Update on my Meadow - Mothering Forums

Forum Jump: 
 
Thread Tools
Old 11-17-2008, 08:56 PM - Thread Starter
 
Birdie B.'s Avatar
 
Join Date: Jan 2008
Posts: 1,114
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Hi to everyone and welcome to all the new babies! I have been absent since Meadow's birth, dealing with all the new baby goodness. In addition to the normal craziness, Meadow has a variety of health issues that have kept us busy. Of her 18 days on earth, there have only been 4 days without doctor's visits or trips to the hospital. It's been very trying, and I was pretty much a mess for a few days, but it is all starting to come together and most of my hormonal craziness is gone.

Meadow has club feet and hip dysplasia, which are fairly common conditions, and readily treatable. Apparently, club feet run in my husband's family. The treatment consists of fiberglass casts on both legs to train the feet in the correct direction. She is now wearing little casts that cover her legs from thighs to toes. She'll wear them for a few months, we're not sure how long yet, and then probably wear some special shoes for a while. The good news is she'll be able to walk, and hopefully avoid surgery. While I miss being able to see and kiss her tiny feet and toes, I'm happy that the treatment is simple.

For the hip dysplasia, she has to wear a body harness that keeps her hips in their sockets while she's growing. Hopefully she'll only have to wear this for a couple of months. It was hard at first to see her in casts and a body harness, but I think I'm used to it now.

So far the most trying condition she has to face is infant glaucoma. Her eyes are severely deformed, and we've been all over the state seeing different specialists. We have found a clinic in Miami that specializes in pediatric eye issues, and spent last week there for observation. They examined Meadow under anesthesia, and apparently her case is pretty unique. The doctor said she has only seen 4 other cases this severe.

We are headed back to Miami this week for surgery. She will have to have many surgeries on her eyes to correct the damage; without surgery she will be blind. There is no easy treatment for this, and they can't tell us yet how it will go. The doctor says she's optimistic, so we keep hope.

These last 2 weeks have turned my life upside down. I never imagined our litle girl would have so many challenges to overcome, and I never in a million years imagined she would need eye surgery at less than 3 weeks old. I know some of you mamas have been through challenging situations like this, and you are my inspiration. We are taking it one day at a time, and loving this little girl like crazy!

Thanks for reading if you got this far! I will try to keep you updated, and post pictures when I figure out how.

Lovestruck luxlove.gif mama to Girlie #1 energy.gifand Girlie #2 on the way!
Birdie B. is offline  
Sponsored Links
Advertisement
 
Old 11-17-2008, 09:07 PM
 
~bookcase~'s Avatar
 
Join Date: Apr 2007
Location: In the middle of sweet chaos.
Posts: 1,215
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Here's to growing ourselves as better mamas alongside our new sweeties; challenges and all

joy.gifspread a lot of love joy.gif

~bookcase~ is offline  
Old 11-17-2008, 09:19 PM
 
nurnur's Avatar
 
Join Date: Apr 2006
Location: Pacific NW
Posts: 993
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 2 Post(s)
You are the inspiration mama. I will keep you and your little sweet Meadow in my thoughts and prayers.
nurnur is offline  
Old 11-17-2008, 09:25 PM
 
Katielady's Avatar
 
Join Date: Nov 2006
Location: Living in a van down by the river
Posts: 2,016
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)


Wow, you have had a lot on your plate. Meadow is very lucky to have such a loving, strong mama as you! I hope everything goes well.

SAHM to 6.5yo DS and 4yo DD. PCOS with two early m/cs. Married 8 yrs. Certified birth doula, writer, editor.

Some stuff I like: hbac.gifteapot2.GIFeat.gifnocirc.gifbftoddler.giffemalesling.GIFcrochetsmilie.gif read.gifcat.gif

Katielady is offline  
Old 11-17-2008, 11:10 PM
 
louloubean's Avatar
 
Join Date: Apr 2006
Location: Old Chatham NY
Posts: 486
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
meadow!
what a beautiful name!

modern medicine has given us great miracles to help our growing little ones.
sending you good vibes for happy days ahead. we are all rooting for you and meadow.

louloubean in love with bryan, mom of boo squeak and nor nor: and 7 chickens
louloubean is offline  
Old 11-17-2008, 11:19 PM
 
BookishVonLiberal's Avatar
 
Join Date: Feb 2007
Posts: 669
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Wow. That is a lot to deal with. I'm so glad the club feet are easily treated. I will certainly be hoping for her eye surgeries to go well.
BookishVonLiberal is offline  
Old 11-18-2008, 12:09 AM
 
Patchfire's Avatar
 
Join Date: Dec 2001
Location: S.S. Guns 'N' Handcuffs
Posts: 1,823
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Oh, wow, what a lot to deal with. I hope she does well with her surgery.

