Symptomatic Group B Strep Vaginitis HELP!! - Mothering Forums

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#1 of 61 Old 06-28-2006, 10:04 AM - Thread Starter
 
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Hi,

I have just been diagnosed (after going to one gyn practice for months and being told there was nothing wrong with me) with symptomatic (constant burning) group b strep vaginitis. At first I thought it was a yeast infection, but I have come back clear for yeast cultures various times. I have researched this to no end on the internet and only find links to women who have it while pregnant - and they always state that it is rare for it to cause any symptoms. My current gyn who has been around forever did a culture and it came back with very high colonizations of beta strep bacteria. He gave me a 10 day course of penicillin and also told me to use betadine douches 2 times during the 10 days. I did this - twice and each time by the third day it would feel pretty much gone - but then by around the 12th day it would come right back!!!

Does anyone know what I can use to get rid of this thing? I've had it for 5 months and I am beside myself. The burning is pretty much constant - if I shower - it seems to help some but it almost never goes away. I think I may have gotten it from my husband and he may be reinfecting me - but I am not sure. My current gyn basically told me that there isn't much more he can do. He told me to use betadine douches no more than 2 x per week until my next appointment in 6 months!!! He had a patient who had it for like 20 years!!! YIKES!! I am only 37, have two young children and cannot imagine having this forever.

In researching online I found an article by a midwife who wrote about how a clove of garlic inserted vaginally can get rid of yeast infections and also it has been known to help lower the strep colonizations. So I emailed her. She wrote me back a brief note as she is on vacation (I'm hoping to hear more from her once she is back). She said that antibiotics will not help my problem and I should NOT douche at all. It is very rare - only 1 in 10,000 women get it. Lucky me She said she has heard of women who have used garlic and it very slowly will get rid of it. I'm on my 3rd day of garlic (the taste it puts in your mouth is gross). The burning is still going strong (I have no idea how long to do this for). I am doing everything I can to boost my immune system too - good multivitamin, herbal immune system booster, acidophilus, grapefruit seed extract. I even just started taking colloidal silver. I just wish I knew how to get rid of it. I have not been with my husband in about two weeks - trying to see if that affects my problem. I also have (in the past) tried inserting acidophilus vaginally as well as tea tree oil.

Lastly, I found a study (in Norway) where two women had what I have and were treated w/antibiotics - the symptoms came right back once they were done with the meds. The finally got rid of it with chlorhexidine gel 1% (also called Hibiclens). The study does not say how long they used it or how they applied it. I went to my local drugstore and found Hibiclens solution (not gel) 4%. I have read that some midwives have their patients who've tested positive for GBS and are pregnant use a douche with this solution / water just before delivery - but there is nothing out there for using it for a problem like mine.

I am desperate for any suggestions or help that anyone might have. I have found a few postings on the internet about women who have had this - but never any resolutions. I appreciate any insight anyone might have into this.

Thank you in advance!!!

Kind Regards,
Kirstie
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#2 of 61 Old 06-30-2008, 09:30 PM
 
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Hi Kirstie,
I feel your pain as I too have had the same problem for a few years now too. I am frustated with how its affecting my relationship with my partner. We go for long periods without any interaction because of my discomfort which turns me off wanting to do anything like that.

I also wonder if my partner keeps giving it back to me because he isn't being treated. He doesnt have any symptoms though, so I doubt he is.

I was always treating it as thrush with canastine cream initially. That helped relieve the discomfort, but didn't actually get rid of the cause.

I tend to think it has something to do with diabetes. When I lose some weight the symtoms seems to ease. I had seen a specialist a while back who said that I have pre-diabetes symtoms and its possible this is just another of those symptoms. I admit that I really like my sweets and probably have way too much sugar. I also try having a better balance diet now, but it doesn't seem to show much change.

I also read online about home remidies such as inserting garlic and tried that once. It didn't really do much. Instead I am taking garlic tablets as garlic is a good source of antioxidants. Honestly I don't think its helping much, but it doesnt hurt to take them.

On my last visit to the doctor he said he would enquiry with a specialist who knows more about this issue. He already had 3 patients with the same symptoms and didn't know what else to give us. Penaclin seems to help for a short time, but didn't get rid of the problem completely.

