just found out I have hodgkins, and 29 wks preggo - Mothering Forums

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#1 of 43 Old 05-18-2008, 11:29 AM - Thread Starter
 
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hi there,

haven't posted here for a long time (computer died, and vacation). Just got the news back from the biopsy that I have Hodgkins.

I'm 29 wks pregnant, and have a 21 month old beautiful daughter. We are new to this city, and my family is a 5 hour plane ride away.

devastating.

could you please pm me any supportive/insightful links/websites.

thank you,
charlene
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#2 of 43 Old 05-18-2008, 12:00 PM
 
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I don't know anything about the illness. I hope that you can find good treatment though.

Mom of a 7 yr old, 4 yr old, and 1 yr old. Wow. How did that happen?
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#3 of 43 Old 05-18-2008, 01:06 PM
 
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Oh mama. I am so sorry.

That is such a scary thing. How long does your Dr. think you can wait to start treatments? Have you seen an oncologist yet?

Hodgkin's has a very good rate of being cured if caught early, but other than that I do not know a whole lot about it.

I hope you are able to find some great information that gives you what you need to know.
I will be thinking of you.
(not in this DDC, but I lurk here cause I am due at the end of July and could be an Aug mama)
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#4 of 43 Old 05-18-2008, 01:17 PM
 
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Mama, I also don't have any advice, but couldn't read your post without writing. I am so so sorry. I hope you can find some good information out there. :
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#5 of 43 Old 05-18-2008, 03:56 PM
 
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Charlene, I am so sorry to hear your bad news! I don't know anything about fighting it while pregnant. I hope your doctors can give you hope! Is there a possibility of you and your daughter living with your parents while you go thru treatment? Or maybe one of your parents moving in with you (if they are retired). I think you will need emotional support and physical help with your daughter and getting to appts.

Again, I am just so sorry. Please keep us updated with your doctors plan of treatment. I will keep you in my prayers.

I'm Deborah, mama to Aidan, 11/02, Sean, 9/04 (my T21 SuperBoy), and Eleanor, 8/08.
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#6 of 43 Old 05-18-2008, 04:04 PM
 
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I am so sorry to hear this. What are your options for treatment, timing, etc.? I'm sorry I don't know more about the illness/or have info to pass on. I do know two people that have had this, and have been healthy/in remission for 5 plus years. I know the success rate is very high.
I'll be thinking of you and sending healing vibes though.

fridgeart, lucky mum to E (5) and Ro (2)
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#7 of 43 Old 05-18-2008, 04:59 PM
 
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First, to you. This is tough, but now that you know what it is you, your family, and doctors can start making a plan. I have dealt with a cancer quite a bit in my immediate family, and I have found the National Cancer Institute to be a great source of up-to-date, very reliable information. Here is the link to their front page for Hodgkins: http://www.cancer.gov/cancertopics/t...gkinslymphoma/

Here is a link w/ basic info on managment/treatment while pregnant:
http://lymphoma.about.com/od/hodgkin.../pregnancy.htm

Peace to you as you and your family work through this. Please continue to update us.
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#8 of 43 Old 05-18-2008, 05:03 PM
 
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Not in your DDC. Just couldn't read this and not offer . So sorry you're having to deal with this. Sending you strength vibes.~.~.~.
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#9 of 43 Old 05-18-2008, 06:34 PM
 
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Charlene, I am so sorry to hear this. You are in my thoughts.
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#10 of 43 Old 05-18-2008, 08:04 PM
 
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Charlene, I am so sorry you're going through this. I don't know much about Hodgkin's beyond the fact that it can be highly treatable and that treatment seems to be possible during pregnancy.

You can do it, mama.


Decluttering SAHM of three. Going for 2011 items in 2011.
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#11 of 43 Old 05-18-2008, 09:53 PM
 
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just

I am not crunchy enough for this forum. Everyday I get a little crunchier though! :
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#12 of 43 Old 05-18-2008, 10:39 PM
 
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Wow - I am so sorry that this was the diagnosis. I have been thinking about you and wondering.
I do not know anything about the disease, so I am unable to help you with information.
Hugs and strength to you and your family.
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#13 of 43 Old 05-18-2008, 11:22 PM
 
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I hope you can find some support locally. I don't have any advice to offer, but I will be keeping you in my prayers!
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#14 of 43 Old 05-18-2008, 11:37 PM
 
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I'm a surgeon, and it's a common saying in medicine that - if you could choose the type of cancer you'd get, you should choose lymphoma. Because it IS so often completely curable.

