Healing advice for toddler (GAPS, homeopathy, or what?) - Mothering Forums
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#1 of 45 Old 06-18-2012, 04:22 PM - Thread Starter
 
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My 32 m/o was vaccine injured as a baby (seizures, intestinal bleeding, encephalitic cry, constant illness, food allergies (possible related)). We stopped vaxing at 9 m/o and the blood and seizures stopped by 12 m/o. The constant illness never did stop....it has gotten a little better but she gets sick and it last like 2+ weeks (fever and all) every-single-time. She also gets sick often (at least monthly now which is a huge improvement believe it or not...)

 

I have done a little bit of homeopathy specific to vaccine injuries but our homeopath left the state...

 

Her diet is good. She is still BFing and she eats all organic foods. (mostly fruits and vegs, rice, quinoa, oats) gets cod liver oil, probiotics, whole food based multi. She only drinks water and BM. All her allergens are completely eliminated by her and I...Also going to chiro regularly.

 

So I'm not sure where to go from here. Everyone keeps telling me to do GAPS which is a huge commitment and I feel like it just may be too much YK? Plus being dairy and egg allergic limits it even more.

 

Someone else mentioned doing this http://www.newtonlabs.net/Kids-VaccinationIllness-Assist/productinfo/F098/ http://www.newtonlabs.net/Kids-Detoxifier/productinfo/F001/

 

I just don't know where to go from here. Besides the constant illness lately she has had circles under her eyes and bruising easily/taking a long time to heal. She also randomly took up napping again after not napping for months...She does have good energy and she poops 2x a day most days.

 

Any advice or BTDT parents?


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#2 of 45 Old 06-18-2012, 07:14 PM - Thread Starter
 
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#3 of 45 Old 06-19-2012, 02:34 AM
 
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Hi sosurreal09,

 

It's a complicated question you ask and cannot be answered without more information.

 

Most signifcantly, what form of vaccine damage is there? What is your actual physician's diagnosis?

 

I tend to steer clear of homeopathy and chiropractics for treatment of medication damage. Nothing particularly against them, but I've never seen any benefit that cannot be easily explained by the placebo effect, confirmation bias or regression to the mean when dealing with the bodies chemical inbalance (although I'm not sure I'd be able to walk upright without my chriropractor due to physical injuries).

 

They also tend (not exclusively) to make up horror stories about vaccines which often turn out not to be true. (a few to many conspiracy theorists in the camp)

 

I recommend a qualified dietician (not a nutritionist, big difference). There are far too few who specialize in vaccine damge, & they will also ask, what sort of vaccine damage it is. You need this to progress.

 

Very best wishes and good luck for you and your daughter.

 

Paula

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#4 of 45 Old 06-19-2012, 03:32 AM
 
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I would contact Manfred Mueller at the Homeopathic College for a consultation or a referral to a practitioner in your area.

He specializes in detoxification from vaccines and pharmaceuticals

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#5 of 45 Old 06-19-2012, 04:13 AM
 
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You can contact the homeopathy organization in your country/ state for a referral.  Some homeopaths will treat long distance, in case there's no one local.   You can find that information here: http://hpathy.com/homeopathy-organizations/ 

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#6 of 45 Old 06-19-2012, 05:34 AM - Thread Starter
 
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Hi sosurreal09,

 

It's a complicated question you ask and cannot be answered without more information.

 

Most signifcantly, what form of vaccine damage is there? What is your actual physician's diagnosis?

 

I tend to steer clear of homeopathy and chiropractics for treatment of medication damage. Nothing particularly against them, but I've never seen any benefit that cannot be easily explained by the placebo effect, confirmation bias or regression to the mean when dealing with the bodies chemical inbalance (although I'm not sure I'd be able to walk upright without my chriropractor due to physical injuries).

 

They also tend (not exclusively) to make up horror stories about vaccines which often turn out not to be true. (a few to many conspiracy theorists in the camp)

 

I recommend a qualified dietician (not a nutritionist, big difference). There are far too few who specialize in vaccine damge, & they will also ask, what sort of vaccine damage it is. You need this to progress.

 

Very best wishes and good luck for you and your daughter.

 

Paula


Not sure what you mean. No one told me scare tactics I saw everything with my own eyes

 

 

2 m/o shots- encephalitic cry, fever, started getting sick here had fever for 1 month straight, had mild seizures during naps seizures stopped before we got to the specialist when I stopped vaccinating.

