So, so, so sad... - Mothering Forums
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#1 of 22 Old 08-22-2013, 09:04 AM - Thread Starter
 
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From a woman on one of the FB groups...

 

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Posted earlier about a pro vac friend who has been in the hospital from when the drs diagnosed the baby with gullian barre, now after 2 months of treatment they are saying Its krabbe diaease. Its This common from vaccinations too? They are preparing my friend for the death of her one and only baby girl.

 

I just don't see how this isn't murder for profit by the pharmaceutical company and the doctors accessories to it.

 

Nobody deserves this regardless of their stance on vaccines.  Please send prayers for this family.

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#2 of 22 Old 08-22-2013, 09:11 AM
 
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praying.gif how very sad.

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#3 of 22 Old 08-22-2013, 09:54 AM
 
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That is so horrible. My god.

Krabbe's disease is an inherited genetic disorder. It's a recessive trait. Early onset begins to show symptoms at 3-6 months.

http://en.m.wikipedia.org/wiki/Krabbe_disease

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#4 of 22 Old 08-22-2013, 10:37 AM - Thread Starter
 
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Great here comes the pro-vaxxer to say it isn't vaccine related.

 

I thought pro-vax stalking (TROLLING) wasn't supposed to be allowed in this forum anymore.

 

Krabbe disease is caused by genetic mutations.  Only a pro-vaxxer would say that vaccines can't cause genetic mutations.
 

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#5 of 22 Old 08-22-2013, 11:08 AM
 
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Not nice

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#6 of 22 Old 08-22-2013, 11:14 AM - Thread Starter
 
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This coming from a wikipedia medical education.

 

Read the whole article.  It says it is caused by genetic mutations.

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#7 of 22 Old 08-22-2013, 11:25 AM
 
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Originally Posted by Katie8681 View Post

Oooookay. I thought the truth didnt belong to any one side. It's hard when facts (like the definition of an illness) conflict with your ideology. Pray away!

Edit: you guys pray, and geneticists work, and let's see who figures out a cure for Krabbe disease first.

this is not nice

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#8 of 22 Old 08-22-2013, 11:29 AM
 
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Originally Posted by Katie8681 View Post

Oooookay. I thought the truth didnt belong to any one side. It's hard when facts (like the definition of an illness) conflict with your ideology. Pray away!

Edit: you guys pray, and geneticists work, and let's see who figures out a cure for Krabbe disease first.

This is uncalled for.  

 

The "you guys" thing is a pretty sweeping assumption.  Some non-vaxxers don't pray.  Some do.  Some pray - and also think geneticists do fine work.  Don't try and paint all non-vaxxers as religious (I am not religious).  

 

I had no issue with your first post, btw.  


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#9 of 22 Old 08-22-2013, 11:30 AM
 
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Quote:
Originally Posted by KistheMum View Post

Great here comes the pro-vaxxer to say it isn't vaccine related.

 

I thought pro-vax stalking (TROLLING) wasn't supposed to be allowed in this forum anymore.

 

Krabbe disease is caused by genetic mutations.  Only a pro-vaxxer would say that vaccines can't cause genetic mutations.
 

 

 

GB can be triggered by vaccines but Krabbe probably not.  BUT it doesn't matter how it came about it's horrible either way.  And Katie you're being really rude and incensitive.  Knock it off.

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#10 of 22 Old 08-22-2013, 11:46 AM - Thread Starter
 
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Children get shots at birth, one month, two months, four months, six months (I don't actually know what the schedule is), and the standard timeframe for Krabbe is 3-6 months.

 

Yep, impossible for there to be a correlation there at all.

 

Would be very interesting to see the DNA from those childrens' PKU test along side their post-mortem DNA.  Wouldn't expect that to be available any time soon, though.  And...  Epigenetics from parents being vaccinated couldn't possibly have anything to do with it, either.

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#11 of 22 Old 08-22-2013, 12:06 PM
 
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This is fear-mongering with a mask of compassion.

http://www.ninds.nih.gov/disorders/krabbe/krabbe.htm

From the National Institute of Neurological Disorders and Stroke.

http://emedicine.medscape.com/article/951722-overview

Medscape

http://www.ncbi.nlm.nih.gov/books/NBK1238

The most highly detailed on genetics and why some people are affected very young and others are not affected until adulthood. It's not straightforward Mendellian genetics- you can't just draw a Punnit square with this one.

This is one of the worst things I can imagine happening to a family. I hope the research on cord blood transplant as a treatment goes somewhere.

Editing my prior post. Sorry.

