The Thyroid Thread (Part II) - Page 4 - Mothering Forums

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Old 10-26-2008, 06:43 PM
 
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I found out the doctor who I've been transferred to is the one she sees and that she (the doctor) is very helpful and understanding. : So excited to see her!
Congrats! :
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Old 11-05-2008, 09:15 PM
 
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Hello All

Thanks so much for the thread and all the info. I have not read every single post but am trying to catch up. I was diagnosed with Hashimotos 8 month pp...I had a very very difficult time BF...I uses an SNS for 6 months then took domperidone for 10 months and then stopped breastfeeding at 17 months. My dd is now 25 months and wonderful. I am writing today to ask anyone if they have noticed a difference in how their body responds to cuts, bruises or healing. I have noticed a huge difference. My body does not heal like it used to. I have had a huge celulatis infection, and the little scraps just take so long to heal. I take armour and my levels have been in the "normal range for about 6 months now...it took a year to go from a TSH of 39 to 2.0. Any one else heal differently now. I am 34 now and know I am not the same as I was 10 years ago. I am so scared of how my body handle illness. Any stories or suggestions???? Thanks I need some ideas.

Abigayle

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Old 11-05-2008, 09:41 PM
 
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Hello All

Thanks so much for the thread and all the info. I have not read every single post but am trying to catch up. I was diagnosed with Hashimotos 8 month pp...I had a very very difficult time BF...I uses an SNS for 6 months then took domperidone for 10 months and then stopped breastfeeding at 17 months. My dd is now 25 months and wonderful. I am writing today to ask anyone if they have noticed a difference in how their body responds to cuts, bruises or healing. I have noticed a huge difference. My body does not heal like it used to. I have had a huge celulatis infection, and the little scraps just take so long to heal. I take armour and my levels have been in the "normal range for about 6 months now...it took a year to go from a TSH of 39 to 2.0. Any one else heal differently now. I am 34 now and know I am not the same as I was 10 years ago. I am so scared of how my body handle illness. Any stories or suggestions???? Thanks I need some ideas.

Abigayle
I have noticed a change in how I heal also BUT I've also noticed a *big* difference (increase) in my ability to heal if I'm taking "the right" supplements. B-vitamins, CLO, and a good multi-vitamin are essential. I would also suggest getting your adrenal function checked as thyroid dysfunction causes serious stress on your adrenals.
My $0.02.

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Old 11-07-2008, 03:38 AM
 
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Jacqueline-

Thank you for the response. Can I ask you how you take your meds and vitamins. I take my armour first thing in the am. Then I eat. When should I take by Vit B and well I have Nordic Naturals Omega 3's and CLO. If you don't mind what do you ladies with Hashimotos take and when???

With kindness, Abigayle

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Old 11-07-2008, 03:57 AM
 
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Jacqueline-
Thank you for the response. Can I ask you how you take your meds and vitamins. I take my armour first thing in the am. Then I eat. When should I take by Vit B and well I have Nordic Naturals Omega 3's and CLO. If you don't mind what do you ladies with Hashimotos take and when???
With kindness, Abigayle
I don't know if you've checked ithyroid.com yet or not, but there is some *very* good information on there regarding supplements (thanks, TanyaLopez for gently beating that one into my head ).
Here's the supplement list from ithyroid.
I always take my B-vitamins and multi-vite (prenatal presently) with my breakfast since they give your body some natural energy when they "kick in" and I take my CLO at night (though I'm not certain that's when I should be taking it). I take a bunch of other supplements when I'm not fighting nausea from pregnancy but this is what I've "whittled down to" while I'm dealing with that. I take Naturethroid, usually first thing in the morning but lately it's been with breakfast also since that's the best chance I have of it staying down.
Oh, wrt to your experience with bfing, mine was similar although I'm lucky to still be bfing (17 mo). My supply totally tanked about 2 months after ds2 was born and I used the SNS for a few months but (here's why I say I'm lucky) was able to wean off after I got put on thyroid meds. Thankfully this was just around the time that my freezer stash ran out.
I believe "minor" iodine deficiencies have also been shown to decrease the body's natural ability to heal (I can't remember where I read that so check it out, don't take my word) so it really doesn't surprise me that those of us with thyroid problems would see a change in healing.

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Old 11-07-2008, 06:25 PM
 
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Ok reposting here, maybe one of you knows

My sister has Hashimoto's and is TTC now. Her doctor asked her not to take any supplements containing iodine as it could interfere with her current medication (I guess it would result in a too high intake of iodine).
She lives in Europe and the local prenatals contain DHA/folic acid, but not a full range of vitamins and minerals, and she loved the complete prenatals that she saw over here. I've been really looking around, but I can't find a prenatal without iodine.
Does anyone of you know one? That would be awesome and I could bring it to here in January/February (yeah DS's first Europe trip!)

