Wow, how scary. My son (age 5) had lyme last summer so I started learning more about it then, and my dad's had it twice. It's different for every person depending on how long they've had it, but I think it's always treatable. This is one of those diseases where even if you don't like to take prescriptions, you need to follow the doctor's instructions and take the antibiotic and whatever else they recommend. I met one woman who's 12 yr old daughter had it for years and it was causing her to be bipolar and have significant incapacitating pain. She actually took a year of antibiotics, and it worked! You will be ok. Just take it one day at a time, take notes on everything the doctor says. The sooner treatment starts the better. If you've had it a while, it may take a while to see improvement but you will be ok. I don't know anything about it in infants, but there must be pediatricians out there who do. Hopefully others who've seen it in their kids will post. In the mean time, give yourself permission to relax and not stress about it every moment of the day. Take a warm bath, eat chocolate, whatever you can do to take care of yourself in other ways. My heart goes out to you!