enjoy the rest of your pregnancy and think how good it will feel to hold and cuddle your little sweet pea!

fuzmalesling.giffemalesling2.GIF mama to my spunky little girl, m, born 12/10/07 blahblah.gif, and my sweet little guy, k, born 10/27/10 babyf.gif
nocirc.gif familybed2.gif cd.gif homebirth.jpg nak.gif
YummyYumYumMama is offline  
#7 of 20 Old 07-27-2007, 05:52 PM
 
bumblebeej's Avatar
 
Join Date: Nov 2005
Posts: 830
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I'm sorry you've been crying!

I pray for your peace of mind. The waiting sucks, I'm right there with ya.
bumblebeej is offline  
#8 of 20 Old 07-27-2007, 08:33 PM
 
wife&mommy's Avatar
 
Join Date: May 2005
Posts: 3,607
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
We had this happen too, a bright spot in the bowels. At our level 2 ultrasound everything was perfectly fine, and he is fine now no problems or anything. Don't worry yourself over it until you have a follow up! I have had this happen to a couple of my friends, too!

Mama to (DS 7) and (DD 5), wife to DH

wife&mommy is offline  
#9 of 20 Old 07-28-2007, 09:01 AM
 
lisarussell's Avatar
 
Join Date: Jan 2005
Location: somewhere pink
Posts: 1,458
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
A mom on my yahoo group email list went through 4 intensive ultrasounds, all showing calcification- I think it was- on the heart, an indicator for Down's so they changed their delivery plans from home to a hospital over an hour from home, in case the baby had issues at birth, and mourned during the entire pregnancy in preparation for their Down's Syndrome child. The AFP even came back wrong.

BUT- the baby didn't have down's, baby was perfectly healthy and normal, and still is many years later.

If you must know before birth, amnio is the only 100% accurate way. The small risk of amnio might be better than months spent stressed out.

I'm a "no intervention" kind of mom but I would amnio to avoid the stress of 5 more months of wondering.
lisarussell is offline  
#10 of 20 Old 07-28-2007, 05:18 PM
 
Babytime's Avatar
 
Join Date: May 2004
Location: New England
Posts: 1,019
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My now 2.5-year old had bright spots on her heart during ultrasounds as well. She is perfectly healthy and has had no problems! Good luck - I know it is stressful!
Babytime is offline  
#11 of 20 Old 07-28-2007, 06:12 PM
 
mama2rey's Avatar
 
Join Date: Jan 2007
Location: Chicagoland
Posts: 2,081
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I recently had the triple quad screen and it showed me at a higher risk of Down's than someone my age (1 in 155, vs what it should be 1 in 355). My partner and I decided to have a level 2 u/s, and then if necessary we may do amnio.

I struggled for a while about what I would if I had a child with Down's Syndrome. I've done some research on the subject, and it's not as horrible as what some doctors make it out to be. Apparently people with Down's hold jobs, can live independently, some go to college. We decided that we would have the baby no matter what-which was our choice. I also know that it's a large commitment-we are here no matter what you decide to do.


Karen, mother to a wonderful active three year old.
mama2rey is offline  
#12 of 20 Old 07-28-2007, 09:41 PM
 
GinaRae's Avatar
 
Join Date: Mar 2007
Location: Lghtly toasted and fogged in NorCal
Posts: 5,485
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I had a bad AFP with my second son and it really did scare me throughout the pregnancy, but it also made me realize I was a fighter and would fight for the baby, no matter what the outcome. He's just fine.

Since joining MDC, I have heard of this a couple of times (bright spot on heart) and it seems to have worked out okay each time. Wish I knew where those threads are!

Fact is, you will be worried for the rest of the pregnancy, even with a clear test (most likely). I just didn't want to be put in that position this time, so we're going blissfully ignorant and are getting none of the tests.

If your babe has Down Syndrome, you will have choices. Abortion, fear and despair, or fight and love. I know, it all sounds so easy to someone ELSE, huh?? Should you choose to fight and love, you will probably be amazed at how much you love the lil peanut when it's born. There is a better outlook today for DS and lots and lots and LOTS of other families around the US where you can draw support from.

Good luck! And I am SO sorry you have to go through this worry!!

