Healing the Gut - New Years 2008! - Mothering Forums

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#1 of 47 Old 01-06-2008, 03:37 PM - Thread Starter
 
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old thread

new link on the origins of food allergies

How's everyone doing?

I'm eating starches again (roots, GF oats, and the occasional rice), and actually feeling much better! And I have an appointment with an "open minded" GI specialist on tuesday. Hopefully I'll start getting some answers/direction!

allergy-nutrition mama, dh, 4yo dd, and March ds
Eating shouldn't be stressful!
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#2 of 47 Old 01-06-2008, 06:54 PM
 
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wow..thanks for this article,even though I have studied immunology, I am trying to put everything in pieces. I will have to read this again to understand each and every thing clearly. Very comprehensive stuff. I wish I had thsi article during my Disease processes exam

Pari, Student, Job Seeker and mom to K (2006) and A(2011)
 

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#3 of 47 Old 01-06-2008, 07:09 PM - Thread Starter
 
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Oh right, I meant to put a science disclaimer with it I'm still working my way through, too.

Does anyone know more (or know where to find more) about IgM? Or better yet, a place to totally analyze poop - what different colors, consistencies, etc mean or how they're caused (lack of bile, fast transit, etc)

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#4 of 47 Old 01-07-2008, 12:20 AM
 
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Did you already check the htg cheat sheet? JaneS had a link to some stuff about poop. There is the Bristol Stool Scale, but it's pretty generic.

Jen 47 DS C 2/03  angel.gif04/29/08/ DD S 10/28/09 DH Bill '97.

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#5 of 47 Old 01-07-2008, 01:57 PM
 
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on the topic of poop...... i hate how everyone thinks it's "good" when i'm constipated, just because the blood and diarrhea are so bad. that doesn't make constipation good! i feel quite ill when i'm constipated, especially if i'm getting over a flare (which is when i'm most likely to be constipated anyway).

the other thing that drives me nuts about constipation is that, before i had my monster flare that led to being diagnosed with ulcerative colitis, i was told repeatedly that i had ibs and couldn't possibly have ibd because i had constipation as well as diarrhea, and with ibd i would have only diarrhea. then after being diagnosed with ibd my gi told me that constipation is typical of ulcerative colitis.

after all that, i feel like i know more about poop than any of the doctors i'm seeing.
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#6 of 47 Old 01-07-2008, 02:58 PM - Thread Starter
 
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Originally Posted by Pookietooth View Post
Did you already check the htg cheat sheet? JaneS had a link to some stuff about poop. There is the Bristol Stool Scale, but it's pretty generic.
I thought I'd looked there, but I guess I missed that first link.

Thanks!

allergy-nutrition mama, dh, 4yo dd, and March ds
Eating shouldn't be stressful!
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#7 of 47 Old 01-08-2008, 02:33 PM
 
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Wow, very interesting article. I got an education.

Finally, I am properly introducing myself. I have digestive problems (mom had ulcerative colitis/gluten intolerance, dad has crohn's) and PCOS, and various minor allergic symptoms that I never recognized until recently. My son has some behavioral/mood problems and dyslexia. We both get itchy skin/mild eczema at times. He just had the ELISA + immune complex testing from Sage Labs, and came back with delayed food allergies to LOTS of stuff. I'm afraid our new rotation diet still may be too broad, but it feels VERY restrictive already. Can anyone recommend any info on total elimination diets, best core/safe foods, how to implement with kids, sources of elimination diet-friendly products, etc.?