The specialist wrote back and suggested Dalacin V vaginal cream. I read details about it online and its definately for symptoms we have. I am yet to try it, but am concerned that even if it works, symptoms will likely re-occur because I'm not solving the actual cause. You will need a script for Dalacin V from your doctor.

Regards,
Smilyn
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#3 of 61 Old 07-01-2008, 02:30 AM
 
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Hi, sorry to hear abt you two suffering b/c of this. I had it while pregnant with no symptoms and the abx did nothing. I was able to get rid of it by taking vit C, tinctures of echinacea and astragalus, and raw garlic everyday. I would crush the garlic and mix with honey then swallow a lump or 2 of it like a pill. If I stopped the treatment the strep would come back. (bee propolis is also recommended in addition to what i did.)

I can maybe offer some insight though. The strep is growing beyond healthy and comfortabl;e proportions b/c your internal body ecology is off balance, the usual healthy bacteria and other stuff that should be there in proportions enough to keep gbs in check is not there.

This can be due to eating processed foods and taking anti-biotics. Even in amts considered "normal" by today's standards. I would definitely eliminate "white" foods like sugar and white flour, if you have a cronic problem like you described. We dont eat those foods b/c of my kids and dh's allergies. IME it is harder to eliminate foods when you are doing it for your own health than for your kids. I read on these bourds abt ppl who cheat and my dh does on his diet and make themselves sick. If I cheat my nurseling gets sick so I just dont. It is not fun sometimes but mostly it doesnt bother me. Maybe think of it as something you do for your marriage.

I also recomend taking a strong probiotic - on an emptly stomach.

Goodluck.
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#4 of 61 Old 07-02-2008, 02:27 AM
 
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Just a suggestion: does this involve excess cm? Have you tried wearing a small tampon during non-menstrual days for a couple hours at a time. I have found success doing this when I've had really bad yeast infections. I'm assuming it works 'cause it helps "remove" excess.

Good luck - I hope you find a permanent solution.

Surviving sleep deprivation one day at a time with dd (Oct '11) & ds (Oct '08).

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#5 of 61 Old 07-02-2008, 02:29 PM
 
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Originally Posted by keepsmilyn View Post
Hi Kirstie,

I also wonder if my partner keeps giving it back to me because he isn't being treated. He doesnt have any symptoms though, so I doubt he is.
This is quite possible, since Strep B bacteria colonizes both male and female "carriers". I would suggest a test (swab) just to make sure.
Some people do not show any signs, they are just carriers.

Good luck with everything!

:
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#6 of 61 Old 07-07-2008, 11:33 PM
 
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Thank God I'm not alone in this!!!

For a long time I've had what I thought were yeast infections. Then, last November on my Pap smear it came back with Bacterial Vaginosis.

So then, this year I had another pap in March which also showed Bacterial Vaginosis. I was sick with a different type of infection and on antibiotics for a while when I started itching again and assumed from the antibiotics that it must be yeast. So, I self treated with yeast medicine and things got rapidly worse. Everything itched and I ended up with a very painful uti although it didn't feel like a full UTI because only my urethra hurt.

So, I went to the doctor and they did a culture and it came back Strep B. I was totally confused how this even happened. I have the worst itching and burning and pain in all my areas down there and I couldn't figure out what was going on!!!

I hope something works soon.
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#7 of 61 Old 08-31-2008, 03:33 AM
 
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Hi All,
Well I am still suffering from the same discomfort (6 months after my original posting). Some days are worse than others. Some days I feel like it has gone away and other days its quite uncomfortable. The cream my doctor last prescibed hasn't done much to help. I used it for most of the days recommended and missed one in between, but still saw no difference in my symptoms.

Having these symptoms really puts a dampen on my sex life with my partner. I have no desire for sex when I feel sore and itchy. My husband is very understanding, but I wonder if he will always think this way. When the burning and itching seems to go away my sex life is a little more active, but it doesn't last for long because the symtoms seem to come back quite quickly.

I know exactly what you mean about being told its all in your head. I've been told that many times in the past too. I only wish it was all in my head, but the uncomfortable feeling I get down below tells me otherwise. Thankfully the results of culture tests also incase that something isn't right along with the red inflamed skin.

