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#181 of 1016 Old 04-01-2007, 10:41 PM
 
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Originally Posted by beachbuminthecity View Post




Could you please let us know what the out come was for the other symptoms, cause I have the same exact ones too and I am on Armour meds. (I have only been on Armour for 2 months now was on synthyroid for a while and before that some few other different ones). I have had bad acne since I got married at 21yrs old--that is when I stopped birth control pills after 8 months on it and when I was diagnosed with hypothyroid, I am 43 yrs old now. As for the chin hairs that just started about a year ago and my weight gain changes alot--not sure if it is not being active in the winter, still figuring that one out. As for tireness I still have too and that I have good and bad days. And I have been waking up feeling exhausted. Mind you I have no kids and get at least a good 6 hrs sleep and then toss and turn.[/COLOR]

This is me!! Well, sorta...

I am DESPERATELY trying to figure out what the heck is going on with my body. I have a diagnosed bad leaky gut which is causing a lot of problems, but there are some things that just don't make sense to me.

I was healthy, beautiful skin, beautiful hair, etc. before I got pregnant. I was on the BC pill for about 2 years, and when I went off, I started getting acne. Once I got pregnant, it was HORRIBLE!! Like to the point where I didn't want to go out in public. it was all over my face, back, chest, arms...disgusting!! I KNOW it was hormone related, but everyone assumed it would go away after the pregnancy. Well, it hasn't. I also developed BAD eczema on my face and hands that seemed to get worse when my acne got worse. Here's the interesting thing: BOTH OF THESE WENT AWAY FOR THE 2 WEEKS AFTER DD'S BIRTH!!! I was so happy and excited. I was getting my clear skin back and my hands could actually be put in water without my wanting to scream in pain. Then bam...just like it went, it came back. So aren't hormones like all wacky after birth? I think they sort of became more "normalized" and then went back to how screwed up they usually are.

I wake up in the morning exhausted. Dd doesn't sleep well and keeps me up a lot, but still...I shouldn't be more exhausted in the morning than when I went to bed.

I got the results of my nutrient elements test back and everything is high: zinc, magnesium, etc. so now we have to test our water.

I have low progesterone and normal-range estrogen (I think...althought it could be low too). I haven't been tested for testosterone. Maybe I should? I seriously think a lot of my problems are hormone related, but nobody will take me seriously.

My body temps are low (96-97 range) and I went on T3 treatment for Wilson's a week and a half ago. I got palpitations and had a high pulse, so I've had to wean off of it. I don't know if it was helping, but I noticed as I started to wean off that the "foggy" feeling was coming back and I felt constantly exhausted and low-energy. So maybe it was?! I start another round soon to see if I can get up to a dose that will get my temp up to 98.6 without side effects. I was up to a pretty high dose, but my temp didn't go over 98

Okay, I've rambled on enough, and probably half of this stuff makes no sense, but if anybody had any ideas...I would really appreciate it. I hate feeling ugly and tired all of the time :

Mama to DD 06' Partner to Sasa
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#182 of 1016 Old 04-01-2007, 10:58 PM
 
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I never got tests for hormones, part of me wants to and part doesn't. I also not sure but kind of think it is maybe part my thyroid--part hormones--and part adrenal fatigue(sp?)and possible part overgrowth yeast--my diet does make a diff.. I am thinking of changing docs. but my situation is holding back right now.

I know how you feel about the feeling ugly and with tired especially in the morning--sucks Your suppose to wake up feeling not tired, right, arrggg. I am so tired of feeling tired, I just want to feel normal.
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#183 of 1016 Old 04-02-2007, 04:50 PM
 
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Well apparently if you have no tonsils your thyroid takes over the job of your tonsils and your thyroid "forgets" how to do it's original purpose.
REALLY?!?!?!

I haven't had time to read this whole thread.

I went to my ND last week with a printed off list of symptoms of hypothyroidism. I put a check next to the ones I had.. she explained them all off..

