Healing the Gut Tribe-February - Page 3 - Mothering Forums

Forum Jump: 
Reply
 
Thread Tools
#61 of 251 Old 02-13-2007, 05:30 PM
 
LovinLiviLou's Avatar
 
Join Date: Aug 2004
Location: dreaming of a day when . . .
Posts: 474
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by 2rubies View Post
Thank you for responding right away. I know that I lasted about a year on the SCD and stopped a flare of colitis in its tracks. I assumed that it would be a great way to eat long-term, but it was so expensive and so boring after a while. I agree that one of the tricks to it is that I eat so many vegetables that I otherwise may not be eating regularly. The better nutrition, in general, must be part of the healing. We have eliminated gluten, but it has not been more than a week. I'm hoping his sleep pattern will improve (it certainly can't get worse ) and I'm just feeling impatient and wanting a "quick fix". He's almost 8mos now, too, and I'm nervous about starting solid foods for him until I figure this out. On the other hand, it may be easier to pinpoint a problem if he is eating it himself-in good time, of course. Thank you for your insight!

Kristin

I think the SCD intro diet minus dairy and eggs is a good "elimination diet" if you're looking for a quick fix. I've been on SCD for about 6 1/2 mos for my little one (who is also 8 mos now). She is not healed, but is a lot better. I completely avoid all dairy, eggs, gluten/wheat and cinnamon, and am very sparing with properly prepared NT grains now (I stayed strict SCD for about 4 mos, then started adding in some grains). It does get boring, but after a while I just got really emotionally removed from food (which was probably a good thing, actually) and now it doesn't bother me except when I'm somewhere (like at a conference for work) with catered food and there is nothing I can eat. I also do two types of bifidus - the Soloray and NAtren Bifido Factor dairy free. Anyway, the change in my daughter is so obvious. so, even though I haven't found the silver bullet and healed everything, we're existing in a state of being that is way better than when she is reacting to foods. Her immune system has also gotten a lot stronger. PM me if you're interested in more info on our journey. Good luck!
LovinLiviLou is offline  
Sponsored Links
Advertisement
 
#62 of 251 Old 02-13-2007, 07:07 PM
 
Punchy Kaby's Avatar
 
Join Date: Mar 2006
Location: Here there and everywhere
Posts: 1,787
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by 2rubies View Post
Caedmyn-
Could I just ask you to elaborate a little on whether or not the SCD would help a nursling? My son has some issue going on, I think probably a dairy allergy, but that isn't all. I thought by healing my gut, he would be healed as well. He hasn't had solids at all yet. His main symptoms are sleeplessness and green, mucousy stools (sorry). He sleeps so little at night, I am getting desperate for some rest! I thought this sounded like it could help. I'd truly appreciate any insight you can offer!

And any suggestions from anyone about what this might be? Eliminating dairy has eliminated the eczema that was starting to show up. Do I really need a strict diet like SCD for help? I've used it before for me (ulcerative colitis), and thought just maybe it could help him.

Thanks so much!
Kristin
I have been having some success with the Failsafe diet, which is a low food chemical diet. I had done SCD for about 6 months and it didn't help much. DS's eczema is almost gone, his stools are normal, he sleeps beautifully, and his demeanor is greatly improved (which I never thought was a problem) He is much happier. I am much happier too, as well as having better digestion, more energy, better attitude. We are sensitive to salicylates and amines, which are a subset of phenols. We are not completely healed yet but in 6 weeks we have come a long way. We are still on the elimination diet with no gluten, casein, eggs, soy. I will be doing challenges soon for the foods I want to add back in soon.
http://www.plantpoisonsandrottenstuf...tion-diet.aspx
http://www.fedupwithfoodadditives.in.../Factsheet.htm
http://users.bigpond.net.au/allergyd...tolerance.html

We create our own reality.
Punchy Kaby is offline  
#63 of 251 Old 02-13-2007, 09:18 PM
 
2rubies's Avatar
 
Join Date: Oct 2004
Location: Missouri
Posts: 173
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Thank you so much, everyone for your help! Nolansmum, you've given me lots to read! Instinctively, I know that I should be baking our own bread and making waffles from scratch instead of buying them frozen. That avoids all additives. It's just that with this little sleep, even thinking about all that cooking makes me tired! I do need to get to the bottom of this, and soon, so I'll be following this thread and reading everything I can.

You are wonderful teachers!

Kristin

Kristin, Mommy to 3 boys : (11,9,5) :

2rubies is offline  
#64 of 251 Old 02-13-2007, 10:57 PM
 
mum2be's Avatar
 
Join Date: Jul 2005
Location: Midcoast Maine
Posts: 1,228
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Help!!

I posted awhile ago about the issues we are having with dd (5 months) and "her" allergies. I haven't been posting in this thread for a bit because I was waiting for my "leaky gut" test to arrive from Genova Diagnostics and was waiting to take it and get the results.

Well, I got the results and my ND was shocked. Apparently the lactulose levels were something like 4.6 (when they should be under 1.2?) but my mannitol levels were just slightly high. The doctor at the labs actually wanted to know if I had been to any foreign countries and could have picked something up in the water to cause such high results

So, apparently it's pretty bad.

Here's my question: (And I know most everyone on this board believes that "breast is best" and so forth...so didn't I, but please put your opinions on that issue aside and tell me what you think we should do from a medical stand point.)

Dd's symptoms are getting worse. Her sleep is getting worse (I get 3-4 hours total per 24 hours). She is miserable, I am miserable.

Would it be beneficial for her to go on an elemental formula (Neocate, etc.) since I am dealing with this? THere's no telling if she has it too, right? Wouldn't the elemental formula allow her gut to heal if she does have leaky gut?

I'm at a loss here. I don't know what to do, but I do know what's happening now isn't working.


Another question:
What should I be doing? I'm working with my ND on this one, but are there "leaky gut" specialists? The lab wants a stool sample too to rule out any bacteria, etc. as a possible source for my high levels on the LG test.

Any help would be GREATLY appreciated!!

I must go now and try to get dd to sleep again!

