Trismus Pseudo-Camptodactyly Syndrome - Mothering Forums

Thread Tools
#1 of 2 Old 03-15-2013, 12:11 PM - Thread Starter
BoysRBlessings's Avatar
Join Date: Mar 2013
Posts: 1
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)

my 2 year old son has this genetic disorder it is extremely rare and he is going to have a heel cord and hamstring lengthening done in April. I'm extremely nervous about this and I wanted to get some advice on the surgery, healing time, pain control, etc...thanks so much.





p.s. I would love to find mothers with children affected by this syndrome

BoysRBlessings is offline  
Sponsored Links
#2 of 2 Old 03-18-2013, 05:07 PM
hedgehogs4's Avatar
Join Date: Aug 2008
Posts: 382
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
No advice, only good wishes. <3
hedgehogs4 is offline  

Health Healing

User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page

Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Online Users: 16,777

29 members and 16,748 guests
bananabee , BirthFree , blessedwithboys , Deborah , emmy526 , girlspn , happy-mama , hillymum , JElaineB , katelove , Katherine73 , LadyAnnibal , lhargrave89 , Lucee , Lydia08 , Michele123 , moominmamma , MountainMamaGC , mumofacub , NaturallyKait , nic1231 , philomom , racarmich , rightkindofme , RollerCoasterMama , shantimama , wade , zebra15
Most users ever online was 449,755, 06-25-2014 at 12:21 PM.