I can't stand the pain anymore - Mothering Forums

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Old 06-15-2010, 03:53 AM - Thread Starter
 
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I've been scarce around MDC for awhile now. Below pretty much explains my absense.

I'm still BFing ds but we've weaning back to only one feeding per day (when he wakes up at night). My prodominant reason for weaning is so I have more medication options. I've NEVER been one to want to take meds but this has been 5 years of worsening health, supplements not doing the trick and the past 1.5 years of straight misery. I've been taking Ibprofen in times when I just can't tolerate the pain anymore but, it's not working anymore. I do the supplements, the magnesium baths, the glucosimine, calcium, vit D (LOTS of vit D), pre natals, the primrose, and it's taken a turn for the worse again despite all of that.

While DS is still nursing I understand there isn't much I can do but, soon he may stop needing his night time feeding. He hasn't so much as asked during the day for a couple weeks now.

I can't take this much longer. It hurts. It hurts like hell, every day. Every damn day. My knees, my back, my neck, my ankles, my hips, and that deep ache in the core of my leg bones... every... single.... day. My back spasms when I try to go to sleep at night. The migraines are back lately too (light, sound, and movement sensative). Sometime my jaw, my hands, or my feet are in pain.

With all of this medical stress and failing body and mind I've still managed to keep the house in order, take care of my kids and my animals, and keep a pretty darn decent mood. I hadn't cried for over a year even with all the bad news from doctors, worsening symptoms, frightening symptoms, and sometimes unbearable pain. But, this past Sunday, my husband was sleeping in after a long work week and I was upstairs tending the house while the kids played... and I just couldn't take it anymore. I asked the kids to be good, that I needed to go downstairs for a few minutes. They went about playing together in one of their rooms and I went downstairs, climbed into bed in the darkened bedroom with my husband, and cried. He did his best to comfort me as long as I needed. 10 minutes later, I wiped away the tears, picked myself up, and went back to my life.... in pain. Still in control.... but in pain.

What can I do? What can I take once ds is done that will help but won't cause more problems. The only thing besides OTC pain killers I've taken in the past was the codine I was given after surgery. I got sick nearly instantly after just one, threw up, then felt sick for the next 3 hours. Never took another one again. Dont' want a repeat nor do I want to take something that will do more harm than good or interfear with being a SAHM. I think I've just run out of options. I don't know where to go from here.

Any suggestions, advice, relating?

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-15-2010, 04:13 AM
 
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I have no idea if this is of interest to you, but do you have access to medical marijuana? My aunt has post-polio syndrome and it has helped with a lot of her pain without the side effects of some of the painkillers she has had to take in the past.

Emily, cooking allergen free, knitting, reading, gardening Mom to 1 beautiful girl, born in the water on July 1, 2006 Wife to 1 handsome man since September 10, 2005
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Old 06-15-2010, 05:05 AM
 
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Um, forgive me if I've missed previous posts but what specifically are you suffering from? Is it unexplained chronic pain, were you in an accident, etc?

You've probably researched everything but just in case, I'll pass this along:

http://coolinginflammation.blogspot....ache-diet.html
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Old 06-15-2010, 05:14 AM
 
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I am in constant pain too...constant headache for over 4 years now. I have heard great things about the Paleo Diet and it's ability to reduce/eliminate pain. It has done wonders for my brother and my SIL and I am about to dive into it as well.

: Robyn : Increasingly crunchy Mama to Kya (8) , Makena (7) , and Keegan (4) :
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Old 06-15-2010, 01:37 PM - Thread Starter
 
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I have no idea if this is of interest to you, but do you have access to medical marijuana? My aunt has post-polio syndrome and it has helped with a lot of her pain without the side effects of some of the painkillers she has had to take in the past.
I'm very opposed to it and wouldn't use it no matter how bad the pain. People can rationalize it how ever they like to try to convince me but, it's just one of those things I'm against, yk. Heck, I've never even had a single sip of alcohol because I've deemed it "bad". Besides that, getting high while taking care of my kids wouldn't exactly be the most responsible thing in the world.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-15-2010, 01:42 PM - Thread Starter
 
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Um, forgive me if I've missed previous posts but what specifically are you suffering from? Is it unexplained chronic pain, were you in an accident, etc?

