I just want to cry - Mothering Forums

Forum Jump: 
 
Thread Tools
#1 of 24 Old 01-25-2009, 01:22 PM - Thread Starter
 
mysticmomma's Avatar
 
Join Date: Feb 2005
Location: Baltimore
Posts: 6,183
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Some days, I just literally want to die. The exhaustion I feel, the pain I'm constantly living in just becomes too much. I've been to doctors. Lots of them. They all tell me my symptoms are all unrelated. I was diagnosed with fibro when I was about 17 or 18. Then I was later undiagnosed because it didn't exist. But they still couldn't tell me what's wrong. Apparently the way I feel all day every day is normal. Everyone is tired and has aches is what I get told. Then I was diagnosed with lyme, and chronic lyme syndrome, only to be told THAT doesn't exist either. Exersize more, eat different foods, try this vitamin, it's all in your head because you are depressed. This is what I get. From family, friends and hcps. Today is just too much. Insomnia has been really bad lately, and yesterday I napped from 2-6pm and went to bed again around midnight until 8 am. it was an up and down fitful sleep, but it was ok. Better than usual. My dh bitched about gonig to be late and getting up early. He went to bed around 9:30 and was up around 7. How is that going to be late? He does so much, and I really shoudn't be upset, but I'm just tired of being labled as lazy or difficult or crazy instead of sick like I feel. What's worse is the only thing that helps make me normal so far that I've found are freaking narcotics. Not only do doctors LOVE to prescribe them, but I just LOVE taking them. It doesn't help that I have a history of alcoholism. I mean they help my pain, and I can be a little more productive that day, but I pay for it in nausea, itchiness, and more pain the next day. I have an appt on monday because this "relapse" or whatever anyone wants to call it has been really bad, and I'm hoping I'll get a referral to a neuro or something. The headaches have been getting worse, and my clumsiness as well. My word retrieval has been really bad... I call everything a chicken. which is kind of funny, but oh so frustrating. I've had 8 miscarriages, and the endo I saw told me it was NORMAL for women to miscarry. Yeah, I thought 1 maybe 2 was normal but 8?! I'm so fed up and today has just been really bad.

hh2.gif

mysticmomma is offline  
#2 of 24 Old 01-25-2009, 01:48 PM
 
PaulaJoAnne's Avatar
 
Join Date: Oct 2008
Posts: 1,520
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
You need to contact this lady. www.heallyme.wordpress.com
With the help of her dr., she has been able to heal her lymes and coinfections naturally.
Paula

Paula, wife to Steve, mother hen to 38 , busy doing : TTC after 6
PaulaJoAnne is offline  
#3 of 24 Old 01-25-2009, 01:49 PM
 
FrannieP's Avatar
 
Join Date: Sep 2007
Location: Seattle
Posts: 937
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
WOW... you poor Mama! I'm so sorry you are feeling so poorly - and for so long.

Have you ever had the 24 hour cortisol test for adrenal function?
What about thyroid labs?

http://www.drlam.com/articles/adrena...gue.asp?page=1

Frannie
FrannieP is offline  
#4 of 24 Old 01-25-2009, 02:08 PM - Thread Starter
 
mysticmomma's Avatar
 
Join Date: Feb 2005
Location: Baltimore
Posts: 6,183
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
i've been tested for thyroid and did a 24 hour urine cortisol that was "essentially normal." My thyroid labs are always wierd. My TSH is always normal, but my t4 is always very low. So they tell me since my tsh is normal that my thyroid is functioning normal. But a normal tsh only means that the pit is telling the thyroid to work, not that the thyroid is actually working, but when I tell them that they look it me like I have 6 heads.

Whenever tests come back normal or their treatment doesn't work I just get written off as making it up.

Thanks for commiserating and I will check out those links.

hh2.gif

mysticmomma is offline  
#5 of 24 Old 01-25-2009, 02:12 PM - Thread Starter
 
mysticmomma's Avatar
 
Join Date: Feb 2005
Location: Baltimore
Posts: 6,183
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I did a symptom checker, and the list of conditions they spit back out at me was:

Peripheral neuropathy
Shingles
Fibromyalgia
MS
RA
RLS
CFS
Lupus
Lyme disease
B12 deficiency

hh2.gif

mysticmomma is offline  
#6 of 24 Old 01-25-2009, 02:22 PM
 
kolleen9's Avatar
 
Join Date: May 2006
Posts: 254
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I'm so sorry you're going through this.

