Trismus Pseudo-Camptodactyly Syndrome - Mothering Forums

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#1 of 2 Old 03-15-2013, 12:11 PM - Thread Starter
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my 2 year old son has this genetic disorder it is extremely rare and he is going to have a heel cord and hamstring lengthening done in April. I'm extremely nervous about this and I wanted to get some advice on the surgery, healing time, pain control, etc...thanks so much.





p.s. I would love to find mothers with children affected by this syndrome

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#2 of 2 Old 03-18-2013, 05:07 PM
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No advice, only good wishes. <3
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