 

4 m/o shots- intestines started bleeding and started pooping 12x a day, illness after illness after illness

 

6 m/o shots- no added reaction

 

9 m/o shots- no added reaction

 

stopped vaxing by 12 m/o seizures, blood, and screaming finally stopped. Still constantly ill.

 

15 m/o isolated Hib- blood came back temporarily, 7 ear infections in 5 months, still constantly ill. Developed several food allergies. (IgE)

 

That is where we are at today no other vaccines 32 m/o refer to first post


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#7 of 45 Old 06-19-2012, 05:59 AM
 
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But that is why she is asking what your child's condition is now.  What are the long-term diagnoses?  You can't take away the vaxes you believe damaged her so what are the conditions that need treatment.  Then people can offer help.

 

I do not believe that homeopathy is useful so I would say get a relationship with an MD that you trust.  But obviously you feel differently.


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#8 of 45 Old 06-19-2012, 07:24 AM - Thread Starter
 
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All she has left is a compromised immune system we can't seem to heal and her food allergies. She gets sick and it lasts 2+weeks and she is sick often. Possibly sensory/behavioral stuff too. She has dark circles under her eyes and bruises easily/takes a long time to heal.

 

Her current Dr (MD) said he believes the vax compromised her immune system by how her body reacted to them and he sees that a lot. The allergies could be from the damage to the intestines that occurred at 4 m/o shots and 15 m.o shot.


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#9 of 45 Old 06-19-2012, 07:42 AM
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8 months of intestinal bleeding is going to leave anyone in pretty poor health.  How was that treated?  How is her weight?  How were the seizures diagnosed/treated?  What treatment has your doctor proposed?

 

Given that her diet is already limited, I wouldn't try more dietary restrictions.  Frequent ear infections are probably having a negative impact on her overall health as well.  How are you treating those?  Has your doc suggested tubes?  Has she had a workup to rule out a serious condition causing the bruising?  Not to be all freaky about it, but that's an early symptom of some childhood cancers and really should be looked in to.

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#10 of 45 Old 06-19-2012, 07:48 AM
 
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Has she been tested for Celiac?  I would definitely eliminate gluten if you haven't already, at least temporarily, to see if there is any improvement.


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#11 of 45 Old 06-19-2012, 08:05 AM
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I'd be loathe to cut foods unless you KNOW she is allergic.  Looking at her diet in the OP, though - what sources of fat and protein is she getting?  The foods you listed are not all that calorie-dense and pretty low fat.  There are proteins in the whole grains and fat and protein in the breast milk, but I'm not seeing the kind of high-fat, high-protein foods I like to see in a little kid's diet.  Breast-feeding is awesome.  You need to add more high-calorie fat and protein sources - at this point, you're not supplementing breast-feeding with table food, you're supplementing table food with breast-feeding.  Are you vegetarian?  Because that would add a challenge.  If not, it's not a bad time to introduce meat.  It can be hard to get fats and proteins into an egg and dairy allergic child.  A dietician could definitely help with this.  She's not going to get healthy while she's under-nourished.
 

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#12 of 45 Old 06-19-2012, 10:43 AM - Thread Starter
 
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8 months of intestinal bleeding is going to leave anyone in pretty poor health.  How was that treated?  How is her weight?  How were the seizures diagnosed/treated?  What treatment has your doctor proposed?

 

Given that her diet is already limited, I wouldn't try more dietary restrictions.  Frequent ear infections are probably having a negative impact on her overall health as well.  How are you treating those?  Has your doc suggested tubes?  Has she had a workup to rule out a serious condition causing the bruising?  Not to be all freaky about it, but that's an early symptom of some childhood cancers and really should be looked in to.

 



THEY DID NOTHING. We went to a GI specialist was told it was "intolerances" but I eliminated everything until I got to the point of just eating free range lamb, romaine lettuce, and olive oil for months. The GI ended up telling me "some kids just always bleed" That was what they left me with at 6 m/o and like I said it didn't stop until we stopped vaxing....Also at a year I started adding foods back in and she only reacted to dairy that's it...until the 15 m/o vax.