I tend to think it is related to poor diet or poor health or perhaps related to diabetes. My eating and fitness levels are not great, but I don't know if everyone else who gets this is just as unhealthy. I am by no means fat, just a little overweight for my height (168cms at a size 12 australian ladies). I also don't drink much water and have been told that perhaps my urine isn't diluted enough. I personally don't like the taste of plain water. I tend to drink juice, softdrinks and cordials more often than plain water.

I find it frustrating to think that so many people are having similar symptoms but no one can find a cure. Perhaps if we all continue to discuss our symptoms on these forums more doctors will realise this is a common issue.
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#8 of 61 Old 08-31-2008, 01:52 PM
 
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I had bacterial vaginosis while pregnant and used peroxide to rinse after going to the bathroom and this really seemed to help.

I am not a big peroxide person and not a believer in douching but it might be worth a shot.

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#9 of 61 Old 01-06-2009, 11:37 PM
 
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I tried a detox diet a while back and that seemed to clear up my system for about 3 and a half months.

The specialist I'm seeing seems to think that it may have just been a co-incidence that it cleared up around the same time I did the detox diet, or perhaps my positive thoughts during the detox process may have helped. Either way, it probably doesn't hurt to try if nothing else has worked.

I suggest you consult with your doctor before trying a detox diet. Some doctors are really against detox diets, but if it helps relieve your symptoms or get rid of it, then why not give it a go. For the record I tried the Lemon Detox Diet.
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#10 of 61 Old 02-04-2009, 04:37 PM
 
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I've had strep vaginitis for 8 months. My dr. put me on Levaquin, then Miconazole 7, then Vantin. I was tested between meds. to check the growth. Finally, the test came back, with "little" growth. He didnot want me on any more antibiotics but he never discussed my diet. I finally found this post last Friday! I believe we are on the right track by reviewing our diet! After the detox diet did you go back to the same foods you always eat? I think Gilamama is correct! As for me, no more of the ground wheat which is in my freezer. A friend grinds it for me, so it is raw wheat but maybe I can't handle it. Anyway it's my best guess and the only thing in recent years that I've incorporated into our meals. A friend mentioned that I may be sensitive to all wheat or flour products!
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#11 of 61 Old 02-04-2009, 11:42 PM
 
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I've had strep vaginitis for 8 months. My dr. put me on Levaquin, then Miconazole 7, then Vantin. I was tested between meds. to check the growth. Finally, the test came back, with "little" growth. He didnot want me on any more antibiotics but he never discussed my diet. I finally found this post last Friday! I believe we are on the right track by reviewing our diet! After the detox diet did you go back to the same foods you always eat? I think Gilamama is correct! As for me, no more of the ground wheat which is in my freezer. A friend grinds it for me, so it is raw wheat but maybe I can't handle it. Anyway it's my best guess and the only thing in recent years that I've incorporated into our meals. A friend mentioned that I may be sensitive to all wheat or flour products!
Yes I did eventually go back to the same foods. I was hoping to try introducing different food groups slowly, but when I hadn't eaten properly for almost a week, I just wanted to eat everything around me. Everything smelt and tasted so nice. Unfortunately it came back about 3 and a half months later. It's hard to tell whether it came back of its own accord for some unknown reason, or whether its diet related as I had eaten so many different things by that stage.

My specialist said perhaps it was a co-incidence or even just the power of positive thinking while being on the detox diet that made it go away, or seem like it went away. But I beg to differ with her opinion as I felt better than I had for a long time down there and really felt like it had completely gone for a while.

The tablets I am on at the moment seem to be helping suppress the symptoms, but some days I still feel slightly itchy and uncomfortable. I can tell it hasn't completely gone away, but its definitely better than it has been in the past.
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#12 of 61 Old 02-05-2009, 04:43 PM
 
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I know there is a "protocol" of natural remedies pregnant women do to get a negative result for their GBS test, diet being a big part of it.