You've probably researched everything but just in case, I'll pass this along:

http://coolinginflammation.blogspot....ache-diet.html
so far chronic lyme seems to be the major culprit but, I'm still in the diagnostic process. I've also been diagnosed with fibro (though I think thats just the lyme), epilepsy, interstitial cyctisis (not too bad right now), essential vulvodynia (also not too bad right now), spinal stenosis, I have low vit D levels despite supplementing, and a few others things have been suspected by docs (like MS and huntington's with a fam history) but still undiagnosed. I think the lyme may be the root of all the evil that is going on in my body.

sorry for not stating that. Would have made sense for me to do so.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-15-2010, 01:43 PM - Thread Starter
 
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I am in constant pain too...constant headache for over 4 years now. I have heard great things about the Paleo Diet and it's ability to reduce/eliminate pain. It has done wonders for my brother and my SIL and I am about to dive into it as well.
I'm not familiar with that so I will have to look into it. Thank you

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 03:13 AM
 
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I would highly recommend the Paleo diet for you as well. I'm such a cheerleader for it lately so I was hesitant to mention it.

Please look through the website I posted above, http://coolinginflammation.blogspot.com/, and check out http://www.marksdailyapple.com/ too.
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Old 06-16-2010, 03:19 AM
 
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Are you having trouble getting treated for Lyme? Take a look at this blog. It's written by a woman in Canada who went through hell trying to get her young daughter treated for Neurological Lyme. She ended up getting help from a doctor in Seattle and things are on the mend. Maybe there will be something there that will lead you in the right direction.

http://cleargrace.blogspot.com/
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Old 06-16-2010, 06:21 AM
 
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I'm not familiar with that so I will have to look into it. Thank you
There is a paleo thread in Traditional Foods...I actually believe there is someone on there who suffered from Lyme and currently has gotten rid of the symptoms with the diet. On many paleo web sites it lists fibro as a disease it can "cure" as well. I also have interstitial cystitis and it's something in addition to the headache that I'm hoping will get better.

My SIL reversed her polycystic ovarian syndrome with the diet, started getting regular periods and is now unexpectedly pregnant after years of infertility. (They used IUI to get pregnant with my 2 nephews) And my brother reversed his high cholesterol and high blood pressure.

Unlike you, if MJ got rid of my headache and I could get it legally I would be SO THERE. LOL :P

: Robyn : Increasingly crunchy Mama to Kya (8) , Makena (7) , and Keegan (4) :
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Old 06-16-2010, 11:36 AM
 
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so far chronic lyme seems to be the major culprit but, I'm still in the diagnostic process. I've also been diagnosed with fibro (though I think thats just the lyme), epilepsy, interstitial cyctisis (not too bad right now), essential vulvodynia (also not too bad right now), spinal stenosis, I have low vit D levels despite supplementing, and a few others things have been suspected by docs (like MS and huntington's with a fam history) but still undiagnosed. I think the lyme may be the root of all the evil that is going on in my body.

sorry for not stating that. Would have made sense for me to do so.

I was going to ask if you had been tested for Lyme. I was also going to ask if you had ever been tested for food sensitivities. You could have those in addition to, or even due to, the Lyme. One of my more common food reactions is inflammation in my joints and back. When I stopped eating my food offenders, it went away. I've also re-tried some of the offending foods and they still cause this kind of inflammation.

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Old 06-16-2010, 01:19 PM
 
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lyme, food sensitivities and endocrine issues go hand in hand.

we have had the most luck with diet changes, homeopathy and flower essences. Supplements help, but they don't touch the pain. That's what flowers and homeopathy do well.

We follow more of a primal diet-paleo is too low fat for the amount of toxins we are addressing. But, getting grains and sugar out are the biggest things. For everyone I've ever worked with who has lyme.

