What is wrong with my son? - Mothering Forums
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#1 of 18 Old 07-22-2013, 02:12 PM - Thread Starter
 
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I know you guys aren't professionals, but I am just at a loss with my 1.5 year old. We have seen several specialists, and I swear, if what I'm describing is not in their area of specialty, its as though I did not even say it! I am sure his issues are connected in some way, but I do not know enough to figure it out. If you have any suggestions or thoughts on this, or even what type of doctor we should see, please share.

 

Here's his history:

Born full term

Exclusively breastfed

Stays home

Youngest of three, older kids in part time school (but not anymore)

Meets all milestones on time-ish...not delayed with walking, speech, etc.

Has eczema, mild to moderate but has improved over the last few weeks

Sick often- on antibiotics 6-8 times in 17 months

Reccurent thrush (I'm guessing from the abx)

Hospitalized for a UTI at 5 months

Pink eye/congestion at just a few weeks old

Flu

HF&M disease

Roseola

Basically, if there is an illness within a 50 mile radius, this kid seems to come down with it.

 

My older kids do not get sick this often, nor to the same severity.

He is completely unvaccinated. 

 

He also has undigested food in his stools, which are both horrible smelling and unformed...kinda...soupy. ALL THE TIME. To me, this is a big deal, but the doctors do not seem concerned at all. 

 

They have tested his stool, but they never tell me what for, whatever they check, they say it's normal. He's had 2 bloodtests for celiac and a host of other things that are all coming back normal. 

 

We saw an immunologist today who ordered more tests but didn't tell me which ones...and his solution to this is some sort of vaccine that is similar to prevnar. 

 

Thank you if you even made it through this post. I just do not know where to start to get answers. Any suggestions, advice, websites...anything would be appreciated.

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#2 of 18 Old 07-22-2013, 02:33 PM
 
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Have you looked into leaky gut or yeast overgrowth?

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#3 of 18 Old 07-22-2013, 02:43 PM
 
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Has he been checked for cystic fibrosis? http://www.nhlbi.nih.gov/health/health-topics/topics/cf/signs.html

The unformed, soupy stools is a major symptom of cystic fibrosis as is a weakened immune system (which would explain why he gets sick a lot). If most of the illnesses are lung or sinus related then that would point to CF even more strongly. If sometimes the antibiotics has a hard time clearing up the infection then that's also a major sign of CF. You didnt mention if he has any weight problems--if he has a hard time putting on weight then that's another sign of CF. Finding out sooner rather than later is best since this will help you do what you need to do to help him stay healthy and digest food easier. A friend of mine has a son with CF, it was scary when she first found out but she has learned how to help him manage it and he doesn't get sick nearly as much as he did before and he's also at a healthier weight.
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#4 of 18 Old 07-22-2013, 05:11 PM - Thread Starter
 
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Originally Posted by womenswisdom View Post

Have you looked into leaky gut or yeast overgrowth?

No....tell me more. 


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#5 of 18 Old 07-22-2013, 05:12 PM - Thread Starter
 
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Has he been checked for cystic fibrosis? http://www.nhlbi.nih.gov/health/health-topics/topics/cf/signs.html

The unformed, soupy stools is a major symptom of cystic fibrosis as is a weakened immune system (which would explain why he gets sick a lot). If most of the illnesses are lung or sinus related then that would point to CF even more strongly. If sometimes the antibiotics has a hard time clearing up the infection then that's also a major sign of CF. You didnt mention if he has any weight problems--if he has a hard time putting on weight then that's another sign of CF. Finding out sooner rather than later is best since this will help you do what you need to do to help him stay healthy and digest food easier. A friend of mine has a son with CF, it was scary when she first found out but she has learned how to help him manage it and he doesn't get sick nearly as much as he did before and he's also at a healthier weight.

He does have many of the symptoms, but he has been checked...they did a sweat test or something I think that's the one that was for CF. Thank you though. 


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#6 of 18 Old 07-22-2013, 05:22 PM
 
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We are going through something similar with my 20 month old daughter. She has to be on strong probiotics to have normal stools, sick often, EBF through 6 months and still nursing a ton, stays home with me, meets all milestones, random fevers and rashes, febrile seizures, former FTT and reflux. Her Immunoglobulin levels were checked and IgG and IgA were low, so she is being sent to an immunologist.

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#7 of 18 Old 07-23-2013, 08:21 PM
 
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What illness has he been on antibiotics for?

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#8 of 18 Old 07-23-2013, 09:12 PM
 
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I'd suggest probiotics and vitamin D. They might not help everything, but I think they'd still help.

 

Probiotics have a wide range of CFU (colony forming units), ranging from under 1 billion to 450 billion per serving. I would suggest getting one on the high side. VSL#3 has 450 billion per packet (the highest count I know of). You can give 1/2 or 1/4 packet if you don't want to give that big of a dose.