I'm in week 2 of our elimination/rotation diet, and the kids just went back to school. I am planning school lunches, and just trying to get comfortable with this. I am still finding it pretty challenging, although meal planning has helped a ton. Any suggestions for gut healing in a dairy-free, egg-free, beef-free, gluten-free, gelatin-free, soy-free, white potato-free, garlic-free, salicylate-free family? We have eliminated lots of other stuff too, but those are the biggies. I now make almost everything from scratch, and we avoid all preservatives and additives. We are rotating almost everything except for rice and sweet potatoes. The staples in our diet are chicken, turkey, salmon, garbanzos, other beans, sunflower seeds, sesame seeds, millet, quinoa, rice, flax seed, hemp seed, basil, cilantro, onions, pears, banana, mangos, kiwis, cantaloupe, pineapple, lemons, limes, papaya, pomegranate, persimmon, and I am slowly trialing some nuts like: walnuts, brazil nuts, pine nuts, almonds, and pistachios. I am planning to try lamb, but haven't yet. We use mostly olive oil and coconut oil, although I'm trying to rotate coconut products strictly as I am afraid we might be developing sensitivity to it (stomach aches, runny bowels). We supplement with probiotics, flax seed oil, vit C, moringa tree powder (a vit/min supplement), and are recently starting to do cod liver oil, but my kids aren't crazy about it. I'm also thinking of ordering chia seeds. And we'll be doing a basic multi-vitamin. I'm also planning to start including more sea vegetables.

This way of eating seems to be gradually having some positive impact, but my DS has developed some very mild eczema symptoms he never had in the past (his symptoms are mainly behavioral). I don't know if it is just cleansing, or maybe winter dryness, or if he is allergic to something new in our diets.

Does anyone have any advice for us as we are new to gut healing and it seems we cannot at this point do many of the suggested gut healing foods like: yogurt, gelatin, bone-broths, eggs, etc. Can someone offer details about water keffir, coconut keffir, kombucha mushroooms and other things I keep hearing about? Can anyone suggest some more fairly allergy-safe fruit (my kids love fruit)? Is their a source of dairy-free, gluten-free, soy-free chocolate chips/ chocolates that I could order to trial in a few weeks? (My kids don't seem to be allergic to plain cocoa, but almost all chocolate has soy-lecithin which I am afraid they do react to). That would be a nice treat for them. Also how do I find out about raw milk (for when I am ready to trial dairy)? Would Alta Dena raw aged cheddar be a good substitute?

Sorry for the book, and all the questions. Any input, advice, info, encouragement really is welcome. I just really need to keep up my motivation and learning on this gut healing journey. Thanks.
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#8 of 47 Old 01-08-2008, 05:19 PM
 
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hey ladies. i'm in the TF grain free thread as I am on the SCDiet for Celiac Disease....a healing the gut regimen for CD, UC, Crohn's, etc. I was just wondering if any of you have tried this before. I did it about 4 years ago and it worked really well for me.
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#9 of 47 Old 01-09-2008, 04:05 AM
 
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to you harmonymama. That sounds so hard. I know there are some good allergy cookbooks out there, although I'm not sure how helpful they would be. I have the "Allergy Self-Help Cookbook" and it has a lot about rotation diets and several recipes that have ingredients by food family (several have only arrowroot and amaranth, for example, for the dry ingredients). I know that Trader Joe's has an organic dark chocolate bar that has no soy in it, and one other brand that they sell at Whole Foods has no soy in it, but I don't know about chocolate chips. You could buy a bar and break it up into chunks.

jhow3200 I was on the SCD for a year. It seemed to help my ds more than me, however. I'm still on a quest and it's been over a year since we went off SCD. But I don't have UC either, just food intolerances.

Jen 47 DS C 2/03  angel.gif04/29/08/ DD S 10/28/09 DH Bill '97.

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#10 of 47 Old 01-09-2008, 11:03 AM
 
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Wow! I didn't understand half of that article, but there were some REALLY interesting points in there. Now I know, for instance, why my DD, who was delivered by C-section, ended up with more allergies than anybody else. Ugh. Not that there's anything I could have done about it. Moving on.