Diet
Hibiclens
Garlic clove in the vagina
Probiotics orally & vaginally
Yogurt orally & vaginally
Kefir
Naturally fermented foods like homemade sauerkraut
Vit C
Homeopathics
Echinacea
Bee propolis
Goldenseal
GSE
Oregon grape root

To me it only makes sense that your partner would be colonized with GBS as well. Test and treat your partners too.

wife to DH 2/03, mama to DS 3/03 & DD 1/09
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#13 of 61 Old 02-05-2009, 08:12 PM
 
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Thanks for the idea of having my husband tested. We have been married for 25 years! One marriage and faithful . How in the world did this happen? I am so frustrated!
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#14 of 61 Old 02-08-2009, 05:12 PM
 
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Thanks for the idea of having my husband tested. We have been married for 25 years! One marriage and faithful . How in the world did this happen? I am so frustrated!
GBS is naturally occurring in most of our bodies in small amounts. It's when there is an imbalance that it can get out of control. Unfortunately it's easy for it to get out of control and hard to fix it. Sometimes it take 25 years for something like this to get bad enough to notice and need to do something about it.

All of the antibiotics they put people on only makes it worse in the long run. Now you have to wrok from ground zero to build up your immune system again. It's a vicious cycle.

wife to DH 2/03, mama to DS 3/03 & DD 1/09
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#15 of 61 Old 02-08-2009, 06:57 PM
 
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I'm going to move this to health and healing. Enjoy the ride!

 
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#16 of 61 Old 02-13-2009, 02:54 AM
 
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Thanks for the idea of having my husband tested. We have been married for 25 years! One marriage and faithful . How in the world did this happen? I am so frustrated!
If I never seem to fully get rid of it, wouldn't I just keep passing it back to him whenever we have intercourse?

If my partner never has any symptoms, how do we know when to treat him?

Does he need to be treated every time I am treated then??
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#17 of 61 Old 02-25-2009, 02:38 PM
 
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I am taking a strong probiotic from the health food store and garlic. I'm avoiding sugar and flour, ( but I am still getting very small amounts in foods). My husband has been VERY patient all these months. We have not passed it back and forth, it got stronger again anyway, which leads me to "blame" diet, at this moment in time. I may change my mind another day, of course. I also pray often! I'm trying to figure this out day by day, open to learning.
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#18 of 61 Old 02-26-2009, 02:32 PM
 
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I feel even better today. Remember to stay away from vinegar products; they're fermented! I've lost weight on my "no sugar, no flour (no yeast products) diet", which I will continue, for fear it will return. I don't know how long I need to be on Probiotics . I just hope my posts help other women!
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#19 of 61 Old 06-01-2009, 11:04 PM
 
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Hi guys, I've been having the same problems every now and then I am having an urinary infection and I've been treted with anti-biotics and It caused me a strong yeast infection, the doctor required a culture form me and my husband he was negative but my results showed I am B Strep positive, and this is bad because the anti- biotics causes me Yeast infection and It is affecting my relationship because I am not enjoying! Seems I am so dry down there. I was excited when I found the article about the garlic but reading your posts I think maybe that's not the answer. However I am going to try.


Thanks for you comments
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#20 of 61 Old 10-18-2009, 12:45 PM
 
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Hello ladies - I'm not sure if anyone will get this post to this older string but I've been dealing with GBS for the 5 years we've been trying to conceive and my frustration with the typical symptoms I'm having this morning leads me to digress a bit from the user name I must have set up years ago (when I was quite optimistic about becoming a mother and actually had a subscription to Mothering) to vent here.

The infection flares up right at ovulation with the typical discharge, itch, pain and redness, and brings bloating and pain in my uterus/ pelvic cavity. Sometimes it lasts all month, sometimes just before my period. Sometimes it causes my period to come a week or so early. My culture always comes back - normal vaginal flora positive for GBS, only relevant in pregnant women. HA - I plan to gently change that assumption as well as the idea that this is only a vaginal (not endometrial) infection if its the last thing I do on this earth.

My natural doctors do believe that this is causing my infertility as the infection has obviously colonized my endometrial lining and my husband and I are for sure passing it back and forth. He always has white blood cells in his semen analysis which clear up with antibiotics but come right back after we've been trying for a month. To the person questioning her husband's faithfulness, this is something you can pick up at your doctor (health care workers often convert to positive between pregnancies), something that occurs 'naturally' in many women without symptoms, and even something you can have had since you were born, having been passed through the vaginal canal (per Dr. Toth).