I was chronic for a good portion of my life so I know exactly how hard it is on you. Some people are more sensitive to the environment to the point that everyone else thinks their crazy! My dad was like this and I am even more so. What bothers me won't even be a blip on most people's radar.

It took years and lots of $$ to wade through the issues and get on a decent track and even now I'm off as soon as I get the slightest bit near a bacteria or viral microorganism that won't even affect the next person. In essence, you're not alone!

If you can find a doctor (allopathic or natural) that will work with you, the following things are probably something you want to check out:

Metal poisoning (from mercury fillings from you or you parents)
Liver (insomnia)
Adrenal (better yet, your entire endocrine system)
Mold in the house
Living near electrical stress (towers, switch stations)
Living near very polluted water

keep us posted!
Kolleen
kolleen9 is offline  
#7 of 24 Old 01-25-2009, 02:26 PM
 
FrannieP's Avatar
 
Join Date: Sep 2007
Location: Seattle
Posts: 937
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
The fact that your t4 is low is proof that your thyroid levels are off.
I strongly encourage you to get the 24 hour SALIVA test b/c it is far more accurate and so many of the symptoms you describe sound like adrenal symptoms.
You are so not the first person to have clueless doctors - I know how challenging it can be to figure things out when you are struggling with health issues, brain fog etc. It can feel so daunting. I was in the same boat. I had to order my own cortisol test through the mail from canaryclub.org and I had to INSIST that my MD do ALL the thyroid labs.
There's a list here:
https://sites.google.com/site/natura...id/hypothyroid

If your thyroid levels are off - which it sounds like they are - then you can betyou are dealing with a whole host of hormonal imbalances that will need to be addressed before you can expect to feel better.

If I were you I would try to find a practitioner who has a clue about treating thyroid - perhaps a ND or osteopath? I found a wholistic MD in my area. I was uninsured and could only afford ONE visit so I called his office and explained my situation. I took in all my labs and mile long list of symptoms/history and left with adrenal and thyroid support that I needed to finally get my health back. If I had relied on my regular doctor's care I would be half dead by now! It's unfortunate that we have to do all this detective work and beg and plead for proper lab work, but we do sometimes.
You can post here to find a practitioner in your area:
http://forums.realthyroidhelp.com/in...bc82f74f4617bd

FP
FrannieP is offline  
#8 of 24 Old 01-25-2009, 02:35 PM
 
deditus's Avatar
 
Join Date: Feb 2006
Location: In the LandOLakes missin the mitten
Posts: 2,986
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by kolleen9 View Post
I'm so sorry you're going through this.

I was chronic for a good portion of my life so I know exactly how hard it is on you. Some people are more sensitive to the environment to the point that everyone else thinks their crazy! My dad was like this and I am even more so. What bothers me won't even be a blip on most people's radar.

It took years and lots of $$ to wade through the issues and get on a decent track and even now I'm off as soon as I get the slightest bit near a bacteria or viral microorganism that won't even affect the next person. In essence, you're not alone!

If you can find a doctor (allopathic or natural) that will work with you, the following things are probably something you want to check out:

Metal poisoning (from mercury fillings from you or you parents)
Liver (insomnia)
Adrenal (better yet, your entire endocrine system)
Mold in the house
Living near electrical stress (towers, switch stations)
Living near very polluted water

keep us posted!
Kolleen
I am going to add celiac disease and gluten intolerance to Kolleen's list of things you should check out.

Emily, cooking allergen free, knitting, reading, gardening Mom to 1 beautiful girl, born in the water on July 1, 2006 Wife to 1 handsome man since September 10, 2005
deditus is offline  
#9 of 24 Old 01-25-2009, 02:56 PM
 
lil_miss_understood's Avatar
 
Join Date: Jul 2006
Location: Oregon
Posts: 10,592
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I second FrannieP's post. Get thee to a ND or osteopath. Most "conventional" doctors are absolutely clueless and useless with thyroid problems.
I can't believe the endo told you that. (I can but .. wtf?!) And it's unbelievable that all they've run is TSH and T4. Some doctors seriously make my head explode with their useless cluelessness.

