Uterine Prolapse? - Mothering Forums

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#1 of 17 Old 04-18-2004, 02:36 AM - Thread Starter
 
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Oh great. I'm about 99% sure I've got a prolapsed uterus. And I *just* noticed it here almost 8 months PP (I never had a 6 week check, gotta love Kaiser). : Sitting down on the toliet I can feel with my fingers, my vagina bulging out (feels almost like a small golf ball is at the entrance to my vagina), and the edge of my cervix at the opening, *almost* protruding. Now I know why I have to pee so much! And why I have to sit there for eons to get that last drop out!

I've tried searching here, and online, and can't find much information except for kegels, surgery, and a device you keep inside (a pessary? I think). I did find some links here for some other threads that didn't come up, but the linkies don't work for me. I'm really concerned about it, I don't want surgery (esp with kaiser), but I'm highly doubtful that kegels are gonna fix *this*. In fact, when I do a kegel I can't feel it, its really hard to do, almost impossible... And I don't like all the negatives that come with a pessary.

I'm gonna make an appt with Kaiser, ASAP, but I'd like more information from others here so I can have as much info as possible.

Has anyone gone through the surgery? Doing kegels that helped (esp when you feel like you can't/can barely do a kegel?) when the prolapse is to the point mine is? Can the surgery affect fertility? I only have one baby and am only 26!!

I'll be calling Kaiser on monday. Wish me luck! (I HATE kaiser... if anyone has a good reference for a Kaiser Ob/Gyn or equivilant in my area I'd so appreciate it!!!)

Lisa, mama to Orion (7) , Fiona Star (born sleeping @ 38wks 12/6/08) , our bitty (m/c 7/27/09) , and Charlotte Athena (11/5/10)
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#2 of 17 Old 04-18-2004, 05:50 AM
 
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Hi Lisa, I found the same thing last year. I don't know what to tell you. But mine hasn't changed in a year. I think the doctor I had at the time was not very good. But she said, If you still want to have more babies, don't do anything, just wait till your done having babies. Then you could have a surgery. It would just fall agian if you had a nother baby. I was really scared when I found out but now I'm just used to it, hardly think about it. although I know it may get worse. Some one told me jumping on a trampoline regularly was very good exercise for strengthening those muscles. I used to go to a message board just for women with PU. I'll try to find it for you.

http://prolapse.hyperboards2.com/index.cgi?
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#3 of 17 Old 04-18-2004, 12:32 PM
 
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My mom had a uterine prolapse, which ended up causing a bladder prolapse and was very uncomfortable She described it as you do, that she could feel the bulge of the uterus.

My mom was past childbearing years and opted to have a partial hysterectomy instead of just repairing the prolapse. I'm not sure of her reasoning, but I do remember a deciding factor being that prolapses usually recur and she didn't want to have major surgery 2-3 more times.

I don't have much advice to give you, I'm sorry. And yes, Kaiser sucks!
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#4 of 17 Old 04-18-2004, 12:46 PM
 
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In doing your research, visit Christine Kent's website about her pelvic floor rehabilitation journey and her new book at www.wholewoman.com

Dr. Christiane Northrup's website www.drnorthrup.com and her book Women's Bodies, Women's Wisdom are also a great resource.

When you see your physician at Kaiser, ask for a referral to a physical therapist who specializes in pelvic floor rehabilitation. If you are near a larger city, they should have one on staff and if not, they should be able to find you one since they are experts in this field.

Also do a search here at MDC from the main index for pelvic physical therapist to find out some more info. Here's a thread with a personal testimony about pelvic floor physical therapy from tinyshoes... http://www.mothering.com/discussions...ical+therapist

warmly,
claudia
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#5 of 17 Old 04-18-2004, 03:00 PM - Thread Starter
 
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Thank you everyone for the links! When I'm not running out the door I will check them all out!!

Alegria, your doctor does sound not so great! Just deal with it? If I have children in the timeframe I'm currently thinking of I'm gonna just have to deal with it for 8 years (more actually, I couldn't leave a newborn for surgery!?) My lower back has been aching constantly since ds was born, and from what I've read it seems connected (or could be). My chiro has done what he can... And the constant pressure, having to pee constantly, and the biggie: Painful Sex! Good God, I don't want to just "deal" with it for that long... and I'd think being pregnant like this would make things 10 times worse! Did he/she offer any help for you?

I'm hopeful that a physical therapist could help me, if I can convince Kaiser to give me a referal (they tend to be really stingy about that kind of thing). I don't want surgery I just have to repeat!