 

Ear infections are less and less now it was more an immediate reaction to the 15 m/o vax---never had one before. She has gotten a few after those 5 months. I treated the first few with antibiotics but they kept coming back so I did garlic mullein oil instead and they healed much better. We started the chiro b/c of the ear infections too. Her last one was right before DD2 was born 5 weeks ago. Our ped did not suggest tubes he said it was from the vax (we changed peds at 5 m/o and at 16m/o).

 

She hasn't been seen about the bruising I will make an appointment.


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#13 of 45 Old 06-19-2012, 10:43 AM - Thread Starter
 
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Has she been tested for Celiac?  I would definitely eliminate gluten if you haven't already, at least temporarily, to see if there is any improvement.


She hasn't but her poop is fine now, solidified but soft and 2x a day.


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#14 of 45 Old 06-19-2012, 10:45 AM - Thread Starter
 
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I'd be loathe to cut foods unless you KNOW she is allergic.  Looking at her diet in the OP, though - what sources of fat and protein is she getting?  The foods you listed are not all that calorie-dense and pretty low fat.  There are proteins in the whole grains and fat and protein in the breast milk, but I'm not seeing the kind of high-fat, high-protein foods I like to see in a little kid's diet.  Breast-feeding is awesome.  You need to add more high-calorie fat and protein sources - at this point, you're not supplementing breast-feeding with table food, you're supplementing table food with breast-feeding.  Are you vegetarian?  Because that would add a challenge.  If not, it's not a bad time to introduce meat.  It can be hard to get fats and proteins into an egg and dairy allergic child.  A dietician could definitely help with this.  She's not going to get healthy while she's under-nourished.
 

I can't get the kid to eat meat! I even try coconut yogurt and oil etc she won't touch it. The most fattening thing she eats is probably bananas....Far from vegetarian! That's why I was thinking maybe GAPS would help heal her and she would have to eat meat? IDK what to do about the meat thing...I do put olive oil on her veggies :/

 

She won't do nut butters either. She eats breakfast sausage sometimes. She doesn't even like bacon.


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#15 of 45 Old 06-19-2012, 10:57 AM
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THEY DID NOTHING. We went to a GI specialist was told it was "intolerances" but I eliminated everything until I got to the point of just eating free range lamb, romaine lettuce, and olive oil for months. The GI ended up telling me "some kids just always bleed" That was what they left me with at 6 m/o and like I said it didn't stop until we stopped vaxing....Also at a year I started adding foods back in and she only reacted to dairy that's it...until the 15 m/o vax.

 

Ear infections are less and less now it was more an immediate reaction to the 15 m/o vax---never had one before. She has gotten a few after those 5 months. I treated the first few with antibiotics but they kept coming back so I did garlic mullein oil instead and they healed much better. We started the chiro b/c of the ear infections too. Her last one was right before DD2 was born 5 weeks ago. Our ped did not suggest tubes he said it was from the vax (we changed peds at 5 m/o and at 16m/o).

 

She hasn't been seen about the bruising I will make an appointment.


I think the causes of some of these problems are irrelevant to their treatment.  In the interests of full disclosure, I feel compelled to admit that I don't agree with the vaccine injury hypothesis for this complex of health concerns, but that's irrelevant too.  The key thing here is not WHY your child is sick, but helping her get better.  Her illnesses should be treated.  Ear infections are painful and can damage hearing, and chronic infections of any sort are bad for kids.  I would think that anyone who has intestinal bleeding for 1 week is facing risk of infection, malnutrition, and a host of other problems.  An infant who is bleeding for many months is looking at much more serious problems and possible developmental issues.  Those are not issues that can be addressed by a chiro.  What resources do you have access to for medical care? 

 

From the sounds of things, she may be under-nourished and failing to thrive, which could be both caused by and contributing to the series of long illnesses she has had and her history of digestive issues. 

 

What about the seizures?  How were those diagnosed and addressed? 

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I can't get the kid to eat meat! I even try coconut yogurt and oil etc she won't touch it. The most fattening thing she eats is probably bananas....Far from vegetarian! That's why I was thinking maybe GAPS would help heal her and she would have to eat meat? IDK what to do about the meat thing...I do put olive oil on her veggies :/

 

She won't do nut butters either. She eats breakfast sausage sometimes. She doesn't even like bacon.


