UPDATE post22 --> 20 week US - sending me for Level II - Mothering Forums
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#1 of 52 Old 11-06-2007, 06:21 PM - Thread Starter
 
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UPDATE POST 22

I had my 20 week US yesterday (I'm actually 19 weeks) and we have determined that the boys are likely identical. I am being referred to a specialist for a Level II US because twin A has half again as much amniotic fluid as twin B and twin A is a bit bigger than twin B.

What all this means is that they need the specialist to figure out 1) why my amniotic fluid is not behaving as it should and 2) rule out or confirm IUGR or Twin Twin Transfusion Syndrome. The biggest worry is the possibility of TTTS. It only affects identical twins and is
caused by an imballance in the way the placenta and cords function when twins share a placenta. The other things which may be causing my amniotic fluid to be off include gestational diabetes (which I do not have - sugar levels are normal), and the possibility that one of the
twins is not swallowing amniotic fluid as he should and therefore not producing it as it is supposed to be produced, however, if this were the case, the marker for it is supposedly aparent when looking at the bladder of the affected baby and the US did not show any baldder problems.

Needlesstosay, I am trying not to stress or worry. I am
reading everything I can get my hands on regarding all of the above so I can actually have a discussion with the doctors rather than be talked over or ignored when it comes to the details. I have another doctor's appointment tomorrow. The Level II will be scheduled at that time. My doctors are not stressing at this point until we get the results back.

All of the above does help calrify why I wan't feeling movement with Twin A... he has so much "space" around him he has to be punching me on purpose for me to feel it. . . So one question answered and more to go.


On a lighter note, i did get one totally cute US picture of the boys together that I will upload and post when I can...
Thank you all for listening...
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#2 of 52 Old 11-06-2007, 06:24 PM
 
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You're right not to stress and congrats on your beautiful boys! Can't wait to see the pic.
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#3 of 52 Old 11-06-2007, 07:02 PM
 
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Good luck with the level II, and keep us posted!

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#4 of 52 Old 11-06-2007, 07:08 PM
 
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Congrats on the sweet boys. Sending positive energy for the next u/s. Keep us posted and I can't wait to see the picture!!!
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#5 of 52 Old 11-06-2007, 09:08 PM
 
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I hope it goes really, really well. I'm waiting for a referral to a perinatologist for my twins (possibly monoamniotic), so I'm with you on the anxious part! For me, it's been helpful to pray, and to just take it a minute at a time, doing whatever I need to do at the moment.

Looking forward to seeing your pictures!
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#6 of 52 Old 11-06-2007, 09:11 PM
 
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My thoughts are with you.
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#7 of 52 Old 11-07-2007, 12:33 AM
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I hope the specialists say that everything is fine. Defiantely keep us posted. I'm looking forward to the pic.

I guess there are now two moms in our DDC carrying identical twins?

Kara, single mom of 4 girls (5, 8, 16 and 19) crochetsmilie.gif
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#8 of 52 Old 11-07-2007, 12:37 AM
 
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Congrats on twin boys--I can't wait to see the u/s picts!

Good for you not to stress and just wait to see what tomorrow brings. I'll keep you in my thoughts. Sending lots of positive energy your way.

Keep us posted.
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#9 of 52 Old 11-07-2007, 01:35 AM
 
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hope everything turns out well.
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#10 of 52 Old 11-07-2007, 10:35 AM
 
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Let us know how it goes!
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#11 of 52 Old 11-07-2007, 02:48 PM
 
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Please keep us up to date on things...Hugs
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#12 of 52 Old 11-07-2007, 02:51 PM
 
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Sending you positive thoughts for the upcoming u/s! Can't wait to see the pic!
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#13 of 52 Old 11-07-2007, 11:33 PM
 
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Hoping things go well with the level II scan, and the boys are just fine!!!!

Keeping you in my thoughts!
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#14 of 52 Old 11-08-2007, 02:18 AM - Thread Starter
 
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UGH. I went for my dr appointment today so they could tell me when my Level II is...its not until the end of the month! Now I know the holidays are coming and all , but if I am dealing with TTTS that is WAY too long to wait. I'm going to try to find a different peri tomorrow... Please send your prayers.
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#15 of 52 Old 11-08-2007, 07:26 AM
 
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Good luck with the second ultrasound. And yay for beautiful twin boys. I'm excited to see your picture!

ETA: I just read your update. I sure hope you can find a way to get in for the level 2 quickly. Keep us posted!

Betsy, mama to Zane 4/12/05 and Cade 3/5/08
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#16 of 52 Old 11-08-2007, 08:12 AM
 
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good lick hun, hope all goes well and you can get your level 2 sooner.

Becky, sahm to angel.gif25/04/2000 Chloe 12/04/2002 Cameron 19/02/2004 Caitlin 28/06/2005 angel.gif24/07/2006 and Caden 14/03/2008

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#17 of 52 Old 11-08-2007, 11:38 AM
 
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Good luck.
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#18 of 52 Old 11-08-2007, 12:07 PM
 
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You're right...a month is too long to wait if you're dealing with TTTS. My girls are MZ but did not share anything so we didn't have to worry about TTTS. Please do keep us updated on your progress as well as if you get your ultrasound moved up. And I can't wait to see your pics of the boys! I LOVE the pics I have of my girls...and they get such a kick out of the one of Lillie's butt on Faith's head.