Oh this is because you are fat (ok it wasn't phrased like that but that was the jist.) Oh dry skin? You don't drink enough water, craving for sweets? You have pre diabetes. She had me take some stupid "quiz" for the likely hood of diabetes and SHE scored me as a 45 the HIGHEST she has ever seen!!!! Of course my 9lb8oz son counted 10 points against me. never mind is 6'6" father who weighed 9'12" himself or that all the girls were in the low to mid 8'lbs.

Anyway I was wonder if there was a quiz i could print out to take in to show her that all these symptoms add up to X like the diabetes one. Instead of a long list of symptoms that could be anything. Sigh.

My symptoms:

Mother had it, Aunt had/has it, Grandma had it,

Depression, Rage/anger/irritability, craving for sweets, no sex drive, (it was low now it is non exisitant,) Weight gain/inability to loose weight, recent birth, (symptoms got worse at about 6 weeks PP.) No motivation, My elbows are really dry.. it got better while I was pregnant and I thought it was due to the fish oils.. but they are worse than ever now in spite of fish oils, my ND had me start taking kelp (just in case) and now my throat feels funny.. like something is suck way down in there...mostly at night... when I lay down at night my heart starts beating really fast, joint pain, pain in the bottom of my feet, AF returned at 4 months even though I am exclusively BFing.. might fall under irregular periods.. i dont know, muscle pain, uncoordinated movement. (a couple times in the last few weeks I will just miss a step on the stairs.) appitite lose, i was never hungry this pregnancy nor afterwards.. sure I will get hungry at like 3 or 4 if I haven't eaten all day.. but I am not generally hungry often. My CBC's always show anemia or like one point above what is considered anemia.

Oh and apparently lack of tonsils seems to be a risk factor as well.

so does anyone know of a quiz like thing I can take her?

Oh yea.. she told me to stay off the internet... :
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#184 of 1016 Old 04-02-2007, 10:44 PM
 
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I'm so sorry aniT, I know how frustrating it is going to clueless medical professionals! If your ND is that afraid of you educating yourself and asking questions, maybe you should just start looking for a new doctor or ND? I wish I had a quiz-like list of symptoms for you. You know come to think of it, I think there might be something like that on about.com but I don't remember exactly where. You might also want to check out natural_thyroid_hormones yahoogroup and www.stopthethyroidmadness.com and they might have some help for you, but seriously I would move beyond this ND you're currently seeing if at all possible. Good luck!!
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#185 of 1016 Old 04-02-2007, 11:26 PM
 
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Well she is the only ND in town and DH works for her in trade. We don't have insurance. Sigh. I think I might just have to go in there and insist she order tests or something.
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#186 of 1016 Old 04-03-2007, 01:15 PM
 
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After 10 years of not getting my hypo properly treated I did my own testing and I am now self treating with the help of people at the Stop the Thyroid Madness forum.

You can order your own testing at Canary Club: http://www.canaryclub.org/component/...page/Itemid,1/

The Diagnos-Techs test is the best one. It is $141.50 and it tests:
"Thyroid Tests (TSH, Free T4, Free T3, microsomal antibody)

Adrenal Stress Tests (four samples for cortisol and DHEA) .. This involves one saliva sample collected in the morning before breakfast, another sample collected around noon (before lunch), another around 4 p.m.
(before dinner), and another around 10 p.m. (before bed).

Sex Hormone Tests (estrogen, progesterone, testosterone) .. Men and menopausal women can do this one saliva sample testing on any day of any month. Menstruating women should do this one saliva sample testing on day nineteen, twenty or twenty-one of their cycle. (Day one is the first day you notice bleeding)"



Notice that this does the free T3 which is more important than the T3 uptake tests that are usually done.

It tests for antibodies so if you have Hashi's it won't be missed. Most docs only do TSH and if that's fine then they are all done with you.

It also tests your adrenals. The majority of people who are Hypo also have adrenal insufficiency because their hypo has gone undetected for so long that it has made the adrenals overcompensate to make up for it and as a result they are worn out...

