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#1 of 22 Old 08-16-2013, 09:39 PM - Thread Starter
 
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I posted in health and healing about my youngest child being sickly.

http://www.mothering.com/community/t/1387100/what-is-wrong-with-my-son#post_17419981

 

He's been this way since he was just a few weeks old: pink eye, ear infections, UTI- basically if there's anything going around he gets it. He's unvaxed, home, and breastfed, but until recently we had been eating like crap. I think just living in survival mode with three kids under four caused for more chicken nuggets than I would like.

 

We saw an allergist/immunologist, and our regular pediatrician who has been supportive (or at least has not been negative) about our decision not to vaccinate called with his results. They have determined that because he is unvaxed and his titers to pnuemococcal disease are low, that is what is causing ALL his ailments and he should be vaccinated. At the very least she should get Hib and Prevnar, she said. 

 

I listened to her, and I asked her how we could know for sure, because his horrible dirty diapers can't be from that, his UTI can't be from that, etc. I asked if there was a way to test him next time he got sick to be certain that's what it was from before we decided. And that's when it got ugly. Her entire demeanor changed at that point. 

 

She shouted at me, "IF YOU DON'T VACCINATE, THEN YOU LIVE WITH THE CONSEQUENCES AND HE WILL BE SICK!!!!" She went on to say that they would not spend thousands of dollars on tests (as if it were her money!) when they know that's what it is. They will not investigate him any further because they told me what is wrong and how to fix it and I choose not to listen. 

 

 I then asked, "If this is the cause, and it's because of his repeated exposure, shouldn't he have some antibodies built up against it?" She said no, and that's why he needs the vaccine. But if natural exposure doesn't create antibodies, how on earth will the vaccine? headscratch.gif (I truly don't know...maybe she's correct?)

 

I told her that I was currently living with the consequence of a vaccine (with my oldest), and that I would talk to my husband about it and let her know. I have no plans to do it, but the way she was talking to me had me worried she was going to call child services on us. 

 

Normally I am pretty strong, but this got to me. I knew she was pro-vaccine, but I really thought she respected our choice. The fact that my child was perfectly healthy and nothing happened to her except her vaccines and now she has an auto-immune disorder means nothing. It is just a coincidence to them. They don't believe me, and now I'm a bad mommy for not vaccinating my son (whom I suspect has gut issues). Ugh. 

 

I am officially done with mainstream medicine. I have been toeing the line for years; it's time to get serious about taking charge of my family's health.

 

(obviously if my children get very sick or injured they will see a doctor, but I am going to learn all I can about holistic treatments and whatnot. I'm open to book or website suggestions.)

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#2 of 22 Old 08-16-2013, 09:50 PM
 
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Wow!! So sorry to hear about your bad experience  grouphug.gif

 

Have you thought about a second opinion with a naturpath or homeopathic dr?  It sounds like your pedi wants to put all the blame on low titers for everything, while denying the real cause of what's going on.  And, she offered the typical allopathic treatment: apply meds 'to see if they help--rather than treat the source of the problem.  And, furthermore, shouting her agenda at you is the most unprofessional thing she could have done--did she really think yelling it would make it sink in any deeper?  (talk about no common sense)

 

I hope you think about switching drs, because this one clearly does not have the health of your child in mind. 

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#3 of 22 Old 08-16-2013, 09:58 PM - Thread Starter
 
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Wow!! So sorry to hear about your bad experience  grouphug.gif

 

Have you thought about a second opinion with a naturpath or homeopathic dr?  It sounds like your pedi wants to put all the blame on low titers for everything, while denying the real cause of what's going on.  And, she offered the typical allopathic treatment: apply meds 'to see if they help--rather than treat the source of the problem.  And, furthermore, shouting her agenda at you is the most unprofessional thing she could have done--did she really think yelling it would make it sink in any deeper?  (talk about no common sense)

 

I hope you think about switching drs, because this one clearly does not have the health of your child in mind. 