I'm sorry you are still so uncomfortable.
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Old 06-16-2010, 01:33 PM
 
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I agree that you should move into an all natural, organic, chemical free, GFCFSF diet. IMO fibro and other chronic pain is caused by toxins. Sometimes the toxins are from vaccines, environment, packaged foods and foods you are intolerant to. I do not understand the resistance to cannabis. It is a plant. Think of it like any other supplement. It is not a man made creation like alcohol. It is an herb. It is very successful in treating fibro, chronic pain and migraines. You do not have to smoke it. You can use cannabis butter to make foods like brownies and cookies. You can also use a smokeless thing called a vaporizer that has no smoke output at all. There is no smoke associated with it, no second hand smoke. You will be able to care for your home and children without a problem. If you are nervous, the first time, have another caregiver there. If you use natural supplements, cannabis is the next thing to try, along with changing your diet to exclude msg, food colorings, preservatives, anything with HFCS or any other form of GMO product, as well as dairy, gluten and soy. Corn may be a trigger also. Look into healing your fibro yourself through food. It works.

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Old 06-16-2010, 02:33 PM - Thread Starter
 
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Originally Posted by californiajenn View Post
I would highly recommend the Paleo diet for you as well. I'm such a cheerleader for it lately so I was hesitant to mention it.

Please look through the website I posted above, http://coolinginflammation.blogspot.com/, and check out http://www.marksdailyapple.com/ too.
Thank you for the links. Always better to go directly to the sites that those who are familiar prefer.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 02:40 PM - Thread Starter
 
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Are you having trouble getting treated for Lyme? Take a look at this blog. It's written by a woman in Canada who went through hell trying to get her young daughter treated for Neurological Lyme. She ended up getting help from a doctor in Seattle and things are on the mend. Maybe there will be something there that will lead you in the right direction.

http://cleargrace.blogspot.com/
Well.... yes. BUT, I had an appointment with someone who works for one of the leading LLMD's in Seattle (probably the same doc mentioned in the blog you linked) and he said that my best bet would be to research and try out natural remedies (which I'm doing). He said that at this point there is nothing they could do for me there besides reconfirm the lyme and do that research for me and write perscriptions. That doc is booked out over 9 months in advance and charges $600+ per visit. The guy there that I spoke to said seeing that doctor is more for people who are so sick they can't do the research themselves or have other medical ailments that make certain natural treatments risky or dangerous.... or for people who just have a heck of a lot of money and want a professional deciding their treatment plans.

So far I haven't seen improvement in smptoms from anything other than time and climate change. Winter was BAD and now with summer approaching it seems to be getting worse again. Cognitive and neuro problems are resurfacing with a bang again also.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 02:45 PM - Thread Starter
 
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There is a paleo thread in Traditional Foods...I actually believe there is someone on there who suffered from Lyme and currently has gotten rid of the symptoms with the diet. On many paleo web sites it lists fibro as a disease it can "cure" as well. I also have interstitial cystitis and it's something in addition to the headache that I'm hoping will get better.

My SIL reversed her polycystic ovarian syndrome with the diet, started getting regular periods and is now unexpectedly pregnant after years of infertility. (They used IUI to get pregnant with my 2 nephews) And my brother reversed his high cholesterol and high blood pressure.

Unlike you, if MJ got rid of my headache and I could get it legally I would be SO THERE. LOL :P
My IC isn't bad right now. No telling if it will be again at some point but, right now, it's ok as is the vulvodynia. I did have a problem with chronic cysts in the past. I've suspected a few over the last couple years but, directly after going off BC I had them almost monthly for 2 years straight. That resulted in 2 years of infertility. Can't get pregnant if your egg is locked up in a cyst! I had one that was ultrasounded at the size of a large grapefruit. That bugger hurt. I always thought my cysts were from taking BC. I had a well regulated cycle prior to that and it altered that cycle. Funny that the very month I go off BC I start getting cysts. Hmmmmm. Anyway, it seems that diet is highly recomended and something I should really dig around in to see if it's a fit with everything I have going on.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 02:48 PM
 
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I would definitely pursue the lyme aggressively if you think that is the issue.

How much vitamin D3 and what were your levels before, after supplementing (how much/how long)? I assume you've looked at thyroid? Is your calcium level normal?

I think I've mentioned this before but I definitely think you need to look at metabolics. Two ways to do that (both are ideal if you can): run a metametrix comprehensive urine profile (I'd do this if I could only do one thing as it will look at lots of areas that might be issues), test your coq10 and carnitine levels.