Kash, homeschooling mommy to Gillian (8/5/00) and Jacob (3/23/05)
and Brigid Eleanor (11/20/08)
Patchfire is offline  
Old 11-18-2008, 01:14 AM
 
TefferTWH's Avatar
 
Join Date: May 2008
Posts: 1,560
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Louloubean said it best. Prayers for you and Meadow!
TefferTWH is offline  
Old 11-18-2008, 03:43 AM
 
BundleFishMama's Avatar
 
Join Date: Jun 2005
Location: Philadelphia suburbs
Posts: 1,483
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
WOW, mama, that is so much to deal with - sorry you all are going through all that, and I hope your beautiful little girl comes through everything with flying colors and things calm down for you soon!

Kerriintactlact.gif blessed single mama to Teresa 8/2/02blahblah.gif, Madeleine 5/28/04dust.gif, Andrew 6/25/06jammin.gif, and Isabelle ribboncesarean.gif11/27/08energy.gif

BundleFishMama is offline  
Old 11-18-2008, 09:23 AM
 
KindRedSpirit's Avatar
 
Join Date: Mar 2002
Location: in a cascade of embraces
Posts: 1,784
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
to you and family!What a busy busy time!Ihope you can work in some baby-mooning!
How is Meadow reacting to the casts and harness?I can just picture a pudgey, smiley babe with a big smile waving her arms around and gurgling sweet nothings...
And can she see anything now? Just curious.Sorry if this comes across as insensetive,I don't mean that at all!

:::
KindRedSpirit is offline  
Old 11-18-2008, 11:19 AM
 
E's Mama's Avatar
 
Join Date: Mar 2008
Location: here, I think...
Posts: 165
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Children have an amazing way of coping and healing that is completely foreign to the adult. : for a full and quick recovery from her eye surgery, and hoping you can squeeze and kiss those cute little toes soon!!
E's Mama is offline  
Old 11-18-2008, 01:12 PM
 
punkrawkmama27's Avatar
 
Join Date: Aug 2007
Location: IL
Posts: 536
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
mama. I love the name Meadow, it is beautiful! I can tell your post that you are an amazing mama and love your lo dearly. : for you and your lo.

dd 8, ds 6, ds 4,: (12/08), ds 1, me and dh:yawning Simplifying my life one day at a time! 925/2010
punkrawkmama27 is offline  
Old 11-18-2008, 02:21 PM
 
coyotemist's Avatar
 
Join Date: Aug 2007
Location: Pacific NW near a lovely mountain
Posts: 1,761
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Congrats on your beautiful baby! What is unusual for you will be normal for her, and she'll be fine! You are such a strong and wonderful mama! Do give yourself time to grieve if you need it, tho, we never picture these things happening.

"Listen, are you breathing just a little and calling it a life?"~Mary Oliver

RT knitting mama  to 3 (& 8 who didn't make it) wife working on 13 years to a silly man who drives me crazy.
coyotemist is offline  
Old 11-18-2008, 03:52 PM
 
wobblykate's Avatar
 
Join Date: Apr 2008
Location: Willamette Valley, OR
Posts: 3,230
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Not in your DDC, but read your story and had to give you my best wishes. Thinking of you and your little Meadow. and Congrats on your beautiful little girl.

Mama to one little blur, watching everything move too fast. Eden 4/10/2009.
wobblykate is offline  
Old 11-18-2008, 11:52 PM
 
mochimama's Avatar
 
Join Date: May 2006
Location: Colorado Mountains
Posts: 1,040
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Your strength is an inspiration Mama!
Lots of love to you, Meadow, and the rest of your family--you will all pull through these challenges!
mochimama is offline  
Old 11-19-2008, 01:06 AM
 
titania8's Avatar
 
Join Date: Feb 2007
Location: flint, mi
Posts: 1,332
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
oh my. i am sure this is all very challenging for you. good thoughts coming your way.