Thanks so much!
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Old 11-08-2008, 06:09 PM
 
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Then this summer a friend of mine said that about 15 years ago, she had chronic UTIs and was sent to an endocrinologist, and her TSH was normal but there was some conversion that wasn't right. They put her on medication and her UTIs went away and she took it for 6-7 years until she got pregnant, when her numbers became normal, and she's been fine ever since.
It sounds like you're heading in the right direction, Kathy. I'm glad you found a doctor who'll help you and I'm wondering how you're feeling now.
Regarding the quote above, if the conversion of T4 to T3 isn't "right", there's usually a zinc or selenium deficiency involved, I believe.

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Old 11-10-2008, 09:22 PM
 
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Hypo here - wow theres lots of posts i only got thru the first 2 pages will hae to come back later lol

I have always supsected i have it and so did my previous family dr. I had and enlarged thyroid gland in my neck that he monitored but when he sent me for blood work it would always fall within a normal enough range that he would just monitor it and never medicated me.

Well i moved and never had a family dr for s afew years till i got preggo with my first though nothing ever came up in my blood work till this time around. Im on baby #3. And for my routine 15 week blood work it was noted that I have Hypothyroidism so FINALLY i am on synthroid for this.

Since being put on it my enlarged thyroid has almost dimished.

Something I later found out was that just because my levels come back as normal accourding to their charts they may not be normal for ME.

My current dr is having me testing reg. while im preggo and will continue to do so after the birth. Its hard to tell how things are different now from being on the meds as i was leaving that horrid first trimester and entering blissful tri #2 when the meds really kicked in.

I dont eat A LOT and my diet has not changed much over the years but i was putting on a lot of weight despite not eating anything. However my first 2 pregnancies i lost an avereage of 20lbs in the first trimester whereas this time around i didnt lose anything just gained despite my morning sickness and lack of eating so i guess my thryoid just finally gave up all together.
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Old 11-10-2008, 11:01 PM
 
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resubbing!

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Old 11-17-2008, 02:45 PM
 
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Wow, I am so grateful for this thread. Already, I don't feel so alone!

After several docs and way too much energy advocating for myself, I was diagnosed with Hashimotos (tsh 117 unmedicated!) and adrenal burnout. I've been on Armour for 8 months and feel much better.

Right now, though, I am REALLY struggling with rage at my husband and no patience for my poor dd.

I just had my tsh tested and it was 1.9. Should I raise my dosage? Does anyone else have experience with rage symptoms and subtle lab results?

I just want to feel joy;(

Thanks everyone. And big hugs to you all.
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Old 11-17-2008, 02:51 PM
 
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Wow, I am so grateful for this thread. Already, I don't feel so alone!

After several docs and way too much energy advocating for myself, I was diagnosed with Hashimotos (tsh 117 unmedicated!) and adrenal burnout. I've been on Armour for 8 months and feel much better.

Right now, though, I am REALLY struggling with rage at my husband and no patience for my poor dd.

I just had my tsh tested and it was 1.9. Should I raise my dosage? Does anyone else have experience with rage symptoms and subtle lab results?

I just want to feel joy;(

Thanks everyone. And big hugs to you all.
Are you being treated for Adrenal Fatigue? There is a thread for that here as well. Personally, I think I would suspect that as the culprit before thyroid for rage issues.

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Old 11-17-2008, 02:56 PM
 
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Kate, that sounds really adrenal. ... just noticed Jacqueline said what I was going to.
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Old 11-17-2008, 03:57 PM
 
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Are you being treated for Adrenal Fatigue? There is a thread for that here as well. Personally, I think I would suspect that as the culprit before thyroid for rage issues.
Totally. For most of my life I would have uncontrollable, shaking rage, and I could tell it was a physical thing, not a psychological thing, yet all doctors wanted to do was give me antidepressants and tranquilizers for it.

When I started hydrocortisone, it went away, as did the hypoglycemia-like attacks.

I spent most of my life feeling like I was 100% batsh!t crazy, and all it was was stressed adrenals from growing up in a family that was batsh!t crazy and having what is essentially PTSD, imo. You would think any shrink worth their salt could figure that one out.

I feel sorry for any doctor who tries to give one of my dcs an antidepressant while I'm alive. They won't know what hit them. :

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Old 11-17-2008, 04:58 PM
 
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Totally. For most of my life I would have uncontrollable, shaking rage, and I could tell it was a physical thing, not a psychological thing, yet all doctors wanted to do was give me antidepressants and tranquilizers for it.

When I started hydrocortisone, it went away, as did the hypoglycemia-like attacks.

I spent most of my life feeling like I was 100% batsh!t crazy, and all it was was stressed adrenals from growing up in a family that was batsh!t crazy and having what is essentially PTSD, imo. You would think any shrink worth their salt could figure that one out.

