My dd too, has hydronephrosis, reflux, grade 5, on the left side, with a duplicated collecting system and a megaureter. She had two terrible UTI's when she was 5 and 7 weeks old (both requiring hospitalization), and was then on prophylactic antiobiotics until this October. She has had three VCUG's, two IVP's, three renal ultrasounds, and two procedures under general anesthesia (one for the surgery, one to remove stents from the surgery). Contrary to how that all looks
: I'm not real big on lots of medical interventions. But I've said this before, and I'll say it until I die. If your baby has reflux, and your baby is getting lots of kidney infections--make no mistake, they will *all* be kidney infections, because that's what reflux does, send urine straight up to the kidneys and cause damage--your baby can have kidney scarring, leading to kidney damage and kidney failure. It's about his kidneys, and without kidneys we die.
I don't intend to alarm you needlessly, but I do wholeheartedly believe that a VCUG is well worth the invasion if it means a better quality of life. From my perspective, even with one kidney, one has to watch contact sports, or high risk sports such as skiing, etc., and your child has a whole life to live. Hopefully your son doesn't have it, and then there wouldn't be anymore VCUG's. Or, if he has a low grade, he'll grow out of it. I personally believe it's better to arm oneself with information, and I guess that's also why I've gone through with the testing. It's no picnic. But my daughter's first one wasn't as bad as the second one. She cried only during the insertion of the catheter. Her third, she sang through the xrays.
I've read somewhere else on these boards that catheterization is worse for boys than it is for girls, and I've also been told that some people have their children mildly sedated for the tests to decrease the trauma factor. We haven't done that, but if DD ever needs another IVP, we certainly will.