Kowasaki disease - Mothering Forums

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Old 07-29-2002, 05:11 PM - Thread Starter
 
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What does anyone know about Kowasaki disease?

My friend just called to tell me that her 18 month old daughter has come down with a "virus" that has caused a high fever, spots in her throat and this is the most frightening... she cannot walk anymore.

Her doctors don't have any answers for her. At first they told her it would go away, but after more than 5 days it still has not and she is becoming increasingly alarmed.

She seems to think that it may be Kowasaki disease and wants to know what people know about it. Oh, I should mention that she was vaxed for MMR and others about a month ago, but she would have shown a reaction sooner if that was the case, right?

Any help would be greatly appreciated!
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Old 07-31-2002, 09:26 AM
 
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How very frightening!!! I have never heard of it. I hope your friend finds some answers soon!!

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Old 07-31-2002, 08:25 PM - Thread Starter
 
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Thanks for responding, Peggy. You are always so very thoughtful.

Well, it seems that the latest is that her doc thinks that it is mono, but my friend says that Kawasaki is frequently misdiagnosed, so she is off to a specialist for the disease.

The other possibility is that she thinks it could be Lyme disease. They live in CT and frequent Old Lyme as the grandfather lives there. She did have a deer tick on her a month ago, as well.

Hope for the best for this little one...

I am just so proud of my friend for her determination to follow through on her instincts and not just take the doctor for his word Strong woman!
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Old 08-06-2002, 01:12 AM
 
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My old boss's son has Kowasaki disease when he was only a few months old. Let me know of that is what they think it still is and I will try and contact her for info. Where in Nor CA are you?

I know that it took awhile for it to be diagnosed and it was scary there for a bit, but a doctor at Kaiser finally figured it out.

Hope she is doing better!

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Old 08-06-2002, 01:59 AM
 
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just a few weeks ago regarding kawasaki disease. here's the link -- http://mothering.com/discussions/sho...light=kawasaki .
that must be so scary for your friend. my thoughts are with her.

-beanma.

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Old 08-11-2002, 06:46 AM
 
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No one knows what causes Kawasaki but there have never been any links to MMR. MY son did not even have MMR at all when he got sick. Some kids get it after carpet have been cleande, some after playing in water. But no one knows what causes it. It is well treated with IVIG. IN fact, if it is Kawasaki, IVIG will help, if it is not, it will not help. Untereated patients have 20% risk of hear problesm and treated about 1-2%. IVIG has risks, becuase it is ablood product. MY child was so sick, i did not think even twice. We spent almost a week in the hospital. Thid person has an interesting KAwasaki site [email protected]
My thougts are with your freind
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