Dermoid Cyst? - Mothering Forums

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#1 of 6 Old 03-05-2008, 01:20 AM - Thread Starter
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Has anyone had a dermoid cyst?
I had a CT scan done last Friday, and they saw something that resembled a dermoid cyst. I have an appointment with my gyn on Thursday to confirm. I'm just looking for stories, support, etc.

The ER doctor said it is inside my uterus... but the discharge papers say ovarian. So, I'm not even really sure where it is located.

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#2 of 6 Old 03-05-2008, 11:56 AM
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I was looking at my orginal chart on maternity ward, that what they called my mass at first....I know no help but....
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#3 of 6 Old 03-18-2008, 09:49 AM
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Yes, I can relate! Haven't met many others with this, but I understand it's not deserately unusual.

I had a football-sized ovarian dermoid cyst 13 years ago now, discovered simply because I had to pee more than normal (I noticed it on a ski trip...not easy to pee all the time then! ), so had a scan done. Ultrasound lady had absolutely no bedside manner. I had just turned 19, had never had sex and she did a vaginal ultrasound without any prior info given to me or consent or anything (I had subsequent vag ultrasounds in years after and doctors always gave me the choice and asked me if I was a virgin before any test done). Also, when she was doing the regular ultrasound and going "Hmm..." a lot, I asked her what she could see. She said "I cannot find your left ovary. It has been taken over. But don't worry, you still have another one". No joke. She was horrid.

I was referred to a gynaecological oncologist urgently. It was surgically removed a few days after they found it. The GP I saw didn't know what it was for a day or so, and thought it might have been an agressive cancer, since she had never seen one before.

After the specialist looked for about 10 seconds at the X-ray they did and saw it had bone and teeth growing in it (!!!), he said right away he knew it was a dermoid. After finding out it wasn't actually that serious and definitely nothing like cancer (of course, abdominal surgery is still a big deal), I was very relieved, so went along with the plan to remove it without hesitation.

Surgery all smooth, recovery pretty good. My unplanned C-section 10 years later was an even easier recovery though, which I put down to the fact that the dermoid removal was under general then, and C-sec was an epidural/spinal and I got up and around a lot sooner with the C-sec. I didn't even think twice about the dermoid surgery, since I was just so happy it wasn't something like cancer and I had the surgery so soon after they diagnosed it.

My left ovary is now about 2/3 to 1/2 the size of my right one. The docs said it would still work. I've had 2 pregnancies, with no problems conceiving (but I know the last came from my right ovary). I had annual scans for a few years after the surgery, but that was really for my own peace of mind, since they very rarely re-grow.

I guess my biggest fear now from my experience then is that how can something grow so big and you don't even notice it?! It has made me a little bit of a hypercondriac, in the sense that now if I have any new symptoms of a potential problem I rush off the the doctor to have every test done, just to be safe. It's not as bad now, but for the first few years after finding it, I was a bit anxious about my health.

How are you feeling about the cyst and having surgery? It sounds like the docs haven't given you too much info. I would imagine it's in your ovary, not uterus. Never heard of uterine dermoid cysts. They are relatively common in the ovary, so far as dermoid cysts go. Very interesting growths actually. Did they tell you anything about them? I saw a picture of one cut open. Looked like a bird's nest. Full of hair and skin and bone and teeth and even lung!!! Kinda cool actually.

I hope you are not too worried, but I could understand if you are anxious. If I can give you anymore info, don't hesitate to ask. Hang in will be gone soon!

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#4 of 6 Old 04-17-2008, 12:11 AM - Thread Starter
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So, it's definitely a dermoid (or so they say...) It's around 6 cm right now, on my left ovary, and I'll be having surgery sometime in June.

This will be my 5th surgery (1 cyst removal 9 years ago, and three csections) so a big concern is all of the scar tissue I have. During my last csection, they could not even see my tubes and ovaries because they were so covered in scar tissue. They will be going though the same incision site again (all of my surgeries have been cut through the same place). I'm not that concerned about the cyst, but I am terrified of the surgery.

The first cyst I had was 12 cm large (not a dermoid) and I had NO idea it was there until a routine checkup! It is strange to have something so large growing and have no clue about it.

I'm hoping for a picture of this one

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#5 of 6 Old 04-18-2008, 01:13 PM
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Dermoids can contain several types of tissue. They can grow very large and may occasionally have hair and teeth growing within them - although I don't think that is very common. I've seen several of them while scanning pregnant patients who had no idea they were there. To my knowledge, they are always benign. Best wishes for a speedy recovery
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#6 of 6 Old 04-18-2008, 01:37 PM
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I just wanted to mention that not everyone with a dermoid has them removed. Many people just have serial ultrasound, CT or MRI's to closely monitor them (like every 6 months or so). I am an ultrasound tech and have come across many people who just leave them till they get bigger. 6 cm is moderate sized for a dermoid. Though please note that dermoids are at risk for torsion (twisting - which causes severe pain and death of the ovary)and then you would require emergency surgery anyway.
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