I do believe in boosting your immunity and dealing with it as a systematic illness and have cleansed and fasted and eaten all raw, supported my body with extra protein, lost weight, done pelvic opening yoga, uterine massage, and the whole gamete. I wish that this was entirely lifestyle related, it would be much easier to manage if it was but we do all live in a world in which many toxic variables are out of our control and sometimes this approach is crazy making which doesn't help either.

I don't know the answer to curing it but I do know that misconception on this is the norm by all number of NP's, MD's, DO's, midwives and the lot. This is something symptomatic and very real for many women and not relevant only in pregnant women!

The remedies that midwives 'prescribe' for colonization during the third trimester of pregnancy have yet to work for me and doctors don't have any better ideas because antibiotics make it worse. Likely a sensitivity report to the actual strain we have might be a better approach than throwing antibiotics at it at random. I have yet to find a doctor locally to help with this.

Two resources that are very interesting and helpful but not natural are The V Book by Elizabeth Stewart, MD and the giant e-book offered at no charge by Dr. Toth at fertilitysolution.com. Both are high tech antibiotic remedies which I'm not yet prepared to use but do find some solace in the idea that both of these doctors at least take symptomatic GBS seriously and perhaps the anti-antibiotic camp can extrapolate their information to more natural ideas.

As for me, I have an appointment with an infection specialist at the University of Washington in a few months and my acupuncturist is conjuring me up an herbal tampon based on specific herbs with anti strep b properties per her TCM textbooks and studies. I'll let you know if it works and I hope this conversation stays alive as I know we're not alone and if something has worked long term for you, please share.

I wonder if it is possible that as I keep throwing generalized natural anti-biotics like garlic at this, I'm making it just as resistant as using a prescribed antibiotic that isn't specific to GBS? I've been playing this game a long time and it is debilitating to my entire life - my business suffers, my marriage suffers and we've been through 5 years of heart wrenching infertility with this so I feel all your pain and hope we can put our heads together and share what does eventually work.

Peaceful blessing of health to you all.
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#21 of 61 Old 10-30-2009, 01:54 AM
 
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Yeah, I feel your pain. I too get GBS flare ups. The first time it happened it was really bad and I did the whole antibiotic thing which did help get the worst of it under control but ended up causing yeast infections and a whole host of digestive problems including C-dif (which I wouldn't wish on anyone) and developing allergies to the antibiotics themselves. It took me over a year to recover from it all. If you are looking for solutions, I'd be wary of the antibiotic route. I tried probiotics as well but my digestive system wasn't too fond of them at the time.

One OB-GYN after another has said the same thing, nothing to be done about it and flare ups can be expected. They obviously don't suffer themselves and have no idea how bad it can be. They don't even bother to try to consider what may cause a flare up.

My latest flare up started after buying new underwear that weren't 100% cotton and I am getting some relief by not wearing underwear or at least loose-fitting boxer styles when I'm at home.

I see that flour has been mentioned in this thread earlier but suspect that not just flour, but all gluten products may be involved in throwing my own system out of balance. Sugar, yeah, also a likely candidate since sugar and gluten products often go together in our diets. But I'm going to have to look at "bad" carbohydrates as well since they are basically sugars.

Though I haven't been tested for a gluten allergy or celiac disease, I have my suspicions that this may be an underlying factor for me. If I have it, it would explain a lot. Celiac can also cause abdominal pain/bloating and cause infertility, both problems mentioned by women earlier in this thread.

But I do know that I have a mild case of hyperthyroidism, not bad enough to have to take any medication, but I suspect this hormone imbalance could be a reason I'm one of those women who does suffer from GBS instead of being one of the lucky ones who doesn't even know they are carriers.

And I've also had extremely low cholesterol in the past which can cause problems since your body needs cholesterol to produce some hormones. (Yes, it is possible to cholesterol levels that are too low.)

If you are in search of answers, I'd look into hormone imbalances. You can get your hormone levels tested next time you have your normal OB/GYN visit or a regular physical. If the results come back as being outside the normal range, your regular doctors may send you off to the endocrinologist to find out what may be the cause of your hormone imbalance or for treatment. Cholesterol should be one of the tests performed with any regular physical.

I also suggest doing your own research as to what "normal" hormone levels actually are. The old norm allowed for much higher numbers than what revised studies have indicated so if your doctor isn't keeping up with the times, he/she may tell you you're normal when you're not. And make sure to get a copy of all of your test results from your doctor. Empower yourself and avoid having doctors repeat tests that have already been done, possibly saving yourself time and money.