Wife of Michael , SAHM to Aristotle 09/99 Raphael 06/07 and Marius 05/09 Known only in dreams but never forgotten: Euphrates Decluttering 290/2010
lil_miss_understood is offline  
#10 of 24 Old 01-25-2009, 05:09 PM
 
Mirzam's Avatar
 
Join Date: Sep 2002
Location: Outside the hive mind
Posts: 7,353
Mentioned: 1 Post(s)
Tagged: 0 Thread(s)
Quoted: 28 Post(s)
I am going to put a whole different spin on things which obviously you are free to disregard, as it probably sounds way radical. But can you turn your thinking about your health issues 180º and see it as your body doing what it is programmed to do? Our bodies are constantly in a state of homeostasis and all those symptoms you are experiencing is the body healing. So, this is actually a positive thing. However, it seems like the process is being prevented from being completed, so I ask you to think back to when you first started experiencing these health issues at 17 or 18, and think about what was happening in your life. I may be off, but I would hazard a guess that something stressful occurred. Begin your journey to wellness by dealing with and healing these events, and you will find that space will open up in your life for other help to come to you. Even by writing this post and asking for help, you have energetically provided a way for those blocks to dissolve. One of the gentlest and easiest ways to start is by taking flower essences. Flower essences work on the emotional body and are very gentle, yet very powerful. Check out the Flower Essence thread here, it is long, but it will give you some idea of how to work with them, you don't need a practitioner to prescribe for you, you can do it yourself without any concern about getting it wrong.

I am not saying don't bother with the medical route if that is where you are drawn, but it is obvious that thus far it hasn't worked for you. Western medicine is pathological medicine, in that it is always looking for what is wrong, what I am suggesting you do is look for what is right, and what is right is just what your body is doing. With that mindset, you can decide which course of action you wish to pursue to assist your body in its healing; homeopathy, nutrition, structural, energetic etc. However, I think the key lies in your late teen years, heal whatever occurred then and I have a feeling that physical healing, utilizing whatever modality you choose will follow quickly. I would not however, recommend anymore pharmaceutical interventions, because the body is going to have to work really, really hard to clear them, and you are exchanging short term benefit for long-term difficulties. Also, I wouldn't focus too much on a diagnostic label, they are essentially meaningless, just names given to a group of symptoms, you are not your disease or condition, and by giving your symptoms a name, you are energetically identifying yourself with that disease, and that is not who you are.

You have taken your first steps to healing, I wish you well.

Rainbow.giftstillheart.gifsmile.gif

 

"If you find from your own experience that something is a fact and it contradicts what some authority has written down, then you must abandon the authority and base your reasoning on your own findings"~ Leonardo da Vinci

Mirzam is online now  
#11 of 24 Old 01-25-2009, 06:01 PM - Thread Starter
 
mysticmomma's Avatar
 
Join Date: Feb 2005
Location: Baltimore
Posts: 6,183
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
last post not helpful. I realize you were probably well intentioned, but I am dealing with a very serious chronic debilitating disease. This is not the first time I have posted about this. I have spent the last 10 years of my life seeking opinions, suggestions and treatments for my symptoms. I have had labs done locally and consulted with physicians from all over the US. As soon as I think I am onto something and see someone locally, the process of healing quickly ends. I have done energy work, homeopathics, herbal remedies, pharmeceuticals, therapy, PT, OT, massage, hypnosis, acupuncture acupressure and many more. When treatment doesn't work, I'm written off as making it up or noncompliant because I don't fit their profile. That's fine. I dont need to fit a profile. I need someone who is going to say "i beleive you, and I'm going try to find out what this is and how you can feel better." I'm not looking for a label. i'm looking to get well. I don't define myself by any one thing, and by finding out what I do have will help me work towards healing. If you don't know what's broken, you can't fix it. My symptoms are NOT what my body is supposed to be doing. The thought of that makes me want to go slit my wrists in the bathtub right now. There is no stone unturned and no "key" lying in my late teen years. Nothing happened then that would "cause" this now. I have always been this way even as a child. I can trace most of these feelings and symptoms back to early childhood. My mother sought care for me and was given no answer. I was makign it up (she knew I wasn't). I diagnostic label ISNT meaningless to me. It's very meaningful because it validates me and sets us upon a course of action that can lead to wellness. I need the pharmeceuticals that I take, and will continue to try any others that are suggested and seem reasonable. By telling me not to, you are essentially asking me to give up any kind of releif I get now. Would you tell a type one diabetic to avoid her insulin because it is a pharmeceutical and her body will have to work really really hard to clear it? No. I'm almost certain you wouldn't. We are certain of one thing. My disease is autoimmune in nature. My body is NOT doing what it is supposed to, and after reading your reply, I feel even more depressed, hopeless and unvalidated. Your post really just shows that you don't understand. Maybe you "healed" yourself from MS or Lupus or some other chronic and debiliateing disease. That was your experience, adn I'm glad healing whatevere trauma happened to you cured your body, but that is not my experience. I'm not trying to be combative. You cant teach someone anything if they already know everything and I can't possibly get well if I don't beleive I will get well. But that in and of itself is not