Oh absolutely, we are never going back to her. The thing is, we do not have the money right now for a natural doctor, that, and there aren't any within an hour of me. And I found the most natural minded mainstream doc that I could, but he isn't accepting new patients right now. We will figure out something though, I'm sure.

 

And thank you for the hugs. 

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#4 of 22 Old 08-16-2013, 10:13 PM
 
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I would change docs and report her for yelling at you. What she saying really doesn't make sense to me. It sounds like its a really irresponsible way of saying, "I don't know what's wrong with your son so I'm going to blame you for not vaxxing him".

I would be getting a second opinion. Go to a naturopath and have them refer you to a specialist if needed.

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#5 of 22 Old 08-16-2013, 10:20 PM
 
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Wow!! I'm so sorry. I've been spoken to like that by doctors in the past, and it is very, very upsetting. Doesn't do much to affirm my faith in modern medicine greensad.gif

Clearly, they are over simplifying. Vaccines offer some protection against specific diseases, but they do not improve general health.

Fwiw, I just visited our naturopath with my 2yo DS, and we discussed a couple of things, including vaccines and some digestive issues he's been having. She feels there are only a couple of vax we should consider at this time, and she absolutely wants to wait until his gut issues resolve.

I think it is horribly irresponsible for them to encourage you to vaccinate him while he's ill. In fact, it even flies in the face of one of the pro-vax anthems: herd immunity. Is your son, with his chronic low level illnesses, not one of the immuno suppressed people everyone else is supposed to vax to protect?

It is so frustrating that it is this difficult to get logical answers to the kinds of questions you're asking. Your doctor's suggestions (demands) don't make sense.

I'm sorry, mama. ((((Hugs))))

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#6 of 22 Old 08-17-2013, 11:49 AM
 
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champagne.gif  Here.  I think you need this.  (Also, I couldn't find the "hug" smiley.)

 

I think your doctor is talking out of his a$$.  Seriously, there are no studies ANYWHERE that say that "vaccine deficiency" causes pinkeye, ear infections, UTI's, and nasty diapers.

 

But food intolerances/sensitivities/allergies CAN cause that.

 

http://www.webmd.com/allergies/news/20040622/food-allergies-may-be-linked-to-ear-infection  Food Allergies Seen In Nearly Half Of Children With Ear Infection

 

http://www.allergyconnection.com/articles/earinfec.html   The Relationship Between Ear Infections and Food Allergy

 

http://www.silcom.com/~dwsmith/midear.html  Middle Ear Infections In Children Linked to Food Allergies

 

I agree with getting a second opinion.  But in the meantime, I would try a strict gluten-free, casein-free diet.  If you are still nursing, I'd go off gluten and casein, as well.  Yes, it can end up in your milk. So can anything else questionable, so if you are on any OTC or prescription meds, that's also a possibility.

 

GFCF diet sounds a lot more difficult than it really is.  It does mean that you will have to do a bit of from-scratch cooking, but your older kids can either help, or you can let them think they are helping. You can easily make chicken nuggets from scratch--raw chicken tenders dipped in cornstarch, then egg, corn meal.  Place on greased baking sheet, spray with Pam or drizzle with elated coconut oil, and bake.  My kids like them when I've sprinkled the chicken with garlic powder and/or seasoned salt before dipping.  

 

 If your kids aren't old enough to help, you can give them "bloop" to play with while you cook.  They can sit on the floor in the corner with a mix of equal amounts of cornstarch and water, and move it from container to container, or squoosh it with their fingers.  It cleans up with a wet rag.  You can even add food coloring! It's a WONDERFUl consistency--not quite liquid, not quite solid.

 

There are lots of different milks, yogurts and ice creams based on soy milk, almond milk, coconut milk, rice milk, etc. 

Back to WHY trying a diet might be a good idea: the best diagnostic test is the dietary trial, particularly in babies and toddlers.  Google "gluten" or "casein" with every one of your child's issues, and see what pops up.  