Gluten allergy and celiac testing I know less about since I haven't done them myself. But I'll be working harder at avoiding gluten and sugar to see if it can help with my most recent flare up.

Another thought I had was that perhaps too many alkaline or acidic foods could be to blame? Ph balance - could make sense.

Some other basic things to consider:

Make sure that your partner is clean before fooling around so that he doesn't throw your system out of balance with random bacteria. Even foreplay can cause problems if he doesn't wash his hands.

Drink a lot of water to keep your urinary tract clear.

And this one may seem a little crazy but could masturbating help produce more natural fluids to flush your system or help get the flora back in balance... as long as you don't introduce bad bacteria in the process? I don't know. I guess it would depend on why it is out of balance and it could just aggravate the symptoms by spreading things around. Could be a fun theory to test out though.

One thing I saw in previous comments that bothered me: the idea that using a tampon to "soak things up". All it would do is keep things trapped. It could give you temporary relief by keeping discharge away from the more sensitive outer areas, but long-term, is sure to make things worse by keeping bacteria trapped and stopping the natural process our bodies have for flushing things out.

I hope some of these ideas help others in their search for answers.
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#22 of 61 Old 01-20-2010, 04:57 AM
 
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Hi Ladies

I was wondering whether any of you have found anything that works yet?

I think I have had problems with vaginitis from GBS on and off for 6 years, when it was first discovered while I was pregnant with my second child. Anyway recently I had a flare up, which started out seeming like a yeast infection, with itching and burning. I treated it myself, to no avail. After 4 days of intense itching, burning and swelling of the vulva, I went to see my GP, who has finally come back to say its GBS, and that she wants me to take Amoxil for 7 days (3x500mg daily). Needless to say I am wary of taking such a huge dose of antibiotic, especially as it doesn't seem to help keep the strep at bay for a long time.

As a matter of interest I had been to see the doc about 6 weeks ago with a vaginal infection - lots of discharge, pain during intercourse but no itching / burning otherwise. She said she thought it was BV and gave me clindamycin pessaries. I have now found an article which claims that vaginally administered clindamycin is no longer used for BV as it has been shown to cause Strep vaginosis (http://www.wdxcyber.com/npapvg11.htm), so I wonder if that is what has kicked off this episode for me?

My doc had also suggested I try douching with Betadine. I have done this a couple of times, but am not sure if it helps or not. Anyone else tried this and had any success?

So fellow sufferers...are there any wonder cures out there that you can share?

Many thanks
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#23 of 61 Old 01-20-2010, 10:37 AM
 
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Do any of you ladies have an unpleasant odor down there?

Something has been going on with me for a few years now. I tested positive for GBS during my second pregnancy almost three years ago and was given IV antibiotics right before delivery. Since then intercourse has been very painful, almost like my vaginal opening cannot stretch open and a feeling of extreme dryness during sex, even if using massive amounts of lubricant. At a regular GYN (not the same doc who diagnosed the GBS and delivered my babies) checkup about a year after giving birth, the doc said that my vagina appeared shrunken and prescribed estrogen cream which I didn't use because of some nasty side effects. She said that my vagina would return to normal even without the estrogen cream when I stopped breastfeeding.

A year and a half after that appointment I'm still not feeling normal. I don't have the itching or burning that one associates with a yeast infection, just a general soreness in my vulva. Some bath soaps really cause burning down there, so I have been using a natural olive oil soap with no fragrance to alleviate that problem. I've also tried using different laundry detergents, thinking I might be sensitive to a particular fragrance or chemical but that has not helped. My biggest complaint though, aside from the painful intercourse, is the odor. Really pungent and strong and I cannot ever wash it away. No thick discharge, but a constant wetness in my underwear that is uncomfortable. I'm getting paranoid about the odor--I'm washing my undies and pants two and three times to get rid of the smell. Not only is intercourse physically uncomfortable but I am so self conscience about the odor--my dh can smell it as soon as my undies come off. I feel gross!