Mama to DD 06' Partner to Sasa
mum2be is offline  
#65 of 251 Old 02-13-2007, 11:03 PM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mum2be View Post
Help!!

I posted awhile ago about the issues we are having with dd (5 months) and "her" allergies. I haven't been posting in this thread for a bit because I was waiting for my "leaky gut" test to arrive from Genova Diagnostics and was waiting to take it and get the results.

Well, I got the results and my ND was shocked. Apparently the lactulose levels were something like 4.6 (when they should be under 1.2?) but my mannitol levels were just slightly high. The doctor at the labs actually wanted to know if I had been to any foreign countries and could have picked something up in the water to cause such high results

So, apparently it's pretty bad.

Here's my question: (And I know most everyone on this board believes that "breast is best" and so forth...so didn't I, but please put your opinions on that issue aside and tell me what you think we should do from a medical stand point.)

Dd's symptoms are getting worse. Her sleep is getting worse (I get 3-4 hours total per 24 hours). She is miserable, I am miserable.

Would it be beneficial for her to go on an elemental formula (Neocate, etc.) since I am dealing with this? THere's no telling if she has it too, right? Wouldn't the elemental formula allow her gut to heal if she does have leaky gut?

I'm at a loss here. I don't know what to do, but I do know what's happening now isn't working.


Another question:
What should I be doing? I'm working with my ND on this one, but are there "leaky gut" specialists? The lab wants a stool sample too to rule out any bacteria, etc. as a possible source for my high levels on the LG test.

Any help would be GREATLY appreciated!!

I must go now and try to get dd to sleep again!
Formula will probably make things worse. The two mamas on this tribe who weaned (both to solids as their DC were older) saw their DC go downhill after weaning.

What have you tried so far for healing? What foods have you eliminated from your diet or ruled out as allergens? Is your DD getting any probiotics? If she's not I would start her on high doses of a dairy free bifidus infantis probiotic immediately--I recommend those from www.customprobiotics.com because you can give a very high dose for the same price as a much lower dose of store-bought probiotics but they are pricey up front. Otherwise maybe go with Solaray BabyLife--they helped my DD.
caedmyn is offline  
#66 of 251 Old 02-14-2007, 04:56 PM
 
LovinLiviLou's Avatar
 
Join Date: Aug 2004
Location: dreaming of a day when . . .
Posts: 474
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by Nolansmum View Post
I have been having some success with the Failsafe diet, which is a low food chemical diet. I had done SCD for about 6 months and it didn't help much. DS's eczema is almost gone, his stools are normal, he sleeps beautifully, and his demeanor is greatly improved (which I never thought was a problem) He is much happier. I am much happier too, as well as having better digestion, more energy, better attitude. We are sensitive to salicylates and amines, which are a subset of phenols. We are not completely healed yet but in 6 weeks we have come a long way. We are still on the elimination diet with no gluten, casein, eggs, soy. I will be doing challenges soon for the foods I want to add back in soon.
http://www.plantpoisonsandrottenstuf...tion-diet.aspx
http://www.fedupwithfoodadditives.in.../Factsheet.htm
http://users.bigpond.net.au/allergyd...tolerance.html
Nolansmum - that's awesome about your progress!
LovinLiviLou is offline  
#67 of 251 Old 02-14-2007, 05:58 PM
 
bluets's Avatar
 
Join Date: Mar 2005
Location: Bloomington, IN
Posts: 3,141
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by mum2be View Post
Help!!

I posted awhile ago about the issues we are having with dd (5 months) and "her" allergies. I haven't been posting in this thread for a bit because I was waiting for my "leaky gut" test to arrive from Genova Diagnostics and was waiting to take it and get the results.

Well, I got the results and my ND was shocked. Apparently the lactulose levels were something like 4.6 (when they should be under 1.2?) but my mannitol levels were just slightly high. The doctor at the labs actually wanted to know if I had been to any foreign countries and could have picked something up in the water to cause such high results

So, apparently it's pretty bad.

Here's my question: (And I know most everyone on this board believes that "breast is best" and so forth...so didn't I, but please put your opinions on that issue aside and tell me what you think we should do from a medical stand point.)

Dd's symptoms are getting worse. Her sleep is getting worse (I get 3-4 hours total per 24 hours). She is miserable, I am miserable.

Would it be beneficial for her to go on an elemental formula (Neocate, etc.) since I am dealing with this? THere's no telling if she has it too, right? Wouldn't the elemental formula allow her gut to heal if she does have leaky gut?

I'm at a loss here. I don't know what to do, but I do know what's happening now isn't working.


Another question:
What should I be doing? I'm working with my ND on this one, but are there "leaky gut" specialists? The lab wants a stool sample too to rule out any bacteria, etc. as a possible source for my high levels on the LG test.

Any help would be GREATLY appreciated!!

I must go now and try to get dd to sleep again!
from what i've been reading grains are terrible for people with leaky gut. they contain a protein called zonulin which exacerbates leaky gut. it actually holds open the spaces between the cells. not a good thing as one wants food to be broken down and pass through the cells. casein, i've heard, acts much the same way.

if your lactulose levels are super duper high and your mannitol levels are only sort of high, i think that mean you have more of a problem with leaky gut and not so much of a problem with malabsorption. (or is it the other way around?)

NDs are more likely to be useful in helping resolve leaky guts. few mainstream docs even know what it is.

i had success (1) eliminating all dairy (and i really do mean all, including cow and goat milk - i was OCD about labels for a while); (2) somewhat adopting SCD, at least those elements that fit my life; (3) taking a glutamine supplement (IntestiNew followed by Glutagenics, for a total of 4 months); (4) kefir, sauerkraut, sourdough bread only (the sourdough process breaks down most of the zonulin and gliadin, but not all of it). i notice i feel much better without wheat and relatives, so we tend to eat more rice than anything. (5) evening primrose oil (3 grams per day) and KAL's UltraOmega 369 (4 capsules per day). adding the oils made my skin feel just lovely

my ND told me to keep nursing as breastmilk is still the perfect food (it is secreted and secretion is the basis of nutrition), even if it comes from a mama with a leaky gut.

eliminating dairy completely resulted in ds's eczema going away within a few days. the EPO helped get rid of the last 1% of it. once i started the glutamine, my sinus issues went away within a few days.