I have a website www.kathysrecipebox.com where you can search recipes by allergen. You can still make chicken stock as a bone broth, even if you can't use beef. That is very full of vitamins. I make coconut milk yogurt as a good probiotic to get into DD (http://www.giprohealth.com/Merchant2...y_Code=ProGurt is where I got my starter). She'll dip bananas in it, and I can put it in smoothies.

www.realmilk.com tells you where to find raw milk, state by state

My ds is milk, soy, potato, cocoa free (though he was just challenged on cocoa and seemed to do okay, white potato challenge is tonight -- he decided to challenge himself on everything at once at a holiday party before break and something didn't sit well with him, so I'm trying to figure out what it was). My dd is soy, milk... let me put it this way.. she CAN have: all grains except corn, all meats/fish, banana, almonds, spinach, carrots, celery, sweet potato, onion, olive, coconut, palm, and spices (except for the pepper family which is part of the nightshade family). She's the most restricted on fruits - obviously, which is hard. I know what you're going through though. Trying to figure out what to eat is hard, and the beginning is the hardest, and then it almost becomes "normal".

www.allergygrocer.com is a good source for ingredients. As is Whole Foods and Trader Joes and places like that. I go to an Asian grocery for things like flours (rice flour, glutinous rice flour, tapioca starch, etc) and rice pastas (WAY cheaper than health food stores).

That's a start anyway.

Kathy

Kathy, mother of 3, wife of 1. My new recipe blog: www.kathysrecipebox.wordpress.com (no longer searchable by allergen, but at least it doesn't have a virus!)
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#11 of 47 Old 01-09-2008, 04:15 PM
 
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thanks so much for the responses. I'm off to research!
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#12 of 47 Old 01-10-2008, 01:08 AM
 
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It is time to heal our guts.

DS2 has many food intolerances and is developing more (apples is the newest problem) DS1 only has 3

We are currently doing lots of chicken bone broths, probiotics, saurkraut, CLO.

I have betaine hydrocloride that we use for DS1 to use while eating soy, and I am now considering using it for all three of us for every meal. It was prescribed to DS1 and I by our former naturopath. I also have a multi-enzyme prescribed for me, but not DS1 and I am trying ot decide if I should use it or not. It started getting pricey when we used everything as directed.

We want to do water kefir, but haven't gotten to that point.

I have a few questions.

Why is saurkraut so good? besides the taste? :
is it just the probiotics or does it also have enzymes?

What is the difference between CLO and fish oil? what brand do you use? I use Nordic Naturals but it is expensive.

Children deserve the respect of puzzling it out.
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#13 of 47 Old 01-11-2008, 03:49 PM
 
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Hello all,

I just wanted to let you all know that I have some SCD cookbooks for sale. I'm only posting the sale in the Trading Post for a week, so I wanted you all to get first dibs on them. They are $1 each plus postage. Here's the link

Hugs to all,
Loon

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#14 of 47 Old 01-14-2008, 08:41 PM
 
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I wanted to check in to share my good news with you'all...

We're about four months into this journey now. It seems that my pregnancy triggered a wheat allergy which has caused us alot of other sensitivities. All this was really complicated by the Cesarean- I had avoided abx for 13 years until the surgery! So needless to say my sweet baby got off on the wrong foot and I have been scrambling to get us well ever since.

Thanks to you all it seems we are getting somewhere good. DD has been at baseline since December 10th after I started avoiding all gluten/oats and found a naturopath to help us heal. Well, this week some exciting things are happening for me... we can tolerate celery and onions and garlic again- and TMI, my bowel movements look totally normal for the first time in almost 16 months!!!!!

So I just wanted to thank you'all for your knowledge and wisdom and support, and for walking this path with me...

Lisa

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#15 of 47 Old 01-19-2008, 08:12 PM
 
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Can someone direct me to instructions for making coconut yogurt. Can I use coconut milk in a can? Do I use the same instructions as for dairy yogurt? I have progurt starter. This will be my first attempt. Thanks,
Celeste
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#16 of 47 Old 01-19-2008, 09:24 PM
 
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Enjoy Life makes Gluten, Soy and Dairy free chocolate chips. Actually, I'm pretty sure that they are free of the top eight. They are very good.

<>< Alison
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#17 of 47 Old 01-19-2008, 09:43 PM
 
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Hi All,

Joining the club. My DD, who is 4, was recently diagnosed with gluten/dairy sensitivity. I suspect some allergies/sensitivities as well but can't get in to the allergist until end of Feb. I'm sure all her troubles are from my leaky gut and lack of understanding to deal with things.