I had a GYN appointment about about three weeks ago--pap came back normal, no bacterial infection or yeast present in the cultures taken. I was tested for herpes (which I knew I didn't have) and that was negative as expected. The exam was torture, lots of pain upon insertion of the speculum. My GYN thinks it is pre diabetes as I had gestational diabetes with both of my pregnancies and have diabetes on both sides of my family. Yet a two hour glucose test came back with perfect numbers.

Help!! My husband has been very patient. I am losing patience however. I want to be normal, have a normal sex life, and not have to worry if people who pass me on the street can smell me.


I am 37 years old, about 20 pounds overweight and suspect I have a sluggish thyroid if that means anything.
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#24 of 61 Old 02-02-2010, 05:14 PM
 
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i am so very grateful to have found this forum. i have actually been crying today and could use a chat with other ladies who know how awful this can be. my symptoms started right after my OB had sent me to the ER for what she suspected was appendicitis. (It turned out to be much simpler - just strained muscles due to a disc herniation in my low spine.) I was in the hospital for 2 days, which included a pelvic intravaginal ultrasound and a lack of great hygiene as I was not allowed to bathe for the first 36 hours i was there. sigh.

on the morning of discharge, i started to feel like i was coming down with a UTI so i had my husband drive me straight to my OB's office to drop off a urine sample. Sure enough, it was positive for leukocytes so they started me on Keflex. Two days later i had a followup appointment and my OB told me that they cultured the urine and it turned out to be full of GBS. so, they put me on amoxicillin 500mg 4x a day for 10 days.

by day 5 i was turning a bit yellow. the OB took me off the amoxicillin to test my liver function. (it turned out to be fine.) i asked if i needed to continue the regimen and they said no, it should be fine.

ever since i have been dealing with this really strong burning sensation, very little discharge - if anything very dry down there - and pain. there wasn't initially any smell but more recently after trying to treat it first for yeast and later for BV, there is now a smell with the irritation. sometimes it is so uncomfortable i have to sit on a bag of iced peas to relieve the discomfort.

they had me try monistat 7, then i also tried acidophilus both orally and vaginally, and then RePhresh 3 times. my OB said if that didn't work they would send me to a vulva clinic. which sounded expensive, and alarmist - so instead i called my GP.

my GP's office cultured me for everything!!! everything!!! a whole STI panel including herpes, my thyroid, you name it. it came back negative for all except that i am again (or still) colonized with very high levels of GBS.

my real downfall is the internet. even though my GP has assured me that i should not be losing sleep over the GBS, i am freaking out. i have read that people with symptomatic GBS are more likely to get kidney infections and also really scary studies about sepsis caused by GBS in older adults or people with immunodeficiencies. while i do have Hashimoto's thyroiditis, it is controlled with medication and other than that i have always considered myself to be a fairly healthy person. i don't eat gluten or sugar, and i eat a lot of protein and vegetables and rice.

i am really scared. they prescribed a new round of penicillin 500mg 10 days (this time to take the whole regimen) but i had a reaction to the penicillin and so now i need to go see my allergist to make sure that i am not allergic to penicillin.

how long can a woman live with GBS without it causing really bad disease?
am i freaking out unnecessarily?
will i ever be able to have sex with my husband again without worrying that it is just making things worse?
i feel so alone right now. everyone tells me not to worry but they are not the ones in my body feeling this much irritation and pain.

thanks for any thoughts you may have, or advice about what has worked for you.
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#25 of 61 Old 06-24-2010, 04:01 PM
 
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Ladies, Like I have so many days recently, I desperately googled for any info I could possibly find on this life-changing topic; and luckily I somehow stumbled across your thread. I cannot begin to express how grateful I am that I found it- for you all have provided me with more info than nearly a dozen doctors, a personal background in healthcare AND 8 months worth of intensive research on this horrible problem!!!
I have been suffering like you for 8 months (seems like a dozen years!) and am so utterly exhausted, confused, upset, hurting and ready to scream! I have had it with drs who won't admit when they don't know what to do so they just keep prescribing more antibiotics and creams THAT DONT WORK!!! My bathroom looks like a pharmacy and I have spent enough money on over the counter lotions, creams, ointments, sprays, douches, suppositories, etc that I could probably stock a pharmacy!!!
So finding you has definately been bittersweet. Although I wish this on NO ONE- it is a comfort to know that I am not the only one! I think I am going to try some of your suggestions in regards to diet changes. Can someone please explain exactly how you use the garlic, as well? I want to make sure to do it correctly. And is there anything else anyone has found that soothes topically?

