Sorry HarleyHalfMoon, I haven't been online for a long time as you already made mention of. I probably have nothing new to offer you, but here is what I do know.
Right now I'm actually with the guru (at least my guru) of cancer knowledge. So I just asked Lisa your question. Her answer is that they will they will have to give chemo to the spinal column on top of regular chemo for ALL. I guess 10% of leukemic patients this occurs in. It does mean that the chances of recovery are less. But it is treatable.
As for what the doctor said. I don't want to be pessimistic so I'm going to say that all dr's are different and some dr's want to prepare their patients for the worst. But honestly we didn't actually hear to prepare ourselves for Caiden's passing until the second relapse happened. Though we all "knew" when he relapsed the first time that his chances of survival were slim. Because of that I'm surprised that the drs are already saying that. To be honest, from what you have told me about your neice all the stats (except for the spinal column cancer) are in her favor. And even that doesn't mean its not curable.
I know its hard but try to be positive. But at the same time, live your life without any regrets, so if the worst does happen... well you know what I'm saying.
I'm sure this post is very disjointed, for that I apologize.
You and your family is in my thoughts.
Pam, momma to Sofie Avye Seth