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#12 of 22 Old 08-22-2013, 01:25 PM - Thread Starter
 
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Quote:
Originally Posted by Katie8681 View Post

Oooookay. I thought the truth didnt belong to any one side. It's hard when facts (like the definition of an illness) conflict with your ideology. Pray away!

Edit: you guys pray, and geneticists work, and let's see who figures out a cure for Krabbe disease first.

 

Personally, I think it's better for a post to stay, and people see exactly what they are dealing with.

 

Quote:
Originally Posted by Katie8681 View Post

This is fear-mongering with a mask of compassion.

 

Sorry doesn't seem very sincere when people throw in another insult in the same post.

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#13 of 22 Old 08-22-2013, 02:00 PM
 
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It is sad but Krabbe as discovered long time ago. Here is info.

 

 

http://www.mayoclinic.com/health/krabbe-disease/DS00937/DSECTION=causes

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#14 of 22 Old 08-22-2013, 02:08 PM
 
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Well, yeah, I still feel that way, and don't really care if it's there or not. You did say that doctors are accessories to murder because you think they "gave" this girl a rare genetic disease that was first identified in 1913, so I'm not seeing you coming from a moral high ground. Then you labeled me a troll for posting link about the disease, which if you'll note, I did NOT say anything about it being linked to vaccines or not. You jumped to that conclusion based I guess on reading more about the disease and seeing that it's an inherited genetic defect that they've mapped out in great detail. So yeah, it's most likely got nothing to do with vaccines, and you can stop waving around this poor Fidel's bloody shirt.
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#15 of 22 Old 08-22-2013, 02:46 PM
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This sort of posting is highly inappropriate. As well, if you are not a non-vaxxer then you should not be posting here. If you wish to debate or have a general discussion about a topic you should post to the Vaccinations Discussion & Debate forum. 

 

I'm keeping the thread open but personal attack and accusations should be edited if you want to continue to have access to the thread. 

 

Katie8681 and Alenushka, if you are not aligned with this forum as a non-vaxxer please step out of the discussion.

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#16 of 22 Old 08-22-2013, 03:34 PM
 
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In 5 years or so much of this issue will go the way of HIV denialism. Which Mothering has backed off from because facts are facts.
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#17 of 22 Old 08-22-2013, 07:48 PM
 
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Katie8681 and Alenushka, if you are not aligned with this forum as a non-vaxxer please step out of the discussion.

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               "Those who are able to see beyond the shadows and lies of their culture will never be understood, let alone believed, by the masses."

                ~Captain Hammer (j/k, it was Plato)

 

 

 

 

 

 

 

 

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#18 of 22 Old 08-22-2013, 08:04 PM
 
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I was not discussing validity of anyone's vaccination views. There is a link that give accurate information about Krabbe decease from a reliable source for anyone to make their own opinions.

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#19 of 22 Old 08-23-2013, 08:42 AM
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Alenushka, read the forum guidelines please. I'm removing you from this discussion.

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#20 of 22 Old 08-23-2013, 08:44 AM
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Katie8681, read the forum guidelines please. I'm removing you from this discussion.

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#21 of 22 Old 08-23-2013, 11:23 AM
 
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I'm a non/selective vaxxer and I have a friend whose daughter died of Krabbe a few years ago.  To the best of my knowledge which comes from her (and she researched the HECK out of the topic and is generally very crunchy) there is no link between vaccinations and Krabbe.  Of course, new information comes up all the time, but I don't think this seems likely. 

I have to say that my heart goes out to those parents though.  Krabbe is a brutal diagnosis and I hope they are reaching out to their support community.

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#22 of 22 Old 08-23-2013, 11:54 AM
 
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Krabbe is caused by a certain deletion or mutation, one of which is inherited from each parent. The child's parents will likely be genetically tested to find out the source of the child's disease (i.e. which parent had which abnormality), which will be somewhat helpful in discussing treatment options but also in discussing future fertility options, etc.

So if vaccines are involved, it would have impacted the parents' genome, not the child's. I have a friend who's son has Krabbe and have been coming up the learning curve on this disease for the last several years. It's my understanding (which is far from complete) that it has never really been tied to any vaccines at any point, so I'm not sure why that the connection was made. While vaccines may be associated with mutations, not all mutations are associated with vaccines.

FWIW, I wish the best for this family and hope they find excellent health care providers, which is challenging for this rare disease. Duke has a world-renowned treatment center that did wonderful work with my friend's son.

Mi vida loca: full-time WOHM, frugalista, foodie wannabe, 10+ years of TCOYF 

 

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