One last question, has anyone ever heard of someone who has beaten this horrible thing? Do IV antibiotics work? FYI... I too have hashimotos thyroiditis. Do you think that has somehow contributed to this? Its like an immune system double whammy!

Thanks again for all the info ladies! Good luck to you all (and myself), and may God Bless Us!!!
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#26 of 61 Old 07-03-2010, 03:49 PM
 
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Girl friends, stay away from SUGAR! I know beyond a shadow of a doubt, that the strep B gets "cleared up" with an antibiotic, then all is well. But last week I failed to notice the sugar content of an item (and I drank it for 2 days!) So it was back to the doctor, and I'm trying to get cleared up again. I think my dr. is becoming convinced or at least opened minded about this. Sugar must "feed" the strep. (I guess like sugar feeds yeast?!) Please, please drastically cut back your sugar intake! I think you will be thrilled but first go on an anti-biotic and get cleared up, then extremely mimimal sugar. Use a substitute and question what people serve you!
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#27 of 61 Old 07-22-2010, 11:34 AM
 
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http://www.midwiferytoday.com/articles/garlic.asp


Check this out. I friend sent it to me and it is exactly how I got it.
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#28 of 61 Old 07-22-2010, 03:19 PM
 
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Definitely have a ton of probiotics. I'd also put yogurt inside. And have your dp wear a condom with yogurt inside for a few nights. Alternate with garlic.

My guess is that fighting the strep makes room for yeast and then you fight yeast and make room for strep and on and on.
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#29 of 61 Old 07-23-2010, 07:58 PM
 
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I've heard from many mamas with this condition and know some personally so I've researched this issue a lot. The key is probiotics BUT the right kind. It's specific strains of lactobacillus that adhere to the mucus lining of the vagina and produce hydrogen peroxide to keep the area clean, at the proper ph, free of strep and other bacteria that don't belong, and odor free.

From WebMD:
Quote:
For decades, some women have used Lactobacillus acidophilus in yogurt or supplements to treat bacterial vaginosis. But researchers now know that dairy lactobacillus does not work for bacterial vaginosis. This is because dairy lactobacillus is not the kind of bacteria that normally lives in the vagina. Researchers have found two different types of lactobacillus-L. crispatus and L. jensenii-that are most commonly found in a healthy vaginal environment. Research is now focusing on using these types of lactobacilli in capsules.7
There are a couple hard to get lactobacillus strains which are studied for colonizing the vagina.... l. crispatus and l. rhamnosus.

http://jcm.asm.org/cgi/content/full/37/9/3062

The only 2 brands I know of are Jarrow's Femdophilus with l. rhamnosus and Pharmax Mindlinx with l. crispatus that are specifically studied to adhere to vaginal lining. Google crispatus to read more about that and bv.

Acidophilus, yogurt or kefir bacterial strains are not going to colonize that particular area of the body. Antibiotics are like a flash fire, you need to replace the friendly bacteria or else the strep will just regrow to take up the place and that is why antibx and certain probiotics just do not work.



Quote:
Originally Posted by gilamama View Post
I also recomend taking a strong probiotic - on an emptly stomach.
some probiotics do mention this... but others do not like the stomach acid, and it's better to take with a meal to help them survive with a higher ph.

Quote:
Originally Posted by BooskiBoo View Post
FYI... I too have hashimotos thyroiditis. Do you think that has somehow contributed to this? Its like an immune system double whammy!
Definitely. As my holistic registered dietician explained it, beneficial bacteria have a harder time implanting. Are you gluten free? That is reportedly the number one thing Hashi's patients need to do. The gluten protein is similar to the thyroid protein cells... the body continues fighting the thyroid if gluten is eaten.
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#30 of 61 Old 07-27-2010, 05:36 PM
 
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Thanks for the info. I've ordered the Jarrow's probiotics.
I'm in "bad shape" now and just like some said, the antibiotics don't clear it up any more. I'm also going to try the garlic. Now I understand why the probiotic that I took before, did not help.
Thanks so much and please continue with information as it becomes available.
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