Jennifer, Naturopath and mom

bluets is offline  
#68 of 251 Old 02-14-2007, 07:21 PM
 
APmomma's Avatar
 
Join Date: Mar 2005
Location: Chicagoland
Posts: 77
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
I have a question. Would you consider gas a definite sign of an intolerance? My ds's blood has cleared as I mentioned already with the removal of dairy, soy, and eggs. I don't eat peanuts or treenuts or fish. I am just trying to make sure I *catch* all of his intolerances and if there are any left, I am assuming it may be wheat. The only sign he has though of any intolerance is gas during the night. It's not all the time either, just random nights. He will squirm and bunch up his body in a way that seems uncomfy and then let out gas. Is some gas just *normal* as my ped. says or would you consider it *abnormal* and the sign of some intolerance? If not, what signs tip you off for uncovering your child's intolerances? My son is just not cranky and never was-even with the blood in the stool, so it is hard to figure out. He's almost 4 months-if that matters.

Thanks!!
APmomma is offline  
#69 of 251 Old 02-14-2007, 09:42 PM
 
Chinese Pistache's Avatar
 
Join Date: May 2006
Location: Under a shady tree, you and me
Posts: 5,854
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
In the case of gas, I would say it's a question of degree. Yes, some gas is normal, but if it cause discomfort, it's probably the result of some irritating food. My dd got that way with blueberries. When we cut back on her consumption of them, the gas abated. She could still eat them, just not so many.

Others might have more educated opinions on the subject though.
Chinese Pistache is offline  
#70 of 251 Old 02-15-2007, 03:34 AM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
bluets--do you know if all grains contain zonulin, or just wheat/gluten-containing grains? And is sprouting or soaking grains effective at breaking it down, or is it just sourdough?

Also, do you know if the glutamine (glutamates?) in bone broth is any more or less effective than taking a glutamine supplement? And have you seen any studies on how long it takes glutamine to heal a leaky gut?
caedmyn is offline  
#71 of 251 Old 02-15-2007, 03:10 PM
 
bluets's Avatar
 
Join Date: Mar 2005
Location: Bloomington, IN
Posts: 3,141
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by caedmyn View Post
bluets--do you know if all grains contain zonulin, or just wheat/gluten-containing grains? And is sprouting or soaking grains effective at breaking it down, or is it just sourdough?

Also, do you know if the glutamine (glutamates?) in bone broth is any more or less effective than taking a glutamine supplement? And have you seen any studies on how long it takes glutamine to heal a leaky gut?
zonulin: my error here. our bodies make zonulin and it is the overproduction of it that creates the leaky gut situation. zonulin is released in response to gluten and gliadin (the proteins in grains) (nice press release here http://www.umm.edu/news/releases/zonulin.htm).

http://www.members.cox.net/hal.kraus/glossary.htm for a glossary of gluten and related terms. gliadin is only one component of several found in the gluten protein chain. excellent definitions, explanations at http://www.celiac.com/st_prod.html?p...55107622116.77

it is my understanding that neither soaking nor fermenting remove gluten or its components, though it may break it down into smaller bits of protein. for those with gluten sensitivity (or worse), even these processes don't degrade the proteins enough for the body.

from the exchanges on the yahoo GFCFNN list, it seems that some people are sensitive to a lot of different forms of gluten (including those in corn and in some rice). they seem to learn what is tolerable only by doing challenges after a period of time of a totally gluten-free diet (which often times means grain free).

-----

glutamine and leaky gut: okie dokie, first understand that most research (at least in this regard) is done in the complicated patients (patients with AIDS, patients taking lots of NSAIDs, patients with full-blown celiac disease, patients getting parenteral nutrition (through a feeding tube?) etc.)...

http://www.blackwell-synergy.com/lin...8.00290.x/abs/
- not clear on duration but they suspect at least 8 grams per day, maybe even as much as 20 grams, in patients with AIDS (who apparently have major problems with intestinal permeability).

http://www.springerlink.com/content/x228112563w28401/
- not glutamine but green banana and pectin are supposed to be helpful in reducing intestinal permeability

http://www.ncbi.nlm.nih.gov/entrez/q...=pubmed_docsum
- 30 grams per day of glutamine for 7 days resulted in a significant change in the lactulose/mannitol ratios

there are a number of studies that say they don't see an effect of glutamine but the abstract doesn't mention how much glutamine was administered (i'm at home right now so no access to the full articles). i suspect one would see changes with low amounts over a long period of time (using doses on labels of products as guidelines). if one were to really push the glutamine in major doses, it would probably resolve more quickly.

role of glutamine is important to understand. it is used by inflammatory cells within wounds (or areas of tissue damage) and as a source of energy. glutamine is considered to be a necessary component of the process of tissue repair, especially after surgery (you can bet that dh will be adding a glutamine supplement now that he feeling a bit better from surgery the other day). when the body is stressed, glutamine is released from skeletal muscle (particularly following injury or surgery) such that it can cause a relative deficiency of glutamine in both skeletal muscle and the gut. very readable articles on glutamine: http://www.thorne.com/media/glutamine_monograph.pdf and http://www.thorne.com/media/glutamine.pdf

curiously, my ND mentioned that (blech) SPAM (yes, THE Hormel stuff) is excellent for minerals and probably glutamine as well. i personally can't stomach the stuff myself... but he says that the way it is made, they just grind up all the parts of the animal that get into bone broths (so if you're feeling lazy and you like spam...). he was really excited in a nerdy geeky way that i make bone broths - most of his patients are vegan or vegetarian so he doesn't even bother talking about their therapeutic value with them.