hh2.gif

mysticmomma is offline  
#12 of 24 Old 01-25-2009, 06:05 PM - Thread Starter
 
mysticmomma's Avatar
 
Join Date: Feb 2005
Location: Baltimore
Posts: 6,183
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
These are the symptoms I've written down for my doc tomorrow. I'm going to ask for a referral to a repro endo and a neuro.

Insomnia and Fatigue
Joint pain (wrists, hips, ankles, fingers)
Headaches are becoming more intense and more frequent
Word retrieval
Slurred speech
Hot Flashes;
Intolerance to heat;
bright red cheeks
Shaking insides/feeling air in my brain/blood rushing
Vertigo/Faintness/Syncope
Heavy Chest
Chronic yeast
Dry itchy skin
unable to lose weight
Legs give out spontaneously while walking
Tinnitus (also think hearing is decreasing)
Visual changes (spinning, wobbling, double, mostly things are fuzzy/out of focus)
Trouble concentrating or remembering what I was doing, where I was, names
Clumsy: drop things, walk into things, mis-step off curbs
Electricity zapping down arms and legs, hands and feet “fall asleep.”
SI joint, below glutes and lump on back of neck always painful/sore
Incontinence when sneezing or laughing; urgency
Hot body/cold hands and feet
Break bones easily
Constipation
Constant thirst and hunger, even when I’ve just eaten
Eating carbs will ease the brain fog and shakiness,
Episodes of very low blood sugar (less than 50) and Occasional high fasting blood sugar (120)
Muscle twitches that feel like reflex jerks mostly in lower back and legs

Pregnancy always halts symptoms. Lose weight when pregnant, start to regain around 6-8 months. Only have sexual drive when fertile/few days surrounding ovulation. 8 1st tri miscarriages.

hh2.gif

mysticmomma is offline  
#13 of 24 Old 01-25-2009, 06:11 PM
 
Mirzam's Avatar
 
Join Date: Sep 2002
Location: Outside the hive mind
Posts: 7,353
Mentioned: 1 Post(s)
Tagged: 0 Thread(s)
Quoted: 28 Post(s)
I am sorry you are in such I dark place. As I said, I only wish you well. I can understand my words are not want you want to hear, but maybe one day you will find the wisdom in them. I am sure you will connect with someone who can help you, several people on this board have offered suggestions, follow them up, the universe is offering you help -- take it.

And you are so right, you can't get well if you don't believe you can. Well believe. All the symptoms you list above are healing symptoms, but they come from a myriad of different things. I am afraid, no doctor on the planet is going to come up with any one diagnosis for you. You have to do this yourself.

Namaste

Rainbow.giftstillheart.gifsmile.gif

 

"If you find from your own experience that something is a fact and it contradicts what some authority has written down, then you must abandon the authority and base your reasoning on your own findings"~ Leonardo da Vinci

Mirzam is online now  
#14 of 24 Old 01-25-2009, 06:28 PM
 
Ruthla's Avatar
 
Join Date: Jun 2004
Location: Long Island, NY
Posts: 47,599
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 3 Post(s)
Many of your symptoms do sound similar to mine, and I've been diagnosed with Fibromyalgia. I don't see how you can be "undiagnosed from FMS because it doesn't exist"- it just sounds like you need a doctor who'll beleive you! It was a rheumatologist who diagnosed me.

