Normal TSH tests but symptom on top of symptom... - Mothering Forums

 
Thread Tools
#1 of 4 Old 01-27-2013, 11:34 PM - Thread Starter
 
delightedbutterfly's Avatar
 
Join Date: Oct 2006
Location: Canada
Posts: 2,630
Mentioned: 10 Post(s)
Tagged: 0 Thread(s)
Quoted: 16 Post(s)
Long story short I have had multiple Thryoid symptoms for years now. And every doctor I see has told me that my TSH is normal so they A) won't test more and B) won't try treatment anyways.

We've just moved and I'm seriously considering going into my new doctor and demanding treatment based on symptoms regardless of testing.

I have Celiac and Fibro. Both are fairly well controlled. I do get pain at times but usually only in flares. I haven't been seriously glutened in over a year now.

It took 6 years from my Celiac being triggered until diagnosis and so had to demand testing against everyone saying "you don't have it". It also took 23ish years to finally be told it was Fibro (what I knew since I was in my teens anyways).

I can't lose weight even watching diet, portion sizes and exercising (granted I could do better on this last one). I alternate between freezing and fine, my feet (and sometimes hands) are always cold. Headaches, tingling hands and limbs, heavy periods, miscarriages, hair loss (more than usual for me since having kids), feeling weak and tired constantly.

A few weeks ago I was *really* sick with a bad Gastro/norovirus bug. Once I recovered from that (~ 1week) my general health has been horrible. I'm back to having huge anxiety attacks, feeling really depressed, even more tired (I could sleep all day), I'm crying constantly... And my period is 7-9 days late and I've taken 4 pink dye tests, all negative. I haven't had ANY PMS symptoms and so usually get really bad symptoms. This last 8 months or so my period has really changed. I had 18+ years of clockwork periods with no break (even after childbirth I had my cycle back at 6 weeks and 3 weeks with EBF)... But the last 8ish months I've been "late" a couple times, although never this late, and even missed an entire period. And my skin is so dry it's cracking, part of that is our move to a new climate but I can't seem to get it moisture regardless of how many creams/lotions/potions/oils I add.

I need to make an appointment but I want to make sure that I'm not crazy demanding a trial of thyroid treatment even if my levels come back as "normal".

Mom to three amazing girls 9, 6 and New!

Come check out MDC's Updated User Agreement  
delightedbutterfly is offline  
Sponsored Links
Advertisement
 
#2 of 4 Old 01-28-2013, 09:13 PM
 
periwinkle 88's Avatar
 
Join Date: Oct 2011
Posts: 16
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

Have they tested you for Hashimoto's?  My thyroid labs were always in the normal range too, but I had all the symptoms. I finally found a doctor who took it a step further and tested me for the Hashi's antibodies. There are two types of antibodies that can indicate Hashimoto's, and I was positive for one of them so got the diagnosis. I am treated with a low dose of desiccated thyroid and it has really made a difference for me.  Since you already have a celiac diagnosis, you would be more likely than the general population to have Hashimoto's since it is another autoimmune disease. Good luck!    

periwinkle 88 is offline  
#3 of 4 Old 01-28-2013, 09:26 PM - Thread Starter
 
delightedbutterfly's Avatar
 
Join Date: Oct 2006
Location: Canada
Posts: 2,630
Mentioned: 10 Post(s)
Tagged: 0 Thread(s)
Quoted: 16 Post(s)
Thanks smile.gif I have wated the Hashi's testing but any time they say to do more testing the labs stop because my TSH is "normal"... And then I end up fighting with Dr's who don't listen...

I made an appointment today to see my Dr but I have to wait until the 15th.

I am so fed up with feeling sick that I am going to be demand ALL Thyroid tests including Hashi's and I am also going to demand a trial of medication based on symptoms to see if it helps.

My period showed up finally this afternoon but we want to start trying for another baby in a year or so and I need my body healthier first.

Mom to three amazing girls 9, 6 and New!

Come check out MDC's Updated User Agreement  
delightedbutterfly is offline  
#4 of 4 Old 01-29-2013, 04:38 AM
 
hedgehogs4's Avatar
 
Join Date: Aug 2008
Posts: 382
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
A lot of the symptoms of hypothyroidism are similar to clinical depression, so that's something to think about. Hope you find a solution and feel better soon.
hedgehogs4 is offline  
Reply

Tags
Health Healing


User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page



Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Online Users: 21,107

176 members and 20,931 guests
*green*faery* , 1babysmom , acardone1702 , [email protected] , agentofchaos , akashablue , AlaskAnne , americanjuly , angb457 , Anne Jividen , AprilM , Arduinna , AwesomeJessica , babymoon16 , ballerina85 , bananabee , BarefootBrooke , blissor , bluefaery , captain optimism , catladymeow , Chalex , chickabiddy , Claudia Chapman , Crazybean , Cricket VS , Crimson8 , Daisy8s , Dakotacakes , Dawn's mom , Deborah , DungeonQueen , eirual , ELK112313 , elliha , Emanresu , emmy526 , EnviroBecca , farmermomma , floss&ferd , funfunkyfantastic , gooseberry , Grace Wisdom , greenemami , happydaze , happyhats , hillymum , ian'smommaya , indiana , Iron Princess , Jackie0650 , JadePlant , jaguarmama , JamieCatheryn , japonica , jayneeann , jengracepersons , Jessica765 , jojobean , junipermuse , K703 , Kate&Joey , katelove , Katherine73 , kathymuggle , kcandco , kindofcrunchy82 , KrisInDenmark , ktolbert09 , LadyAnnibal , Lateannie , ldserrano , LiLStar , Linda on the move , loba , Mallow , mama24-7 , mamabear0314 , mamadance84 , mamadee17 , MamadeRumi , MamaMayme , mandamamma , mariamadly , marmy , Marumi , mckittre , MeepyCat , Milk8shake , minerva23 , Mirzam , missmink , MissMuffet , monkeyscience , moominmamma , MotherAtHeart , MountainMamaGC , MPsSweetie , mrsvintage , muddie , Mylie , MylittleTiger , NaturallyKait , newmamalizzy , oaksie68 , octobermom , oldsmom , perstephone , pisceanmomma , PitBullMom , PixieLittle , Poddi , pokeyac , polkafizz , prosciencemum , pumabearclan , rainydaywoman , redsally , Rob Buric , RollerCoasterMama , rubelin , Ruthiegirl , samaxtics , sandiegongp , SandiMae , sarafl , sarahl918 , shantimama , Shmootzi , siennaflower , sillysapling , Smokering , sofreshsoclean , sortacrispy , Sphinxy , SplashingPuddle , Springshowers , stegenrae , StepGirlfriend , SummerStorm22 , t2009 , thtr4me , Tigerle , tomsmom31 , tpodom11 , TrishWSU , Turner58800 , typebug , wassernixe , Wild Rose , worthy , zebra15
Most users ever online was 449,755, 06-25-2014 at 12:21 PM.