Jennifer, Naturopath and mom

bluets is offline  
#72 of 251 Old 02-15-2007, 03:13 PM
 
bluets's Avatar
 
Join Date: Mar 2005
Location: Bloomington, IN
Posts: 3,141
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by APmomma View Post
I have a question. Would you consider gas a definite sign of an intolerance? My ds's blood has cleared as I mentioned already with the removal of dairy, soy, and eggs. I don't eat peanuts or treenuts or fish. I am just trying to make sure I *catch* all of his intolerances and if there are any left, I am assuming it may be wheat. The only sign he has though of any intolerance is gas during the night. It's not all the time either, just random nights. He will squirm and bunch up his body in a way that seems uncomfy and then let out gas. Is some gas just *normal* as my ped. says or would you consider it *abnormal* and the sign of some intolerance? If not, what signs tip you off for uncovering your child's intolerances? My son is just not cranky and never was-even with the blood in the stool, so it is hard to figure out. He's almost 4 months-if that matters.

Thanks!!
high sulfur foods can cause a lot of gas (broccoli, brussel sprouts, cabbage, onions, garlic, cauliflower, etc.). you can try Homeopathic Sulfur to see if this helps. else, a broad spectrum digestive enzyme might also help.

my ds often asks to nurse at night when he needs help passing gas (a pattern i only just figured out!).

Jennifer, Naturopath and mom

bluets is offline  
#73 of 251 Old 02-15-2007, 04:00 PM
 
krankedyann's Avatar
 
Join Date: May 2005
Location: Buried in recipes in Asheville, NC
Posts: 2,283
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by bluets View Post
http://www.ncbi.nlm.nih.gov/entrez/q...=pubmed_docsum
- 30 grams per day of glutamine for 7 days resulted in a significant change in the lactulose/mannitol ratios

there are a number of studies that say they don't see an effect of glutamine but the abstract doesn't mention how much glutamine was administered (i'm at home right now so no access to the full articles). i suspect one would see changes with low amounts over a long period of time (using doses on labels of products as guidelines). if one were to really push the glutamine in major doses, it would probably resolve more quickly.
OK, so this got me curious, and to get 30 grams in one day, I would have to take 10 tsp of the powder I have here. I'm wondeing if anyone knows anything about potential side effects or problems with this level of dosage? I'd gladly give it a 7 day trial run to see if it would help me.

KerryAnn @ CookingTF dot com - Nutrient dense foods your kids will LOVE!  Real Food Cooking School and Lactofermentation Classes now live! Use coupon code "CTF" for 20% off.

krankedyann is offline  
#74 of 251 Old 02-15-2007, 04:33 PM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by bluets View Post
there are a number of studies that say they don't see an effect of glutamine but the abstract doesn't mention how much glutamine was administered (i'm at home right now so no access to the full articles). i suspect one would see changes with low amounts over a long period of time (using doses on labels of products as guidelines). if one were to really push the glutamine in major doses, it would probably resolve more quickly.

curiously, my ND mentioned that (blech) SPAM (yes, THE Hormel stuff) is excellent for minerals and probably glutamine as well. i personally can't stomach the stuff myself... but he says that the way it is made, they just grind up all the parts of the animal that get into bone broths (so if you're feeling lazy and you like spam...). he was really excited in a nerdy geeky way that i make bone broths - most of his patients are vegan or vegetarian so he doesn't even bother talking about their therapeutic value with them.
So...theoretically, anyway, having a cup or so of bone broth a day is likely to be just as effective as taking a relatively low dose glutamine supplement like Intestinew?
caedmyn is offline  
#75 of 251 Old 02-16-2007, 01:25 AM
 
formerluddite's Avatar
 
Join Date: Nov 2006
Posts: 877
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by bluets View Post
parenteral nutrition (through a feeding tube?)
clarification: enteral nutrition is through a feeding tube: PEG (percutaneous endoscopic gastrostomy, also known as G-tube, for gastrostomy: tube into stomach), or J-tube (jejunostomy, into jejunum, in cases where the stomach must be bypassed). for short term (<3 wks): an NG tube (naso gastric tube, into the nose and down into the stomach, used when someone is unconscious, or right after a stroke/brain injury, before deciding if a PEG is needed). food is basically formula, like ensure.

parenteral nutrition is used when bowel rest is needed for some reason. feeding is a mix of salts, lipids, proteins and sugars, directly through an IV.

thanks for another great mini seminar, bluets! i've been considering trying glutamine, but too lazy to research.

ETA: i just noticed your ds is only 2 days younger than my dd2!

my signature is usually illegible
formerluddite is offline  
#76 of 251 Old 02-16-2007, 04:31 PM
 
bluets's Avatar
 
Join Date: Mar 2005
Location: Bloomington, IN
Posts: 3,141
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by krankedyann View Post
OK, so this got me curious, and to get 30 grams in one day, I would have to take 10 tsp of the powder I have here. I'm wondeing if anyone knows anything about potential side effects or problems with this level of dosage? I'd gladly give it a 7 day trial run to see if it would help me.
more details at http://www.itmonline.org/arts/glutamine.htm which seems like a reasonable site as any other i've encountered.

i'd suggest gradually building up to 30 grams though. for some reason, it strikes me that our bodies like slow increases, not sudden ones. perhaps a week of 10 grams, a week of 20 grams and then a week of 30 grams ?

in the april 2006 HTG thread, JaneS mentions that high doses of glutamine can cause hyperactivity but doesn't point to references (so maybe this is commonly known?).

Do not take glutamine if your kidney (renal) or liver (hepatic) function is poor or impaired. (from http://64.233.167.104/search?q=cache...ient=firefox-a)

also, check out http://www.whfoods.com/genpage.php?t...rient&dbid=122

this page (http://www.drhoffman.com/page.cfm/170?cache=0) has info on glutamine for IBD specifically, and cite a study that actually used 50 grams/day (duration unknown without reading the article).