Just saw this.  Do you think it's a texture thing?  If she has sensory issues that are interfering with feeding, that's going to be a piece of the problem too.  Have you called your state's Early Intervention program?  She's about to age out, but they should be able to assess her and at least tell you if therapy (like OT or SLP) might be able to help with this issue.  EI programs allow parents to refer their own children.  Call today.  If you tell me your state, I will be happy to find you the number. 

 

If she will eat breakfast sausage, I would feed her breakfast sausage. 

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Homeopathy is the ONLY medical modality that will work.

Mainstream medicine has no answers/cures/treatments that will resolve the issue and I defy anyone to give a case study where it has.

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#18 of 45 Old 06-19-2012, 04:40 PM - Thread Starter
 
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I think the causes of some of these problems are irrelevant to their treatment.  In the interests of full disclosure, I feel compelled to admit that I don't agree with the vaccine injury hypothesis for this complex of health concerns, but that's irrelevant too.  The key thing here is not WHY your child is sick, but helping her get better.  Her illnesses should be treated.  Ear infections are painful and can damage hearing, and chronic infections of any sort are bad for kids.  I would think that anyone who has intestinal bleeding for 1 week is facing risk of infection, malnutrition, and a host of other problems.  An infant who is bleeding for many months is looking at much more serious problems and possible developmental issues.  Those are not issues that can be addressed by a chiro.  What resources do you have access to for medical care? 

 

From the sounds of things, she may be under-nourished and failing to thrive, which could be both caused by and contributing to the series of long illnesses she has had and her history of digestive issues. 

 

What about the seizures?  How were those diagnosed and addressed? 


She gains weight and grows they never labeled her FTT. The bleeding stopped when we stopped vaxing as did the seizures. Never got any official diagnosis. I watched her have all these issues days after her shots, yes mainstream Drs didn't recognize it either, but it's not just coincidence it started with vax and when we stopped vax most of it stopped...

 

I thought the meat thing was just a typical 2 y/o?


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#19 of 45 Old 06-19-2012, 06:03 PM - Thread Starter
 
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*I*DK about any mainstream stuff that would help her which is why I turned to alternative medicine. I don't see the chiro as our main Dr she went a few times at 15 m/o and just recently went like 5x.

 

Not here to fight about vax either (not that anyone really has) but throwing that out there. I know what happened to my baby and there is no changing that. Even the mainstream Dr admitted he never saw anything like it her immune system was overactive and underactive at the same time. No one could tell us anything really but like I said all that stopped when we stopped vaxing now it's just the constant illness/bruising etc I am concerned with healing.

 

I brought up the vax b/c IDK how to detox her. At the VERY least she did have the encephalitic cry which is a CDC recognized reaction after the 2 mo shots (when the seizures started too) and she had a fever for a month straight after the shots. THOSE are reactions no matter what your opinion is on the rest.
 


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#20 of 45 Old 06-19-2012, 06:19 PM
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I'm trying to understand the extent and severity of your child's medical issues.  Your most recent posts in this thread describe a picky eater with dark circles under her eyes and frequent illnesses.  Some people suffer from genetic misfortune on the dark circles front.  So the real issue there is the frequent illnesses. 

 

Your first couple posts in this thread describe a child with serious medical issues that pose a long term threat to her life and health.  As a parent with a family history of epilepsy, I take seizures very seriously.  Uncontrolled seizures destroy quality of life, and while seizures themselves usually don't kill people, accidents that occur during seizures - choking, strangulation, falls and other impacts - are potentially dangerous.  ANY intestinal bleeding is a sign that something may be horribly wrong.  Apparently, your child's doctors felt that this particular case wasn't serious.  I'm glad you got it checked out.  In the short term, diarrhea is no big deal.  In the long term, diarrhea in children prevents absorption of nutrients from food and causes dehydration.  12 bowel movements a day constitutes diarrhea in children by my pediatrician's definition.  ANY fever is serious in a child under 6 months - she's older than that now, but from the looks of your OP she was a very sick infant.  Repeated illnesses lasting more than 2 weeks in duration each time indicate that your dd may be immuno-suppressed or have another underlying health problem that makes her very vulnerable to infections.  Like I said before, the bruises are very scary. 