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Old 06-16-2010, 02:49 PM - Thread Starter
 
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I was going to ask if you had been tested for Lyme. I was also going to ask if you had ever been tested for food sensitivities. You could have those in addition to, or even due to, the Lyme. One of my more common food reactions is inflammation in my joints and back. When I stopped eating my food offenders, it went away. I've also re-tried some of the offending foods and they still cause this kind of inflammation.
I had what appeared (to me, an allergist, and an ER doc) as an anaphylactic reaction back in Dec. I ended up having about 3 more reactions in the 2 or 3 months following. That led me to an allergist who did skin testing for a zillion things. Environmental stuff, foods, animals, etc. NOTHING reacted. I also have what appears to be pretty bad seasonal allergies but again, reacted to nothing. I did a blood test for celiacs and dairy allergy and both were negative. I know I'm sensative to soy. I've had problems with it in the past and do my best to avoid it. I did not react to soy on the skin test however. I also noticed a few years ago that artificial sweeteners increase my pain levels in my skin tissue (if not cause it). I kicked it out completely but, that makes getting rid of actual sugar even more difficult unfortunately.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 02:53 PM
 
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I know exactly how you feel and it's beyond hell to live everyday like this. I had interstitial cystitis through TCC, pg and first several years of DS's life. I hope you can find some answers soon!

PB,
You mean everyone you've ever worked with with chronic pain has Lyme? That's very interesting.
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Old 06-16-2010, 02:56 PM - Thread Starter
 
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lyme, food sensitivities and endocrine issues go hand in hand.

we have had the most luck with diet changes, homeopathy and flower essences. Supplements help, but they don't touch the pain. That's what flowers and homeopathy do well.

We follow more of a primal diet-paleo is too low fat for the amount of toxins we are addressing. But, getting grains and sugar out are the biggest things. For everyone I've ever worked with who has lyme.

I'm sorry you are still so uncomfortable.
Good to know about the issues with the paleo from a lymie. One of my next steps was going to be looking into flowers but theres a lot on my list, yk. So many things being throw my way and I can't do them all at once. Hard to know what to go after next. Right now, the pain is my main struggling point with the nocturnal hallucinations and waking from sleep in panic coming in a close second.

Sugar is a HARD one for me to kick. I can't do artificial sweeteners because they make skin tissue pain awful (and are just plain bad for you). I recently tried replacing some of my sugar with other kinds of natural sweeteners but I'm thinking they may have close to the same properties and cause the same problems as sugar. Clearly it hasn't made a difference either way. I'm a sweet tooth... in a serious way. It's tough to kick that when I've already limited my diet so much. It's still a work in progress. The only thing aside from the artificial sweeteners that I KNOW I'm sensative to is soy. When I first went vegetarian I replaced all of my main courses with soy products and as a result, I had daily digestion issues (I think you can imagine what they were) for an entire year before I put 2 and 2 together. I quit the soy and that issue nearly stopped all together within a week or two.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 02:58 PM
 
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I had what appeared (to me, an allergist, and an ER doc) as an anaphylactic reaction back in Dec. I ended up having about 3 more reactions in the 2 or 3 months following. That led me to an allergist who did skin testing for a zillion things. Environmental stuff, foods, animals, etc. NOTHING reacted. I also have what appears to be pretty bad seasonal allergies but again, reacted to nothing. I did a blood test for celiacs and dairy allergy and both were negative. I know I'm sensative to soy. I've had problems with it in the past and do my best to avoid it. I did not react to soy on the skin test however. I also noticed a few years ago that artificial sweeteners increase my pain levels in my skin tissue (if not cause it). I kicked it out completely but, that makes getting rid of actual sugar even more difficult unfortunately.
We xposted so I didn't see this before.

Skin testing for IgE allergies doesn't reveal food intolerances. The blood test for celiac for example doesn't reveal non celiac gluten intolerance which has been shown to cause FM and RA symptoms. The ALCAT or IgG testing might be more helpful. Or www.enterolab.com. Or do elimination-provocation testing yourself.