Almost a b-ball team: : Taylor -14, Alex -11, Jack -8, Lachlan born at home 11/15/07
"Well behaved women rarely make history"
GinaRae is offline  
#13 of 20 Old 07-28-2007, 09:51 PM
 
sammysmammy's Avatar
 
Join Date: Nov 2002
Location: under the disco ball
Posts: 331
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Again,I am coming at this from a totally perspective(being an adoptive mom of two boys w/ Down Syndrome),but in the case of our third boy,birth mom had the amnio which did show the markers for kidney trouble,bowel trouble and Trisomy 21(Down Syndrome). As I stated before,he was born with NO issues, so even an amnio is NOT 100% accurate. There is still a predominant mindset out there about Down Syndrome that is not accurate or fair.They can and should be able to do the things typical children do,but due to the developmental delay(s) sometimes those milestones are just met later than typically.
sammysmammy is offline  
#14 of 20 Old 07-28-2007, 09:52 PM
 
kymholly's Avatar
 
Join Date: Jul 2004
Location: tippin' back a vv cosmo.... yummy!!
Posts: 1,751
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
My Level 2 ultrasounds w/dd2 (@ 18 & 20 wks.) both showed that bright spot. I was also told about the Downs marker, but we were also told that as many as 20-25% of "normal" people also have this benign condition.

In our case, we had not done the triple test because it has such a high false-negative reading. But we decided to go ahead and have it after the US because my ob at the time was really pushing us towards an amnio, which we definitely did not want.

The triple test actually reduced the odds of having a Downs baby significantly. And in the meantime, we did do some research about Downs & decided that even if that was the case, that Downs didn't seem like the scary condition that my perception of it was.

When dd2 was born, we had her checked out by a heart specialist from Children's in Boston. He gave her a clean bill of health. She's now 3.4 & just fine!

It's normal to worry when you're pregnant, so you shouldn't feel badly about doing it! I hope that your test comes back with great results.

Take good care.
kymholly is offline  
#15 of 20 Old 07-28-2007, 11:05 PM - Thread Starter
 
kerrybennysmama's Avatar
 
Join Date: Jun 2004
Posts: 278
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I just wanted to thank all of you for your kind words and support. Its amazing that people who dont even really know you can be so kind and empathic. I feel more together today. Sometime my fears about Down Syndrome has more to do with my worry about how the world would treat my child. That scares me more than anything. I already love this baby inside of me and I cant stand the feelings I have had this weekend. I have started feeling detached from the pregnancy and baby. I so dont want that. I am trying to hold on and take one step at a time but I have a tendeny to go from 0 to 60 in a split second when it comes to my worries. Thanks again and I will keep you posted.

Kerry

Kerry, happy wife to hubby Chad, mama to ds 6, Rainbow ds 2, and 4
kerrybennysmama is offline  
#16 of 20 Old 07-28-2007, 11:24 PM
 
mama2rey's Avatar
 
Join Date: Jan 2007
Location: Chicagoland
Posts: 2,081
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by kerrybennysmama View Post
I just wanted to thank all of you for your kind words and support. Its amazing that people who dont even really know you can be so kind and empathic. I feel more together today. Sometime my fears about Down Syndrome has more to do with my worry about how the world would treat my child. That scares me more than anything. I already love this baby inside of me and I cant stand the feelings I have had this weekend. I have started feeling detached from the pregnancy and baby. I so dont want that. I am trying to hold on and take one step at a time but I have a tendeny to go from 0 to 60 in a split second when it comes to my worries. Thanks again and I will keep you posted.

Kerry
I had similar feelings when I got my triple quad result back. I do want to emphasize, that Down's children really are special. For me was that I felt movement-and realized that no matter what, it's my child, and it already responds to things. That's what got me to feel attached to the baby again.

As far as how the world will treat your little bean-there are so many things that can happen. People treat people from oppressed groups badly-and we learn to deal. I grew up as the only Latino child in a very White area-I learned to deal and I became strong. Later when I came out as a lesbian, I had another set of challenges-people are sometimes downright hostile to me and my partner, but we know how to fight back. It's not Down's-but I know that you will be able to teach your baby ways to fight back against hostility-and know that it will just make him/her a better person.