 

Chiropractors treat backs.  I see that homeopathy is really popular on this thread, but when you have a medically complex ill child, it's basically very expensive bottled water.  Every homeopath I have ever spoken to has been very open and honest about there being a time and place for conventional medicine.  Seriously ill babies fall outside the scope of what homeopathics can do.  The sooner you get to the bottom of these problems, the sooner your dd can be healthy.  Spending half of each month sick with fevers isn't doing her any good. 

 

Seizures are very hard to diagnose in sleeping children.  Sleeping babies twitch, their eyes roll, they have REM episodes that just look freaky.  They stop breathing and then start again.  Night terrors involve hours of screaming including periods when the child may open their eyes and talk to you, but they're incoherent and they're actually still asleep.  And they're perfectly normal.  Your description of seizures that happened only when your child was napping make me hopeful that your kid might just be a twitchy sleeper.  Which would be cool, because then your dd would be down one potentially serious medical issue.  Seizures, by the way, are a great example of something that modern medicine can often control.  Seizures can be caused by fevers, by tumors, by head injuries, by brain abnormalities, by genetic conditions, and by some other stuff.  There is nothing about napping that makes a person susceptible to seizures then and not when they are awake.  Febrile seizures aren't a big deal.  The other possible causes usually need some investigating and really should be treated.  If you feel strongly that those were seizures, and especially if your dd is still having them, you need to be very assertive about seeking treatment. 

 

It's a huge relief that your dd is growing well. 

 

With all her illnesses, it would be a good idea to start looking for doctors who will not stop at "well, this was caused by vaccines" and will propose treatment to address the ongoing issues. 

 

FWIW - My kids loved meat when they were two.  They don't represent all kids, but there's nothing special about age two that makes a kid averse to eating meat (or anything else).  They do tend to eat small portions, because they are small people.  Worldwide, toddlers eat pretty much everything, including bugs and dirt.  Pickiness is also normal at that age, but sensory issues can sometimes make kids so picky they don't get enough to eat.  There is therapy for that.  If your dd is gaining and growing, her food intake likely isn't an issue, but I would be on the lookout for good sources of fat and protein you can get into her, because a lot of the things you described - the dark circles around the eyes, the frequent illnesses, the bruising - can be a result of nutritional deficiencies, and her diet as described in your OP is lacking in those components.  That's not doing anything good for her health. 

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#21 of 45 Old 06-19-2012, 06:24 PM
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A 2yo with a history of intestinal bleeding DOES NOT need to detox. 

 

If months of diarrhea and intestinal bleeding didn't get whatever it is out of her gut, nothing you put into her gut now is going to do the job either.  You run the risk of irritating her intestines and causing bleeding again for no potential benefit. 

 

Plenty of fluids and a balanced, healthy diet will help her flush any toxins she encounters out of her body gently and naturally. 

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#22 of 45 Old 06-20-2012, 05:36 AM - Thread Starter
 
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Why they were seizures- First Dr thought I was nuts and wrote her off as colic, thought diarrhea was nothing, even the blood in her stool (unseen blood which meant it was from the intestines according to GI) so I fired her.

 

Took a video (no longer have stupidly it's was on an old cell phone) and showed the 2nd Dr she thought it was mild seizures (I had no clue what it was) It was twitching and shrieking. My brother has a seizure disorder and he's only ever had seizures in his sleep. We were on a waiting list to get seen by specialists for it but they stopped happening when we stopped vaxing so there was nothing to test by the time we could be seen (there was 6 month waiting list)

 

We have been to 5 different mainstream MDs they say: blood=intolerances (which is bull) no longer happening ever at all and no diarrhea after we stopped vaxing.
 

everything else=colic (that lasts a year+?)

 

No one has ever thought anything of her being sick all the time except our current Dr who said it's vax related (he's a holistic ped MD)

 

Like I said mainstream medicine does nothing here...she would have been on abx like 200x by now if I depended on it....

 

She does get sick all the time but she looks healthy, has energy, seems fine unless you know her long enough and see sher gets a cold and it goes into a virus then an ear infection then croup and back to cold and goes away lasting a couple weeks KWIM?

 

She had a fever almost everyday of her infancy she was constantly sick after her 2m/o shots.


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#23 of 45 Old 06-20-2012, 06:15 AM - Thread Starter
 
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Also she did have her PKU done so wouldn't that have ruled out auto immune stuff? I believe she is immunocompromised from the vax and her reactions. It can be very individual how ones body reacts to it.
 


