He is now a little over 10lbs and recently lost 7oz but has gained back 5 1/2. He is puky and coughs and chokes. Seriously chokes to the point that he turns blue.
He has been to the ped. multiple times, been to the ER multiple times, been to the chiropractor and a naturopath. They have diagnosed with RSV and he was treated (no change), acid reflux and treated (no major change though a little less puky, still choking though). He is breast fed and sucks tons of air when he nurses. He is not tongue tied and has no other health issues. None of his older 6 siblings has any problems even resembling this. The dog has been removed from the home, she has changed her diet several times to accommodate "allergies".
I am thinking minor cleft palate, but obviously the DR's have not noticed anything... Anyone have any suggestions?!?! Any help or advice is super appreciated! TIA.
I have no suggestions other than maybe checking over in the Special Needs Parenting Forum. I know a lot of the children over there have dealt with all kinds of issues with feeding and such and are quite knowledgeable.
Elizabeth - Doing life with Scott
SAHM to Evelyn - my crazy little Celiac (4) Annabelle (2) and Abraham (born 6/20)
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And slightly OT, the sole factor of a cord around the neck 2x will not kill a child during a vaginal birth. My daughter and many other children are evidence of that. There were certainly other issues that resulted in the c/s - just a pet peeve that women are told things like this about cord around the neck when it happens in 30% of births, many of those multiple loops around the neck. In fact, someone I personally know had a breech baby vaginally with the cord around the neck SIX times.
Fledgling midwife on hiatus, Wife to B, mama to C (c/s 12/04) and S (12/07), m/c (3/12) and expecting another bean 6/13 .
I'm assuming she's cut out dairy? Does she take probiotics?
I was just reading about activated charcoal as a natural remedy for reflux and digestion issues for babies. Don't know much about it, but it looked like an interesting lead.
Mama to two sweet boys, a 7yo and a toddler .
The intuitive mind is a sacred gift and the rational mind is a faithful servant. We have created a society that honors the servant and has forgotten the gift. - Albert Einstein
I would take him to a pediatric pulmonologist. RSV can cause permanent damage and if he isn't recovering from that then it could be rather serious.
I would also take him to an IBCLC, he shouldn't be getting a lot of air when he nurses.
This caused a constant congested sound in my own DS -worse when he was nursing, or crying or sleeping even. He turned blue on me more than once just from choking on his saliva. Laryngomalacia & GERD go together very often too.
Our son's was confirmed with a scope, and his was not bad enough to need any kind of intervention. Today at 23 months he has almost outgrown it as most do.
Something to pass by her HCP for sure, as mine told me many dr's miss it and misdiagnose it for something else.
I would also second an evaluation by some kind of specialists at a Children's Hospital. Sounds like it is out of the pediatricians league at this point.
I will pass on all this info and if anyone else has any ideas she is open to almost anything right now!! Thanks so much.