 

example: "Gluten ear infections" = http://whattofeedyourkids.blogspot.com/2008/10/rethinking-ear-infections-treatment.html

               "Gluten pinkey" = http://www.easy-immune-health.com/Symptoms-of-Gluten-Intolerance.html  "Frequent infections that seem completely unrelated to the digestive tract are common in gluten sensitivity; however, they are very much related. Gluten sensitivity causes extensive damage to the lining of the small intestine which houses up to 70% of the body’s immune system. Some of the immune system tissue that becomes damaged in gluten sensitivity is the tissues that produce antibodies called Secretory IgA. Secretory IgA is one of the most abundant antibodies in the human body and is extremely important for killing pathogens that come into contact with mucosal tissue such as the:

 

• Sinuses

• Eyes

• Mouth

• Vagina

• Respiratory tract

• Digestive tract

• Urinary tract"

 

 

"The result? 

• Colds

• Flu

• Sinus infections

• Eye infections/Conjunctivitis

• Vaginal infections

• Urinary tract infections

• Gut infections such as giardia and H pylori.

 

 

example: "Casein ear infections" = http://www.livestrong.com/article/543751-can-milk-protein-allergy-cause-ear-infections/

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#7 of 22 Old 08-17-2013, 11:51 AM
 
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I just wanted to add, if your child DOES have a food issue that results in any kind of intestinal malabsorption, vaccines could be the tipping point, causing terrible reactions that cannot be undone.

 

I'm not saying to never get a vaccine, but vaccines should not be given where such an issue is suspected, until all symptoms are resolved.

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#8 of 22 Old 08-17-2013, 03:24 PM
 
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I agree with Taximom about the food sensitivities. If your child has any type of digestive issues, it is always best to remove gluten from the diet. Gluten is tough for many people to digest, so it's recommended to remove it for a while, at least until the symptoms clear up.

 

Unfortunately, and I know this from experience, most mainstream doctors have little to no knowledge about food sensitivites and gut issues. I talk about this all the time, but it pisses me off--the GI doctors at Duke Hospital did not recommend any dietary changes for my nephew with colitis. I tried to tell him about gluten, and he didn't even know what it was!! He said his problem had nothing to do with food (which is what the doctors told him). Instead, they decided to remove his colon. Without trying any dietary changes at all. This is why if I ever have a medical problem, I will visit the mainstream docs as the very LAST resort.

 

They don't know everything. You should try reading books and  listening to lectures given by people who know about clinical nutrition, biochemistry, and naturopathic and holistic medicine. Forget about the mainstream allopathic (pathetic) system for a while.

For example, Dr. Brownstein  was physician who practiced conventional medicine. He would recommend against his patients using holistic medicine. After a while, he grew tired of prescribing drug after drug, yet never truly healing his patients. He wanted to quit being a doctor altogether! For some reason, he decided to read a book about nutrition and disease. His father had cardiovascular disease, was seen by the "best doctors", but was not doing well. So Dr. Brownstein tried some nutritional remedies on his father, and his father's angina "melted away in 7 days". Without changing his diet or exercise, his cholesterol also went down. This was the beginning of Dr. Brownstein's new career in holistic medicine. You should see his bio--it's impressive!

 

What I'm trying to say is that I am completely disgusted with the allopathic medical system. I understand drugs and surgery can be helpful at times, but for the majority of chronic illness, nutrition is the way to go. Allopathic medicine does not truly recognize the importance of nutrition--just look at the food pyramid and RDA values. Pitiful! And GMO's--many other countries are trying to get them OUT, but the USA (and a government full of Monsanto) denies there is any problem.  People are encouraged to eat low fat, low cholesterol, low salt, eat aspartame instead of sugar, ingest fluoride at every possible opportunity, etc. And we wonder why the nation is in such a sorry state of health?