Adrenal insufficiency symptoms:

* Extreme weakness
* Fatigue
* Unintentional weight loss
* Nausea and vomiting
* Chronic diarrhea
* Loss of appetite
* Darkening of the skin - patchy skin color
o Unnaturally dark color in some locations
o Paleness may also occur
* Mouth lesions on the inside of a cheek (buccal mucosa) - pigmentation
* Slow, sluggish movement
* Changes in blood pressure or heart rate
* Salt craving
* Sugar cravings


(Of these my symptoms were fatigue, weakness, no appetite until 5pm, salt and sugar cravings, dizzy everytime I stand quickly. As you can see you don't need all of the symptoms to have it.)

If your adrenals are not treated as well then you will get to a point where you can not raise you Armour anymore even though you need to. You will start to get Hyper symptoms sooner than you should.

The test kit is free. You pay when you send it back to the lab.

If you need help understanding your tests go to the Stop the Thyroid Madness forum "TSH and Labwork" http://www.stopthethyroidmadness.com...forum.php?f=11 . Do not have Canary Club help you with the results (they are doing it for profit STTM is not).
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#187 of 1016 Old 04-23-2007, 12:08 PM
 
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I was diagnosed with hypothyroidism 8 years ago and have been on 100mcg/day of hormone replacement. Everything has been going very well at this level apart from a brief increase to 125mg/day a few years ago. This was also sufficient through my last pregnancy and postpartum - no changes were required.

Now I am 18 weeks pregnant with #2 and things are very different - my level has been increased twice already to 150mcg/day and I still see the unwelcome symptoms (but some could just be plain pregnancy ones!). I understand that about 85% of hypo women need to increase their medication during preganacy but I can't help getting concerned when each test shows a worsening situation. I would really love to hear of your experiences during pregnancy; what increase in medication did you see? Did you get back to your initial levels postpartum?
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#188 of 1016 Old 04-23-2007, 02:59 PM
 
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Originally Posted by eleanorm View Post
I was diagnosed with hypothyroidism 8 years ago and have been on 100mcg/day of hormone replacement. Everything has been going very well at this level apart from a brief increase to 125mg/day a few years ago. This was also sufficient through my last pregnancy and postpartum - no changes were required.

Now I am 18 weeks pregnant with #2 and things are very different - my level has been increased twice already to 150mcg/day and I still see the unwelcome symptoms (but some could just be plain pregnancy ones!). I understand that about 85% of hypo women need to increase their medication during preganacy but I can't help getting concerned when each test shows a worsening situation. I would really love to hear of your experiences during pregnancy; what increase in medication did you see? Did you get back to your initial levels postpartum?
I am hypo due to radiation treatment for a hyper thyroid. My last pregnancy I went from 100 micrograms of synthroid to 175 micrograms a day during my pregnancy. I was back to the original 100mcg by 4 months pp :-) I wouldn't worry about you levels dropping as long as you are being tested often and adjusting your dose as needed. I saw my endo about once a month while I was pregnant.
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#189 of 1016 Old 04-23-2007, 03:03 PM
 
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I have graves even after my thyroidectomy in 98. I just found a great DO (Doc of Osteopath) who put me on natural thyroid hormone.
My dd2 has congenital hypo and is still on synthroid, which we will be changing soon.
I learned a lot from this site

www.stopthethyroidmadness.com

All my best!

Mama to 5 babies. UCer, too!
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#190 of 1016 Old 04-23-2007, 03:05 PM
 
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wow- just looking over this thread- seems y'all know of that site!!!!

Mama to 5 babies. UCer, too!
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#191 of 1016 Old 04-23-2007, 08:48 PM
 
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Really good book:

Solved: The Riddle of Illness
by Stephen Langer, M.D. and James Scheer
http://www.thyroid-info.com/solved.htm

He recs desiccated thyroid and has lots of info from Broda O. Barnes' clinical work with BBT testing and same.
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#192 of 1016 Old 04-26-2007, 03:56 PM
 
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I just found this thread and I love it!

I was diagnosed with hashimoto's last year when I got pregnant. I've been on synthroid since. Right now 100mg. After I gave birth, I turned very hyperthyroid and suddenly very hypothyroid (my tsh was 97 at one point). I talked to my endo about switching to armour but she talked me out of it. i feel fine on synthroid but i hear that long term use has very bad side effects.

anyone with this problem?
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#193 of 1016 Old 04-26-2007, 06:16 PM
 
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Why did your endo say that you shouldn't switch to armour? I'm planning on asking mine about it soon.

