Join Date: Jul 2007
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I'm going to go out on a limb here... the reflux could be a food intolerance, and it's possible that the food intolerance is causing inflammation which is causing the neuropathy. I didn't know that food intolerances can cause the range of symptoms that it does. I had back spasms for years, and when I went off dairy, gluten, soy, and corn (the top 4 intolerances), I stopped having the 10-12 bouts of muscle spasms I was having a day. I had been on Lyrica and anti-depressants because of all the pain. Is she eating anything new? Has she had any falls or anything? Did she have "colic" as a baby? Eczema? Poor sleep? Anything like that? Does it get better or worse or is it constant?
Sorry to hear about your dd's neuropathy--I just went through a similar thing, which ended up not being neuropathy but spinal cord related. What I learned the hard way is the importance of being your own detective and bringing up issues with the doctor (like extra tests for example) and getting a second opinion.
Did they run blood tests to rule out conditions that could have caused it? I had the following:
c reactive protein
fasting blood sugar
heavy metal screen (urine)
Sounds like they are saying she has small fiber neuropathy, which can only be diagnosed definitively by a skin punch biopsy. Unfortunately even if it is conclusively diagnosed, there is no really treatment, but symptom management unless there is an underlying cause. That's why the blood tests are so important.
Conditions that neurologists typically will not focus on but should be ruled out are also Celiac's/gluten sensitivity and Lyme.
Here are some neuropathy links that are good:
Laboratory Diagnosis of Peripheral Neuropathy
Gluten Sensitivity as a Neurological Illness:
requires registration, but well worth it!
The Gluten File: (Includes some info on gluten and neurological disease)
here's the neuropathy subpage from the glutenfile site:
Let me know if I can be of any other help. There is also a really great peripheral neuropathy forum online, I will PM you the link. Many of the people there have been dealing with PN for years and can direct you to a wealth of research online to discuss with your doctor.
I hope she is taking supportive supplements to promote nerve healing. At the most basic level these would include a b complex but there are many others that can help...you just have to do a little research (I can't think of the others off the top of my head right now since I gave up the peripheral neuropathy chase a while ago!)