You can also have anaphylactic type responses to food chemicals. Food chemical intolerance does not involve the immune system at all but how the chemicals are broken down or detoxed by the body (or not). For example, salicylates for me were a big trigger of my IC before gut healing and intensive supplements.
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Old 06-16-2010, 03:03 PM - Thread Starter
 
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I agree that you should move into an all natural, organic, chemical free, GFCFSF diet. IMO fibro and other chronic pain is caused by toxins. Sometimes the toxins are from vaccines, environment, packaged foods and foods you are intolerant to. I do not understand the resistance to cannabis. It is a plant. Think of it like any other supplement. It is not a man made creation like alcohol. It is an herb. It is very successful in treating fibro, chronic pain and migraines. You do not have to smoke it. You can use cannabis butter to make foods like brownies and cookies. You can also use a smokeless thing called a vaporizer that has no smoke output at all. There is no smoke associated with it, no second hand smoke. You will be able to care for your home and children without a problem. If you are nervous, the first time, have another caregiver there. If you use natural supplements, cannabis is the next thing to try, along with changing your diet to exclude msg, food colorings, preservatives, anything with HFCS or any other form of GMO product, as well as dairy, gluten and soy. Corn may be a trigger also. Look into healing your fibro yourself through food. It works.
I know it must sound stupid to someone who doesn't have an issue with it. I know it's uniquely different that other substances used as drugs but, I just won't do it. It's one of those things I promised myself I'd never touch (along with alcohol and tabacco) and I'd never feel ok with myself if I did it. I know most people don't understand that but, it's part of my core beliefs. If others are ok with it, thats their deal and their business. It's just not for me.

I've been working on cleaning up my diet for a couple years now. Just when I think I've fixed it, I find another item I should be giving up and have to go back through everything again. It's a long, complicated, process as I'm sure anyone who has done it will know.

Also, OT but I think we must live close to one another. Living in eastern WA usually means you're somewhere near Spokane.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 03:05 PM
 
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Another post

The nighttime "waking in a panic" could be adrenaline surge from low blood sugar. If you go hypoglycemic, your adrenals kick your liver to produce glucose to bring it back up (and keep your brain from going into coma). The adrenaline that gets released causes anxiety and insomnia. I've been reading a lot about this lately. Hypoglycemia is caused by a high carb diet ... and a high fat, high protein, no grains/sugar primal eating would end it.

I'd be very interested to know what your fasting blood glucose level was and would wager it was low.
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Old 06-16-2010, 03:10 PM - Thread Starter
 
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I would definitely pursue the lyme aggressively if you think that is the issue.

How much vitamin D3 and what were your levels before, after supplementing (how much/how long)? I assume you've looked at thyroid? Is your calcium level normal?

I think I've mentioned this before but I definitely think you need to look at metabolics. Two ways to do that (both are ideal if you can): run a metametrix comprehensive urine profile (I'd do this if I could only do one thing as it will look at lots of areas that might be issues), test your coq10 and carnitine levels.
My levels when I first asked to have them checked when around 30. I supped about 1800IU per day (my doc only suggested 400IU *rolls eyes*). I took between 1600-2200 a day for several months. In addition to that I had been tanning as well. I know, I know, bad but, it was one thing that made me feel better for a few minutes. When I had my levels rechecked I'd dropped down to the teens. I'm now taking about 3000IU per day and do a higher dose about once a week. Thyroids have always tested within normal. Unfortunately I can't have much (if any) testing done right now. I lost me insurance and can't get or qualify for any now. Not private or state coverage. I'm on a program like a membership that allows me to go to one clinic and have whatever tests they can do in house, for a flat monthly fee but, even vit D is something they have to send out. It cost about $75. I can certainly check prices for coq10 and carnitine but, I imagine it will be too expensive.

I wish I'd had doctors that were on the ball back when I had great insurance and could have had any test in the world done for free.

The lyme is definatly an issue. My symptoms run far deeper than just joint pain. I've been through some scary things the last 5 years.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 03:14 PM
 
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I have personally never enjoyed accupuncture, but it is supposed to be good for pain.

It might be worth a try. Unfortunately, it is expensive. Around $100 a treatment.

But if you ask, maybe they can show you some accupressure points to work with on your own that may bring relief.

V

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Old 06-16-2010, 03:15 PM - Thread Starter
 
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I know exactly how you feel and it's beyond hell to live everyday like this. I had interstitial cystitis through TCC, pg and first several years of DS's life. I hope you can find some answers soon!