I feel sorry for any doctor who tries to give one of my dcs an antidepressant while I'm alive. They won't know what hit them. :
You sound just like me! All these anti depressants and very few helped at all. Family situation very similar.
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Old 11-17-2008, 05:37 PM
 
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You sound just like me! All these anti depressants and very few helped at all. Family situation very similar.
If it were not for knowing a few people who were genuinely helped by psychiatrists, I would think the entire field was complete cr@p, based on my own experience. There is so much cookie-cutter medicine being practiced by lousy doctors it just infuriates me. They do so much damage, and they are not held accountable at all because of how difficult it is to prove malpractice, especially in cases involving things like adrenal fatigue, which so many docs don't even believe exists.

There are things in most antidepressants that suppress your thyroid function further, making you sicker, so every time some UAV doc gave us antidepressants they not only misdiagnosed us, they made us sicker.

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Old 11-18-2008, 11:00 AM
 
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Thanks all.

I was wondering if it weren't more adrenal, too. Off to find thosee threads...

Thanks for such a knowledgable, supportive community!
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Old 11-21-2008, 06:47 PM
 
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Bumping to the top....I have a fear that I belong here...
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Old 11-21-2008, 10:58 PM
 
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Bumping to the top....I have a fear that I belong here...
Do you have a doctor's appointment yet?
I know you'd rather not be here, but I think you'll like us. Welcome to the thread.

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Old 11-23-2008, 11:45 PM
 
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No, I'm still trying to find one. I have symptoms consistant with both adrenal and thyroid and know I need to get checked out...but I have two young children so I don't want to waste the time and energy going to ten random doctors till I find one I like and trust. Asking around in my crunchy circles currently...

Ps. thank you... I guess. :P
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Old 12-09-2008, 10:56 PM
 
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So I guess I don't have thyroid problems. I've had it tested twice, both times fasting, which I guess could result in higher numbers, but even so, my numbers are supposedly OK. The last blood test I had, the doctor ordered a free T3, but they didn't run it. Last time they didn't run the free T4, this time they did.

My TSH is 1.949 uIU/mL They list the normal range as .450 - 4.50, but even with the .3 - 3.0 range, I'm within that.

My free T4 is 1.01 ng/dL They list the range as 0.61 - 1.76, and the one site I saw listed it as .7 - 2.0 as the normal range, but I'm within that range too.

Is it still worth going to an endocrinologist to see if it's something else? I don't know much about adrenal fatigue. The only numbers flagged on my report are thyroid and RDW being too high, which could indicate anemia of some sort.
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Old 12-09-2008, 11:17 PM
 
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My (limited) understanding is that the blood test for thyroid function is not as accurate for *bio-available* levels of thyroid function. See this old post of mine with more info: http://www.mothering.com/discussions...&postcount=984

The recommendation is to have *saliva* testing done for progesterone estrogen, testosterone, cortisol, AND thyroid.

ETA: search this thread for saliva testing info.


Pat

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Old 12-10-2008, 12:41 AM
 
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Thanks, Pat.
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Old 12-10-2008, 12:55 AM
 
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Hmm, Viola, I'm in a similar situation. I'm not sure what all was run, but I know I didn't ahve any saliva tests.
My doctor would do anything, but the specialist I saw seemed skeptical of my questions and things I was bringing up. I knew I wasn't going to get very far with her, so I didn't keep talking.

However, my doctor also isn't coming up with many suggestions either.... Her best suggestion was to try the lowest dose of the mildest anti-depressant, to see if it might help, because 'well, it can't hurt and that's the only thing I can think of" (The endo.'s assessment was that I might be depressed and to see my primary doctor for more).

We've been dealing wiht other health issues, so mine/this have been put on the back burner, which is frustrating a bit, but I also can't afford the 75-150 a visit for the naturalpath (or other alternative healers).

The endo did say that I might have had some thyroid condition leftover from pregnancy that got 'caught' by the test I had over the summer. So she did retest me, and those came back in the 'normal' ranges.
But I just got the impression she said that bit to appease me a bit. She was very frank that the lab results my doctor sent her brought up NO concerns for her. It was NOT thryroid or adrenal, and commented several times how my doctor over tested the thyroid (like she just checked off every thryroid test in the book, rather than do a logical assessment, which could very well have some merit, I'm not really sure my doctor had a reason for the tests she sent me for).

Anyways, it's all still frustrating.

Jessica

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Old 12-10-2008, 12:58 AM
 
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Oh, I've been meaning to say I've had really weird thing lately fo in the evening having a very metallic taste in my mouth, especially if I drink some water later.
I had been sick and almost better a week ago when I had some nausea and the weird taste in my mouth.... which I thought maybe I was getting sicker, till I remembered that it had also happened about 2 months ago... which at that time had really freaked me out because the LAST time I'd had something like that was when I was pregnant.
And NO I'm not pregnant and do not wish to be at the moment.