Jennifer, Naturopath and mom

bluets is offline  
#77 of 251 Old 02-16-2007, 04:38 PM
 
bluets's Avatar
 
Join Date: Mar 2005
Location: Bloomington, IN
Posts: 3,141
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by caedmyn View Post
So...theoretically, anyway, having a cup or so of bone broth a day is likely to be just as effective as taking a relatively low dose glutamine supplement like Intestinew?
probably though IntestiNew also contains N-acetyl-glucosamine, also something needed in the glutamine pathway. it also has a bunch of healing herbs. when i started it, i looked up everything at http://www.wholehealthmd.com just for a cursory understanding of what they all did. if i recall, the Glutagenics product contains DG licorice (i'm not even going to attempt spelling that deglycer... word right now) and aloe vera juice. it tastes better than intestinew though my dh hated them both.

see http://www.townsendletter.com/FebMar.../broth0205.htm for an awesome piece on bone broths. though it doesn't mention glutamine as a component.

so the ND also recommended MSM (organic sulfur) in addition to glutamine. his reasoning was that glutamine strengthens the epithelial cells and MSM helps strengthen the interstitial spaces (the connective tissue). if i recall rightly, i think i may have noticed less creaking in my knees when i was on MSM than before. i am a poor sulfur metabolizer but MSM didn't seem to give me obvious troubles. maybe it's just coz i wolf down my food and don't chew very well (bad bad bad habit).

Jennifer, Naturopath and mom

bluets is offline  
#78 of 251 Old 02-16-2007, 05:24 PM
 
mum2be's Avatar
 
Join Date: Jul 2005
Location: Midcoast Maine
Posts: 1,228
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by bluets View Post
from what i've been reading grains are terrible for people with leaky gut. they contain a protein called zonulin which exacerbates leaky gut. it actually holds open the spaces between the cells. not a good thing as one wants food to be broken down and pass through the cells. casein, i've heard, acts much the same way.

if your lactulose levels are super duper high and your mannitol levels are only sort of high, i think that mean you have more of a problem with leaky gut and not so much of a problem with malabsorption. (or is it the other way around?)

NDs are more likely to be useful in helping resolve leaky guts. few mainstream docs even know what it is.

i had success (1) eliminating all dairy (and i really do mean all, including cow and goat milk - i was OCD about labels for a while); (2) somewhat adopting SCD, at least those elements that fit my life; (3) taking a glutamine supplement (IntestiNew followed by Glutagenics, for a total of 4 months); (4) kefir, sauerkraut, sourdough bread only (the sourdough process breaks down most of the zonulin and gliadin, but not all of it). i notice i feel much better without wheat and relatives, so we tend to eat more rice than anything. (5) evening primrose oil (3 grams per day) and KAL's UltraOmega 369 (4 capsules per day). adding the oils made my skin feel just lovely

my ND told me to keep nursing as breastmilk is still the perfect food (it is secreted and secretion is the basis of nutrition), even if it comes from a mama with a leaky gut.

eliminating dairy completely resulted in ds's eczema going away within a few days. the EPO helped get rid of the last 1% of it. once i started the glutamine, my sinus issues went away within a few days.
Thank you for your advice!

What qualifies as grains? I've been on a diet of a few veggies, potatoes, basmati rice, and some exotic meats for about 5 months now. I've been gluten/wheat/soy/dairy/yeast free since last June. There doesn't seem to be much healing going on, it's only getting worse.

I take cod liver oil, a digestive enzyme, probiotics (Pharmax HLC), ProDHA, EFAs, cal/mag, L. Reuteri and a B-Vit complex.

I'm not seeing any improvement. How do I know when I am healing? There has to be something else I can do. What about my baby? She's been on probiotics for a while. I just feel like everytime I nurse her, I'm poisoning her

My ND offered us her frozen BM. Should we take that? Would it bother dd the same way as mine? The ND eats little wheat, but dairy and soy I'm sure.

I feel so helpless right now.

We're waiting on my stool sample to rule out bacteria as the cause.

Mama to DD 06' Partner to Sasa
mum2be is offline  
#79 of 251 Old 02-16-2007, 05:43 PM
 
bluets's Avatar
 
Join Date: Mar 2005
Location: Bloomington, IN
Posts: 3,141
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 1 Post(s)
Quote:
Originally Posted by mum2be View Post
Thank you for your advice!

What qualifies as grains?

grains: wheat, corn, oats, barley -- (these contain gluten for sure; not all the same kind of gluten, but gluten just the same); rice (different varieties/species contain different amounts/types of gluten, not so similar to wheat gluten to be troublesome)

i'd suggest varying your rice and see if it is basmati rice in particular that is troublesome.

see my posts above on glutamine. the more i read about glutamine, the more i become convinced that it is KEY in all healing. make yummy bone broths and slow cook your rice in them. get your hands on a supplement and use fairly high doses. might be a good discussion to have with your ND but there's some work that suggests 30 grams per day might be required to see an improvement. make your ND hunt down good values for therapeutic purposes. you're paying her, no? you can (and should) expect her to do a little research on your behalf.

Jennifer, Naturopath and mom

bluets is offline  
#80 of 251 Old 02-16-2007, 11:36 PM
 
mamajaillet's Avatar
 
Join Date: Jul 2006
Location: oregon
Posts: 54
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Hello mamas!

Well I posted a couple of months ago, and wish that I could be more involved with this thread. It has been a great resource for me as we try to figure out our digestion issues. My dh and I are starting a CSA (community-supported agriculture) this year after moving onto our land last summer when dd was 2 months, so although our healing is my top priority, it is coming in bits and pieces as I work with my nd and try to research on my own. I haven't been able to read the thread since before Christmas, but I have a couple of questions that I need some "expert" advice on

My biggest struggle right now is deciding how I feel about allergy testing/avoiding allergens. My nd doesn't believe that we need to know all of our allergens or avoid them in order to heal the underlying problem. We are, of course, doing lots of probiotics (saurkraut, water kefir, kombucha, reuteri for me, 30 hour raw yogurt, dairy kefir, water kerir, saurkraut and HMF neuropowder (w/glutamine) for my boys, and solarray babylife and water kefir for dd). Other than that, her treatment is unda numbers--homeopathics that perform cellular drainage, ie basically heal the underlying imbalances. I believe in their power to heal, I just don't know if I believe we can heal while we eat our allergens. I could count the number of normal bf poops she had on my two hands, and now with solids, mild mild eczema and more green poop. Along these lines, is the dairy kefir and yogurt more healing than harmful if we have intolerences. Should we abstain or partake--that is the question

My dd is so happy and comfortable, she just doesn't poop well, which I know is a major problem. She gains weight and seems strong and healthy though. However, so did her brothers when they were little, and now my oldest at least gets so upset sometimes, freakishly so, and has sensory issues, acts crazy, probably on that line somewhere, although mildly so, others say they don't see it. I just want him to feel calm and collected..well. And I don't want my dd to grow into this behavior. This makes me want to just scrap the foods that are causing the problems, kwim?