DS, who is 5.5 months old, appears to have sensitivity issues as well. I'm currently on a TED trying to get to baseline. I give him dairy free probiotics (Natren) and I take a digestive enzyme at meals. However, i am petrified to expand my supplement routine as I'm afraid he's going to react to the supplements. Already I tried to expand the digestive enzymes & take a high protease enzyme. During that week he got progressively fussier culminating in being up almost all night one night. I cut back to just a broad spectrum enzyme & cut way back on my diet & things have settled somewhat. However, I don't think we're close to baseline.

Glad to be here in good company but sorry that we all have to take this journey.

Mom to DMI & Silly Apple
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#18 of 47 Old 01-22-2008, 02:55 PM
 
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Originally Posted by harmonymama View Post
Can someone direct me to instructions for making coconut yogurt. Can I use coconut milk in a can? Do I use the same instructions as for dairy yogurt? I have progurt starter. This will be my first attempt. Thanks,
Celeste
I want to know this, too.

I'm guessing some brands of probiotics are better than others. Can someone make some suggestions for me to feed to dh in particular though we may all start taking it.

Mom to unschooling 4everboy since 8/01
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#19 of 47 Old 01-22-2008, 04:04 PM
 
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I want to know this, too.
Answering myself.
http://forums.lowcarber.org/showthread.php?t=287507

I don't have a yogurt maker so I just put yogurt in a large glass pyrex container with a lid and put it in the oven. I have an electric oven so I just turn it to barely on. My mom used to make it in the oven of a gas stove with just the heat of the pilot light.

I'm looking forward to trying to make both coconut yogurt and almond milk yogurt.

Mom to unschooling 4everboy since 8/01
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#20 of 47 Old 01-22-2008, 04:35 PM
 
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hey ladies

How were you or your LO diagnosed with food allergies? with tests?
Or did you just do it by yourself?

I am new to this idea of food sensitivities, and although I know DD has a chocolate intolerence (CHOCOLAT!!!) I think there might be something else too, but have no clue what. And after reading and reading, I am getting convinved that I might have something too, but I don't know how to find out for sure.
Seeing a Dr here is very complicated. Any other ways, or place to read about it?
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#21 of 47 Old 02-18-2008, 12:44 PM
 
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Where'e everyone at??

I wanted to introduce myslef and share my story/plan and see if anyone could offer any advice. I have an 18 mo old girl, who has been having digestive problems since she was able to move. We are currently off gluten and dairy which showed remarkable prgress at first (especially with behavoir), but recently I am finding us back to where we started.

Her main "symptom" is pushing on her lower abdomen very hard. She lays down and crosses her legs and pushes her hands, my hands, or whatevr object she can get into her stomach. She will leaves marks, bruises, and scratches on her stomach (I have seen her jam a screwdriver into her stomach. It gets to a point where she cannot play or do anything she just has to have her stomach tense and legs crossed. Also the more she is pushing on her stomach the worse her behavior is. We have spent weeks at a time with her constantly tantruming and pushing on her stomach, with only one or 2 "good" days in between. We are both miserable and on the verge of me having a mental breakdown, so I started researching what could be going on.

I feel like it has to be leaky gut. I was on antibiotics while pregnant and she was vax'd up until 6 months and on antibiotics 3 times before she was 10 mo old. We are eating mostly traditional foods now and I am trying to ferment more things. Also we are taking CLO, a probiotic, and I am planning on starting enzymes (enzymedica- lacto, then adding a protease, then upping the lacto to digest gold, then something for yeast). I think I should take the enzymes too since I am nursing her but I am not sure. For those still with me, any thoughts???
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#22 of 47 Old 02-18-2008, 01:06 PM
 
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cawhilson! That sounds really hard! If my darling children experienced the pain I do sometimes, I don't know what I would do. It sounds like everything you are doing is good, but if I were in your shoes, and DC was in that much pain, I would find a way to see some kind of doc I trusted- naturopath, homeopath, holistic doc who could do stool testing, food allergy testing, etc. Has your child seen a doc?

