Changing the narrative regarding Autism - Mothering Forums

Changing the narrative regarding Autism

littlec's Avatar littlec (TS)
12:57 AM Liked: 7860
#1 of 7
05-25-2014 | Posts: 300
Joined: Sep 2009

Does anyone else see this? All of a sudden, I have come across several articles, memes and other internet stuff regarding Autism. It is not a problem, that children on the spectrum are not damaged, and they are unique and born this way and meant to be this way.

 

I can see it as a push for acceptance, I guess. Though I don't know anyone who doesn't accept and love those in their lives who aren't neurotypical, but I wonder if it is more deliberate. Is it something to silence those who think environmental toxins are contributing to the rise in ASD?

 

If there is nothing "wrong" with people on the spectrum, then there is no reason to look for a cause or a cure. This is how they were meant to be, and to say anything contrary to that is insensitive. Somehow, stating that it may have been prevented is no longer an accepted point of view.

 

Please forgive me if anything in this thread is offensive. I hope I have worded this properly; I know we have mothers here of children on the spectrum and mean no disrespect. I am just pointing out a trend I am seeing online.


kathymuggle's Avatar kathymuggle
06:08 AM Liked: 180566
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05-25-2014 | Posts: 4,226
Joined: Jul 2012

I have never met a neuro-diversity type who discusses vaccines and wasn't also pro-vaccine.  I guess if you are one of the minority of people on the ASD spectrum who is genuinely thriving, you might be offended that others seek to prevent the thing you have and embrace.  

 

The thing is:  the percentage of those who thrive as independent adults with ASD is pretty low.  

 

There are also those who are not on the ASD spectrum, but have embraced the neuordiveristy movement as it supports their desire to promote vaccination. 

 

There is little that angers me more than people romanticizing autism, and romanticizing it for their own agenda is the worst.  

 

Another possibility is there is a tiny part of them that thinks vaccines could be linked to autism.  They need to normalize autism so they can continue to promote vaccines with a clear conscience.  


kathymuggle's Avatar kathymuggle
06:09 AM Liked: 180566
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05-25-2014 | Posts: 4,226
Joined: Jul 2012
Quote:
Originally Posted by kathymuggle View Post
 

 

"AOL Health: What do you think of the theory promoted by many autistic rights organizations run by individuals with autism that society needs to accept neurodiversity and treat autistic individuals as people who think and understand the world differently?

Offit: It makes abundant sense. They are arguing that it's a way of being. It's a variance of normal. It should be looked at as such, not stigmatized. I've spoken to many of them, and they don't want to be seen as damaged."

 

http://autismalternative.com/index.php?option=com_content&view=article&id=250:autism-experts-on-causes-cures-and-controversies&catid=3:newsflash

 


beckybird's Avatar beckybird
02:41 PM Liked: 60965
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05-25-2014 | Posts: 2,033
Joined: Mar 2009

I think the term autism is too broad, and therefore, it does upset high functioning autistics and their families to be thought of as damaged. I fully understand and support them.

 

However, for the parents who believe that something caused their child's autism, this push for blanket acceptance is, well, unacceptable! If the parents are wrong is completely beside the point. If a child appeared to be developing normally, then suddenly something changed, I can totally understand why parents would feel that something changed (or damged) their child. You cannot deny parents the freedom to feel this way, just as you cannot deny parents the freedom to feel that there is nothing wrong with their child. I can see this argument from both sides.

 

Now that that's out of the way, I do see the "provax" authorities using this as another way to divide and conquer. It seems that most parents who feel something external changed their child might also blame vaccines. This pits the pro against the non, and is just one more way to fuel the argument. I believe the authorities know this, and are using it to their advantage.


kathymuggle's Avatar kathymuggle
02:59 PM Liked: 180566
#5 of 7
05-25-2014 | Posts: 4,226
Joined: Jul 2012
Quote:
Originally Posted by BeckyBird View Post
 

.

 

Now that that's out of the way, I do see the "provax" authorities using this as another way to divide and conquer. It seems that most parents who feel something external changed their child might also blame vaccines. This pits the pro against the non, and is just one more way to fuel the argument. I believe the authorities know this, and are using it to their advantage.

I will say I have much more patience for parents or individuals who speak the truth as they see it and how they interpret their or a close family members autism …and far less with professionals who pick a side for political reasons/agendas.

 

I will also say this can go far beyond vaccines.  If autism is all genetic, the real numbers are not increasing and autism is just wunderbar, then the government does not have to pour money into research or ask tough questions on environmental factors that could tick off industry lobby groups.  So - good for government, good for industry leaders, and bad for many families.


fisherfamily's Avatar fisherfamily
03:24 PM Liked: 6044
#6 of 7
05-25-2014 | Posts: 365
Joined: Dec 2013
I also see both sides.

Perhaps another reason for this push for acceptance is the realization that autism isn't going away. There are so many people who see the world through autistic eyes, and it behooves all of society to learn how to interact.
Taximom5's Avatar Taximom5
06:56 PM Liked: 266462
#7 of 7
05-25-2014 | Posts: 3,314
Joined: Jan 2012
I think it's very similar to the debate about cochlear implants in the hearing-impaired culture.

Funny, if a child suffered a broken arm in an accident, nobody would say, "he's fine the way he is, he doesn't need fixing, we must love and accept him the way he is..."
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