I don't know what the ramifications for your pregnancy are, however.

Stay strong, mama. Do what you need to do to be there for your sweet daughter, dear.
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#15 of 43 Old 05-19-2008, 12:09 AM
 
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I cannot begin to imagine how devastating this is for you. You will be fine if you don't get treatment for a few weeks and your baby will be fine if born in a few weeks. You will get through this, you can do it, and I expect to see a posts from you next year celebrating being 1 year cancer free and also celebrating your baby's first birthday.


If it won't offend you, I will pray for you.
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#16 of 43 Old 05-19-2008, 10:05 AM
 
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Keeping you in my prayers mama!
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#17 of 43 Old 05-19-2008, 10:12 AM
 
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Mama...you are in my prayers. If you need anything please PM me.
Alicia

 

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#18 of 43 Old 05-19-2008, 02:49 PM
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as a PP mentioned, hodgkin's lymphoma has a great recovery rate overall. i know a number of people who have come through treatment beatuifully.

i hope that you find a good care provider who can help you navigate the decisions of taking care of your coming child as well as your own health, and providing effective treatment when the time is right.

good luck with everything and keep your chin up. this form of lymphoma has a lot of treatment options and a very good success rate!
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#19 of 43 Old 05-19-2008, 02:59 PM
 
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I am so glad you posted --- I was following your threads in march when you were talking about going for testing.

I will be praying for you for strength and healing.

I am sure that many moms on MDC would help you out if you need it - you just have to ask

BLessings
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#20 of 43 Old 05-19-2008, 03:08 PM
 
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, mama.

This will no doubt be one of the most difficult and trying times of your life, but you (and baby!) will get through it. Meanwhile, we will be here for you if you need us.


Nik! Mama to Evelynn Rose 08/19/08 and Autumn Lily 11/02/10
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#21 of 43 Old 05-19-2008, 05:19 PM
 
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Charlene, I'm so sorry you received such devastating news I would like to pray for you & your family also. I hope that you can delay treatment until baby is full term. It is reassuring to hear that Hodgkins treatment is so effective. If you need anything at all, please PM me and I'll do whatever I can. Sending you lots of healthy & healing vibes

Meredyth partners.gif Travis, Mama to my boys J, L, E & my girl B
Bella Rose is here 07/29/10!
Always missing my angel1.gif
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#22 of 43 Old 05-19-2008, 05:27 PM
 
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I'm so sorry mama Hope and prayers for healing...

Tina - mama to DD1 10yrs, DD2 5.5 yrs and DD3 22 mo and wifey to DH.
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#23 of 43 Old 05-19-2008, 11:23 PM
 
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#24 of 43 Old 05-20-2008, 12:00 AM
 
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I'm so sorry mama. Sending hugs and good vibes your way.

TF, BF, CD, HS, AP'ing Mama!

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#25 of 43 Old 05-20-2008, 12:11 AM
 
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just a big hug and support from me momma!

Latina Mama of 3 and Wife of a great man since 1997
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#26 of 43 Old 05-20-2008, 09:27 AM
 
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You will be in my thoughts mama!!!

Tenk ~ happily married with lots of kids

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#27 of 43 Old 05-20-2008, 11:18 AM - Thread Starter
 
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Thank you all for your kind words and prayers.

We have an appointment on Friday with the doctor who will give us the nitty-gritty details of what we're dealing with.

...now that I know I have hodgkins, I want to get the process started asap!

I'm concerned that I won't be able/allowed to nurse this little one because of treatments...one thing at a time I suppose

I'll keep you all update.

please keep us in your prayers,
Charlene
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#28 of 43 Old 05-20-2008, 01:07 PM
 
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HUGS to you!!! You will be in my prayers!!!!!

Wife to Kevin (8-1-98)
: Proud Momma to Katelyn (4-02), Calvin (4-06), and Ashley (7-08) :
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#29 of 43 Old 05-20-2008, 01:08 PM
 
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not in your ddc but i had to respond with a great big .

:CLC,Doula :Mama to 2
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#30 of 43 Old 05-20-2008, 03:57 PM
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definitely keep us updated.

in re: Bfing--you may be able to create a hometown milk donor group. i don't know where you are, but i'd definitely be willing to help with this for anyone in my area.
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