On another note, my first attempt at coconut yogurt turned out OK, but I don't like how the pectin in it worked out. I think I put too much in. It didn't thicken it at all, and it got way too sweet, plus I don't like the idea of the dextrose in it. DS is allergic to gelatin, so I can't use that. Can anyone help me with how to use pectin? On another thickener? I was thinking of arrowroot. My DS really wants a thick yogurt like he remembers.
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#23 of 47 Old 02-18-2008, 01:19 PM
 
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Thanks for the hugs! Dd has seen a naturopath, chiropractor, and is currently seeing an ND. The ND suggested holding off on allergy testing since it is traumatic for her at that age and can be inconclusive. It is not so much that she is in pain, though she is miserable a lot of the time. She knows how to say hurt and will tell me if something hurts, but she has never given any indication of pain when she is doing her stomach thing. Its like she doesn't want to do her stomach thing, and tries to play, but she just has to do it. I will look into stool testing though. She has suffered sever constipation but (knock on wood) the magnesium seems to be helping....she has actually pooped twice in four days!
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#24 of 47 Old 02-18-2008, 02:41 PM
 
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Hi-
I am subbing. I've been dealing with UC for 20 (!) years now, but lately I'm thinking maybe it's been celiac all along. I remember asking my Gastro to test me several times, and he just about laughed he was so sure of himself. I sent a sample to www.enterolab.com and it came back showing gluten intolerance. I'm now in the process of testing my 7 yr old. He has never really had formed stools, and has lots of vague "stomach hurts" type of complaints. I just wanted to post the link if you are looking for a very non-invasive way to test.

My older two were Csections, too, and the oldest does have a dx of egg allergy. I guess I've always thought we should cut gluten as a family, but it just seemed so hard!! We're definately headed that way, though.

Kristin

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#25 of 47 Old 02-18-2008, 06:04 PM
 
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I 2nd the nod for enterolab tests. They are $$$ (we figured it into our flexible spending so it wouldn't cost as much) but for us, it was worth it.

We just got the results back for my dd & ds last Monday & I was shocked to see that dd has the celiac gene as well as a gluten intolerance gene. I knew she was allergic/sensitive to dairy, but was shocked to see the gluten show up. We also had ds tested for soy & egg & he came back allergic to them. So in addition to being off dairy & gluten, we've added egg & soy to the list.
There's also something about a yeast that there's an allergy too, but I haven't gotten to research that whole thing yet.

I have a probiotic for both of them (iFlora) but it's hard to get it into them b/c the only two things I've been able to mix it into w/ success is applesauce & hummus. I've been taking capsules for forever. I'm thinking of moving to VSL3, depending on what the doc we're seeing on Friday says. I also read a bit about Culturelle, which as a specific strain that is good for food allergies, IIRC, from the book Bacteria for Breakfast. I highly recommend this book.

Once we move, I plan to work on fermented foods, making yogurt, etc. We're moving in 4.5 weeks though so no time for that now.

Well, that's us for now.

cahwilson, you & your dd may need to be on a really strong probiotic. Most probiotics only seem to have a few to 6 or so billion cultures, at the time of manufacture. They need to have that much or much more to have any sort of impact. We have trillions of bacteria in us; for some people, a few billion may not do the trick. And, depending on the strains & how you are taking them (w/ food or w/o), that could impact the potency. I highly recommend Bacteria for Breakfast. It taught me a ton.

Good luck!
Sus

Baby the babies while they're babies so they don't need babying for a lifetime.
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#26 of 47 Old 02-18-2008, 09:20 PM
 
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Ashley, my heart hurts thinking about your little girl. Are you sure you've eliminated all trace dairy and gluten? Oats too? Digestive enzymes are a good idea, but my advice is to start with something gentle and wide spectrum, like Rainbow Light Advanced Enzyme System. You should both be using the enzymes (and CLO, probiotics, etc.) Some L-glutamine or bone broths could certainly help too. Do you think she's pushing on her tummy like she needs counter pressure? Is she gassy? I hope you find some answers.