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#24 of 45 Old 06-20-2012, 06:28 AM
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PKU testing rules out a small number of conditions that can be easily prevented/treated before they become symptomatic.  It doesn't rule out auto-immune issues. 

 

Twitching and shrieking can be normal, or not, and as she has outgrown them, it sounds like you can cross that off your list of worries. 

 

It's possible your dd would have been on antibiotics hundreds of times if you used mainstream medicine, but it's also possible she's had a series of infections that make her vulnerable to more infections and/or haven't entirely cleared up causing her serial illnesses.  She might have been on antibiotics 2-3 times (or 2-3 more times) and then have gotten healthier. 

 

Reflux can look like colic and can last a year or more.  It doesn't match anything else you have talked about, though.

 

 

Quote:

She does get sick all the time but she looks healthy, has energy, seems fine unless you know her long enough and see sher gets a cold and it goes into a virus then an ear infection then croup and back to cold and goes away lasting a couple weeks KWIM?

 

I'm confused.  I've seen the cold/ear infection/croup cycle in my own kids, but I don't see kids who look healthy, have energy, and seem fine but are actually sick. 

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#25 of 45 Old 06-20-2012, 08:57 AM
 
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stik,

 

Where were you when my boys were younger? Your advice is sound, detailed and well researched.

 

Paula

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#26 of 45 Old 06-20-2012, 09:10 AM
 
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At this point So09, I'd be open to any possibility rather than sticking to one thing. 

 

We have been to 5 different mainstream MDs they say: blood=intolerances (which is bull) no longer happening ever at all and no diarrhea after we stopped vaxing.

 

 

That's not one Dr, with one opinion.  That's 5 different opinions.  I've had mainstream Dr's actually look into issues to consider if they were vax related.  Leading me to believe that mainstream doesn't mean they won't consider all options. 

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#27 of 45 Old 06-20-2012, 12:55 PM - Thread Starter
 
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OK let me clarify a bit she was on antibiotics like ALL the time in her infancy when we saw mainstream Drs I started treating things homeopathically after she was a year old b/c I was sick and tired of her being on the abx.

 

I *know* it's confusing. She is bright and happy and wonderful full of energy but she gets sick and it lasts weeks it just does IDK how else to explain it. Even when she's sick as a dog she has energy and is generally happy now that she is older.

 

So infancy= a bunch of problems and always sick treated mainstream

 

toddlerhood= less problems still always sick treated mostly homeopathically but not always. (1st 3 ear infections were treated with abx after hib shot)

 

She eats a TON always has a snack for her is like 2 apples and a pear so I don't think she needs therapy I just don't think she's big on meat. I am trying my best to get her to eat it.

 

Have an appointment tomorrow with her Dr who is holistic but is also an MD and uses mainstream and holistic methods. Will see what he thinks about bruising/illness.

 

So as far as GAPS goes lots of people says it heals allergies. She has 6 food allergies and one household allergy. I don't see how her gut is healthy with all that bleeding she did besides improvements from probiotics.

 

As far as detox goes I was only thinking homeopathic detox not like something major.

 

I just don't know what to do. She has healed SO much but not fully. Her immune system is obviously crap despite my efforts to improve it.

 

Should we avoid acidic foods to heal the gut? There is so much info out there...

 

So I'm thinking I should have a list of questions for the Dr when we see him tomorrow?

 

What kind of Dr would specialize in an auto-immune disorder?

 

Thanks everyone BTW


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#28 of 45 Old 06-20-2012, 01:09 PM - Thread Starter
 
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Quote:
Originally Posted by NotEnoughHands View Post

stik,

 

Where were you when my boys were younger? Your advice is sound, detailed and well researched.

 

Paula


No offense but this seems really weird and shady...and you joined yesterday?


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#29 of 45 Old 06-20-2012, 01:44 PM
 
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Well let us know what they say.  Hopefully everything can be figured out. 

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#30 of 45 Old 06-20-2012, 02:16 PM
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Two apples and a pear is somewhere between eight and twelve servings of fruit for a typical toddler. Fruit is great, but take a take a second to imagine how you would feel if you ate 8-12 servings of fruit in a sitting. Or heck, two apples and a pear. If anything is troubling her gut, that's probably it.
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