There are basically three approaches I'm using that are helping me to function. Number one is accepting my limitations. If I need to stop doing something halfway through, I stop. I don't let people guilt me into doing more than my body can handle. I ask for help when needed, and say "no" without guilt when necessary.

Number two is figuring out my triggers and avoiding them. Numerous chemicals can make me feel a whole lot worse- breathing in chlorine, synthetic fragrances, and assorted cleaning products set me off to various degrees. Foods affect me even more- I feel a whole lot healthier when I avoid gluten, legumes (except small amounts of fermented soy) and dairy products (except for butter.) I was doing well grain-free for a while, except for insomnia, so now I'm experimenting with adding in more carbs carefully, and I'm still trying to find my balance. Too many carbs make me sleepy, too few carbs interfere with sleep.

The third general approach is making sure I nourish my body with the things it needs. This involves taking specific supplements and including nutrient-dense foods. This is closely related to avoiding food triggers and sometimes I need to weigh the risk/benefits of a specific food: should I try cutting this out of my diet to see if it's a trigger, or should I include it for its nutritional content?

I'm also getting regular chiropractic adjustments (this helps tremendously both with pain and vertigo) and I've recently started on a VERY gentle exercise routine- about 2 minutes' worth of stretches in the morning and evening. It's helping with arm motility and lower back pain.

Ruth, single mommy to Leah, 19, Hannah, 18, and Jack, 12
Ruthla is offline  
#15 of 24 Old 01-25-2009, 07:41 PM
A&A
 
A&A's Avatar
 
Join Date: Apr 2004
Posts: 16,856
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 6 Post(s)
Have you been tested for diabetes?

"Our task is not to see the future, but to enable it."
A&A is offline  
#16 of 24 Old 01-25-2009, 08:10 PM
 
supakitty's Avatar
 
Join Date: Mar 2002
Location: The Great Southwest
Posts: 1,015
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Wait, do you believe that part of this or all of it is due to fibromyalgia? It sure sounds like it to me. Have you tried neurontin or Lyrica for the pain? What about tramadol?

-Laura
supakitty is offline  
#17 of 24 Old 01-25-2009, 08:18 PM - Thread Starter
 
mysticmomma's Avatar
 
Join Date: Feb 2005
Location: Baltimore
Posts: 6,183
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by A&A View Post
Have you been tested for diabetes?
Yes. My insulin, HBA1C, and post meal levels are all great. Ocassionally I dip into low blood sugar, and a few times I have had higher than normal but not very high fasting glucose.

Quote:
Originally Posted by supakitty View Post
Wait, do you believe that part of this or all of it is due to fibromyalgia? It sure sounds like it to me. Have you tried neurontin or Lyrica for the pain? What about tramadol?

-Laura

I was on neurontin for pain, and am uncomfortable with lyrica from what I've read. I can't take the tramadol/toradol family. It gives me extremely low blood pressure. I went to a patient first for a broken arm. They gave me a shot of toradol before xrays and ended up having to transfer me to a hospital because i bottomed out with bps.

hh2.gif

mysticmomma is offline  
#18 of 24 Old 01-25-2009, 08:21 PM
 
supakitty's Avatar
 
Join Date: Mar 2002
Location: The Great Southwest
Posts: 1,015
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Just out of curiosity and not to be nosey: What makes you uncomfortable about Lyrica? What about Cymbalta? And what did the neurontin do? These medications can have hideous side effects. I take Lyrica and it took me awhile to get used to it.
supakitty is offline  
#19 of 24 Old 01-25-2009, 08:59 PM
 
doctormom's Avatar
 
Join Date: Nov 2005
Location: Cary NC
Posts: 575
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mysticmomma View Post
I can't take the tramadol/toradol family. It gives me extremely low blood pressure.
FWIW, although they sound alike, they are in two entirely different drug classes. Both analgesics, but different mechanism of action.

I hope you find the answers you need to heal.

Cindy, part-time family doc, full-time Mommy to Jared (2/04) and Connor (2/08) :
doctormom is offline  
#20 of 24 Old 01-25-2009, 09:51 PM
 
supakitty's Avatar
 
Join Date: Mar 2002
Location: The Great Southwest
Posts: 1,015
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mysticmomma View Post
I was diagnosed with fibro when I was about 17 or 18. Then I was later undiagnosed because it didn't exist.
That's really tough. Some doctors have this attitude like "fibromyass" or something like that. It's terrible. It's so easy to judge others when you have no clue what it feels like to be them. I hope you find the answers that you're looking for. I can understand the deep frustration that you're feeling.

