baby born with no soft spot - Mothering Forums
Forum Jump: 
 
Thread Tools
#1 of 9 Old 12-11-2004, 06:04 PM - Thread Starter
 
mamajama's Avatar
 
Join Date: Oct 2002
Location: Canada
Posts: 6,107
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I was blessed to attend the birth of my friend's baby two months ago. Well, after a long labour, the baby was not moving into the birth canal and my friend had to have a c-section. It turns out that the baby's fontenelle was fused so his skull did not fit properly into the opening. There is of course a medical term for this which I can't remember off the top of my head. Anyway, The dr's have recommended surgery to repair his skull. Far as we can tell, it is cosmetic but we're not 100% sure.
Does anyone have experience with this operation? Anyone know any good resources to search out to get more information on our own?
I would appreciate any insights.
mamajama is offline  
#2 of 9 Old 12-11-2004, 07:29 PM
 
supakitty's Avatar
 
Join Date: Mar 2002
Location: The Great Southwest
Posts: 1,015
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
The term for it is craniosynostosis, here's a link:

http://www.ninds.nih.gov/disorders/c...synostosis.htm
supakitty is offline  
#3 of 9 Old 12-11-2004, 10:26 PM - Thread Starter
 
mamajama's Avatar
 
Join Date: Oct 2002
Location: Canada
Posts: 6,107
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks for the reply, Supakitty. Do you have experience with this condition?
I guess I'm looking for stories and experiences to help my friend and me understand it from a more human perspective.
mamajama is offline  
#4 of 9 Old 12-12-2004, 02:52 PM
 
CallMeIshmael's Avatar
 
Join Date: Sep 2004
Location: Deep Gray
Posts: 325
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
This website may be just the ticket.
CallMeIshmael is offline  
#5 of 9 Old 12-12-2004, 03:46 PM
 
pamamidwife's Avatar
 
Join Date: May 2003
Location: Oregon
Posts: 7,677
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
From what I know about craniostynosis, it's vital to have surgery. The baby's brain will continue to develop and grow and without surgery, it could be devastating. It's not cosmetic at all.

The link above is great.
pamamidwife is offline  
#6 of 9 Old 12-15-2004, 02:17 AM
 
supakitty's Avatar
 
Join Date: Mar 2002
Location: The Great Southwest
Posts: 1,015
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
mama- I'm sorry, I don't have any experience with this condition. I only know the term because of my medical training. I wish you and your friend the very best of luck.

sincerely,

Laura
supakitty is offline  
#7 of 9 Old 12-15-2004, 11:06 AM
 
USAmma's Avatar
 
Join Date: Nov 2001
Location: Arizona
Posts: 18,846
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I saw a baby like that in the hospital when Nitara went for her surgery. The baby was 6 mos. old and her head was not shaped right. The back of the skull was growing but not the front. They said she would be back home in just a week if all went well.

Darshani

7yo: "Mom,I know which man is on a quarter and which on is on a nickel. They both have ponytails, but one man has a collar and the other man is naked. The naked man was our first president."
 
USAmma is offline  
#8 of 9 Old 12-15-2004, 02:43 PM
 
mwherbs's Avatar
 
Join Date: Oct 2004
Location: Tucson, AZ
Posts: 5,575
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
the surgery allows the brain to grow normally. Many years ago I had friends who went through the same thing with their son. she had a virus in pregnancy which is what they think caused the early closure (cranial stenosis) the surgery just cut the bone looked somewhat like a zipper on the top of his head and he was fine.
mwherbs is offline  
#9 of 9 Old 12-15-2004, 10:37 PM - Thread Starter
 
mamajama's Avatar
 
Join Date: Oct 2002
Location: Canada
Posts: 6,107
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thanks everyone, I have been passing on this positive information to my friend. Much appreciated.
mamajama is offline  
Reply

Quick Reply
Message:
Options

Register Now

In order to be able to post messages on the Mothering Forums forums, you must first register.
Please enter your desired user name, your email address and other required details in the form below.
User Name:
If you do not want to register, fill this field only and the name will be used as user name for your post.
Password
Please enter a password for your user account. Note that passwords are case-sensitive.
Password:
Confirm Password:
Email Address
Please enter a valid email address for yourself.
Email Address:

Log-in

Human Verification

In order to verify that you are a human and not a spam bot, please enter the answer into the following box below based on the instructions contained in the graphic.



User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may post new threads
You may post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off