AuntieM I will be in NY for 3 months and my kids are coming with me. My mother will be with us and my husband will be with us this first week. Then we will be alone for a week and then a family member is coming out for a week. We kinda have people lined up like that to help us.
I cannot be without my kids for three months. Could any of you? For me it is a huge part of my healing.
Yes, I will be taking my laptop so I will be in touch here.
I am a bit-well
a lot
upset with my oncologists' office here in Ohio. They have really screwed things up(again
). My whole transition seems to be a pain in the woo-woo for them -well my oncologists' phone nurse who handles all the paperwork anyway.
My dr in NY sent them a fax last Wed. which they received at 3:40pm-I have it in front of me- and the statement at the top of the letter clearly states NY's intent of having my PET done on the 17th and then treatment the 18th. We needed my local office to help set up eligibility testing here , bending with my insurance company, on those tests so they would give us the go on the PET in NY(NY said my PET here sucked-as well my oncologist never did a PET to begin with here and they are confused to how he could even compare my last two with what?
).
SO my office did not get anything scheduled until yesterday and Monday. NY calls yesterday saying we need the results pronto b/c my insurance needs to review them with the clinical trial scheme to prove that I am worthy of treatment
!!! I call my local dr office and say look we need these results asap and my local office nurse proceeds to tell me "Look NY asked for some fancy pants blood work and most of it has to be sent out. There is nothing I can do to get it expedited and they will get to it when the get to it." Of course I was wigging out at that time and not thinking clearly at all..but once I clamed down I thought, you know what?, if my local nurse
knew that the ordered blood work was so "fancy pants" as she put it, when she got the order list
last Wednesday, then why the
didn't she send me that day or the next to get it done? It is an outpatient proceedure-no appt needed-just walk in and hand them your sheet.
SO this morning I am going to call back Ms. Condescending and ask her exactly that-b/c she does not know I have a copy of the order list with the statement made at the top to her from my nurse in NY. I am going to tell her I have it, tell her I see what time the fax came in, and also remind her that my doc here did say that he was happy to help NY in anyway he could with things like this and if she feels differently then maybe I need to let the doc here know.
You cannot tell me she has no idea that my insurance would need these results. NY says they would know that they deal with stuff like this all the time-dr. office's.
SO needless to say my day yesterday was very stressful...I mean basically I am moving Friday to NJ for treatment that my insurance company has not even approved yet and I am scheduled for treatment on the 18th.
Why it should even be an issue to how I get treatment is beyond me and it should not even be on my plate to deal with! How the
do you put a price on your head for your life? "oh, well, insurnace company, I am good for $xxxx amount but after that cut me off."
I have cancer for God's sake..not that common cold give me a
break
and Why my local office doesn't get the sense of urgency here is beyond me