Karen - Mama to Haven (9/00) , Lillie & Faith (MZ - 12/02) and my first homebirthed baby, Willa (3/08)
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#19 of 52 Old 11-08-2007, 12:48 PM
 
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Good luck getting in earlier. I'll be praying for you

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#20 of 52 Old 11-08-2007, 03:22 PM
 
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Please advocate for yourself (and your babies). You should not be waiting for that u/s; they should be doing it immediately. Please keep us updated; I'll be thinking about you!

Getting good care includes fighting for necessary intervention/monitoring/treatment.
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#21 of 52 Old 11-08-2007, 03:31 PM
 
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I'm sorry you might be dealing with complications. Good news that you don't have GD and his bladder looks good. It's reassuring that the doctors you're seeing aren't stressing for the moment. But if you don't trust them don't hesitate to get yourself a second opinion!

Hang in there. I can't wait to see the pic of your boys!!!!
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#22 of 52 Old 11-10-2007, 03:49 AM - Thread Starter
 
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Its been a bit hectic around here lately. As you know, I had my 20 week US on Mon and the results were abnormal. At my follow-up my Dr. didn't think it was a big deal, but I knew it should be sending up a red flag based on the type of twins I am having (they have independent amniotic sacs but share an outer sac and placenta). Since my dr. gave me the brush off I started looking for answers elsewhere. I had a consultation over the phone with Dr. Julian DeLia (Thank you, YumaDoula). He is *the* expert on TTTS and the dr. who pioneered the laser surgery used to treat it. He confirmed what I already suspected. The twins have Twin Twin Transfusion Syndrome. He said I needed to be evaluated within 24-48 hours...before the weekend.


I got a referral to a peri in Atlanta who is familiar with the syndrome and I went to Atlanta last night and had a Level II US at Northside hospital today. The Dr. there again confirmed the diagnosis. From here on out, I will be transfered to a high risk OB in Macon and will deliver at the hospital there since they have a NICU. If I carry as long as they hope, they expect I will carry to 34 weeks. Right now the syndrome is stage 1 which is good but can advance to a critical stage literally overnight. I will be monitored weekly by US. If the syndrome reaches stage III before I am in my third trimester, I will be sent to a specialist in Cincinati for surgery. If I am in my last trimester they would likely just deliver the boys immediatley.


Please pray for me and the boys. There is a high likelyhood of morbidity of one or both babies and a positive outcome after surgery is only at about 63% with the best specialist in the country. I am thankful it is not worse at this point, but tripidatious as every day could bring a change. Please pray.

The ONLY reason I have gotten as far as I have is because I have taken a very active role in my own care. I actually had TWO doctors blow me off before I went to DeLia for answers. Please share the following link with any woman you know who could be carrying identical twins. This syndrome affects approx. 15% of all identical twin pregnancies and the rate of morbidity for both babies approaches 100% without diagnosis and treatment. Please help educate our sisters - our doctors are not infallible.

http://www.tttsfoundation.org
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#23 of 52 Old 11-10-2007, 04:00 AM
 
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Oh mama, I will be saying prayers for you and your boys!
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#24 of 52 Old 11-10-2007, 04:06 AM
 
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Originally Posted by JustJamie View Post
Oh mama, I will be saying prayers for you and your boys!

Same here mama!

If you need more support, there is a group of moms on one of my twin boards that have been through it. I know I cant directly post a link here, but if you PM, I can send you a link.
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#25 of 52 Old 11-10-2007, 05:23 AM
 
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You, your family and your baby boys are in my thoughts
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#26 of 52 Old 11-10-2007, 10:39 AM - Thread Starter
 
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Thank you, mamas. It helps a lot to have the MDC community. I don't think I would have been as self motivated and assertive without y'all.
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#27 of 52 Old 11-10-2007, 11:13 AM
 
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You and your family are in my thoughts and prayers.
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#28 of 52 Old 11-10-2007, 12:08 PM
 
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Praying for you, mama, and for your boys. Good for you for taking responsibility for your own care, too! You are an inspiration

treehugger.gif geek.gif Mama to Lauren Philippa Elethea (3) energy.gifand expecting a little Jay bird March 2012! 3rdtri.gif

 

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#29 of 52 Old 11-10-2007, 12:38 PM
 
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Hugs to you, Mama. You are in my thoughts and prayers.
I'm so glad you made the decision to take matters in your own hands and arm yourself with the best information and setting for delivery. You are a great Mama with some very lucky boys, and I wish you all the best!
Betsy

Betsy, mama to Zane 4/12/05 and Cade 3/5/08
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#30 of 52 Old 11-10-2007, 02:37 PM
 
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Oh, wow. I'll be praying for you and the babies. Please keep us updated!
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