Please keep us posted-and I will also let everyone know how the U/s on Thursday goes.

s

Karen, mother to a wonderful active three year old.
mama2rey is offline  
#17 of 20 Old 07-29-2007, 01:30 PM
 
MySunflowerBoys's Avatar
 
Join Date: Nov 2005
Location: Kansas
Posts: 1,238
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Sorry to barge in here, I was in this DDC but had a miscarriage. I find myself wandering over here still to see how everyone is doing.

To the OP, I am sorry that you are having these concerns about your baby's health. I hope you find out more that puts you at ease.

I am the mother of a wonderful boy who is almost 3 yrs old and he happens to have Down syndrome. He is a joy in our family and to those that meet him. I have honestly not had one negative reaction to him in his life. When we go out, people always comment on what a cutie pie he is. The community has many resources available to him and I expect him to have a very good, fulfilling life. Yes, people with Down syndrome have certain challanges they face but it is a diagnosis that has a broad range of abilities too. I know people with Down syndrome that drive cars, hold jobs, live independently, pay taxes, travel, take cruises, have swam across the English Channel, teach karate, are record holding weightlifters, play in bands, are a concert pianist, and so much more.

And I alos want to repeat what the PP wrote, this is offensive:
Quote:
Down's children really are special.
My child is NOT a "Down's child." He is a person that has Down syndrome. He also has blond hair and blue eyes. Ds is 1/47th of his chromosones, it does not define his entire personality.

Should you or anyone lese that reads this find out your child has Ds, here are a few wonderful resources for you to read:

DownSyn Info and Message Board

Gifts: Mother's Reflect on how Children with Down Synrome Enrich their Lives

and because this is so beautiful:

Noah and Madison's Wedding

Plus you can click on my siggie and see my little guy.

Best of luck to you.

I'm Deborah, mama to Aidan, 11/02, Sean, 9/04 (my T21 SuperBoy), and Eleanor, 8/08.
MySunflowerBoys is offline  
#18 of 20 Old 07-29-2007, 02:29 PM
 
mama2rey's Avatar
 
Join Date: Jan 2007
Location: Chicagoland
Posts: 2,081
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I was the person who wrote "Down's children really are special"-please accept my apology. It was not intended to be offensive-but to say that people who have Down's Syndrome are people who are gifts to us. Please be patient with my own ignorance, and understand, that while I am working on myself, I sometimes do need to be educated, or told if I mistakenly say something that is offensive.

Karen, mother to a wonderful active three year old.
mama2rey is offline  
#19 of 20 Old 07-29-2007, 02:38 PM
 
mama-doo's Avatar
 
Join Date: Jan 2007
Posts: 10
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
When I was going through similar situation when pregnant with my 2.5 yr. old boy (any concerns ended up unfounded) I felt it very helpful to turn inward and focus on connecting with the baby during daily quiet time. I recommend listening to the CD "Songs for the Inner Child" by Shaina Noll. The song "How could anyone ever tell you you were anything else but beautiful" was so helpful to me at the time. Doing pregnancy yoga and meditation as well as prayer, hiking, and listening to pregnancy/birth guided imagery CDs also helped me get to the place of feeling strong and connecting very deeply to the baby. Whether or not you have a spiritual practice, self-care is a must as well as trying not to get caught up in the medicalization of pregnancy. Being worried is normal but it's worth the effort to turn inward, trust your intuition in what you need to do as a mama. Sending you good thoughts!
mama-doo is offline  
#20 of 20 Old 07-29-2007, 04:23 PM
 
MySunflowerBoys's Avatar
 
Join Date: Nov 2005
Location: Kansas
Posts: 1,238
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by expectantmami View Post
I was the person who wrote "Down's children really are special"-please accept my apology. It was not intended to be offensive-but to say that people who have Down's Syndrome are people who are gifts to us. Please be patient with my own ignorance, and understand, that while I am working on myself, I sometimes do need to be educated, or told if I mistakenly say something that is offensive.
Thanks for your comment. I wasn't directing my comment specifically at you, it's just a pet peeve of mine and others. We like people first language. It also bugs me to see "Down's Syndrome" or "Downs" or "Down's", because it is actually called Down syndrome, no "s" or just trisomoy 21 is fine too. Sorry if I seem b!tchy, I just try to correct it when I can.

I'm Deborah, mama to Aidan, 11/02, Sean, 9/04 (my T21 SuperBoy), and Eleanor, 8/08.
MySunflowerBoys is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off