PB,
You mean everyone you've ever worked with with chronic pain has Lyme? That's very interesting.
My IC was REALLY bad in the past but hasn't bothered me much. It actually took a 2 or 3 year hiatus between dd and ds! It's the least of my discomfort right now. That IC can definatly stop you in yor tracks though. I remember not being able to even stand up straight or wear anything but pants with very loose waist bands. The being affraid to pee because it hurt so bad. My bladder was so damaged from it by the time I had dd that my cath bag during labor was silled with more blood than it was urine from the cath ripping my sensative urethra and bladder tissue up. Not fun! I hope you find some permenate relief from that!

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 03:20 PM - Thread Starter
 
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We xposted so I didn't see this before.

Skin testing for IgE allergies doesn't reveal food intolerances. The blood test for celiac for example doesn't reveal non celiac gluten intolerance which has been shown to cause FM and RA symptoms. The ALCAT or IgG testing might be more helpful. Or www.enterolab.com. Or do elimination-provocation testing yourself.

You can also have anaphylactic type responses to food chemicals. Food chemical intolerance does not involve the immune system at all but how the chemicals are broken down or detoxed by the body (or not). For example, salicylates for me were a big trigger of my IC before gut healing and intensive supplements.
My reactions were from something that takes a bit of time to break down because I didn't start seeing symptoms until about 2 hours after eating something with the offensive ingredient in it. I think I actually narrowed it down to the food (packaged) that caused it. Unfortunately we did skin testing for everything on the ingredient list and came up with nothing. So it's probably one of the spices or chemicals they lump in with other things on the list or don't put on the list at all. Needless to say, I avoid that item with certainty.... which is too bad, because it was pretty darn tastey.

As for other diet stuff. I'd have to experiment with elimination (or reverse elimination) because I don't have medical insurance (and can't get any) and only have access to very basic testing at a clinic where I pay a monthly flat fee.

~TRACY, wife to loving dh, mommy to dd (10/05), ds(12/08), 3 kitties, & 2 pups.
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Old 06-16-2010, 03:20 PM
 
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If you are low in D plus autoimmune or potential viral issues, you should be on 10,000 IU per day until your blood tests in the high normal. I had to do this for many months in a row to get my blood levels up. This is the average one would make in the (right amount, time of year) sun per day. That is probably why tanning made you feel better b/c you were getting more IU's per day. Levels do drop quickly.

www.vitamindcouncil.org

Or 'Naked at Noon' everyday in spring/summer at your latitude, until skin turns pink (before burning). Then at least 4000-5000 IU per day, or even more depending on how much you weigh, to keep it up through fall/winter.
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Old 06-16-2010, 03:29 PM
 
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My IC is totally gone unless I slack on supplements and eat a really spicy meal. Every once in a while my bladder twitches if I overdo a day of really high salicylate foods: a lot of tea, spices/pepper, tomato sauce and berries all at once for example.

I would put food chemicals on your list to test with the FAILSAFE diet, potential symptoms here:
http://www.plantpoisonsandrottenstuff.com/
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Old 06-16-2010, 03:30 PM
 
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PB,
You mean everyone you've ever worked with with chronic pain has Lyme? That's very interesting.
Sorry, I'm not sure if that was something I wrote or that it was something lost in interpretation. I cannot say that everyone with chronic pain has lyme, but everyone who has lyme feels better grain and sugar free. We have my husband in a very good place and any bit of sugar or grain will have him flair. If he goes off the remedies he's in misery-a 9 on a scale of 1-10 for pain. On the remedies he is great-at this point I'd say legitimately a 2 or a 3. However if he eats grains and sugar he'll flair to a 6 or 7.

It's fairly well understood by LLMD's at this point that borrelia lurves the gluten and the sugar. I have certainly seen that bear out in practice. I have had a few people that have been able to overcome the errors in diet with remedies so that they are feeling significantly better despite eating those things. Bums me out because I really believe they'd feel totally better if they changed that last thing! I'd never recommend that anyone with lyme eat either. That's why the primal type of diet works so very well. I also like that Mark recommends exercise which, while painful, is essential.

I also agree with the nighttime waking and adrenaline surge-something to check out for sure and something that the dietary changes can also help quite a bit with.
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