Interstitial Cystitis? - Page 2 - Mothering Forums

Forum Jump: 
 
Thread Tools
Old 07-19-2010, 06:49 PM
 
ikesmom's Avatar
 
Join Date: Oct 2005
Posts: 1,168
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
For me IC symptoms are the same as UTI symptoms..burning, painful bladder when I go pee, urgency without much urine, ect. I went into remission years ago when I became pregnant.

I will say that after dealing with IC for a few years that I kinda panic when I feel any bladder discomfort. I go straight to the abx when I suspect infection because they are hard to get rid of for me/ reoccur once they start.

My period and pms have made it kinda confusing for me since I feel bloated and need to urinate a lot more now. So I try to drink lots of fluids and watch my urine color as a precaution. If I start to feel twinges/pain then I try to eat and drink gently..not too much acid, caffeine, or spicy food.

I did all the dx test and was given Ditrophan which helped, but not 100%. So far I am the only one in the family to go through all of this. My mom, aunts, cousins have all complained about urgency as they get older. Some of them have had prolapse bladder correction. They say it helps for at first , but then the urgency returns again after a few months.

The one thing that I have noticed is red wine is a no-no for me. I actually had to mix a spoon of baking soda in a glass of water the last two times I had red wine. Riesling for me.
ikesmom is offline  
Sponsored Links
Advertisement
 
Old 07-21-2010, 11:07 PM
 
HappyLoveMama's Avatar
 
Join Date: Sep 2008
Posts: 122
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by ikesmom View Post
For me IC symptoms are the same as UTI symptoms..burning, painful bladder when I go pee, urgency without much urine, ect. I went into remission years ago when I became pregnant.

I will say that after dealing with IC for a few years that I kinda panic when I feel any bladder discomfort. I go straight to the abx when I suspect infection because they are hard to get rid of for me/ reoccur once they start.

My period and pms have made it kinda confusing for me since I feel bloated and need to urinate a lot more now. So I try to drink lots of fluids and watch my urine color as a precaution. If I start to feel twinges/pain then I try to eat and drink gently..not too much acid, caffeine, or spicy food.

I did all the dx test and was given Ditrophan which helped, but not 100%. So far I am the only one in the family to go through all of this. My mom, aunts, cousins have all complained about urgency as they get older. Some of them have had prolapse bladder correction. They say it helps for at first , but then the urgency returns again after a few months.

The one thing that I have noticed is red wine is a no-no for me. I actually had to mix a spoon of baking soda in a glass of water the last two times I had red wine. Riesling for me.
Yes! When I became pregnant with my son, I felt awesome. I never had any IC symptoms and this was the time I was most concerned about. I thought that was so odd. I had a living being pressing on my bladder but no IC? It only now has started to come back in twinges (DS is 3 now). I think not drinking enough water can affect me as well!
HappyLoveMama is offline  
Old 09-17-2010, 11:23 AM
 
JaneS's Avatar
 
Join Date: Jan 2003
Posts: 9,053
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Ok, this is making more and more sense about the constellation of symptoms that could have the thyroid as the cause... Jess, I just sent you a PM right before I came here to post!

Let me back up:
I'm finding that there is a correlation with hypothyroidism and IC.

Apparently thyroid hormone malfunction can cause the bladder lining to "constantly be denuded" due to protein and other cell synthesis being impaired.

This was mentioned in the best book I've read so far in a several month long quest to determine what is going on with my and DS's thyroid:

"Hypothyroidism: Type 2" by Mark Starr, MD:
http://www.21centurymed.com/?page_id=12

I think the reason why this connection is not being discussed is that you CAN have normal thyroid blood tests yet still have a problem with utilization of the hormone within the body's cells. I've had normal blood tests for 15 years, yet tons of symptoms, so doctors have always said it's not my thyroid, it's not my thyroid.... Well, I'm gradually finding it is!

Quote:
With Type 2 Hypothyroidism, the thyroid gland produces “normal” amounts of hormone, but the cells are unable to utilize the hormone properly. Some experts call this thyroid hormone resistance (which may be regarded as similar to insulin resistance).

Laboratory tests showing inadequate bloodstream levels of thyroid hormone make it easy to diagnose Type 1 hypothyroidism. However, lab tests fail to detect Type 2 hypothyroidism, because despite adequate bloodstream hormone levels, the cells are unable to accept and utilize that hormone (for a variety of reasons...
This would make sense too that selenium helped me as it enables conversion of the storage thyroid hormone, T4, to the active form, T3... a selenium deficiency can cause hypoT because of this. But selenium still hasn't relieved a boatload of other hypoT symptoms I have:

http://www.stopthethyroidmadness.com/long-and-pathetic/
http://thyroid.about.com/cs/basics_s...ochecklist.htm

More comprehensive symptoms are discussed in Starr's book I haven't seen elsewhere such as having a baby over 9lbs and overdue gestation, and mucin accumulation by pinching upper arm:
http://www.detoxpuzzle.com/thyroid.php

Normal skin on upper arm is thin like the first picture of the man, if you have thickened skin, it means mucin, a thick gel like substance, has started accumulating and is ONLY indicative of hypothyroidism when it starts overproducing in certain areas of the body. The upper thigh is another area, the face and eye region and hands and ankles are other common areas as the disease progresses. Mucin can invade other organs in the body and cause digestive and heart and lung and brain symptoms as well.

This is leading me to my DS's allergy and food intolerance and respiratory problems too as his BBT's are low, he has cold intolerance and a number of other frankly hypoT symptoms.

I've also been finding a lot of correlation with fibromyalgia actually being caused by low thyroid function as well, and other classically linked IC symptoms such as IBS and generalized inflammation.

Do you have low thyroid symptoms or a family history of thyroid problems?
JaneS is offline  
 
User Tag List

Thread Tools


Forum Jump: 

Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off