Join Date: Apr 2007
Location: Chicago suburbs
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All natural sahm to dd1(12yo) and dd2(6yo). Married 16 years.
Time for the Master Tonic!
It's a very personal decision, but since you asked for opinions I'll share my 2 cents. We were in a similar boat when dd was 6 weeks old. We had the ultrasound done first and it showed no abnormalities of any kind, but we decided to go ahead with the VCUG because we felt like we would be more comfortable knowing if our child had reflux. Like yours, our doctor had said we could skip the VCUG for the first UTI, but that he didn't recommend it. He said that if we didn't know for sure that she did not have reflux we would need to treat her as if she had it.
This meant that we would need to bring her in with every fever to have her urine tested immediately and he recommended giving a rocephin shot and starting a 10 day abx course right away if the urinalysis was positive for UTI. He said he felt comfortable waiting for a culture in kids with no reflux before doing abx, but if there was a chance of reflux then we would need to be very aggressive especially in an infant under the age of one. Infants are much more likely to have kidney scarring from infection than older children. That would be a lot of extra worry and procedures if the child ended up not having reflux after all.
In our case, it turned out that dd does have reflux - grade 5 bilateral. In addition she has 2 extra ureters (both with low grade reflux), an enlarged bladder, and some abnormalities in her kidneys, none of which showed up on her initial renal ultrasound. In the end dd is pretty unique and has much more complicated issues than most. I'm just thankful that we learned about it all so early and we were able to be aggressive with her treatment and save most of her kidney function.
With that said, I certainly don't fault you for not wanting to do the test. It's not a horrible test at that age, but it's still no fun, and knowing doesn't change much if your child doesn't get sick or have recurring infections. If you decide not to do it, just be very aware of signs of UTI. Watch for changes in eating patterns, foul smelling diapers, excessive fussiness for long periods of time and fever. If your kid is "off" and you don't know why, go ahead and test. Tis better to be wrong and feel silly than miss a UTI and have permanent kidney damage.
If you do the test, just be loud and upfront about the fact that your son is intact and ask the nurses and technicians if they have experience with cath'ing an intact boy. If not, insist that they get someone in there that does. You should be able to go back with him during the test so don't be afraid to get close and make sure you can see exactly what they are doing. You might even want to call Child Life Services if it's available at your hospital and talk to them about your concerns. I've found that they are really good at coordinating things for us when they can, and helping with planning and communication.
Good luck with your decision. It's a hard one. Keep us posted about what you decide and how things are going and CONGRATS on your new bundle of joy! Hope the sailing is much smoother from here on out!
Anne, Mama to Conner 2/27/04 Gabrielle 2/6/06 W/LMC-TCS, Neurogenic Bladder, AFO & KAFO wearer, Neurogenic Bowel & Delaney 5/12/08 & Beethoven & Gizmo
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