Gilbert's Syndrome/Disease - Mothering Forums

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#1 of 4 Old 02-20-2013, 11:24 AM - Thread Starter
 
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Hope this is posted in the right place! My 16 mo. old son and I were just diagnosed with Gilbert's Syndrome. The medical community calls it asymptomatic, but I am certain it's not. I just would love to know some other mama's who have it or have babies/kids dealing with this so we might share some tips/ideas. I find even most of the more natural providers/naturopathic doc's I have sought out are unsure about how to treat this. Currently, I'm pregnant with number 2 and both DS and I have high bilirubin (~2) so I know our livers are struggling. Frustrated, looking for support greensad.gif Would love to know you and your experience if you are also dealing with this! 

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#2 of 4 Old 02-25-2013, 12:34 AM
 
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I only recently heard of this and wondered if I may have it... I've had elevated bilirubin levels occasionally over the years without any other issues, but no Dr. ever mentioned it.

 

I'm sorry to hear that you're having other symptoms from it!
 


Liz om.gif Lovin' DH partners.gif DS (12) coolshine.gif and forever missing DD angel3.gif (12/02/07) ribbonpb.gif
From the withered tree, a flower blooms~ He's here!!! So crazy in love with my  rainbow1284.gif  boy!!! 12/14/11 luxlove.gif fly-by-nursing1.gif

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#3 of 4 Old 02-26-2013, 04:14 PM - Thread Starter
 
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You might, it's fairly common although it doesn't feel like it is! Normally, if your levels are high they want to rule out liver disease/other liver problems. Many times GS is a diagnosis of exclusion, but in my case they did the gene test. The fact that you don't have any symptoms is good though!
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#4 of 4 Old 02-26-2013, 09:15 PM
 
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The last time I had a high level was maybe 4 year ago. I've had a butt load of liver testing since then thanks to pre-e with my last pregnancy, and thankfully everything looked good.


Liz om.gif Lovin' DH partners.gif DS (12) coolshine.gif and forever missing DD angel3.gif (12/02/07) ribbonpb.gif
From the withered tree, a flower blooms~ He's here!!! So crazy in love with my  rainbow1284.gif  boy!!! 12/14/11 luxlove.gif fly-by-nursing1.gif

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