~helen~ mama to 5 yo twins jonas and micah and my 2 yo baby boy eli
titania8 is offline  
Old 11-19-2008, 05:07 AM
 
OkiMom's Avatar
 
Join Date: Nov 2007
Posts: 5,391
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I hope everything calms down for you soon..

~Heather~ Mama to Miss E (1/07), Miss A (11/08), Mr.T (2/11) and Miss A (10/12) Expecting our newest blessing sometime late Sept/early Oct.. Wife to my Marine since 11/2005
OkiMom is offline  
Old 11-19-2008, 02:54 PM
 
namistenicole's Avatar
 
Join Date: Jun 2007
Posts: 588
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I hope a year from now these struggles are a precious memory of triumph. Sending you miracles, strength and hope. Nothing can change the world like a mama on a mission.

God bless

NICOLE | Natural livin', co-sleepin', mostly vegan, work at home mama to N (7) and L (2)
namistenicole is offline  
Old 11-19-2008, 05:32 PM
 
Sioko's Avatar
 
Join Date: Feb 2007
Location: Missouri
Posts: 557
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Praying for you and Meadow! That is one of the most beautiful names I've ever heard! My family also has eye problems that inherit, amblyopia and lazy eye. It's amazing how we adapt and adjust! Children especially! I'll pray for a complete and speedy recovery for meadows eyes, hips, and feet!
Sioko is offline  
Old 11-23-2008, 03:49 PM - Thread Starter
 
Birdie B.'s Avatar
 
Join Date: Jan 2008
Posts: 1,114
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thank you all so much for the support and kind words! :
We are doing pretty well as of today. We made another trip to Miami (about 9-10 hour drive with a newborn) last week, and the doctors decided not to do surgery this time. Her left eye is improving they said, so they want to wait and see what it does before they operate. We're heading back down in about a week so they can examine her again.
It's a daunting prospect, knowing that we'll be making these trips to the clinic at least a couple times a month for the forseeable future. But it's the only option if we want her to see. We have met several other families with small children at the clinic. Some of the children can see, some wear glasses, all have limited sight, but they all have a siml-ilar history to Meadow. Her eyes, while beautiful, are clearly different. There is no visible white in her eye, and the pupil is hardly distinguished from the iris. Her left eye has returned to a normal size, but her right eye is very large. We arent' sure if she can see anything, but we try to stimulate her visually anyway.

Her feet and hips are making great progress, though! : The doctor is really pleased with the way her feet are responding to the casting, and her hips are looking good. We still don't have a prognosis, but hopefully she'll only need casts for a few months and can avoid surgery.

She is eating wonderfully and putting on weight. She is still tiny, about 6.5 pounds, but we can tell she is plumping up. She's a wonderful baby, and we love being parents. She needs a little extra care, but thankfully she is healthy and strong. It is definitely harder on us than it is on her - I can't stand seeing her under anesthesia or being prodded by numerous doctors, but she always recovers very well.

Thanks again for all your well wishes. We would not be making it through this without the love and support of our family and friends.
And lots of love to all the new babies in our DDC!:

Lovestruck luxlove.gif mama to Girlie #1 energy.gifand Girlie #2 on the way!
Birdie B. is offline  
Old 11-24-2008, 05:14 AM
 
BundleFishMama's Avatar
 
Join Date: Jun 2005
Location: Philadelphia suburbs
Posts: 1,483
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Glad you're keeping us posted and I hope things continue to improve!! That sounds so hard, having to do all that driving and go through seeing your baby under anesthesia and all...praying that all of her health issues turn out well!

Kerriintactlact.gif blessed single mama to Teresa 8/2/02blahblah.gif, Madeleine 5/28/04dust.gif, Andrew 6/25/06jammin.gif, and Isabelle ribboncesarean.gif11/27/08energy.gif

BundleFishMama is offline  
 
User Tag List

Thread Tools


Forum Jump: 

Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off