Any ideas what could be wrong with me???? - Page 2 - Mothering Forums

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#31 of 34 Old 01-04-2011, 02:39 PM
 
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Originally Posted by elmh23 View Post

Oh, and another thought, tests change.  My aunt has had severe GI issues and has for at least 30 years, can't hold on to or gain weight (I always suspected she was anorexic or something.)  She's seen every doctor available.  Finally, they did yet another biopsy, with new technology and discovered she has something called Mastyositosis (sp?)  Her gut is basically amounting an allergic response to everything she eats. TESTING is what found it and I would encourage the OP to keep fighting to get testing done.

 

And stress makes everything worse, sucky huh?

 

You are correct, and perhaps it was more an issue of internet communication.  Asking here can help her go to the doc with, "hey, can we also test for x, y and z?"  It's not a substitute for care, but if she gets 8 people internationally that can say "I had those EXACT symptoms and I had "yadda yadda" then that provides a jumping off point for more research on her end and something to bring to the doc.  It took me 20 some odd years to get someone to test for celiac disease.  Had I gone and asked ONE of the GI specialists 15 years ago, "hey, can you test for celiac?" I'm thinking I'd have saved myself and my kids a world of pain.

 

So while an actual practitioner is helpful, so too can be asking questions.  :)
 

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#32 of 34 Old 01-04-2011, 05:00 PM - Thread Starter
 
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Quote:
Originally Posted by elmh23 View Post

Oh, and another thought, tests change.  My aunt has had severe GI issues and has for at least 30 years, can't hold on to or gain weight (I always suspected she was anorexic or something.)  She's seen every doctor available.  Finally, they did yet another biopsy, with new technology and discovered she has something called Mastyositosis (sp?)  Her gut is basically amounting an allergic response to everything she eats. TESTING is what found it and I would encourage the OP to keep fighting to get testing done.

 

And stress makes everything worse, sucky huh?

 

You are correct, and perhaps it was more an issue of internet communication.  Asking here can help her go to the doc with, "hey, can we also test for x, y and z?"  It's not a substitute for care, but if she gets 8 people internationally that can say "I had those EXACT symptoms and I had "yadda yadda" then that provides a jumping off point for more research on her end and something to bring to the doc.  It took me 20 some odd years to get someone to test for celiac disease.  Had I gone and asked ONE of the GI specialists 15 years ago, "hey, can you test for celiac?" I'm thinking I'd have saved myself and my kids a world of pain.

 

So while an actual practitioner is helpful, so too can be asking questions.  :)
 



That is actually exactly what I needed.  Some option so I can go into the doc and say, "hey, can you check and see if xxxxx is the problem"  or "can you run this test".  Plus getting ideas like keeping a food diary, natural type things to help until I get a diagnosis and that sort of thing.  Honestly, I'm about as non-natural as it gets.  If I get a headache, I'm taking tylenol.  If I'm running a fever I'm grabbing the Motrin.  I drink tea when I'm sick but that's mostly because mom always made it for us when we were sick as kids. So, I don't ask to replace a diagnosis, but after talking to a certain number of docs that don't help, well, you get desperate for any help you can find.


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#33 of 34 Old 01-05-2011, 05:00 AM
 
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Sidenote: MsFortune::  Love your quote!  I used to loooooove that song!!!!!  Now I'm singing it and must.find.album........

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Originally Posted by MsFortune View Post

In addition to your food diary, I would keep a mood diet.  I've had IBS off an on my whole life, and it took me a long time to figure out that it was related to my anxiety.  

 

Mine also went away during my pregnancies which may have been a physical side effect of my pregnancies, or could be because I felt mellow and not anxious when pregnant.

 

But I agree with seeing a GI doctor.  If this has been going on for years, and it is effecting your life to this extent, it's not normal and should be addressed.  Good luck with this!



Ok on to serious isses:  I agree sounds like Crohns, Celiac, IBS, or I don't know if someone mentioned this but hyperthyroidism can cause diarrhea.   Anything that stimulates your adrenal glands or cortisol can do this too, like the fight or flight thing.  How is your blood pressure?  headaches?  anxiety?  


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#34 of 34 Old 01-05-2011, 09:13 AM - Thread Starter
 
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Sidenote: MsFortune::  Love your quote!  I used to loooooove that song!!!!!  Now I'm singing it and must.find.album........

Quote:
Originally Posted by MsFortune View Post

In addition to your food diary, I would keep a mood diet.  I've had IBS off an on my whole life, and it took me a long time to figure out that it was related to my anxiety.  

 

Mine also went away during my pregnancies which may have been a physical side effect of my pregnancies, or could be because I felt mellow and not anxious when pregnant.

 

But I agree with seeing a GI doctor.  If this has been going on for years, and it is effecting your life to this extent, it's not normal and should be addressed.  Good luck with this!



Ok on to serious isses:  I agree sounds like Crohns, Celiac, IBS, or I don't know if someone mentioned this but hyperthyroidism can cause diarrhea.   Anything that stimulates your adrenal glands or cortisol can do this too, like the fight or flight thing.  How is your blood pressure?  headaches?  anxiety?  


Because my grandfather and my mother both had hyperthyroidism, they check me regularly for that.  So, I don't think it's that.  Blood pressure stays around 120/60.  Headaches, only if I forget my glasses.  Anxiety, well, I'm not sure, I know I don't like being around people, I don't like crowded places, I don't like feeling out of control, so I guess maybe a bit of anxiety.
 


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