The Most Important Person on earth is a mother...She has built something more magnificent than any cathedral-a dwelling for an immortal soul, the tiny perfection of her baby's bodyâ¦-Cardinal Mindszenty
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#194 of 1016 Old 04-26-2007, 09:03 PM
 
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she said that when you take T4 hormones (synthroid), your body takes the T4 that it really needs and it converts it to however much T3, T2, etc that is needed. She said that taking Armour your body can't control that conversion, you get T4 and T3 as is in the drug. It made sense at the time when I heard it but I don't want to be on Synthroid if I have to be on it forever. I feel fine on synthroid so far and she said she would only recommend Armour for those patients who don't do well on Synthroid.

What do you guys think?
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#195 of 1016 Old 04-26-2007, 09:10 PM
 
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Here is some info on why T4 meds are bad:
http://www.stopthethyroidmadness.com...eds-dont-work/

I was on synthroid then Levoxyl over the last 10 years and I never felt much better. I was always depressed and I believe the 2 miscarriages I had were the result of low T3.

No matter what you take Sythroid, Armour etc... it is usually for life.
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#196 of 1016 Old 04-26-2007, 09:17 PM
 
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Originally Posted by amore74 View Post
she said that when you take T4 hormones (synthroid), your body takes the T4 that it really needs and it converts it to however much T3, T2, etc that is needed. She said that taking Armour your body can't control that conversion, you get T4 and T3 as is in the drug. It made sense at the time when I heard it but I don't want to be on Synthroid if I have to be on it forever. I feel fine on synthroid so far and she said she would only recommend Armour for those patients who don't do well on Synthroid.

What do you guys think?
The biggest problem is that many many people CANNOT make the conversion to the active form of T3 on a cellular level correctly and that is why they still have symptoms on Synthroid.

That is also why Armour is usually started on a 1/4 or 1/2 grain and then slowly increased to avoid overdose.

Mary Shomon is the person to go to for info. on this. Her books and at About.com.
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#197 of 1016 Old 04-26-2007, 09:18 PM
 
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No matter what you take Sythroid, Armour etc... it is usually for life.

Unless you have Wilson's Low Temp Syndrome... you only take T3 for a short time.
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#198 of 1016 Old 04-27-2007, 01:14 AM
 
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I had Grave's disease, diagnosed at 15 years old (had a resting heart rate of 125+ and palpitations so we went to the ER). There were other symptoms as well, but the racing heart was what got us looking into the cause.

I got the radioactive iodine treatment and am now hypo. Was on Synthroid for nearly 10 years but never, never, ever felt good on it. Finally saw a different specialist who said I needed to be on the high end of normal and he switched me over to Armour. I've been on Armour for 8 years and I have never felt better in my life. Praise God!!!

My pharmacist asked me after noticing I switched from Synthroid to Armour how I liked it. I said I loved it and never felt better. He said that when he notices people make the "switch" he always asks them and every single person so far had said they do better on Armour. Interesting.
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#199 of 1016 Old 04-27-2007, 06:11 AM
 
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Amanda,
Thanks for sharing your experiences. It makes me feel better to hear your story to give me confidence that this situation is temporary and hopefully will go back to normal shortly after the baby arrives.
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#200 of 1016 Old 04-27-2007, 07:52 AM
 
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Here is some info on why T4 meds are bad:
http://www.stopthethyroidmadness.com...eds-dont-work/

I was on synthroid then Levoxyl over the last 10 years and I never felt much better. I was always depressed and I believe the 2 miscarriages I had were the result of low T3.