 

We are supposed to have faith in our medical establishment, but in my experience, the establishment is just not good enough. The conventional, mainstream, allopathic system is not the supreme authority on health, and just because it is accepted by the majority does not mean it is correct. There are other forms of medicine that you can use, with better results. Your doctor is recommending vaccines for your son, because that is all she can do. She has no idea about nutritional cures. Another example:When my sister was a teenager, she had alopecia and was losing her hair, and was seen by the "best" docs at Johns Hopkins. Did they help her? Hell no. They don't know how. Drugs didn't work, so they blamed her. The suggested she was depressed and was pulling it out.

As a last resort, she saw a naturopath who did food sensitivity testing on her, and recommended she remove wheat, which is what finally helped her hair grow back. Thanks for nothing, best doctors at Johns Hopkins!

 

As this novel draws to a close, I recommend you try a nutritional approach to your son's health. I listen to a LOT of videos presented by naturopaths, chiropractors, clinical nutritionists, etc. who are curing patients that the allopathic system could not. It is eye-opening and depressing. It's sad that so many people are failed by this system, while pharmaceutical stocks continue to soar. Something is terribly wrong with our health system. It's time to go back to the basics--nutrition!

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#9 of 22 Old 08-17-2013, 04:32 PM
 
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I don't have time to read the other responses, so I'll keep this short and quick since I'm sure you've received some wonderful advice already.  First of all, I am sick to my stomach, literally on your behalf.  What a giant douche, pardon my inappropriate language.  WOW.  I still for the life of me don't understand why anyone would tell you with a straight face that vaccines improve health, or even improve the immune system.  Yes, they help build antibodies for specific diseases, but at quite a cost in my opinion.  My two cents would be:

 

try your best to get everyone on a whole foods diet, rich in plants, especially leafy greens and bright orange stuff.  

 

Get on a really good quality probiotic and give vitamin D supplements

 

If you can afford it, I'd give an Acupuncturis/Chinese Herbalist a try.  It is so much more affordable for a child, mine charges by the minute, so most visits are $30 and we only see her once a year now.  At first we saw her 4 times spread out over a year.  She did some non-invasive treatments (no needing) and prescribed herbs for my son.  He now hardly ever gets sick (he was getting something every five seconds before), and when he does he's over it in no time flat.  He hasn't been on the herbs in about 9 months, and his body is holding strong.  We have a formula in the cabinet for when he gets sick or overtired, which we hardly ever use anymore.  The herbs are usually around $20

 

Try cutting out gluten and dairy if possible

 

Definitely cut out sugar 

 

We also do a daily green shake that my boys both LOVE, they think it's a treat instead of a powerhouse drink.  It is a great immune booster too...here's what I put in it:


8 oz non-dairy milk of your choice (we use hemp....highly recommended by our acupuncturist)

frozen organic berries (usually blueberries and strawberries...if you use fresh instead of frozen add an ice cube or two)

half or whole banana depending on size (for taste so the kids will like it)

4 TBSP Vitamineral Green from Healthforce Nutritionals (life changing product for me...I wish I could sell it.  Pricey but my monthly splurge and well worth it.  Best price is usually Amazon)

Water up to the 24oz (ish) mark

Sometimes I add chia seeds too, and I used to use freshly ground flax but my kids hate it that way so I stopped

Blend away and enjoy the dark green mustaches that your kids will have :)

 

Very best to you, it's such an awful feeling when your baby is sick.  You sound like an amazing mama, keep your head up :)

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#10 of 22 Old 08-17-2013, 07:51 PM - Thread Starter
 
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Um, I kind of love you guys. Thank you for all your advice and support. My kids are on a low dairy diet already, and we recently improved our eating- fruit/veggie smoothies every morning, juicing sometimes, much more from scratch meals, less meat, etc. I have suspected for a while I need to remove gluten from his diet- I'm just scared of change! But I know its' time. I will not let myself dwell on this, but I feel guilty about how many times he was on abx and probably didn't need to be. I want to trust myself more. 

 

I am going to see if there are any herbalists around here. Thanks again.

 

Jules- ::highfive:: on the douche comment. That's exactly what she was being. 