-Laura
supakitty is offline  
#21 of 24 Old 01-25-2009, 10:17 PM - Thread Starter
 
mysticmomma's Avatar
 
Join Date: Feb 2005
Location: Baltimore
Posts: 6,183
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by doctormom View Post
FWIW, although they sound alike, they are in two entirely different drug classes. Both analgesics, but different mechanism of action.

I hope you find the answers you need to heal.
Thank you, I did not know that. I was told it was like codeine and hydrocodone.

hh2.gif

mysticmomma is offline  
#22 of 24 Old 01-25-2009, 10:45 PM
 
CarrieMF's Avatar
 
Join Date: Mar 2004
Location: Alberta/Saskatchewan
Posts: 8,930
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Peripheral neuropathy
Shingles
Fibromyalgia
MS
RA
RLS
CFS
Lupus
Lyme disease
B12 deficiency
alot of these are interrelated & often mistaken for each other.

People who have 1 usually end up having more than 1 & from your list I suspect you have more than 1 issue going on.

I have low B12/peripherial neuropathy. It took 7months of monthly B12 shots for me to start to notice a difference. I get my shots every 2 weeks now, without them the symptoms all come back.

Numb hands & feet is CLASSIC B12 deficiency & I mean classic as in you should be on shots now. It can cause alot of the symptoms including joint pain, numb extremeties, forgetfulness, clumsiness, word retrieval, slurred speech

Quote:
Pregnancy always halts symptoms. Lose weight when pregnant, start to regain around 6-8 months. Only have sexual drive when fertile/few days surrounding ovulation. 8 1st tri miscarriages.
MS & RA tend to go away during pregnancy & return in the timeframe you mentioned.

Diabetes or at least hypoglycemia can explain the unable to lose weight,
Legs give out spontaneously while walking, Trouble concentrating or remembering what I was doing, where I was, names, Clumsy: drop things, walk into things, mis-step off curbs, carbs getting rid of brain fog, hunger, miscarriages.

If you have untreated diabetes it can also explain any B12 deficiency/PN too.
CarrieMF is offline  
#23 of 24 Old 01-25-2009, 10:47 PM
 
Ginny-mommy's Avatar
 
Join Date: Apr 2007
Posts: 128
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Check out these two websites. They may help you find some answers.

http://www.stopthethyroidmadness.com/

http://www.drlowe.com/index.htm

Best of luck to you. I know how hard it can be for doctors to dismiss you and your symptoms when you know that something is really wrong.
Ginny-mommy is offline  
#24 of 24 Old 01-28-2009, 04:34 AM
 
blessed mommy's Avatar
 
Join Date: Jun 2002
Location: U.S.A.
Posts: 184
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Another site....www.butyoudontlooksick.com EXCELLENT SITE W/MESSAGE BOARDS...but beware....members list in their sig line,what they have,or suspect they have. There are some amazing people there,witha ton of info.

How old are you-just answer yourself.....

Because,while I also agree that many of those symptoms overlap with those above illnesses...I would urge you to look into your Endocrine system.
Human-Binding Globulin
Estrogen
Progesterone
Total testosterone AND Free Testosterone
Aldosterone
I don't have a lot of faith in Adrenal testing
Thyroid-basically what the site above mentioned,is going to have you check your TSH,BUT ALSO Free T4 AND Free T3 and ANti-Bodies.Also, a low Free T4 can indicate low B6.

It is best to test the Estradiol(best Estrogen test) 2xday-in AM and in late afternoon.

Call a compounding pharmacist near you, and ask for a doc rec for someone to order up these labs-and emphasis,that you only want a doc with EXCELLENT bedside manner! If that CP can't help,try another and another. ONLY TEST BLOOD.

I have lived your hell for the last 24 years. (((((HUGS)))))

That heal thyself crap from trauma gets this girls panties twisted.....oh,boy!!

Go,quick! to that site! You will feel *normal* for the first time in your adult life!!! www.butyoudontlooksick.com
blessed mommy is offline  
Reply

Quick Reply
Message:
Drag and Drop File Upload
Drag files here to attach!
Upload Progress: 0
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off