Things are going well here. We're really liking the chlorella algae, I just ordered a kilo of it. Taslyn is taking CLO and probiotics twice a day, and I think I'll start her on chlorella directly too. We're trialing eggs! Its great to have my energy back, and T is a healthy ball of fire- so I need it just to keep up with her!

Lisa

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#27 of 47 Old 02-19-2008, 12:18 AM
 
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Ashley, my heart hurts thinking about your little girl. Are you sure you've eliminated all trace dairy and gluten? Oats too? Digestive enzymes are a good idea, but my advice is to start with something gentle and wide spectrum, like Rainbow Light Advanced Enzyme System. You should both be using the enzymes (and CLO, probiotics, etc.) Some L-glutamine or bone broths could certainly help too. Do you think she's pushing on her tummy like she needs counter pressure? Is she gassy? I hope you find some answers.

Things are going well here. We're really liking the chlorella algae, I just ordered a kilo of it. Taslyn is taking CLO and probiotics twice a day, and I think I'll start her on chlorella directly too. We're trialing eggs! Its great to have my energy back, and T is a healthy ball of fire- so I need it just to keep up with her!

Lisa
She is pushing like she needs counter pressure. She is so tense when she does it that it is impossible to get her legs uncrossed. You can rock her around, pick her up, doesn't matter she will not relax. At this point it is hard for me to watch her do it. It just breaks my heart. We have cleaned the house of all gluten (oats included). Originally when she started getting worse we thought she must be coming into contact with gluten again and so we were very careful. I literally kept her home for weeks. She has been a bit gassy recently which is unusual for her. I wondered if it could be due to the magnesium.

I am thinking of going with a different probiotic. That iflora for kids looks good. We have been using dr. ron's, which has been great for me but it is pricey. Oh and I mix it with applesauce too. Is that bad? I will have to get that book. Enterolab is out of the question for right now. There is no way we could afford it, but I am keeping it in mind for the future.
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#28 of 47 Old 02-19-2008, 03:17 AM
 
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Originally Posted by mtn.mama View Post
Things are going well here. We're really liking the chlorella algae, I just ordered a kilo of it. Taslyn is taking CLO and probiotics twice a day, and I think I'll start her on chlorella directly too. We're trialing eggs! Its great to have my energy back, and T is a healthy ball of fire- so I need it just to keep up with her!
What are you using the chlorella for?

<>< Alison
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#29 of 47 Old 02-19-2008, 03:32 AM
 
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cawhilson-
When you mentioned switching probiotic, it just made me think of how when I tried Natren probiotics, I was in such pain after one dose that I ended up in the ER 24 hours later. I know of at least one other person who cannot tolerate probiotics. My son also seems to get diarrhea when I put him on probiotics. We are trying to slowly work up to being able to tolerate them. So just be aware that some people have strong reactions. You might try a few days without.

Also, are you off the other big allergens: dairy, corn, soy, eggs, canola? Perhaps she is having a strong reaction to something else. What cooking oil do you use? I am finding that I can't tolerate any oils except olive oil, palm oil, and coconut oil. When I eat very simple, healthy restaurant food, I am in pain. I think it is because I react to the cheap, rancid oils.
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#30 of 47 Old 02-19-2008, 11:41 AM
 
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I didn't know that about the probiotics. I want to try her on iflora...it looks like good stuff and it is about half the price of the dr. ron's. I am also curious what the chlorella is for. Dd just started reacting to soy so that is gone as well as dairy (she has reacted to dairy since she was about 3 months old). I am cooking traditional foods now (fermenting veggies, soaking grains, etc.) and we eat minimal sugar (maple syrup/honey). The only oils I use are coconut and palm. It seems like as time goes on she reacts to more things. I'm so hopeful the enzymes will help that.

On another note what is everyone mixing supplements with for their little ones? I hate to mix it with sugary stuff but I don't know how else to get her to take them. Orange juice and applesauce are what I have been using.
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