I had my 20 week US yesterday (I'm actually 19 weeks) and we have determined that the boys are likely identical. I am being referred to a specialist for a Level II US because twin A has half again as much amniotic fluid as twin B and twin A is a bit bigger than twin B.
What all this means is that they need the specialist to figure out 1) why my amniotic fluid is not behaving as it should and 2) rule out or confirm IUGR or Twin Twin Transfusion Syndrome. The biggest worry is the possibility of TTTS. It only affects identical twins and is
caused by an imballance in the way the placenta and cords function when twins share a placenta. The other things which may be causing my amniotic fluid to be off include gestational diabetes (which I do not have - sugar levels are normal), and the possibility that one of the
twins is not swallowing amniotic fluid as he should and therefore not producing it as it is supposed to be produced, however, if this were the case, the marker for it is supposedly aparent when looking at the bladder of the affected baby and the US did not show any baldder problems.
Needlesstosay, I am trying not to stress or worry. I am
reading everything I can get my hands on regarding all of the above so I can actually have a discussion with the doctors rather than be talked over or ignored when it comes to the details. I have another doctor's appointment tomorrow. The Level II will be scheduled at that time. My doctors are not stressing at this point until we get the results back.
All of the above does help calrify why I wan't feeling movement with Twin A... he has so much "space" around him he has to be punching me on purpose for me to feel it. . . So one question answered and more to go.
On a lighter note, i did get one totally cute US picture of the boys together that I will upload and post when I can...
Thank you all for listening...
Looking forward to seeing your pictures!
I guess there are now two moms in our DDC carrying identical twins?
Kara, single mom of 4 girls (5, 8, 16 and 19)
Kids have strokes too!
Good for you not to stress and just wait to see what tomorrow brings. I'll keep you in my thoughts. Sending lots of positive energy your way.
Keep us posted.
ETA: I just read your update. I sure hope you can find a way to get in for the level 2 quickly. Keep us posted!
Becky, sahm to 25/04/2000 Chloe 12/04/2002 Cameron 19/02/2004 Caitlin 28/06/2005 24/07/2006 and Caden 14/03/2008
19.05.2012 18.08.2012 24.05.2013 25.6.2013 04.09.2014
Getting good care includes fighting for necessary intervention/monitoring/treatment.
I'm sorry you might be dealing with complications. Good news that you don't have GD and his bladder looks good. It's reassuring that the doctors you're seeing aren't stressing for the moment. But if you don't trust them don't hesitate to get yourself a second opinion!
Hang in there. I can't wait to see the pic of your boys!!!!
I got a referral to a peri in Atlanta who is familiar with the syndrome and I went to Atlanta last night and had a Level II US at Northside hospital today. The Dr. there again confirmed the diagnosis. From here on out, I will be transfered to a high risk OB in Macon and will deliver at the hospital there since they have a NICU. If I carry as long as they hope, they expect I will carry to 34 weeks. Right now the syndrome is stage 1 which is good but can advance to a critical stage literally overnight. I will be monitored weekly by US. If the syndrome reaches stage III before I am in my third trimester, I will be sent to a specialist in Cincinati for surgery. If I am in my last trimester they would likely just deliver the boys immediatley.
Please pray for me and the boys. There is a high likelyhood of morbidity of one or both babies and a positive outcome after surgery is only at about 63% with the best specialist in the country. I am thankful it is not worse at this point, but tripidatious as every day could bring a change. Please pray.
The ONLY reason I have gotten as far as I have is because I have taken a very active role in my own care. I actually had TWO doctors blow me off before I went to DeLia for answers. Please share the following link with any woman you know who could be carrying identical twins. This syndrome affects approx. 15% of all identical twin pregnancies and the rate of morbidity for both babies approaches 100% without diagnosis and treatment. Please help educate our sisters - our doctors are not infallible.
Mama to Lauren Philippa Elethea (3) and expecting a little Jay bird March 2012!
I'm so glad you made the decision to take matters in your own hands and arm yourself with the best information and setting for delivery. You are a great Mama with some very lucky boys, and I wish you all the best!
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