RAI or Surgery to remove thyroid? - Mothering Forums

 
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#1 of 3 Old 10-09-2009, 08:49 PM - Thread Starter
 
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I have Grave's, diagnosed 2 years ago. Been on methimazole for nearly 2 years, and we've tried several times to go off to see if it's in remission. No luck.

My endo is recommending surgery to remove the thyroid, but I really don't have a good feeling about it.

I'm considering Radio Active Iodine treatment to burn the thyroid out.

I am so sick of being weak and taking meds every six hours for my thyroid. I can't work or have a life because I have lost too much muscle tone thanks to the grave's and because any stress causes it to worsen.

WWYD?

Me, 30 single mama to T age 8 We and Love it!
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#2 of 3 Old 10-09-2009, 09:46 PM
 
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If it were me I'd try LDN Low Dose Naltrexone.
You can read more about it here:
http://www.lowdosenaltrexone.org/
http://www.elaine-moore.com/
http://ahsta.com/
fp
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#3 of 3 Old 10-09-2009, 11:06 PM
 
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My mom had Graves, and at the time I hadn't had thyroid problems yet, so I didn't have any ideas and she went with the approach her doc recommended (RAI). The hyper symptoms weren't tolerable (meds didn't work for her) but she's never felt right since the RAI, Synthroid isn't cutting it for her either, so no perfect answer for her.

If it happened now, I'd suggest she look into different things...

-ithyroid.com is a site put together by someone who used to be hyperthyroid, and looked into vit/min supps that turned his hyper into hypo, and then into normal thyroid function (I was hypo and the list of hypo supps made my symptoms go away)

- gluten-free (and maybe dairy-free at the same time), a lot of people with thyroid issues have issues with gluten as well, and while I'd doubt this could make the problem go away entirely, it could lighten a load on your body (GFCF was big for me, some others on the Thyroid Thread as well)

- consider _why_ you're hyperthyroid. I assumed thyroid problems were inevitable for people in my family (lots of hypos, one Graves). Turns out people in my family have detoxification problems, and the mercury in our amalgam fillings is no good for us (strikingly different than DH's family, for example--this isn't everyone). Yahoo groups like frequent-dose-chelation or autism-mercury have Files sections that may help. I found interesting stuff on iaomt.org, an anti-amalgam dental organization, they've got studies, I fond a bit too much stuff that was either my personal health history or my family.
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