Thanks for any wisdom you have to share.
mamajaillet is offline  
#81 of 251 Old 02-17-2007, 12:40 AM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mamajaillet View Post
Hello mamas!

Well I posted a couple of months ago, and wish that I could be more involved with this thread. It has been a great resource for me as we try to figure out our digestion issues. My dh and I are starting a CSA (community-supported agriculture) this year after moving onto our land last summer when dd was 2 months, so although our healing is my top priority, it is coming in bits and pieces as I work with my nd and try to research on my own. I haven't been able to read the thread since before Christmas, but I have a couple of questions that I need some "expert" advice on

My biggest struggle right now is deciding how I feel about allergy testing/avoiding allergens. My nd doesn't believe that we need to know all of our allergens or avoid them in order to heal the underlying problem. We are, of course, doing lots of probiotics (saurkraut, water kefir, kombucha, reuteri for me, 30 hour raw yogurt, dairy kefir, water kerir, saurkraut and HMF neuropowder (w/glutamine) for my boys, and solarray babylife and water kefir for dd). Other than that, her treatment is unda numbers--homeopathics that perform cellular drainage, ie basically heal the underlying imbalances. I believe in their power to heal, I just don't know if I believe we can heal while we eat our allergens. I could count the number of normal bf poops she had on my two hands, and now with solids, mild mild eczema and more green poop. Along these lines, is the dairy kefir and yogurt more healing than harmful if we have intolerences. Should we abstain or partake--that is the question

My dd is so happy and comfortable, she just doesn't poop well, which I know is a major problem. She gains weight and seems strong and healthy though. However, so did her brothers when they were little, and now my oldest at least gets so upset sometimes, freakishly so, and has sensory issues, acts crazy, probably on that line somewhere, although mildly so, others say they don't see it. I just want him to feel calm and collected..well. And I don't want my dd to grow into this behavior. This makes me want to just scrap the foods that are causing the problems, kwim?

Thanks for any wisdom you have to share.
From my experience with DD, I had not seen any healing until I figured out her allergens. Once I finally figured them all out, her eczema started to go away and her poop became completely normal (well her stools are sometimes a bit harder than I would like but never green or mucousy anymore). Of course now it seems like her eczema may be getting worse again so maybe she's reacting to something new, but anyway, it's clear to me that no matter what I did, DD did not heal at all while she/I were still eating her allergens. And in my opinion, if someone reacts to dairy, yogurt and kefir will do more harm that good. There are plenty of alternatives to them, anyhow--coconut milk yogurt or kefir for one if you don't react to coconut.

My DD also is healthy and growing well, and has no behavioral issues (well maybe sleep issues but I'm not sure how much of that is just habit). But she's intolerant to major food groups (dairy, wheat, nuts, eggs, and coconut), has mild whole-body eczema, and mild yeast issues...I can live with it, things could be much worse, but I don't want either of us to be on restricted diets forever, and who knows what else will come up if I don't figure out how to heal her

Sorry, that turned into a bit of a vent...just wanted to say I know where you're coming from!
caedmyn is offline  
#82 of 251 Old 02-17-2007, 12:43 AM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mum2be View Post
Thank you for your advice!

What qualifies as grains? I've been on a diet of a few veggies, potatoes, basmati rice, and some exotic meats for about 5 months now. I've been gluten/wheat/soy/dairy/yeast free since last June. There doesn't seem to be much healing going on, it's only getting worse.

I take cod liver oil, a digestive enzyme, probiotics (Pharmax HLC), ProDHA, EFAs, cal/mag, L. Reuteri and a B-Vit complex.

I'm not seeing any improvement. How do I know when I am healing? There has to be something else I can do. What about my baby? She's been on probiotics for a while. I just feel like everytime I nurse her, I'm poisoning her

My ND offered us her frozen BM. Should we take that? Would it bother dd the same way as mine? The ND eats little wheat, but dairy and soy I'm sure.

I feel so helpless right now.

We're waiting on my stool sample to rule out bacteria as the cause.
What are you and your DD's symptoms? Do either of you have yeast issues?

IMO if you're not seeing improvement, you're not healing. And if you know your DD reacts to wheat, dairy, and/or soy, then I believe she would react to BM from someone who eats those things (although maybe if they didn't have a leaky gut she wouldn't). I guess you could try the frozen BM from your ND and see what happens

ETA: Forgot to mention, if your baby seems to be allergic/intolerant to everything, you may want to consider a rotation diet. That will help keep her from developing new sensitivities to your restricted diet, hopefully give her some time to heal in between foods, and should make reactions to a particular food clearer.
caedmyn is offline  
#83 of 251 Old 02-17-2007, 03:46 AM
 
mamajaillet's Avatar
 
Join Date: Jul 2006
Location: oregon
Posts: 54
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by caedmyn View Post
From my experience with DD, I had not seen any healing until I figured out her allergens. Once I finally figured them all out, her eczema started to go away and her poop became completely normal (well her stools are sometimes a bit harder than I would like but never green or mucousy anymore). Of course now it seems like her eczema may be getting worse again so maybe she's reacting to something new, but anyway, it's clear to me that no matter what I did, DD did not heal at all while she/I were still eating her allergens. And in my opinion, if someone reacts to dairy, yogurt and kefir will do more harm that good. There are plenty of alternatives to them, anyhow--coconut milk yogurt or kefir for one if you don't react to coconut.
That is my gut ( ) instinct on this as well.

...
Quote:
things could be much worse, but I don't want either of us to be on restricted diets forever, and who knows what else will come up if I don't figure out how to heal her
Exactly!! And I keep thinking this or that will heal us, but I am pretty sure now that there is no magic bullet (SCD, NAET, etc). I know many moms of kids with allergies that take it no further, and just eat restricted diets; I wonder sometimes if in the end, this is what we will have to accept. I just really believe that we can heal whatever is causing us to have allergies in the first place, it is probably just a longer road than I thought at first.