No matter what you take Sythroid, Armour etc... it is usually for life.
that is a great web site.

i am also concerned about possible miscarriages in the future (i plan on having more children, so far only ds).

so how much synthroid did you take?
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#201 of 1016 Old 04-27-2007, 12:30 PM
 
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I was on 88mcg of Levoxyl at the time of my miscarriages. I switched to Armour in December, so far I'm up to 3 1/2 grains. I'm also on 20mg of Hydrocortisone for my adrenals.
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#202 of 1016 Old 04-27-2007, 01:24 PM
 
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did you switch doctors or did your doctor at the time switch you from one to the other?

i'm going to have labwork done again today. i feel like i might be on too high of a dose. i feel like i've been drinking too much caffeine. i'm also thinking about switching drs.
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#203 of 1016 Old 04-27-2007, 01:42 PM
 
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So, my story is I was diagnosed with Graves in 1992, ignored it for about 3 yrs until my goiter got so big it was choking me. 1998, complete thyroidectomy, and immediately plummeted into Hypothyroidism. my dosage of synthroid went from .05mcg to now- a hefty dose 400/300 mcg alternating days. Since the surgery, I never was able to get my levels in check, and I went through 6 endocrinologists in my state to find the right doctor- and I just switched from an endo- to an DO, Doctor of Osteopath.(Thanks to stop the thyroid madness site) and she took me off synthroid and I am now on dessicated thyroid. (like armour)
It has been 1 week and I feel 100% better.
My energy is up some, my aches are minor, and my headaches are less.
Now, my 2.5 yr old has congenital hypothyroidism and she is seeing several doctors for that- and endo from Yale, the DO,pediatric opthomalogist, and massage therapists. I have a strong feeling that her thyroid disfunctions contribute to her vision problems, which are severe.
She is on synthroid, but soon to be on Armour I hope.

Mama to 5 babies. UCer, too!
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#204 of 1016 Old 04-27-2007, 05:20 PM
 
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amyjeans-
thanks for sharing your story. I hope that the new DO and all the other specialists help your daughter. I was wondering if I need to have my son tested since I have Hashimotos. I was wondering if he can get anything through breastmilk (excuse my ignorance).
I just found a DO that prescribes bioidentical hormones so I might go to see him after I get the results of my bloodwork.
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#205 of 1016 Old 04-30-2007, 11:15 PM
 
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For any one who is internested here is my TSH data. I had post partum hypothyroid after both pregnancies. Treated it with supplements while under the care of an MD who practices integrated medicine. I probably spend more on my supplements than I would on an Rx : But it seems to work for me for now. Although my thyroid funtion is getting normal I am have terrible mood swings and bouts of rage I think my estrogen is out of whack now...or maybe it is in whack and I am supposed to be this way ! ? I get really bad headaches right before my period starts - never had that before.

TSH
.35-5.5
11/13/96 1.3
10/28/02 "normal"
1/5/05 9.35 8 mos postpartum 1st child
1/18/05 7.23
3/3/05 2.995
3/30/05 3.948
6/1/05 2.78
8/10/05 2.221 Monitoring TSH while pregnant
9/23/05 3.633
10/7/05 3.302
11/2/05 2.117
12/2/05 2.895
1/4/06 2.637
3/15/06 2.852
5/1/06 2.84
6/12/06 1.783
10/2/06 14.156 6 mo postpartum 2nd child
11/30/06 3.513
1/4/07 5.139
4/3/07 3.026 Second baby is one yr old
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#206 of 1016 Old 05-01-2007, 02:42 AM
 
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When my TSH is where yours is now I have mood swings and bouts of rage. Even though it may be considered "in the normal range" it is not good. I'm guessing if your TSH is off then your free T3 & T4 are also out of whack. If you don't get all of those levels where they need to be you risk heart problems and osteoporosis in the future.

Do you feel tired all of the time? Untreated Hypo often causes adrenal fatigue, then you'll have that to deal with as well.

If your having mood swings and rage the supplements are not working for you very well. When my Armour dose is right all moodiness, anger and depression are GONE!!!!!!

Your right about the cost. A prescription of Armour is about $20 a month.
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#207 of 1016 Old 05-02-2007, 12:07 AM
 
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Mommyshine, I've been noticing something that may be similar. I feel a lot better since I did my round of heavy-duty supplements, and I'm on lower levels now (still doing the do-it-yourself approach, but I think I'm going to try to find a professional knowledgeable in this stuff after we move this summer). But I think my hormones are off, too. I've started charting again and based on what I see, I think there's too much estrogen and not enough progesterone--my luteal phase it too short and it never was before. I've found hints in my reading that too much estrogen is part of the whole hypo thing. But I'm a bit stumped on where to go from here.