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#9 of 18 Old 07-25-2013, 03:07 PM - Thread Starter
 
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What illness has he been on antibiotics for?

Ear infections a couple times, a UTI, a "mystery infection"; that's all I can think of right now. 

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#10 of 18 Old 07-25-2013, 03:25 PM
 
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Originally Posted by littlec View Post

He does have many of the symptoms, but he has been checked...they did a sweat test or something I think that's the one that was for CF. Thank you though. 

You're welcome. I wish i could be more helpful to you. I can imagine how scary and frustrating it must be to not knowing what's going on with your child. While i cant pinpoint whats wrong, i did find this article that i found interesting and potentially very helpful: http://www.crossfitinnate.com/kid-sick-part-1

Good bacteria is apparently very important for many reasons. I would give him a good quality probiotic supplement every day. Our old holistic pediatrician says Jarrow is a very good brand: http://www.amazon.com/gp/aw/d/B0013OSHDY/ref=mp_s_a_1_3?qid=1374790881&sr=8-3&pi=SL75

ETA: just found this article:http://www.gutsense.org/gutsense/flora.html
I learned a lot from it, it goes into more detail than any other article i've read on the topic. I hope it helps some!
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#11 of 18 Old 07-27-2013, 02:17 PM
 
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Originally Posted by littlec View Post

Ear infections a couple times, a UTI, a "mystery infection"; that's all I can think of right now. 

Have you done a search on here to see how/if mamas had any luck preventing ear infections or treating them without anitbiotics?

 

Could allergies be behind the ear infections - particularly  cow milk?  (just shooting in the dark here, so disregard if it does not make sense)

 

http://www.askdrsears.com/topics/feeding-infants-toddlers/milk/milk-allergies

 

Ditto everyone else on the pro-biotics.  

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#12 of 18 Old 07-27-2013, 02:53 PM
 
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Cystic Fibrosis

 

HIV

 

 Primary immunodeficiency disease (there many types)

 

 

It is a very good thing that immunologist running many tests. Wait and see.

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#13 of 18 Old 07-27-2013, 05:10 PM
 
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Cystic Fibrosis

 

HIV

 

 Primary immunodeficiency disease (there many types)

 

 

It is a very good thing that immunologist running many tests. Wait and see.

HIV? Oh please.

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#14 of 18 Old 07-27-2013, 05:33 PM
 
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Stop giving him abx.  His gut and immune system has been destroyed by them and all of those things can be treated without the use of abx.  In fact, studies have shown that giving abx for ear infections actually CAUSES recurring ear infections.

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#15 of 18 Old 07-28-2013, 08:27 AM
 
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Stop giving him abx.  His gut and immune system has been destroyed by them and all of those things can be treated without the use of abx.  In fact, studies have shown that giving abx for ear infections actually CAUSES recurring ear infections.

This. Now is the time to start healing his gut microbiota.

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#16 of 18 Old 07-30-2013, 11:42 PM
 
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Actually, I think you need an immune system work up (IgA levels, IgG) You may be dealing with a deficiency. Even if you're not, you may find he's low. We work on that here (low IgA, low bands of IgG). I'm glad he had a sweat test. Metametrix comprehensive stool is the best thing I've had done to find out why stools were a mess here. The pediatricians ran tests but coudln't figure it out. Metametrix named the bacteria and even tested it for resistance so his doctor would know how to best treat. If you can find someone in your area (maybe metametrix can give you a doctor's name in your area) who runs those types of tests, insurance is covering them here. My guess is you have a bacterial or yeast overgrowth from the antibiotics. But I think you've also got something else going on impacting that immune system...push for testing...pediatrician can order the immune tests. If they are abnormal they can refer to immunology.

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#17 of 18 Old 07-31-2013, 11:37 AM
 
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I'm gonna come back to this and ask some questions when I can concentrate.


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#18 of 18 Old 08-17-2013, 11:56 AM
 
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Any celiac testing--blood or biopsy-- in an 18-month-old is notoriously inaccurate.  Even for adults, it's not perfect. The celiac forums are filled with people who were intitially told that their celiac tests were negative, only to be retested years later and told that they actually had it.  My understanding is that most pediatric GI specialists believe that dietary response is a better diagnostic tool than testing, but that they also believe that most parents can't or won't handle a gluten-free diet.


Try a gluten-free,casein-free diet.  His symptoms sound spot-on for celiac, but other issues can result in the same issues, too.  Undigested food in the stool IS something to be concerned about. That means intestinal malabsorption.  If that's going on, then he's at risk for serious malnutrition, even if he is not underweight.  And if gltuen is the problem, he will likely need to be casein-free as well, at least for a few months. The kind of damage done by gluten also damages the intestinal villi--whichar esupposed to produce lactase.   Eating dairy will cause more irritiation to his poor damaged intestines.

Check out www.csaceliacs.org and www.celiac.com.  

 

This must be terribly stressful for you--good luck!

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