Quote:
Sorry, that turned into a bit of a vent...just wanted to say I know where you're coming from!
mamajaillet is offline  
#84 of 251 Old 02-17-2007, 12:05 PM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mamajaillet View Post
Exactly!! And I keep thinking this or that will heal us, but I am pretty sure now that there is no magic bullet (SCD, NAET, etc). I know many moms of kids with allergies that take it no further, and just eat restricted diets; I wonder sometimes if in the end, this is what we will have to accept. I just really believe that we can heal whatever is causing us to have allergies in the first place, it is probably just a longer road than I thought at first.
Have you tried NAET? I'm going to try health kinesiology, which I believe is fairly similar, for DD here in a few weeks. So far I've been trying to do all of this gut healing alone (well, other than the gut-healing mamas of course!), but I'm ready to try for some outside help.
caedmyn is offline  
#85 of 251 Old 02-17-2007, 12:27 PM
 
APmomma's Avatar
 
Join Date: Mar 2005
Location: Chicagoland
Posts: 77
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by caedmyn View Post
ETA: Forgot to mention, if your baby seems to be allergic/intolerant to everything, you may want to consider a rotation diet. That will help keep her from developing new sensitivities to your restricted diet, hopefully give her some time to heal in between foods, and should make reactions to a particular food clearer.

Can you explain how a rotation diet works? What are the benefits of it? Are you just rotating non-allergic foods or adding in the foods you suspect sensitivies to?
APmomma is offline  
#86 of 251 Old 02-17-2007, 12:43 PM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by APmomma View Post
Can you explain how a rotation diet works? What are the benefits of it? Are you just rotating non-allergic foods or adding in the foods you suspect sensitivies to?
Basically you only eat each food or food group no more than every 4 days. Ideally you rotate the food groups (ie onions and garlic are part of the same food family so you eat both the same day and then none for 4 days, same with wheat, oats, and barley, etc). I'm not sure rotating food groups is always necessary, at least for some of the food groups--it's probably okay to just rotate a different grain every day as opposed to trying to rotate the grain families since they're groups into just a couple of families. You can try eating only foods she doesn't react to if there are enough of them, or else include foods she reacts to but doesn't have major reactions to. The benefits are basically what I mentioned in the previous post: to help keep her from developing new sensitivities to your restricted diet, hopefully give her some time to heal in between foods, and should make reactions to a particular food clearer. JaneS has had success with a rotation diet for her son after months of trying unsuccessfully to heal his gut.

Here's a couple of links: http://www.tacanow.com/diet.htm
http://www.specialfoods.com/ourstory.html
http://www.parentsofallergicchildren.org/rotation1.htm
caedmyn is offline  
#87 of 251 Old 02-17-2007, 02:59 PM
 
formerluddite's Avatar
 
Join Date: Nov 2006
Posts: 877
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by APmomma View Post
Can you explain how a rotation diet works? What are the benefits of it? Are you just rotating non-allergic foods or adding in the foods you suspect sensitivies to?
another rotation diet i remember reading about took a slightly form: you could eat the same foods for 2 days, then off for 6 days, in a cycle of 4 periods. they felt the "off phase" of 6 days was better, and balanced out having foods 2 days in a row. it also was helpful in allowing leftovers the next day. this diet also looked at food "families" and gave a schedule/menu of ingredients. i wish i could remember where i read it, sorry, too many years of reading stuff. benfits as described by caedmyn.

my signature is usually illegible
formerluddite is offline  
#88 of 251 Old 02-17-2007, 05:14 PM
 
mum2be's Avatar
 
Join Date: Jul 2005
Location: Midcoast Maine
Posts: 1,228
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by bluets View Post
g
see my posts above on glutamine. the more i read about glutamine, the more i become convinced that it is KEY in all healing. make yummy bone broths and slow cook your rice in them. get your hands on a supplement and use fairly high doses. might be a good discussion to have with your ND but there's some work that suggests 30 grams per day might be required to see an improvement. make your ND hunt down good values for therapeutic purposes. you're paying her, no? you can (and should) expect her to do a little research on your behalf.
i noticed you said not to take glutamine if liver function is impaired...mine is. it can no longer filter out any toxins, my liver enzymes are very high and it's actually producing fat for my body.
this is one of the things we are worried about if i continue bf'ing...dd is getting A LOT of toxins through my milk. how can that be healthy on top of everything else??

Mama to DD 06' Partner to Sasa
mum2be is offline  
#89 of 251 Old 02-17-2007, 05:26 PM
 
mum2be's Avatar
 
Join Date: Jul 2005
Location: Midcoast Maine
Posts: 1,228
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by caedmyn View Post
What are you and your DD's symptoms? Do either of you have yeast issues?

IMO if you're not seeing improvement, you're not healing. And if you know your DD reacts to wheat, dairy, and/or soy, then I believe she would react to BM from someone who eats those things (although maybe if they didn't have a leaky gut she wouldn't). I guess you could try the frozen BM from your ND and see what happens

ETA: Forgot to mention, if your baby seems to be allergic/intolerant to everything, you may want to consider a rotation diet. That will help keep her from developing new sensitivities to your restricted diet, hopefully give her some time to heal in between foods, and should make reactions to a particular food clearer.
Dd's symptoms up to month 3.5 when I ate a "bad" food:
-screaming in pain...nothing could comfort her and she wouldn't nurse. This sometimes lasted hours
-abnormal poops: mucus, very loose, etc.
-spit-up milk frequently
-could hear stuff come up and then go back down in her throat (this happened when eating certain foods, but also happened randomly)

Dd's symptoms now from 3.5 months-present (5 months) that are consistent day to day:
-sleep is very restless in short periods (45 minutes all night long) with an inevitable awakening from 2 a.m. till about 5 a.m. with gas/something that is bothering her
-fussy all.day.long (from being overtired or from food? Who knows!)
-allergy "shiners" (although could be dark circles from lack of sleep?)
-only takes 2, 20 minute naps in arms during the day until her eyes suddenly pop open...(no matter how tired she is, this always happens)
-spits up mucusy globs mixed with milk (this sometimes happens very frequently throughout the day, and sometimes she will go a day without doing it)
-sometimes I still hear stuff come up, but then go back down
-her poop is very mucusy, sometimes green (she hasn't had her typical daily huge blowout that was always runny in about 2 weeks now)
-she has tiny skin-colored bumps all over her back and tummy
-small diaper rash that comes and goes despite use of cloth diapers
-cheeks are red and chapped
-persistent runny nose that is usually worse during the night (from teething?)