I got recommendations for a couple books that I'm going to order soon to see what should be next. Does your alternative doc have thoughts on this? Personally I'm worried because although I really don't want to get pregnant now (the last pregnancy was murder on my body and I'm just glad the baby seems healthy), I do hope for more kids and I don't think I could get pregnant the way I am (such a short luteal phase). And it does seem that your last TSH is a bit high, I know I felt okay at 1.05 but immediately after I went in to my ex-doc with symptoms (it was fast, so maybe my TSH was still changing, not sure how quickly that happens, but my symptoms came on very suddenly), my TSH was still only 1.55. It took quite a while to drift high enough to raise a red flag despite my symptoms. But I digress.

And may I ask (did I ask before?) how long were you on your supplements? And if you've stopped (or tapered to a lower level) how long has that been? I took my heavy-duty doses for ~2 months (I started to feel better in 2 weeks, I wasn't sure how long that would take) and now I'm on lower doses and fewer (the regime I was doing had me taking fistfuls of pills and I'm glad that part is over). Still relatively high levels of selenium and zinc and B vitamins.

Take care.
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#208 of 1016 Old 05-02-2007, 09:21 PM
 
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Has anyone here worked with the Women to Women clinic out of Maine (or via web) for thyroid/hormone related problems? What do you think about their program? http://www.womentowomen.com/hypothyr...limbalance.asp

Has anyone tried their supplements? http://www.womentowomen.com/essentialnutrients.asp

I've subscribed to this thread and appreciate the conversation. I'm still trying to sort through all the info I've read and heard over the last year to determine my best course of action. Frankly, it is all very confusing and contradictory : : It all depends on the source and both camps (conventional vs. alternative) can be quite convincing (especially when also marketing a product), as I'm sure many of you have noticed.

In a nutshell, I have Hashi and low-functioning thyroid (known from tests), however, I also know there is much more going on than just thyroid problems--definitely hormone related but I feel within the realm of being corrected with lifestyle changes and supplements (I am hopeful ).

Thanks for the discussion!
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#209 of 1016 Old 05-02-2007, 10:03 PM
 
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I had never heard of that web site but that has some great info. I also have Hashimoto's and I'm on synthroid. Although I feel fine and my tsh is in normal range, I don't want to be on synthroid for the rest of my life.

If you do visit them or order their supplements, please let us know how you are doing with them. That sounds very interesting.
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#210 of 1016 Old 05-03-2007, 01:01 AM
 
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Hi Moonlightinvt, I'll add in my 2-cents on what I've done. Doing my various reading I ended up at ithyroid.com, a website written by a man who dealt with his hyper- and hypothyroidism with mineral/vitamin supplements. He doesn't sell anything or recommend where to buy, so there's some degree of objectivity, but it still has to be weighed with everything else out there. He's combined a lot of human and animal studies on minerals and vitamins and their relationship to thyroid function and come up with a list of things to take for a while--not forever, thank goodness, because even buying online, it was expensive, and it was a pain and a half to take so many pills. I ended up taking the slew of pills he recommended, though, and it worked for me--I felt significantly better in ~2 weeks.

It was scary, back in January when I started this. I felt horrible, I had a prescription for synthroid in hand and I was deciding not to fill it.

And like I wrote above, the hormonal imbalance thing still seems to be an issue for me, but I just read a passing comment (in the newest issue of Mothering, interestingly enough) linking high copper and high estrogen. Since zinc deficiency is one of the major players in the approach I've taken, and zinc and copper have an opposing relationship, I am wondering if I'm just still low on zinc but not so much on selenium and iodine, the other two main minerals that were deficient. I'm off to do more reading on minerals and estrogen and see what I can find, but maybe this is my next step. I'm not done, by a long shot, but it's started me on a good road to more learning.
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