 

And taxi, I know  you wouldn't tell me to never get a vaccine, but rest assured, they won't, not as long as I'm responsible for their health. smile.gif

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#11 of 22 Old 08-18-2013, 11:22 AM
 
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Awesome advice from all PPs! Maybe add probiotics too

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#12 of 22 Old 08-18-2013, 02:43 PM
 
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I suggest you try Advanced Allergy Therapeutics. Here is a list of practitioners. http://www.allergytx.com/locations.html Even for people with no obvious allergies, it treats unhealthy reactions the body has to things it doesn't process correctly. It can clear up a lot of different ailments that you wouldn't normally associate with allergies. It's very easy and noninvasive, and you only have to avoid the treated allergen for 24 hours after treatment (some practitioners say less).

 

I also highly suggest probiotics and vitamin D.

 

I'm not a big fan of eliminating foods. I mean, in extreme cases such as autism, you do what you have to do, and if a GFCF diet helps, by all means do it, but I'm much more in favor of treating the underlying problem. The foods are not the problem--the body's reaction to the foods is the problem. If there's a leaky gut, heal it, perhaps in part by eliminating certain foods while it heals, but with the goal of being able to eat anything once it heals. I love AAT (Advanced Allergy Therapeutics) so much because it allows you to eat whatever you want after successful treatment. (within reason--I'm not talking about artificial sweeteners, hydrogenated oil, etc, because certain things are always bad, for everyone). 

 

AAT also works for non-food allergens.

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#13 of 22 Old 08-21-2013, 03:11 PM
 
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Just sending a big HUG and keep your heads up.

 

Good choice for not going back to that docs office. Sound horrible even suggesting giving a sick child vaccines. There has been a lot of wonderful info posted already. I myself prefer cell salts and had astonishing results so far.
 

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#14 of 22 Old 08-22-2013, 08:03 AM
 
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hug2.gif

 

Your doctors advice makes no sense - at all!

 

Vaccine might help prevent certain illnesses - are they saying your child is repeatedly getting a VAD, and that is why he is ill?  Or are they saying he is more prone to VAD's or bad cases of VAD's because he is a somewhat sickly?  

 

In any event, I would literally shoot myself in the foot before I would give a 18 month old male, who has gut issues and a sibling who had a vaccine reactions, any vaccines.  

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#15 of 22 Old 08-22-2013, 10:56 AM
 
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Great advice already.

 

He really really needs to be on a HIGH QUALITY probiotic. Especially if he has had repeasted rounds of antibiotics.I suggest Klaire Labs infant therbiotic. We used this with my DS until age 2 and then switched to Brainchild nutritionals maximum formula. It is crazy expensive, I totally can't aford it. I can't afford alot of the things I chose to give my kids, but I see it as a sacrifice (i will go without so they have what they need) and an investment in their health.

Do you know his vitamin D level? if not you should get a baseline level and then you will know what you need to do in terms of supplementation.

 

Also what kind of birth did you have with your son?

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If the people let government decide what foods they eat and what medicines they take, their bodies will soon be in as sorry a state as are the souls of those who live under tyranny." Thomas Jefferson.

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#16 of 22 Old 08-22-2013, 10:56 AM
 
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Great advice already.

 

He really really needs to be on a HIGH QUALITY probiotic. Especially if he has had repeasted rounds of antibiotics.I suggest Klaire Labs infant therbiotic. We used this with my DS until age 2 and then switched to Brainchild nutritionals maximum formula. It is crazy expensive, I totally can't aford it. I can't afford alot of the things I chose to give my kids, but I see it as a sacrifice (i will go without so they have what they need) and an investment in their health.

Do you know his vitamin D level? if not you should get a baseline level and then you will know what you need to do in terms of supplementation.

 

Also what kind of birth did you have with your son?

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If the people let government decide what foods they eat and what medicines they take, their bodies will soon be in as sorry a state as are the souls of those who live under tyranny." Thomas Jefferson.