Any other advice, or commesieration is appreciated! I'll delve into the links asap!

Lisa, mama to Orion (7) , Fiona Star (born sleeping @ 38wks 12/6/08) , our bitty (m/c 7/27/09) , and Charlotte Athena (11/5/10)
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#6 of 17 Old 04-18-2004, 03:15 PM
 
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These threads might help:

Any ideas on healing pelvic prolapse (rectocele)?

Prolapsed Uterus

You are not alone. I'm not sure if I have prolapse anymore... but my pelvic floor is VERY weak. I do kegels (and DH notices a difference after I do A LOT) but I get discouraged too.

You can do a search for "prolapse" to find more threads on Health & Healing. You might even find more on other boards (Life with Babe, etc...)

10 - boy
5.5 - girl
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#7 of 17 Old 04-19-2004, 02:37 AM
 
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Acupuncture!! I had a prolapsed bladder and uterus after my son was born. The acupuncture was AMAZING! I have also seen a pelvic floor physical therapist for incontinence (due to pelvic floor damage/prolapses) - I think they can help with the prolapses too. I think most insurances will pay for the therapy if you get a prescription for it from your doctor. I HIGHLY recommend the acupuncture! Good luck.
Chester
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#8 of 17 Old 04-19-2004, 08:19 AM
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StarMama, did you have your placenta manually removed or expelled due to drugs? The women in my family who suffer from prolapsed uterus (and were sterilized) all had their placentas manually or drugged removal.

I hope you find the help you seek!
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#9 of 17 Old 04-19-2004, 10:31 AM
 
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So sorry that you are going through this. I am going through the same thing after the birth of my second child. I had a wonderful med free birth too. I blame it on my first birth-big baby, hospital birth and a vacuum involved.

Anyway, try to see a urogynecologist not just a regular gyno. Unfortunately, it is not uncommon to have this happen. Of course I was told the best option is hysterectomy since I don't want anymore babies. No thank you.

After reading Saving the Whole Woman, I am avoiding surgery. I have a friend who had bladder issues and had surgery and now she is having the same problem and a repeat surgery five years later. The book talks about how horrible any surgery can be.

I am choosing to just live with it until it gets unbearable. I am not peeing in my pants and sex is not painful I just have a bulge after standing or walking a lot- of course carrying two babies around doesn't help. My lower back gets sore after a full day. I will eventually try a pessiary if it bothers me enough.

Kegels no longer help with this issue but they do strengthen everything else so keep doing them. Eat lots of fiber so you don't strain during bms. The book talks a lot about things to do to live with it.

Hope this helps. I'll gladly answer more detailed questions if you want even more info.

AS
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#10 of 17 Old 04-19-2004, 03:58 PM - Thread Starter
 
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Playdoh, yes, they gave me cytotec to get my placenta to deliver. I'm incredibly mad about that, because on my birth plan I specifically said *NO* cytotec. But they didn't ask, just did it, and I was too drugged up from the mag sulfate (that I also didn't need :band) to know it at the time.

mommyoftwo, I'm going to try a pessary (even though I don't like the idea of them, it seems the best thing to try), while hopefully getting auth from Kaiser to go to a physical therapist for now. I'd just live with it, but I think its been happening for awhile now (considering the lower back/gotta pee/full funky feeling) and from what I've looked into its just gotten worse and worse for others, more things prolapse (bladder, rectum ) so hopefully those two things could at least halt the progress and hopefully take care of most of my symptoms. At least from my two days of reading that seems to be the case... and since joy of joy, I have Kaiser, I'll have to get auth to see a urogynecologist, and I'm kinda doubtful they'll give me auth to see one since they "fix" this in house. We shall see.

Lisa, mama to Orion (7) , Fiona Star (born sleeping @ 38wks 12/6/08) , our bitty (m/c 7/27/09) , and Charlotte Athena (11/5/10)
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#11 of 17 Old 04-19-2004, 06:02 PM
 
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Good luck with the pessiary. That will definately be what I try once I can't stand it. I read that you may have to try several before you find one that works for you.
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#12 of 17 Old 04-20-2004, 05:36 AM
 
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I HATE KAISER i could rant for DAYS about what bad things they've done to me and my family and my friends.

i'm so sorry you're going through that. the only thing i can say is good luck and i really hope you get it fixed soon!
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#13 of 17 Old 04-20-2004, 06:16 PM - Thread Starter
 