BTW: my diet is too limited to do a rotation. I have two sources of protein. Everything else is a veggie, or either rice or potato.


Honestly, I don't see how this could be good for either of us. How am I supposed to heal when I can barely eat anything because of her reactions? Or, more importantly, how can I heal my body when I am living on 4 hours of sleep a night because she is always uncomfortable?

What about all the toxins she is getting through my milk because my liver can no longer filter them out?

I am SO afraid I am doing her longterm damage. I don't want to do that. It's not fair to her. I would really do a week trial on Neocate or something if I thought it wouldn't be hell trying to get her to take it. She hardly touches a bottle of EBM now. But, let's just say, that MY milk is doing her harm and she would be better off on formula or someone else's BM...honestly, I think I need to give her the chance. I feel like my healing is being hindered by her need to heal as well.

I hate this. I hate this whole situation and that this is happening to us (and all of you.) Breastmilk is supposed to be good for babies, not harmful. Okay, off to shower now...

Mama to DD 06' Partner to Sasa
mum2be is offline  
#90 of 251 Old 02-17-2007, 06:16 PM - Thread Starter
 
caedmyn's Avatar
 
Join Date: Jan 2006
Posts: 5,226
Mentioned: 0 Post(s)
Tagged: 0 Thread(s)
Quoted: 0 Post(s)
Quote:
Originally Posted by mum2be View Post
Dd's symptoms up to month 3.5 when I ate a "bad" food:
-screaming in pain...nothing could comfort her and she wouldn't nurse. This sometimes lasted hours
-abnormal poops: mucus, very loose, etc.
-spit-up milk frequently
-could hear stuff come up and then go back down in her throat (this happened when eating certain foods, but also happened randomly)

Dd's symptoms now from 3.5 months-present (5 months) that are consistent day to day:
-sleep is very restless in short periods (45 minutes all night long) with an inevitable awakening from 2 a.m. till about 5 a.m. with gas/something that is bothering her
-fussy all.day.long (from being overtired or from food? Who knows!)
-allergy "shiners" (although could be dark circles from lack of sleep?)
-only takes 2, 20 minute naps in arms during the day until her eyes suddenly pop open...(no matter how tired she is, this always happens)
-spits up mucusy globs mixed with milk (this sometimes happens very frequently throughout the day, and sometimes she will go a day without doing it)
-sometimes I still hear stuff come up, but then go back down
-her poop is very mucusy, sometimes green (she hasn't had her typical daily huge blowout that was always runny in about 2 weeks now)
-she has tiny skin-colored bumps all over her back and tummy
-small diaper rash that comes and goes despite use of cloth diapers
-cheeks are red and chapped
-persistent runny nose that is usually worse during the night (from teething?)



BTW: my diet is too limited to do a rotation. I have two sources of protein. Everything else is a veggie, or either rice or potato.


Honestly, I don't see how this could be good for either of us. How am I supposed to heal when I can barely eat anything because of her reactions? Or, more importantly, how can I heal my body when I am living on 4 hours of sleep a night because she is always uncomfortable?

What about all the toxins she is getting through my milk because my liver can no longer filter them out?

I am SO afraid I am doing her longterm damage. I don't want to do that. It's not fair to her. I would really do a week trial on Neocate or something if I thought it wouldn't be hell trying to get her to take it. She hardly touches a bottle of EBM now. But, let's just say, that MY milk is doing her harm and she would be better off on formula or someone else's BM...honestly, I think I need to give her the chance. I feel like my healing is being hindered by her need to heal as well.

I hate this. I hate this whole situation and that this is happening to us (and all of you.) Breastmilk is supposed to be good for babies, not harmful. Okay, off to shower now...


This is just my opinion, and I'm not an expert, so take it with a grain of salt and talk to your ND or do some research on what I'm saying.

It sounds to me like your DD is still a pretty sick and miserable baby. You are restricted to just a few foods and that really isn't helping her a whole lot. A rotation diet has helped people in your situation, whose DC is seemingly allergic to everything. I would really recommend reading through that second link I posted on rotation diets--the author's child was literally sent home from the hospital to die because he was allergic to so many things. She came up with a 7 day rotation diet that consisted of only unusual/exotic foods and he began to recover. After a few years of following this diet, she realized that he was eating foods not on the diet, and not reacting--in fact, he could actually eat a normal diet and did not to react to any foods (IIRC) at all. She has helped many other families in similar situations and they have had similar experiences.

I know you feel your DD would be better off on Neocate or donor BM, and maybe she would be. But...you're also taking the chance that Neocate or donor milk won't make any difference or may even make things worse and then she may or may not go back to the breast.

What are you doing to treat your liver issues? I don't know anything about your specific issues but I do think most of us here probably have less-than-ideal liver function (I know I did/do) and are passing things on to our babies. I have a mouthful of mercury amalgam fillings and I'm sure DD is getting mercury from that but there's nothing I can do about it now (except wean).

I think that you can still heal while sleep-deprived--both JaneS and Annikate have DC that have/had major sleep issues and they both healed in spite of them.

I know you are in a very tough situation and want to do what's best for you and your baby, and maybe the best thing to do would be to try Neocate. It's so hard to say. But I do want to make you aware that there are some other options out there so you can at least look at all the information and make an educated decision. I think it would be easier for all of us to heal ourselves (and theoretically our DC) if we could somehow separate the nursing relationship because so many times it seems what may help mama is not what will help baby.
caedmyn is offline  
Reply

User Tag List

Thread Tools
Show Printable Version Show Printable Version
Email this Page Email this Page


Forum Jump: 

Posting Rules  
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off