Two nights ago it was sooo strong that I had to ask my dh to taste the water. He looked at me like I had 3 heads.

Anyways just wondering if that makes any sense to anyone--

Jessica

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Old 12-19-2008, 08:02 PM
 
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A long time ago I subbed and read through the first Thyroid thread. Subbing here now but I have a question.

My thyroid results recently came back low and Dr. wants me to start on a "low dose" of Armour thyroid. Would you start the drug immediately and work on the research as time passes--I am buying a few books today--or would you do the research first and wait to start the drug? I'm nervous because this is a lifelong commitment...but I have symptoms that I would like to alleviate and not put off treating.

I trust this doc very much (a friend with Thyroid problems referred me to her and they basically work together on treatment), and she wants me to start on a low dose (can't remember the number) and then see her in 6 weeks to evaluate again. WWYD?
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Old 12-19-2008, 08:26 PM
 
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Gardenmom, you can start drugs and decide to stop later, that's not a problem. You could start, then research and decide if you want to keep treating conventionally, treat partly conventional and partly alternative, or go completely alternative, but you definitely don't need to decide right away.
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Old 12-19-2008, 08:46 PM
 
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Gardenmom, you can start drugs and decide to stop later, that's not a problem. You could start, then research and decide if you want to keep treating conventionally, treat partly conventional and partly alternative, or go completely alternative, but you definitely don't need to decide right away.
:
I started out on L-thyroxine, didn't feel it was doing what I needed it to (but at least I wasn't sleeping for 20 hours of the day anymore), switched to NatureThroid (similar to Armour) and added in more vitamin supplements under the supervision of my ND.
Do what you need to do to get to where you want to be.

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Old 12-27-2008, 06:29 PM
 
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Hi mommas,

Hoping for comiseration and/or tips.

I have hypothyroidism, and have normal TSH levels with Armour Thyroid. We are TTC #2, but it is frustrating because my cycles are SO long (last month I Oed on CD 36). I have lots of EWCM for several patches leading up to Oing.

Any tips to shorten my cycle safely? Anyone else have a long cycle but conceived?

I'd love to share my fertility friend chart, but having trouble figuring out how to do that...

Thanks!
Kate
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Old 12-29-2008, 12:52 AM
 
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Hi mommas,

Hoping for comiseration and/or tips.

I have hypothyroidism, and have normal TSH levels with Armour Thyroid. We are TTC #2, but it is frustrating because my cycles are SO long (last month I Oed on CD 36). I have lots of EWCM for several patches leading up to Oing.

Any tips to shorten my cycle safely? Anyone else have a long cycle but conceived?

I'd love to share my fertility friend chart, but having trouble figuring out how to do that...

Thanks!
Kate
I might be completely off base here, and maybe someone else on this thread will know, but I *think* that the length of your cycle has something to do with adrenal function. You might try asking over on the The Adrenal Fatigue thread.
Of course, I could be completely wrong too.
However, the majority of people suffering from a thyroid condition have an adrenal problem as well, so it might be worth checking out anyway.

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Old 01-01-2009, 11:52 PM
 
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Gardenmom, you can start drugs and decide to stop later, that's not a problem. You could start, then research and decide if you want to keep treating conventionally, treat partly conventional and partly alternative, or go completely alternative, but you definitely don't need to decide right away.
Thanks for the response. I'm having lots of different things happening at once which is confusing things, to say the least. Some if it is dizziness which my doctor didn't think was thyroid related (though I have read some things which say that it might be), liquid draining from one ear on a pretty regular basis. I woke up with a massive case of vertigo yesterday--enough to go the the ER in the ambulance, yikes! It appears that a sinus infection made my dizziness go over the top, so now I'm on antibiotics. (I'd love to hear if anyone on here has had vertigo associated with hypothyroid, please).

I have had two thyroid sonograms about 7 years apart which show 2 really tiny nodules that have not changed during that time. The doctor's don't think they're worth worrying about, though I'm wondering about it now that I've read a bit more on this thread about thyroid cancers.

Also had major blood loss at my son's birth (c-sec) followed by extremely low prolactin (like a man's level) so nursing ds was extremely difficult compared to when I nursed dd. When I looked into this at the time I ran across "Sheehan's syndrome" as a possibility, though it is a rare diagnosis, I guess. I'm keeping that on the back burner for review...

Anyhow, lots of variables are thrown into the mix, so I'm glad to know I'm not stuck with one particular treatment. For now I guess will go with the low dose of Armour and some Vestibular therapy for the inner ear stuff, and hope that I'm going down the right path.
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