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Well I have an appt on friday. Its with a Kaiser doctor who is a member of the International Urogynecology Association, and the American Urogynecology Society. We'll see how that goes. I did a google search to try to find pelvic floor physical therapists in my area, and am not coming up with much... it found some local physical therapists, but it doesn't look like they are pelvic floor specialists, but I'll call and find out.

klothos, I *wish* I could get it fixed soon... my Dh thinks I'm WAY over reacting right now (which is pissing me off! He says I can't know if its serious, but when I can FEEL my cervix with my fingers buldging OUT of my vagina, that's *&^% serious!), but from what I've researched, surgery repair has a 12 week recovery, where you can't lift more than *5* pounds! And even the great hospitals have a 30% failure rate! And after the recovery no lifting more than 20!! So if I do decide on any of that, it'll be after I'm finished with children, so many many years down the road most likely... the pessary will help halt more prolapses (and should ease my symptoms), and I can alter my lifestyle to keep it from becoming worse (not lifting really heavy things), and physical therapy will help some, but if the prolapse is really as bad as I think, it won't "fix" it.

I think the main thing that's getting to me is how this is affecting my sex life. All this time I just thought I had to heal, and nope, its this prolapse. I was a very sexual being before Orion's birth, and now, nope. I may *want* it, but its so frustrating to not be able to enjoy what I used to enjoy so much, I just shut down. And Dh makes jokes about how little sex he gets, and this was BEFORE I discovered the prolapse. So on top of this now I feel broken, my self esteem is in the toliet, and I really wonder if Dh is going to stay with me if our sex life is just going to be like this forever. Of course he says yes, don't worry, but still. I can't help thinking it. I wish friday would hurry up and get here so I could really see exactly what's going on, and so when I come home with a "professional opinion" Dh will stop treating me like a hypocondriac <sp sorry>. Like I can't figure out for myself that my parts are dramatically WRONG right now. *Sigh*

Lisa, mama to Orion (7) , Fiona Star (born sleeping @ 38wks 12/6/08) , our bitty (m/c 7/27/09) , and Charlotte Athena (11/5/10)
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#14 of 17 Old 04-20-2004, 09:50 PM
 
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(((((((((((((( StarMama ))))))))))))))))))

if i were you, right now i'm pretty sure i'd be in an ER demanding treatment... actually i probably would have been right when i noticed it. i can't believe that you have to wait for an appointment... but then, it's kaiser. :

i'm so sorry you're dealing with all of that.
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#15 of 17 Old 04-20-2004, 10:01 PM - Thread Starter
 
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Well I have to wait because this is the only urogynecologist in my area, and friday is the next day she's in the office. Was on vacation until then. They actually are being pretty good about getting me in quickly, the doctor is fully booked, but they somehow squeezed me in. I could have been seen sooner, but by a regular gyn. I'd rather wait and see a specialist, YK? I suppose I could find another urogyn in another Kaiser sorta close, but I don't think there is going to be more physical harm done by then. I'm a stress mess right now, but am hanging in here. Thank you for being concerned

Lisa, mama to Orion (7) , Fiona Star (born sleeping @ 38wks 12/6/08) , our bitty (m/c 7/27/09) , and Charlotte Athena (11/5/10)
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#16 of 17 Old 04-20-2004, 10:16 PM
 
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I noticed your location is in the East Bay in California? Is that East Bay as in across from San Francisco? Because UCSF has a Women's Continence Center... http://www.ucsf.edu/wcc/OurServices_pelvic_rehab.html ... that you should at least be able to call for a more local referral if you are unable to see them or be referred to them by Kaiser.

Another San Francisco listing... http://www.jmweissmd.com/

From www.thevbook.com ...

Quote:
Physical Therapy for the Pelvic Floor

To find a physical therapist knowledgeable about the pelvic floor, call the American Physical Therapy Association, 800-999-APTA. From the menu choices, select Women's Health. Ask for a regional representative to help you locate a therapist in your area. The APTA has a network of reps who know every therapist in a given geographical zone.
warmly,
claudia
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#17 of 17 Old 04-20-2004, 10:25 PM - Thread Starter
 
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Ah Claudia! Thank you so much! Yes, I'm close to SF. I will call tommorow (probably closed tonight)! Thanks so much! I'm hoping the dr I see will be worth her salt and have PT referals herself, but better safe than sorry!

Lisa, mama to Orion (7) , Fiona Star (born sleeping @ 38wks 12/6/08) , our bitty (m/c 7/27/09) , and Charlotte Athena (11/5/10)
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