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#17 of 22 Old 08-22-2013, 11:44 AM
 
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Hi there,

 

I haven't read all the responses, but first: HUG.  Ok, one more: HUG!

 

It's probably been mentioned to clean up the diet, try GF/CF, which I agree with obviously.  Really quality probiotics.  Two other things pop into my mind: the first is get this child tested for Lyme's if you are in a wooded US area.  Recurrent pink eye and immuno disfunction can be signs of tick-bourne disease.  The other is cranio-sacral therapy... my second born had all sorts of issues (colic, RSV, the ability to catch anything and everything) and CST made an immense difference in his health.  He's a happy 6 year old now who's hardly ever sick, after that rough infancy.

 

Good luck, and stay strong.

 

Suz
 

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#18 of 22 Old 08-24-2013, 10:51 PM - Thread Starter
 
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hug2.gif

 

Your doctors advice makes no sense - at all!

 

Vaccine might help prevent certain illnesses - are they saying your child is repeatedly getting a VAD, and that is why he is ill?  Or are they saying he is more prone to VAD's or bad cases of VAD's because he is a somewhat sickly?  

 

In any event, I would literally shoot myself in the foot before I would give a 18 month old male, who has gut issues and a sibling who had a vaccine reactions, any vaccines.  

She's saying he's getting pneumococcal strains- apparently she thinks that's the cause of all his illnesses and the vaccine will fix him. The problem is, he has no antibodies to any of the strains prevnar prevents (that's what they tested...that's how doctors see if your immune system is working, by testing your antibody levels to certain VPDs, in order to see if your body responded to the vaccine); I said, "well if he has no antibodies to it, how do we know that he was exposed to it?" She said sometimes they don't build them up and that's why he NEEDS the vaccine. Maybe I"m wrong, I'm not a doctor, but if he's not building antibodies to it the normal way, how on earth will he through the vaccine? (but I honestly don't think that's what he is being exposed to; I think he just had some bad luck in the beginning and the antibiotics and my less than optimal eating habits didn't help). Since we have changed our diet he has not shown the slightest sign of an illness.

 

And I agree with you about not vaxing him in particular. 

 

Marnica- we started him on Udo's Infant probiotic: http://www.amazon.com/Udos-Choice-Infants-Probiotic-2-64-Ounces/dp/B0010EG6QC

I'm not sure if that's high quality (the lady at wholefoods recommended it), but there was a slight improvement in his diapers, then we removed gluten and saw even more of an improvement. I'm hoping these things will help heal him. 

 

Thanks again for all your support. 

 

Lookingup- no, not a wooded area at all. I'm going to look into the craniosacral therapy, thanks.

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#19 of 22 Old 08-24-2013, 10:53 PM - Thread Starter
 
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Originally Posted by Marnica View Post

 

Also what kind of birth did you have with your son?

A perfect, med free one. The only intervention was she broke my water just moments before i pushed him out. His birth was amazing- thanks for letting me re-live it just now. smile.gif

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#20 of 22 Old 08-27-2013, 03:24 PM
 
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Just saw this and was going to mention gut issues but taxi said pretty much everything I would have. In addition to gluten and casein kids can have issues with food chemicals as well. My daughter is really sensitive to salycilic acids which are many fruits and veggies. She is totally unvaxxed and was born at home and started having issues almost immediately from birth with bad diapers and raw bleeding butt. Currently we have to keep her on a pretty strict diet. She wasn't sick all the time like your baby, but these things can present themselves in all sorts of ways.


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#21 of 22 Old 08-27-2013, 07:01 PM
 
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So glad your son is feeling better!


               "Those who are able to see beyond the shadows and lies of their culture will never be understood, let alone believed, by the masses."

                ~Captain Hammer (j/k, it was Plato)

 

 

 

 

 

 

 

 

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#22 of 22 Old 08-27-2013, 07:35 PM
 
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I'm sorry that you have to deal with that. Diet is key to these allergy issues I also highly reccomend probiotics! Everyday!! Big hugs.
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