baby born with no soft spot - Mothering Forums

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Old 12-11-2004, 07:04 PM - Thread Starter
 
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I was blessed to attend the birth of my friend's baby two months ago. Well, after a long labour, the baby was not moving into the birth canal and my friend had to have a c-section. It turns out that the baby's fontenelle was fused so his skull did not fit properly into the opening. There is of course a medical term for this which I can't remember off the top of my head. Anyway, The dr's have recommended surgery to repair his skull. Far as we can tell, it is cosmetic but we're not 100% sure.
Does anyone have experience with this operation? Anyone know any good resources to search out to get more information on our own?
I would appreciate any insights.
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Old 12-11-2004, 08:29 PM
 
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The term for it is craniosynostosis, here's a link:

http://www.ninds.nih.gov/disorders/c...synostosis.htm
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Old 12-11-2004, 11:26 PM - Thread Starter
 
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Thanks for the reply, Supakitty. Do you have experience with this condition?
I guess I'm looking for stories and experiences to help my friend and me understand it from a more human perspective.
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Old 12-12-2004, 03:52 PM
 
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This website may be just the ticket.
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Old 12-12-2004, 04:46 PM
 
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From what I know about craniostynosis, it's vital to have surgery. The baby's brain will continue to develop and grow and without surgery, it could be devastating. It's not cosmetic at all.

The link above is great.
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Old 12-15-2004, 03:17 AM
 
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mama- I'm sorry, I don't have any experience with this condition. I only know the term because of my medical training. I wish you and your friend the very best of luck.

sincerely,

Laura
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Old 12-15-2004, 12:06 PM
 
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I saw a baby like that in the hospital when Nitara went for her surgery. The baby was 6 mos. old and her head was not shaped right. The back of the skull was growing but not the front. They said she would be back home in just a week if all went well.

Darshani

7yo: "Mom,I know which man is on a quarter and which on is on a nickel. They both have ponytails, but one man has a collar and the other man is naked. The naked man was our first president."
 
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Old 12-15-2004, 03:43 PM
 
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the surgery allows the brain to grow normally. Many years ago I had friends who went through the same thing with their son. she had a virus in pregnancy which is what they think caused the early closure (cranial stenosis) the surgery just cut the bone looked somewhat like a zipper on the top of his head and he was fine.
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Old 12-15-2004, 11:37 PM - Thread Starter
 
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Thanks everyone, I have been passing on this positive information to my friend. Much appreciated.
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