I'd also really appreciate any comforting words you might have. DP is quite distraught, and I'm putting on my brave face but am also worried for our little guy. I just want to do what's best for him. TIA
From a health viewpoint, the surgery was a complete success, and my cousin was thrilled with the cosmetic results. I do remember that he had a highly specialized procedure and travelled out of his home state for the operation. My aunt/uncle waited to see how their son's chest would change as he grew (the heart/lung issues weren't apparent until adolescence), and also to see how *he* felt about how he looked. He was actually quite self-conscious, so they might have gone with surgery for cosmetic reasons alone. If you have any specific questions, I'll be happy to ask my cousin. All the best to your ds!
I hope that helpds and good thoughts & vibes for the health of your baby.
I would personally not want any surgery for me, my child, or anyone, unless I was certain that it was necessary. And if I were convinced that the surgery was needed, I'd still want to wait as late as possible. Maybe a baby wouldn't remember the pain, but pain isn't really something you can avoid in life anyway, and babies are more fragile than older children. (Surgery scares me, but things would most likely be fine.) As to the "locker room" argument - maybe that's something your son would like to decide for himself when he's older?
My older DS (2.5) has it and our Ped has never said anything about surgery! In fact he's never expressed any concern about it. He said it is often inherited (FIL has it, too). And that its basically cosmetic (his is mild, though noticeable to me). He said in rare cases it can cause pressure on the heart/lungs but he wouldn't worry about it.
I've occasionally wondered if DS will be self-conscious about it when he is older but unless it was medically necessary, I would NEVER consider surgery for it- espacially as a baby! I think its actually one of those things thats more noticable to the person (or the mom ) than everyone else.
ETA - if DS decides at some point during adolescence that he would like cosmetic surgery for it, we would consider it, but only if HE chooses.
I hope you are able to find a ped you're happy with. I remember when I first noticed the PE in DS I started googling and came up with all kinds of scary stuff. When I brought him into the ped and asked about it, his reaction really served to ground me. He was really nonchalant about it and just told me what it was (gave it a name: pectus excavatum..which I'd already fighred from the googling ) and basically told me not to worry about it. later, I realized DH father has it too (and he's almost 70 and leads a VERY active lifestyle- two months ago he was alpine skiing in the rockies, and right now he is down in costa rica)- he's had quite an adventurous life so I know it had no detrimental effect on him!
Anyway, I just wanted to offer you some and hope you don't have to worry about this. I really had to think back to when DS was first diagnosed (around the same age as your DS) and I recall feeling really worried and almost ashamed, like maybe I'd done something wrong to cause it fast forward to now, and I barely notice it its just part of who he is. I hope that it is never something that causes him shame or embarrassment (or complications)Our babies are perfect the way they are
He whines about it occasionally from an aesthetic perspective, but to be honest I never would have noticed it if he hadn't pointed it out. I doubt he ever had any locker-room issues over it.
Postpartum doula & certified breastfeeding educator, mama to an amazing girl (11/05) and a wee little boy (3/13).
THIS IS NOT TRUE, at least for many people. PE can cause heart displacement, right ventricle compression, lung capacity reduction, increased respitory infections, shortness of breath as well as psychological issues from having a serious deformity. Find another pediatrician, see if they feel you should have your child checked by a geneticist for a connective tissue disorder (there would be other physical anomalies or illnesses, but many would not show as an infant-I did not have a caved in chest as an infant, mine developed over time) Do research, but there is conflicting info so you will have to just do your best to sort through it! let me know if you have any questions. For now, you will just need to monitor your child, and when they are older, if the deformity progresses, make sure that you don't just rely on echocardiograms-a stress test is necessary as well as lung capacity test, to see if there are problems. My echos were normal, my exercise stress test was not.
Hope the OP finds a good ped who wants to wait and see what happens with your son's heart and lung function before suggesting surgery.
I read your post and wanted to share my story.
My son was born with a Pectus excavatum (sunken chest). The doctors told me everything was fine and not to worry.
About a couple of months ago he started complaining of chest pain and said "that it felt that it was his heart". I took him in to the doctors and they performed a ECG and that was when the bad new came. My sons heart is not beating properly because of his sunken chest, his heart is growing but there is no room in his chest for the growth. This is causing his irregular heart beat, now I am told that I have to take him to a specialist.
My son is 11 years old.
I recommend that you get a second or third opinion.
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